Re: shouldn't let it ruin your night??!!??!!

[Guest guest]

,

Thanks for the hope with the prednisone. I am going to take it with an open

mind and hope I feel better. Today , had another problme. I have had plurisy 3

times in the past and felt it coming on. This time it felt different as it was

a crushing feeling in my chest when I breathe and gets worse when I lay down.

I was up all night with this so hubby stayed home with the kids so I could go

to the urgent care. I figured better to go there than the doc who would order

me to go somewhere else to get chest xrays. again I have no hope in the

medical profession. The physicians assistant who saw me couldnt make heads or

tails

out of how I was feeling and then had the NURSE tell me I had plurisy again

and she gave me the meds. lovely. I feel like total crap and am completely

disgusted. so I did not pay the copay- told them I forgot my check book and they

can wait a good long time til I feel like paying them. ha what little pleasures

I have. I feel like I wasted my time and made hubby stay home for nothing. I

feel so lousy and just want to give up. I can see how some people decided to

end it all- the constant pain and the medical profession poo pooing us away

like annoying flies. oh well I am going to make lunch for the kiddies and then

lay down for a bit. thank you for your kind words they were appreciated.

hope you have a good day

sandie

[Guest guest]

,

Thanks for the hope with the prednisone. I am going to take it with an open

mind and hope I feel better. Today , had another problme. I have had plurisy 3

times in the past and felt it coming on. This time it felt different as it was

a crushing feeling in my chest when I breathe and gets worse when I lay down.

I was up all night with this so hubby stayed home with the kids so I could go

to the urgent care. I figured better to go there than the doc who would order

me to go somewhere else to get chest xrays. again I have no hope in the

medical profession. The physicians assistant who saw me couldnt make heads or

tails

out of how I was feeling and then had the NURSE tell me I had plurisy again

and she gave me the meds. lovely. I feel like total crap and am completely

disgusted. so I did not pay the copay- told them I forgot my check book and they

can wait a good long time til I feel like paying them. ha what little pleasures

I have. I feel like I wasted my time and made hubby stay home for nothing. I

feel so lousy and just want to give up. I can see how some people decided to

end it all- the constant pain and the medical profession poo pooing us away

like annoying flies. oh well I am going to make lunch for the kiddies and then

lay down for a bit. thank you for your kind words they were appreciated.

hope you have a good day

sandie

[Guest guest]

Sandie--speaking as another gray zone person whose blood work never shows

anything--despite the evils of prednisone it will probably make you feel better.

When I was on 40mg a day I felt like I was in my 40's again (which I am, so I

should feel that way all the time, but I feel like I'm in my 80's) I so

cherished the time I felt normal. I bet you'll be much better in a few days.

Shouldn't let it ruin your night???!!!!??? What the HECK?!!?? I think our

loved ones have a defense mechanism whereby they suffer under the delusion that

attending to pain is a choice. Maybe they can't help it. Just ask him what

kind of a night he would have if someone was sawing off his toes and fingers.

That's what it feels like sometimes.....laura

slmcc93@... wrote:

Well, Today I went back to my rheumy. I told him the MTX doesn't seem to be

working anymore as I have more pain in my hands and feet and basically all

over. I told him when the pain hits my toes and fingers it is hot and throbbing

and actually hits with such intensity that it turns my stomach. What did he say

- nothing. He then told me to forget going to the oncologist and took me off

all my meds. No more plaquenil, mtx and folic acid. He said we " will do an

experiment with prednisone. " I will be taking the prednisone for 3 weeks 20 mg

a

day for two weeks and then tapering off slowly. if that works to help me with

the pain he will put me on a mtx typ drug again. if that doesnt work he is

done with me. He said i " fall in the gray zone. my blood work doesnt show the RA

per say so there is nothing else he can do for me. " He suggested a pain

management doc or my pcp to prescribe pain meds for me but that is it. He does

say I

have psoriatic arthritis.

I am completely disgusted. I am in constant pain- and he doesnt seem to care.

My worry is that I DO have RA and if left untreated I will have a host of

problems later in life and he of course will be long gone. as far as I am

concerned I am done with this doctor(and i use that term loosely) I will however

take

the prednisone for the next 3 weeks and see him but that is it. I have his

appointment on the 15th and my new pcp on the 17th. Things coundt have worked

out better there. so I will then take my records and get a referral for the last

rheumy in my insurance plan. Help everyone has anyone had this type of thing

happen to them and if yes what have you done? any and all advice is greatly

appreciated. I am at the end of my rope at 34years old. I cant take it anymore.

i jsut want to not have pain. The only good thing this guy did was give me a

script for the lortab and 2 refills. but ven there I am just tired of the pain

meds as they dont even give much relief.

sorry to complain so much i am just so tired. then dear hubby said " you

shouldnt let it ruin your night " UGH!!!!!!! I will not even get into that!

hugs to all

sandie

[Guest guest]

Sandie--speaking as another gray zone person whose blood work never shows

anything--despite the evils of prednisone it will probably make you feel better.

When I was on 40mg a day I felt like I was in my 40's again (which I am, so I

should feel that way all the time, but I feel like I'm in my 80's) I so

cherished the time I felt normal. I bet you'll be much better in a few days.

Shouldn't let it ruin your night???!!!!??? What the HECK?!!?? I think our

loved ones have a defense mechanism whereby they suffer under the delusion that

attending to pain is a choice. Maybe they can't help it. Just ask him what

kind of a night he would have if someone was sawing off his toes and fingers.

That's what it feels like sometimes.....laura

slmcc93@... wrote:

Well, Today I went back to my rheumy. I told him the MTX doesn't seem to be

working anymore as I have more pain in my hands and feet and basically all

over. I told him when the pain hits my toes and fingers it is hot and throbbing

and actually hits with such intensity that it turns my stomach. What did he say

- nothing. He then told me to forget going to the oncologist and took me off

all my meds. No more plaquenil, mtx and folic acid. He said we " will do an

experiment with prednisone. " I will be taking the prednisone for 3 weeks 20 mg

a

day for two weeks and then tapering off slowly. if that works to help me with

the pain he will put me on a mtx typ drug again. if that doesnt work he is

done with me. He said i " fall in the gray zone. my blood work doesnt show the RA

per say so there is nothing else he can do for me. " He suggested a pain

management doc or my pcp to prescribe pain meds for me but that is it. He does

say I

have psoriatic arthritis.

I am completely disgusted. I am in constant pain- and he doesnt seem to care.

My worry is that I DO have RA and if left untreated I will have a host of

problems later in life and he of course will be long gone. as far as I am

concerned I am done with this doctor(and i use that term loosely) I will however

take

the prednisone for the next 3 weeks and see him but that is it. I have his

appointment on the 15th and my new pcp on the 17th. Things coundt have worked

out better there. so I will then take my records and get a referral for the last

rheumy in my insurance plan. Help everyone has anyone had this type of thing

happen to them and if yes what have you done? any and all advice is greatly

appreciated. I am at the end of my rope at 34years old. I cant take it anymore.

i jsut want to not have pain. The only good thing this guy did was give me a

script for the lortab and 2 refills. but ven there I am just tired of the pain

meds as they dont even give much relief.

sorry to complain so much i am just so tired. then dear hubby said " you

shouldnt let it ruin your night " UGH!!!!!!! I will not even get into that!

hugs to all

sandie

[Guest guest]

Sandie, Are you recovering from your pleurisy yet? Hope you're on the mend.

Pleurisy is especially difficult because you can't just STOP BREATHING while you

wait to get better. At least it never worked for me hahaha....laura

slmcc93@... wrote:,

Thanks for the hope with the prednisone. I am going to take it with an open

mind and hope I feel better. Today , had another problme. I have had plurisy 3

times in the past and felt it coming on. This time it felt different as it was

a crushing feeling in my chest when I breathe and gets worse when I lay down.

I was up all night with this so hubby stayed home with the kids so I could go

to the urgent care. I figured better to go there than the doc who would order

me to go somewhere else to get chest xrays. again I have no hope in the

medical profession. The physicians assistant who saw me couldnt make heads or

tails

out of how I was feeling and then had the NURSE tell me I had plurisy again

and she gave me the meds. lovely. I feel like total crap and am completely

disgusted. so I did not pay the copay- told them I forgot my check book and they

can wait a good long time til I feel like paying them. ha what little pleasures

I have. I feel like I wasted my time and made hubby stay home for nothing. I

feel so lousy and just want to give up. I can see how some people decided to

end it all- the constant pain and the medical profession poo pooing us away

like annoying flies. oh well I am going to make lunch for the kiddies and then

lay down for a bit. thank you for your kind words they were appreciated.

hope you have a good day

sandie

[Guest guest]

Sandie, Are you recovering from your pleurisy yet? Hope you're on the mend.

Pleurisy is especially difficult because you can't just STOP BREATHING while you

wait to get better. At least it never worked for me hahaha....laura

slmcc93@... wrote:,

Thanks for the hope with the prednisone. I am going to take it with an open

mind and hope I feel better. Today , had another problme. I have had plurisy 3

times in the past and felt it coming on. This time it felt different as it was

a crushing feeling in my chest when I breathe and gets worse when I lay down.

I was up all night with this so hubby stayed home with the kids so I could go

to the urgent care. I figured better to go there than the doc who would order

me to go somewhere else to get chest xrays. again I have no hope in the

medical profession. The physicians assistant who saw me couldnt make heads or

tails

out of how I was feeling and then had the NURSE tell me I had plurisy again

and she gave me the meds. lovely. I feel like total crap and am completely

disgusted. so I did not pay the copay- told them I forgot my check book and they

can wait a good long time til I feel like paying them. ha what little pleasures

I have. I feel like I wasted my time and made hubby stay home for nothing. I

feel so lousy and just want to give up. I can see how some people decided to

end it all- the constant pain and the medical profession poo pooing us away

like annoying flies. oh well I am going to make lunch for the kiddies and then

lay down for a bit. thank you for your kind words they were appreciated.

hope you have a good day

sandie

[Guest guest]

,

My plurisy seems to be getting better and I think it may be from the

prednisone. I am so extremely tired though and that is probably due to my low

wbc

count and my being anemic. I just rest when I can. How are things going with

you?

take care

sandie

[Guest guest]

,

My plurisy seems to be getting better and I think it may be from the

prednisone. I am so extremely tired though and that is probably due to my low

wbc

count and my being anemic. I just rest when I can. How are things going with

you?

take care

sandie

[Guest guest]

Hi Sandie,

Thanks for asking. The rheumatologist upped my methotrexate and lowered my

prednisone so I'm totally wiped, but right now I'm in a pretty good emotional

state despite the continuing nerve pain and fatigue. (You males may want to

skip the rest of this paragraph--it's female stuff) The reason for me being

grateful and relieved is that the severe vaginal pain that I've sufferred for

over seven years seems to have disappeared. It went away the third week I was

on methotrexate, but I wonder if that's what did it or not. I was under the

impression that the vaginal pain was part of the whole fibro thing instead of

the arhtiritis thing. The dr. said that it could still be the mtx and that an

inflamed vertebra could have been affecting the nerve and sending signals to my

brain that I was having pain in that area of my body. I can't tell you what a

relief it is. For years I had almost constant pain in that area--worse at night

when I would try to sleep. Before I finally found a dr.

to give me something for pain I used to take Benadryl, tylenol, valerian root

and melatonin and go to sleep with an ice pack between my legs. It was the only

way I could get even a couple of hours. Then suddenly it was just GONE. So

weird. After all those years. It's such relief. I am much better at handling

joint and muscle pain than the other.

The moral of this story is " never give up! " You just never know when a symptom

will get better out of the blue. There's always hope.

I'm glad the pleurisy is resolving.

Take care,

laura

slmcc93@... wrote:

,

My plurisy seems to be getting better and I think it may be from the

prednisone. I am so extremely tired though and that is probably due to my low

wbc

count and my being anemic. I just rest when I can. How are things going with

you?

take care

sandie

[Guest guest]

Hi Sandie,

Thanks for asking. The rheumatologist upped my methotrexate and lowered my

prednisone so I'm totally wiped, but right now I'm in a pretty good emotional

state despite the continuing nerve pain and fatigue. (You males may want to

skip the rest of this paragraph--it's female stuff) The reason for me being

grateful and relieved is that the severe vaginal pain that I've sufferred for

over seven years seems to have disappeared. It went away the third week I was

on methotrexate, but I wonder if that's what did it or not. I was under the

impression that the vaginal pain was part of the whole fibro thing instead of

the arhtiritis thing. The dr. said that it could still be the mtx and that an

inflamed vertebra could have been affecting the nerve and sending signals to my

brain that I was having pain in that area of my body. I can't tell you what a

relief it is. For years I had almost constant pain in that area--worse at night

when I would try to sleep. Before I finally found a dr.

to give me something for pain I used to take Benadryl, tylenol, valerian root

and melatonin and go to sleep with an ice pack between my legs. It was the only

way I could get even a couple of hours. Then suddenly it was just GONE. So

weird. After all those years. It's such relief. I am much better at handling

joint and muscle pain than the other.

The moral of this story is " never give up! " You just never know when a symptom

will get better out of the blue. There's always hope.

I'm glad the pleurisy is resolving.

Take care,

laura

slmcc93@... wrote:

,

My plurisy seems to be getting better and I think it may be from the

prednisone. I am so extremely tired though and that is probably due to my low

wbc

count and my being anemic. I just rest when I can. How are things going with

you?

take care

sandie

[Guest guest]

What great news . It makes sense that it could have been coming

from your spine. My husband ruptured disks in his lower back and it

caused his 2 middle toes to loose feeling.

Hopefully you will adjust to your meds and tolerate them better and

get even more relief.

a

On Nov 1, 2005, at 9:10 AM, Bauman wrote:

> Hi Sandie,

>

> Thanks for asking. The rheumatologist upped my methotrexate and

> lowered my prednisone so I'm totally wiped, but right now I'm in a

> pretty good emotional state despite the continuing nerve pain and

> fatigue. (You males may want to skip the rest of this paragraph--

> it's female stuff) The reason for me being grateful and relieved is

> that the severe vaginal pain that I've sufferred for over seven

> years seems to have disappeared. It went away the third week I was

> on methotrexate, but I wonder if that's what did it or not. I was

> under the impression that the vaginal pain was part of the whole

> fibro thing instead of the arhtiritis thing. The dr. said that it

> could still be the mtx and that an inflamed vertebra could have

> been affecting the nerve and sending signals to my brain that I was

> having pain in that area of my body. I can't tell you what a

> relief it is. For years I had almost constant pain in that area--

> worse at night when I would try to sleep to give me something for

> pain I used to take Benadryl, tylenol, valerian root and melatonin

> and go to sleep with an ice pack between my legs. It was the only

> way I could get even a couple of hours. Then suddenly it was just

> GONE. So weird. After all those years. It's such relief. I am

> much better at handling joint and muscle pain than the other.

>

> The moral of this story is " never give up! " You just never know

> when a symptom will get better out of the blue. There's always hope.

>

> I'm glad the pleurisy is resolving.

>

> Take care,

> laura

[Guest guest]

What great news . It makes sense that it could have been coming

from your spine. My husband ruptured disks in his lower back and it

caused his 2 middle toes to loose feeling.

Hopefully you will adjust to your meds and tolerate them better and

get even more relief.

a

On Nov 1, 2005, at 9:10 AM, Bauman wrote:

> Hi Sandie,

>

> Thanks for asking. The rheumatologist upped my methotrexate and

> lowered my prednisone so I'm totally wiped, but right now I'm in a

> pretty good emotional state despite the continuing nerve pain and

> fatigue. (You males may want to skip the rest of this paragraph--

> it's female stuff) The reason for me being grateful and relieved is

> that the severe vaginal pain that I've sufferred for over seven

> years seems to have disappeared. It went away the third week I was

> on methotrexate, but I wonder if that's what did it or not. I was

> under the impression that the vaginal pain was part of the whole

> fibro thing instead of the arhtiritis thing. The dr. said that it

> could still be the mtx and that an inflamed vertebra could have

> been affecting the nerve and sending signals to my brain that I was

> having pain in that area of my body. I can't tell you what a

> relief it is. For years I had almost constant pain in that area--

> worse at night when I would try to sleep to give me something for

> pain I used to take Benadryl, tylenol, valerian root and melatonin

> and go to sleep with an ice pack between my legs. It was the only

> way I could get even a couple of hours. Then suddenly it was just

> GONE. So weird. After all those years. It's such relief. I am

> much better at handling joint and muscle pain than the other.

>

> The moral of this story is " never give up! " You just never know

> when a symptom will get better out of the blue. There's always hope.

>

> I'm glad the pleurisy is resolving.

>

> Take care,

> laura