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Re:Body temperature

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Same with DJ. If he has a 98.6 temp, then he has a fever!

We used footie pjs as well but now use sweat pants & thermal long sleeves to

keep DJ warm during chilly times. We have also used a sweatshirt & sweatpants.

Old Navy & Gap have some with fleece linings.

Before DJ gained mega weight due to thyroid malfunction, he was very thin &

always cold. He is still cool to the touch & chills easily but does not seem to

go teeth shivering/mottled cold as often now that he is " fatter " . The only time

I have seen any sweat is if he has too many blankets & then only around his

hairline-no where else.

Kris, DJ age 15 DS/RAD-asthma/hypothyroid & speaks martian on occassion

>

> Nick's normal body temp is 96.8, most of the time! Has been since birth.

> Joni, Nick, 13, DS/ASD

> Schuylerville, NY

>

>

>

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Same with DJ! Ear exploded one night at dinner table-no temp. Last year

pneumonia (a weird kind that manifests hives)-no temp. As a toddler, if he had

98 or 99, I knew he was very sick although no symptoms showed. One year he had

strep, ear infection,bronchitis & eppiglottis(spelling?) ALL at the same time-no

temp or outward symptoms. Only way I knew something was wrong was finding him

crawling from his bedroom because he could not stand or walk. Always sudden

onsets. ER runs always from 1am-4am.

For years, docs would look at me so strangely or try to argue when I would

insist that something was wrong-based on innocent sounding telltale signs or

affect (like stinky poop or loud voice or strange sleep positions)Because DJ

presented with no fever or actual disease symptoms at the time of the dr visit.

After further assessments I was shown to be correct.

I was ALWAYS correct & I am so very weary of having to do this every single time

we seek medical intervention. I swear to the heavans that I feel like I now

have this invisible cord/chain that automatically attaches to whatever doc that

enters the exam room. Which I yank if they try to leave without a dx or

treatment plan or explaination...

Sigh, I swear it is there-comes from years of 4'8 " me getting in their navels

until they listened....

Surprisingly, the ones that listened & actually saw & promptly acted were the ER

beings. Without fail. Then again, they got to witness all the really hairy

stuff while follow ups with regular docs were usually of the non ER variety.

Don't even get me started on ear thermometers...The ENT told us early on to

NEVER rely on these because of the minute size of DJ's ear holes. But, I had to

argue this doctor relayed info for years & still do on occassion.

Ya would think that by now we would all qualify for some type of

medical/therapy/dietician degree! LOL, or some sort of private investigator

being....

Hugs.

Kris

> > >

> > > Nick's normal body temp is 96.8, most of the time! Has been since birth.

> > > Joni, Nick, 13, DS/ASD

> > > Schuylerville, NY

> > >

> > >

> > >

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