Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 ! Thank you for the compliment on this group. We have definitely had our ups and downs with people saying things that upset another member. As you said, we are all here for the same reason, to do our best for our kids. With that being said, many things work for some, and not for others. It is all a game. I have been on here for OMG, 7 years already....and this is the best of the best. Rest assured, new members, we have seen and heard it all, and still prevail. Liz > > > Hi , > I remember you wrote about what a great and friendly list this is and I > completely agree with you. Another thing I like about this group is that we > are really really diverse which means we have so many different ways of > raising our kids that we can all help each other with new ideas. When I read > your email below, I thought to myself that you are a strong person who > really knows what works well for your family. I've found that on this list > we're all happier when we preface our emails with the words such as " in my > opinion " or " this has worked for me and it might work for you " instead of > telling each other that we " have to " do something or that it is a definite > fact (even if I believe something is 100 percent true, on this list I > qualify it because others don't believe the same thing and I value that). > Its just small social cues that ensure others on the list aren't made to > feel as though they have somehow done something wrong. We get so much of > that out in the " real world " that we need this list to really be supportive > and encouraging. > Thanks, > > Sent on the TELUS Mobility network with BlackBerry > > Re: need to replace ketchup > > It is all in the upbringing. Raise a child in the way he should go, and > when he gets older he will not depart from it. > He is used to you getting the boxes. He did not just wake up one day and > decide he would not eat any other chicken nuggets except the dinosaur-shaped > ones from Tyson. You trained him to like those by purchasing them. So, now, > if you want to change that, then you have to stop buying those and retrain > him. > Another idea is stop taking him to the grocery store with you. > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it > away but do not > > > > > > > know what she will put on there stir fry, due to rice being > dry. Fried potatoes, > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato > allergy. I > > > > > > > really want to take this away for a few weeks to see if any of > this hyper type > > > > > > > behavior stops. Any suggestions on a sauce or something that > does not have > > > > > > > gluten or casein in it? Keeping in mind spices send her up the > wall. Which > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Sweetie, my son doesn't _demand_ ANY food. He simply refuses to eat it. I am serious that in the heat of a dinnertime meltdown, I've wished that I could somehow force him to eat. I made all the baby food for my oldest...pureed our food that we ate. Everything was organic. We were members at a CSA and got everything fresh from the farm. When was born, I figured I'd do the same. He was never a chart-topper like , but he was consistently above the 75th %ile while he nursed. When it was time to transition to baby food, it all hit the fan. He had trouble learning to eat. Since my purees were not completely smooth (which worked nice for !), I thought maybe jarred food would work better. He did do better on jarred foods but had trouble transitioning to table food. That's when he fell down on the charts. Like, a 25 %ile drop in 3 mos. He got dysphagia therapy at 2 and sensory integration therapy at 3 when he began preschool and started having numerous meltdowns each day. Since then we've had loads of tests, been to numerous specialists, and we did try GF for one summer. But not CF because chocolate milk was a significant source of his daily calories. Did I like that? No. We were in a situation where it was chocolate milk or a feeding tube. It sounds like your kids haven't been in the same situation. Honestly, my oldest and my daughter are somewhat picky and if they were all I knew, I might be sitting here wondering what the big deal is. Maybe I need a childhood anorexia group to answer these diet questions. hasn't gotten that dx, but he has serious control issues and is picky to the point where he'll have a meltdown and become violent to himself and everyone else before he'll eat something he doesn't wNt to eat. Mealtimes are horrible in my house (homework time, too!) and I hate that. I would love for there to be an easy fix. The awful thing is that I'm working very very hard to get food in this kid and he still isn't gaining weight. Sent from my iPhone On Oct 28, 2010, at 10:15 AM, " agirlnamedsuess21 " wrote: > We do not go out to eat and we do not eat from other's houses plus they are homeschooled. I know everything my children eat. > My kids have always *known* that mama is the source for food. (Stims from breastfeeding when younger, I suppose.) > Mama cooks for the entire family. There have been one or two instances that the boys do not eat everything I have cooked, but do I stop cooking that? NO. They eat the other things. For instance when I make meatloaf and maashed potatoes with green beans, they do not like the mashed potatoes. That is okay. They are not starving. > I feel sorry for those stuck in a rut of packaged food and boxes (those who have trained their children to eat junk <--- so sorry to call it that, but it is what it is). Our society has become a microwave and fast food society. Luckily, I did not have much trouble changing from this because we did not eat fast food that often (due to lack of funds to do so) and my boys never ate the Healthy Choice frozen dinners I used to eat. Everything they ate, I had to make for them. For all of my children when they were smaller and ate some stuff from baby food jars, it became the same sort of transition similar to changing from baby food to regular table food. > If your children demanded only breastmilk and baby food for the rest of their lives, would you continue giving it to them for fear they would starve otherwise? > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 " It's all in the upbringing " ??? Really?? I'll be honest--if and Annika's brand of " picky " was the whole extent of my experience with picky eating, I, too, might be sitting and assuming that this is just bad parenting. This list has always been a supportive place. When the rest of the world (or at least that portion of the rest of the world that saw the day's meltdown at Acme) treats me like my parenting caused my kids' autism, people here understand the real story. We may not all deal with meltdowns, head-banging, poop smearing, uncontrollable crying. But we're all dealing with *something*. That's why we're here. If anyone has any concrete ideas for getting *seriously* picky, food-resistant kids to change their eating habits, please do share. And fwiw, yes, trained me to buy dinosaur nuggets. He. Was. Not. Eating. Anything. I would have fed him _anything_ at that point. I even bought non-Feingold food to try to get him to eat--chips and candy at least has calories. But he wasn't interested. I'd tried " tough love " and it failed. I have tried GF for a summer with no results, but I didn't do CF because chocolate milk was one of the few " foods " he would eat, along with string cheese. When your kid is not eating, and getting skinnier and skinnier, you tend to get a whole lot less philosophical about food. I was mostly vegetarian before having kids. That changed. I was hippy-dippy organic cook from scratch momma with my first. That changed. Maybe we should have just gone for a feeding tube. Maybe we still will. Meal times are totally stressful for me. I've explained that just giving him food and not taking no for an answer doesn't work. is not able to be flexible. I've had to be flexible to work with him as much as he's able. It was that or the hospital. Guess that's not " rais[ing] a child the way he should go " . Sent from my iPhone On Oct 28, 2010, at 10:07 AM, " agirlnamedsuess21 " wrote: > It is all in the upbringing. Raise a child in the way he should go, and when he gets older he will not depart from it. > He is used to you getting the boxes. He did not just wake up one day and decide he would not eat any other chicken nuggets except the dinosaur-shaped ones from Tyson. You trained him to like those by purchasing them. So, now, if you want to change that, then you have to stop buying those and retrain him. > Another idea is stop taking him to the grocery store with you. > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 doesn't have DS. My other son does. Sent from my iPhone On Oct 28, 2010, at 10:30 AM, " agirlnamedsuess21 " wrote: > That is perfectly typical on the down syndrome chart. My son (MDS/Autism) is age 7 and wears size 6 clothes. He is around that height and weight. Seems typical to me. He is healthy (not sick) and is growing. You have to look not at pinpointed weight/heights in time, but in the medical field we look at a *growth chart* and how the child grows over a period of time. Every child's growth curve is different. > For my almost 4 year-old, he was born weighing a whopping 8 pounds. He was a chunker. Between 4 and 6 months, he fell off the growth chart. He will be 4 on April 1st. Currently, he weighs(with clothes on) 26.10 pounds and his height is 35 3/8 tall. (He is going on 4.) > He eats, but he is small. He may end up being the tallest and biggest person in the family. Most of the past two years, his plotted weight and height were NOT on a growth curve on the chart. He has just came back onto the *typical* growth curves; but he does have a growth curve and it has increased over time. We have seen GI doctors, allergists, and other specialists. My son is completely normal and healthy and he is at the bottom of the growth chart. > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 The GI Dr says that has moderate to severe muscle wasting. Your son is 4' tall and weighs 42#? is a STICK. He wears a 6 slim (would be a 5 but they're not long enough...this summer he put 's 3's on thinking they were his shorts. They fit his waist fine) with the pull tabs pulled tight. And walks around holding up his pants. Strangers comment on his skinniness. He tires very easily and is very very pale. His bloodwork is fine, but he has problems. Sent from my iPhone On Oct 28, 2010, at 10:30 AM, " agirlnamedsuess21 " wrote: > That is perfectly typical on the down syndrome chart. My son (MDS/Autism) is age 7 and wears size 6 clothes. He is around that height and weight. Seems typical to me. He is healthy (not sick) and is growing. You have to look not at pinpointed weight/heights in time, but in the medical field we look at a *growth chart* and how the child grows over a period of time. Every child's growth curve is different. > For my almost 4 year-old, he was born weighing a whopping 8 pounds. He was a chunker. Between 4 and 6 months, he fell off the growth chart. He will be 4 on April 1st. Currently, he weighs(with clothes on) 26.10 pounds and his height is 35 3/8 tall. (He is going on 4.) > He eats, but he is small. He may end up being the tallest and biggest person in the family. Most of the past two years, his plotted weight and height were NOT on a growth curve on the chart. He has just came back onto the *typical* growth curves; but he does have a growth curve and it has increased over time. We have seen GI doctors, allergists, and other specialists. My son is completely normal and healthy and he is at the bottom of the growth chart. > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 How did they dx the malabsorption, Beth?? Sent from my iPhone > My son will be 11 in Dec. and he wears size 5 clothes and weighs 44 pounds. He > has issues with malabsorption and failure to thrive. > > Beth > > ________________________________ > > To: > Sent: Thu, October 28, 2010 10:30:14 AM > Subject: Re: need to replace ketchup > > > That is perfectly typical on the down syndrome chart. My son (MDS/Autism) is age > 7 and wears size 6 clothes. He is around that height and weight. Seems typical > to me. He is healthy (not sick) and is growing. You have to look not at > pinpointed weight/heights in time, but in the medical field we look at a *growth > chart* and how the child grows over a period of time. Every child's growth curve > is different. > For my almost 4 year-old, he was born weighing a whopping 8 pounds. He was a > chunker. Between 4 and 6 months, he fell off the growth chart. He will be 4 on > April 1st. Currently, he weighs(with clothes on) 26.10 pounds and his height is > 35 3/8 tall. (He is going on 4.) > He eats, but he is small. He may end up being the tallest and biggest person in > the family. Most of the past two years, his plotted weight and height were NOT > on a growth curve on the chart. He has just came back onto the *typical* growth > curves; but he does have a growth curve and it has increased over time. We have > seen GI doctors, allergists, and other specialists. My son is completely normal > and healthy and he is at the bottom of the growth chart. > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it > >away but do not > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. > >Fried potatoes, > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato > >allergy. I > > > > > > > > > > really want to take this away for a few weeks to see if any of this > >hyper type > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does > >not have > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the > >wall. Which > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 My son was also a very picky eater and when I tried gluten free, he lost a lot of weight. He looked like he might die. It was very scarey. Surrounding family was all over me to just give him what he wanted so I did. I got Mcdonalds fries and let him eat. I then started making our own fries and putting them in the Mcdonalds box. He was not so picky that he did not eat them. I am thankful for that. I don't know what I could have done if he would have continued to refuse. I then began to make his favorite foods gluten free and dairy free at first then we went to raw goat milk. He accepted that change. If he would not have accepted it then he just would not have. I could not make him. Just as I can not make him talk. Wish I could. I encountered the same thing with potty training. We worked on that for literally years. Finally, my son got it and used the potty. When people would say, wow! You are really good to train him, I told them, no. If he could not have done it then it didn't matter what I did, he could not have done it. It was not because I did it right or better, it was because he could do it. I did keep trying to help him learn it but he had to be able to learn it. Now I am in the same boat with speech. I keep pushing, encouraging, whatever you want to call it but I want him to talk. If he can do it, I believe he will. If not, then he won't no matter what I try. So, we use pecs and gestures and such but I want him to talk. If he can not do it then he just can't. So we will do the best we can. I don't think I am a bad parent if my son can't do things I want him to. I push for whatever I beleive to be the best choice but I have to deal with what he can do. I understand not letting him starve. I could not do that either. And I do believe that some children will starve themselves. This next part is about my faith so if you don't want to read it then stop here. I thank God in heaven for giving me this precious son with DS and ASD but still today, I ask God to heal him and give him good health and speech. I KNOW God can heal him and if He doesn't there is a reason for it and that is ok. I believe that God gave my son the abilities he has....not me. Yes, I influence my son but if I could make him do what I want then he would be talking in paragraghs! May God give us all the strength, love, peace, comfort, wisdom, and patience we need to take care of these precious little ones he has blessed us with. God bless! To: From: macookson@... Date: Thu, 28 Oct 2010 19:26:51 -0400 Subject: Re: Re: need to replace ketchup " It's all in the upbringing " ??? Really?? I'll be honest--if and Annika's brand of " picky " was the whole extent of my experience with picky eating, I, too, might be sitting and assuming that this is just bad parenting. This list has always been a supportive place. When the rest of the world (or at least that portion of the rest of the world that saw the day's meltdown at Acme) treats me like my parenting caused my kids' autism, people here understand the real story. We may not all deal with meltdowns, head-banging, poop smearing, uncontrollable crying. But we're all dealing with *something*. That's why we're here. If anyone has any concrete ideas for getting *seriously* picky, food-resistant kids to change their eating habits, please do share. And fwiw, yes, trained me to buy dinosaur nuggets. He. Was. Not. Eating. Anything. I would have fed him _anything_ at that point. I even bought non-Feingold food to try to get him to eat--chips and candy at least has calories. But he wasn't interested. I'd tried " tough love " and it failed. I have tried GF for a summer with no results, but I didn't do CF because chocolate milk was one of the few " foods " he would eat, along with string cheese. When your kid is not eating, and getting skinnier and skinnier, you tend to get a whole lot less philosophical about food. I was mostly vegetarian before having kids. That changed. I was hippy-dippy organic cook from scratch momma with my first. That changed. Maybe we should have just gone for a feeding tube. Maybe we still will. Meal times are totally stressful for me. I've explained that just giving him food and not taking no for an answer doesn't work. is not able to be flexible. I've had to be flexible to work with him as much as he's able. It was that or the hospital. Guess that's not " rais[ing] a child the way he should go " . Sent from my iPhone On Oct 28, 2010, at 10:07 AM, " agirlnamedsuess21 " wrote: > It is all in the upbringing. Raise a child in the way he should go, and when he gets older he will not depart from it. > He is used to you getting the boxes. He did not just wake up one day and decide he would not eat any other chicken nuggets except the dinosaur-shaped ones from Tyson. You trained him to like those by purchasing them. So, now, if you want to change that, then you have to stop buying those and retrain him. > Another idea is stop taking him to the grocery store with you. > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Hi Sue, not sure if you noticed the mention of my 2 biological sons in my long winded post... They are now in their 30's. They were brought up with wholefoods before it was mainstream cool. They were allowed-at most-1 hour a WEEK of tv. When we actually owned a tv (by choice did not own tv for looooooooong time) They NEVER had pre-packaged anything in our home. Oops, aside from holiday candies-like trick or treat , etc. They were raised in many states & two countries & so were exposed to a variety of cuisines... amongst other things. They were rarely sick. Got injured more than got sick. At home-under my mother earth clutches-23 years with one son & 18 with the other (he went out of state to university) Today both sons watch massive amounts of tv while simultaneously hooked up to at least one other electronic; both eat " junk " & it shows..... Ahem. Just saying. The best one can HOPE for as a parent is that some things-some good things-actually do stick. In my case, my kids did indeed " depart from it as they got older " . Re the " tree huggin hippie food/tv stuff " choices. On the other hand, they kept some really really good things that they pay forward daily. Which turns out to be of far greater value-for the greater good- than their food choices. Kris > > It is all in the upbringing. Raise a child in the way he should go, and when he gets older he will not depart from it. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 My point was that a *child* under age X does not purchase the dinosaur chicken nuggets (etc...). Mom has to be doing that. P.S. But I guess I did miss that your kids were in thiri 30's (either that or I forgot! -bad working memory) > > > > It is all in the upbringing. Raise a child in the way he should go, and when he gets older he will not depart from it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 That is definitely a problem. Strange thing made my son gain weight (don't laugh). OTC Loratidine 9Rite-Aid brand claritin). It says grape flavor, but is clear. My son at 20# took 1 tsp 3 times a day to ward off allergies (prescribed by the doctor, even though it is OTC). Side effect: he gained 5 pounds in two weeks!!! He continued to gain another pound, but then leveled off. I gave him a break after a couple of months and he now seems to be at a standstill (again). Time to start up the Clairitin again. LOL Talk to your doctor....I cannot see where it would hurt to try it. His dose would probably be double, but you could check the label or ask your doctor. The explanation given by the doctor was that the effect it had on the brain must have triggered an area of the brain that had to do with weight gain. > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it > >away but do not > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. > >Fried potatoes, > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato > >allergy. I > > > > > > > > > > really want to take this away for a few weeks to see if any of this > >hyper type > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does > >not have > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the > >wall. Which > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 , Thanks for the insight. I do blurt my opinions out sometimes and I did not man to offend anyone, but was merely trying to say that the child is not the one purchaing the Dinosaur chicken nuggets. I have found it is better to leave ALL my kids at home when I grocery shop (except sometimes my 12 year-old as she acts as my memory when I am forgetful of something). *My( kids *have* to eat what I make (lest they choose to starve); it is hard when you have had battles with your kids eating, but I have found that I do not have those battles anyone (once I implemented *The Diet* and got rid of all the preservatives.) *Now* they look forward to everything I cook and my son with DS/Autism even comes in and starts *sniffing* what I am cooking and says, " um, good. " (makes me feel good to know he is interested in eating something other than pizza 3 times a day and that he likes and appreciates what I cook) P.S. I do like this group and do not mean to offend, but sometimes the *parent* (in my beliefs) has to play that role. It is hard, but you take your kid to the doctor and document the eating behaviors and then you do what you know to be best for your child. i feel like I have done that and succeeded without any casualties thus far. I have also found that *if my kids can get away with something, including food related complaints*, then they will. > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 My son had similar problems UNTIL we removed casein 9so did one daughter, but they affected her very differently). I was about to recommenda counselor of some sort or group where you could share ideas about eating habits and measures to try, but then you beat me to the ounch. All I am saying is that many times our kids (when i say *our*, I mean our kids with autism) have peculiar behaviors and eating habits due to what is being fed to them. in my son's case (and daughters case too), it was due to casein. My older daughter said it took about 3 weeks before she started feeling differently. (They do say it takes 3 weeks to change a habit). It sounds like you have the will; therefore, there *is* a way. You just have to discover what the problem is, first. No one can solve the problem without first knowing what it is, right? You need to get to the bottom of *why* your son is not eating. (Have you seen a good pediatric neurologist?) > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 What worked for my kids: 3 year-old (born 8#, dropped off the growth chart at 4-6 months of age, diagnosis failure to thrive, then growth failure, then GI visit that said he was not suffering malabsorption....by the way , this kid has ADHD-inattentive, but NO AUTISM at all. At almost 3 and 1/2 he was weighing in at what he should weigh in at ONE YEAR-old; he looked like a 12 month old and wore that size clothes until just recently; then he was diagnosed with mastocytosis-ain simplest form, hives- what helped Loratidine 3 times a day; what else helped, we spoke to the mountain and told him how big he was getting and how much he was growing up to be big like dadddy--kept our sanity anyway---then we removed gluten and casein for him...the loratidine made him gain 5 pounds right away and the GFCF diet made him gain another pound and an ounce. How did I get all of my family to like the GFCF diet? We fakes it till we made it. What do I mean? I found my family's weakness....sweets and chocolate. Everyday, I made something sweet and left it sitting around. Chocolate No bake cookies (gfcf, of course), cupcakes, cookies, pies, fresh banan bread, carrot cake, squash/zuchinni/Spinach cupcakes with CF cream cheese icing. <---You see how this trend went from chocolate to healthy and they knew no better. Now months later, they actually ask what's for dinner.) It is very tough when you have a kid that is not growing and like with my kid he was *declining* on the growth chart (Actually had PROOF he was shrinking by their own records!!!! Yet, they claimed it must have been a mistake...no mistake, he was withering away. Today, everytime I am eating something, between meals of course, (as you must forget all the rules of healthy eating that have been ingrained in your head), my apporaching 4 year old, who nearly weighs 30# and wears twos and thress now says, " I want some. " And I give it to him. HE NEVER SAID THIS EVER BEFORE, but he does now. I must have done something right. If he wants 100% juice (more than the recommended 1/2 cup a day, then I give it to him. If he wants an extra squash/spinach/zucchini cupcake, then I give it to him.<---No harm in a healthy cupcake that he thinks is dessert. I would have done whatever it took to make my son grow, as I did not want to lose him. Was it hard. YES! It was difficult to deal with the older ones in my household nagging and complaining all about nothing. They wanted their choclate reeses and I gave them GFCF choclate no bake cookies instead. They wanted Little Casesar's $5 pizza, and I gave them a $5 GFCF pizza instead. In a few weeks, with all the stuff I kept cooking and they kept loving, then the complaints stopped. Even my husband, whom I now believe to have ASD, stopped turning his nose up and went back fro seconds and thirds. It is training them, but you train them without them knowing what you are doing. > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 My almost 4 year-old has neither Down syndrome nor autism. > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 That is about the size my son wears. Sometimes a 6 regular. But he has pectus excavatum (severe indention of the xyphoid process, which is inherited) and it makes him have a pot belly whether he would normally or not. No, He is not overweight, but kinda small. i cannot expect him to be a giant because our family is small (I am 5'2 " and depending on day, dad is shorter than expected as well). I will try to post a photo. > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 I was referring to what you said about 's 48 " /42# being perfectly normal on the down syndrome growth charts. That may be true, but doesn't have Down Syndrome. Sent from my iPhone On Oct 29, 2010, at 5:43 PM, " agirlnamedsuess21 " wrote: > My almost 4 year-old has neither Down syndrome nor autism. > > > > > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 The ped neurologist is happy with how 's meltdowns at school (we're talking throwing desks, hitting teachers, and slamming his head into walls) are being controlled by Strattera (the third drug we tried--Buspar made him violent, the other one put him in the ER with very low blood pressure, and he can't take stimulants because of the tic disorder. So he gets half a Strattera each day. The neurologist is happy that my usually very sweet and charming child (which is the only side of this guy sees) is no longer a dNger to himself or others at school. He says that being skinny is not a risk factor for disease. But all his other Dr's are waving arms and yelling that he's too thin (figuratively). looks awful. He's tall but sooooo skinny! DH is 6' and 150#, so he's skinny. I'm 5'7 " and was skinny enough to wear DH's jeans back before having kids. I used to run. Anyway, DH and I are both tall but my parents aren't tall and neither were DH's. Dunno how he and I got our tall genes! I think has the something-process you mentioned in another post. His PT wrote it up in her eval when he was an infant. 's rib cage has the same dip that has. Sent from my iPhone On Oct 29, 2010, at 5:27 PM, " agirlnamedsuess21 " wrote: > My son had similar problems UNTIL we removed casein 9so did one daughter, but they affected her very differently). > I was about to recommenda counselor of some sort or group where you could share ideas about eating habits and measures to try, but then you beat me to the ounch. > All I am saying is that many times our kids (when i say *our*, I mean our kids with autism) have peculiar behaviors and eating habits due to what is being fed to them. in my son's case (and daughters case too), it was due to casein. My older daughter said it took about 3 weeks before she started feeling differently. (They do say it takes 3 weeks to change a habit). > It sounds like you have the will; therefore, there *is* a way. You just have to discover what the problem is, first. No one can solve the problem without first knowing what it is, right? You need to get to the bottom of *why* your son is not eating. (Have you seen a good pediatric neurologist?) > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 was born at 8#, 2oz...smaller than but bigger than or Annika at birth. At 6 mos, he was in the 75th %ile...again, different from 's 23# at 6 mos ( is big and tall) but not tiny. But at 9 mos he'd dropped to the 50th %ile. At 1 year, he was below the 10th. weighed 29# at 1. didn't weigh 29# yet by 3! 's hand-me-down jeans go in the pile because is broader like . has no butt and his legs are SOOOO skinny. Anyway, he was holding steady at around the 4th %Ile until this year, when he plummeted off the chart (he's way off). It might be the Strattera. Loratidine is Claritin? I don't know why no one has given us an appetite stimulant for him. This isn't a kid who eats and won't gain weight. He eats less than Annika and MUCH less than . For him, one pancake is a whole meal (and it takes him 45 minutes to eat the stupid thing). He's never been a snacker until this recent yodel kick. A typical day's worth of food this summer would have been 3-4 french toast sticks for bfast, half a ham/cheese lunchable for lunch (he won't eat their cheese) and one stick of string cheese, and one (natural-style) Popsicle if he was outside s lot, and for dinner: 4 chicken nuggets dipped in balsamic vinaigrette. He doesn't drink juice or soda, and only likes Popsicles when it's really hot out. He doesn't EVER eat homemade desserts. I can bribe and Annika with the promise of something sweet for dessert (especially if they helped make it!) but not . He'll happily help cook it but won't eat it. His appetite is very small. When he was little, his OT assured me that he'd eventually get hungry and eat, but he didn't. He easily can spend an hour eating a sandwich. Sent from my iPhone > I was referring to what you said about 's 48 " /42# being perfectly normal on the down syndrome growth charts. That may be true, but doesn't have Down Syndrome. > > > > Sent from my iPhone > > On Oct 29, 2010, at 5:43 PM, " agirlnamedsuess21 " wrote: > > > My almost 4 year-old has neither Down syndrome nor autism. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 He has had endoscopies and has recurrent h pylori infections, which leads to/contributes to malabsorption. We investigated it because he eats and is tube fed thru night and still gains weight VERY slowly if at all. His BMs are usually soft and frequent but also sometimes impacts. Beth Sent from my iPhone > > Beth!! > My son Wesley is 44 pounds and age 10 and wears size 5 or 6.... > he has been given the diagnosis failure to thrive althugh he is full of energy and robust....wondering how you came to the malabsorption conclusion.... > Wes does absorb fats based on his BMsies...they are not white and do not float... > Annie > > 8:04 -0700 > Subject: Re: Re: need to replace ketchup > > My son will be 11 in Dec. and he wears size 5 clothes and weighs 44 pounds. He > > has issues with malabsorption and failure to thrive. > > Beth > > __ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Dear Beth.... Wes had issues with h pylori and we were recommended by a DAN (Defeat Autism Now) an alternative to the heavy antibiotics since antibiotics are especially bad for children with the DS autism diagnosis and actually are accused of being key players in the difficulties our children face. anyway the alternative worked and he tested negative after the treatment....I cannot remember off hand what the supplement was but if you want me to dig through his records to find it I will do it...I have to run out now for several ours though. I fyou are not interested no biggie....Oh Monolaurin was one of the antibacterial and tiviral antifungal supplements I gave him...you can order it online....not a prescription...I was actually giving it to my son on a daiiy basis for awhile after that... there are more things but can't remember offhand.....Annie mom to Wesley age 10 To: From: dehoff5@... Date: Sat, 30 Oct 2010 00:59:49 -0400 Subject: Re: Re: need to replace ketchup He has had endoscopies and has recurrent h pylori infections, which leads to/contributes to malabsorption. We investigated it because he eats and is tube fed thru night and still gains weight VERY slowly if at all. His BMs are usually soft and frequent but also sometimes impacts. Beth Sent from my iPhone > > Beth!! > My son Wesley is 44 pounds and age 10 and wears size 5 or 6.... > he has been given the diagnosis failure to thrive althugh he is full of energy and robust....wondering how you came to the malabsorption conclusion.... > Wes does absorb fats based on his BMsies...they are not white and do not float... > Annie > > 8:04 -0700 > Subject: Re: Re: need to replace ketchup > > My son will be 11 in Dec. and he wears size 5 clothes and weighs 44 pounds. He > > has issues with malabsorption and failure to thrive. > > Beth > > __ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 , You missed the point. My almost 4 year-old does not have Down syndrome either. They (the doctors, etc...) are comparing *his* growth to *their* " typical " kid's growth chart. Well, I guess we are far from typical because my son does not match up to *their* chart. OTOH, my son, who unlike yours has MDS, is only a few pounds more than yours and is typical on *the designated chart they ahve for him*. So, the rhetorical question was " Who are you comparing your son to? " Your son *is* typical, as this is *his* growth pattern. OTOH, *you* as a *mom* are *worried* about *his* growth. (Again, the rhetorical question is " Why? " ) Is it because he does not match up to the charts the doctor has for your child? Is it because the doctors are worried? Or is it because he is a picky eater or does not eat hardly anything? The bottom line was you were worrying yourself to death and spending a lot of time worrying in stead of trying to come up with a different solution. (Nicely, I assume your answer would be " I have tried EVERYTHING. " Maybe...maybe not. I was simply offering other things that I know do work in hopes of helping you help your child, which in turn would help you not be worried. Many people do not like diet change....many people, as a known fact in psychology (my aunt has a degree in that field and works in that field) do not like change period. Not sure why? I know change is hard for me or used to be for many things. > > > > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 pectus excavatum....everyone has a xyphoid process, but some people's cave (think of an excavation by archaeologists) in and some people stick out(carniatum<---Think of carving *out*). Anyways, I have wondered about stratera for my daughter's adhd. Do you know if it has gluten or casein in it? Actually, the one doctor is correct: skinny people are generally healthier. I would actually look, mary, to *other* things and not focus so much on weight or thinness versus plumpness. Does he act alright otherwise? How is the color of his skin, nails, lips? Is his hair thinning or growing at a normal rate? How is the turgor of his skin? This is the nurse in me talking, but you have to always look at the total picture of the child, not just one aspect. If you look at EVERYTHING else and he appears healthy in every other way, then you have to stop worrying yourself. He will pick up on your worry whether it is apparent or not. > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 So, comparing my son to your child at 6months, he is almost the same weight and was not too long ago. Yes, Loratidine is Claritin. I have taken it. it does not taste bad (I never give my kids something i won't take myself or at least try.) > > > > > > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 He isn't eating because his stomach is small.If you want his stomach to stretch, then feed him sweets (if he will eat them). True. Feed him more meals/snacks throughout the day. You need to actually go to a different eating disordes group and find out what makes people gain too much weight. Then all you do, is employ all the rules of bad behavior they tell you (if weight is your major concern). > > > > > > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 is pale. He's always tired, fatigues very easily. He has moderate muscle wasting and is much weaker than others his age. He can do gym class and recess but by the day's end the kid is just done. He has huge sensory issues. His hair is fine, he bites his nails, his skin is very pale and a little dry but no rashes or anything. He has zero stamina and can't handle too much sun in summer or cold in winter. He wants to wear fleece-lined pants all the time but other than that he rarely says " I'm cold " . Plus, he has Asperger's with frequent meltdowns. Though that's somewhat controlled by Strattera. I don't think he's doing fine. My other kids are a lot more robust. DD4 had more stamina for hiking on vacation, and can last a lot longer on bike rides and stuff. gets around the block and is done. Sent from my iPhone On Oct 30, 2010, at 3:27 PM, " agirlnamedsuess21 " wrote: > pectus excavatum....everyone has a xyphoid process, but some people's cave (think of an excavation by archaeologists) in and some people stick out(carniatum<---Think of carving *out*). > Anyways, I have wondered about stratera for my daughter's adhd. Do you know if it has gluten or casein in it? > Actually, the one doctor is correct: skinny people are generally healthier. I would actually look, mary, to *other* things and not focus so much on weight or thinness versus plumpness. > Does he act alright otherwise? How is the color of his skin, nails, lips? Is his hair thinning or growing at a normal rate? How is the turgor of his skin? > This is the nurse in me talking, but you have to always look at the total picture of the child, not just one aspect. If you look at EVERYTHING else and he appears healthy in every other way, then you have to stop worrying yourself. He will pick up on your worry whether it is apparent or not. > > > > > > > > > > > > > > > > > > > > > > > Hailey has to have Heinz ketchup on everything. I would take it away but do not > > > > > > > > > > know what she will put on there stir fry, due to rice being dry. Fried potatoes, > > > > > > > > > > mashed potatoes, meat. All to dry. She has a very mild tomato allergy. I > > > > > > > > > > really want to take this away for a few weeks to see if any of this hyper type > > > > > > > > > > behavior stops. Any suggestions on a sauce or something that does not have > > > > > > > > > > gluten or casein in it? Keeping in mind spices send her up the wall. Which > > > > > > > > > > again is another reason I want her off the ketchup. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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