Re: Shane/Sara/Sherry and back to MArgaret

August 31, 2010

I think we don't have to persuade or convince anyone of anything. We just

have to live with the cards we are dealt. Elie's mom and dad gave him away

when he 'only had DS " . Now we know that is no big deal. HAve I regretted

adopting him now that I know about ASD? No - not regretted, but the last 20

years would have been much different if he had only the DS.

So I am thinking that we serve as a support for people who are whwere they

are on their journey - maybe where we have been or have yet to be, but

support.

And right on MArgaret - we lall have very different opinions on selective

genetic abortion - or any other medical dcision. But our role I am thinking

is to support what ever the person decides - not for us to tell them what to

do, but to offer possibilities.

>

> <<Yes! we are Down Syndrome's " dirty little secret " in my opinion. Not

> only that

> but we are Autism's " dirty little secret " as well. >>

>

> Hi, Everyone.....I, too, have left the DS groups because of the 'issues'

> listed in your posts. As for starting a DS/ASD group, my heart would break

> for all the parents trying to decide to have an abortion or keep their baby

>

> with DS. If we all knew what we knew now, would we opt for the DS/ASD baby

> that we are carrying? I realize there are no 'markers' for dx'g ASD in the

> womb, but, to me, that would be a major strike in trying to convince a

> parent to carry their child through the pregnancy if there is such a high

> chance for ASD, too. How many times has someone said, it's not the DS, it's

>

> the autism I would get rid of? There are many parents out there that don't

> need much *concern's* to follow through with an abortion (and I refuse to

> get into that topic) . How can we put a positive perspective on our kids

> when no one wants to be around them when they are at their worst behaviors?

>

> Does that make sense? I love Gareth and he has made my life so much

> stronger and with so much more meaning, but..............there were yrs

> when it

> hasn't been an easy road traveled.

>

> Take care, Everyone.

> Margaret

>

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