Re: Digest Number 4917

[Guest guest]

i hope that i'm doing the right thing by replying to this digest, i guess

i'll find out if this comment doesn't get posted!

thanks for the welcome guys, i allowed myself one day of feeling sorry for

myself and that's it (and it was last night).

the doc wants to see me in a 6 weeks or so to do more blood tests as i have

a virus at the moment and he wants to make sure that that isn't causing the

high reading so i guess we'll discuss meds, referrals etc then. i know in

my heart that i do have it cause i have all the symptoms ugh

i have pain most days with a back injury so i guess coping with the pain of

ra isn't going to be too different lol

i'm so glad that i found this group as you do need people who understand

(people who don't have it can't understand)

take care all and i will update when i can

cheers

mel

last rheummy visit

>

> Hello to all,

> I post very rarely anymore for a variety of reasons but I thought I would

> post an update. I started doxycycline three months ago. I thought it

> was

> going to be the magic pill, but it was not. It was causing really bad

> nausea and

> last weekend made me vomit. So since my lapband weight loss surgery

> vomiting is not good, so my rheummy stopped it.

>

> He switched me to plaquinel. I have not gotten the RX filled yet. I

> will

> try to get to the pharmacy before the end of the week. I'm not too

> thrilled

> about this eye exam stuff. I guess when I get around to it I will make

> an

> appnt for an annual eye exam. Once a year will have to do cause that is

> all my

> insurance will cover no matter what the reason. Though my past track

> record

> has not been very good with meds...so I am not too worried at this point

> about needing another exam six months from now! LOL

>

> He really did not talk about options if this does not work. I know

> Enbrel,

> Arava and MTX are on my WILL NOT take ever again list. So I guess that

> leaves me with Remiciade which I also WILL NOT take due to horrible venous

> access

> and Humira which I also said not too because even my rheummy agrees it

> burns

> like heck due to the preservative they put in it.

>

> He talked about Azulphazine...but I can't take that either because I am

> allergic to it. I called the pharmacy because when my old rheummy wanted

> to

> prescribe plaquinel before he said he was unable to due to my list of drug

> allergies...so this is making me wonder if its even safe to take. I

> called the

> pharmacist again and she said that plaquinel was safe for me to take...but

> who

> knows. I am probably wasting money on yet another bottle of pills to

> throw

> away!

>

> He also said due to the look of my toes that I had some bone erosions.

> He

> did not do Xrays as I had them done about three months ago.

>

> I am really getting tired of all the drugs and doctors visits periods.

> If

> this new drug does not work...and I am done...NO MORE drugs.

>

> So wish me luck.

>

> Toni

>

>

>

[Guest guest]

i hope that i'm doing the right thing by replying to this digest, i guess

i'll find out if this comment doesn't get posted!

thanks for the welcome guys, i allowed myself one day of feeling sorry for

myself and that's it (and it was last night).

the doc wants to see me in a 6 weeks or so to do more blood tests as i have

a virus at the moment and he wants to make sure that that isn't causing the

high reading so i guess we'll discuss meds, referrals etc then. i know in

my heart that i do have it cause i have all the symptoms ugh

i have pain most days with a back injury so i guess coping with the pain of

ra isn't going to be too different lol

i'm so glad that i found this group as you do need people who understand

(people who don't have it can't understand)

take care all and i will update when i can

cheers

mel

last rheummy visit

>

> Hello to all,

> I post very rarely anymore for a variety of reasons but I thought I would

> post an update. I started doxycycline three months ago. I thought it

> was

> going to be the magic pill, but it was not. It was causing really bad

> nausea and

> last weekend made me vomit. So since my lapband weight loss surgery

> vomiting is not good, so my rheummy stopped it.

>

> He switched me to plaquinel. I have not gotten the RX filled yet. I

> will

> try to get to the pharmacy before the end of the week. I'm not too

> thrilled

> about this eye exam stuff. I guess when I get around to it I will make

> an

> appnt for an annual eye exam. Once a year will have to do cause that is

> all my

> insurance will cover no matter what the reason. Though my past track

> record

> has not been very good with meds...so I am not too worried at this point

> about needing another exam six months from now! LOL

>

> He really did not talk about options if this does not work. I know

> Enbrel,

> Arava and MTX are on my WILL NOT take ever again list. So I guess that

> leaves me with Remiciade which I also WILL NOT take due to horrible venous

> access

> and Humira which I also said not too because even my rheummy agrees it

> burns

> like heck due to the preservative they put in it.

>

> He talked about Azulphazine...but I can't take that either because I am

> allergic to it. I called the pharmacy because when my old rheummy wanted

> to

> prescribe plaquinel before he said he was unable to due to my list of drug

> allergies...so this is making me wonder if its even safe to take. I

> called the

> pharmacist again and she said that plaquinel was safe for me to take...but

> who

> knows. I am probably wasting money on yet another bottle of pills to

> throw

> away!

>

> He also said due to the look of my toes that I had some bone erosions.

> He

> did not do Xrays as I had them done about three months ago.

>

> I am really getting tired of all the drugs and doctors visits periods.

> If

> this new drug does not work...and I am done...NO MORE drugs.

>

> So wish me luck.

>

> Toni

>

>

>

[Guest guest]

Tess,

Thank you for your input on Humira. I have thought long and hard on this

one after trying Enbrel. I am NOT interested in any of the " designer "

treatments. I will not take any injectables or IV meds now or in the future.

I

shared that with my new rheummy. I guess he is OK with it. He really had no

comment. I basicly gave him the list of what I had been prescribed in the past

and of course none of it worked and all had horrible side effects for me. I

let him know I will NEVER take those again and not to even suggest to me the

names of those drugs. There is also the problem of cost with the new group

of RA meds...LOL...I call them designer drugs or frankenstein meds! LOL My

insurance coverage for those is limited or there is none....so wasting money on

stuff that does not work is a big issue with me. I just do not have the

money to waste and I won't do it.

I let him know how my old rheummy treated me...basicly like a piece of meat.

No matter what I told him or how much I complained about side effects, if

my labs were good then he said keep taking whatever he wanted me on. After

about 6 months of that I finally stopped saying anything and did whatever I

wanted. If a med made me sick I stopped taking it or took it if I remembered

and felt the need. Many times I would leave his office and throw the Rx in the

trash right outside the door and keep walking. He was so stupid and would

not listen he did not even know I was lying to him and obviously he was NOT

really monitoring my labwork as he said he was. I let him know that WILL NOT

happen again. I will not take meds that make me sick nor will I put up with a

doc that does not listen. I don't care if he is the only one within 100

miles....I told him if he treated me poorly I would stop seeing anyone...which

in

all honesty is fine with me!

I am freaked by this whole plaquinel thing. I spoke with the support group

and was told the info on this med. I dropped it off at the pharmacy

yesterday and they had a 2.5 hr wait so I left it until today. Now after

hearing all

the stories I am not even sure I want to go pick it up. I have eye coverage

but only for annual routine eye exam...that is only ONE exam every 12 months

no matter what the reason. So I am not even sure I want to start this drug

if I can not keep up with the eye exams. I had many of the other ladies tell

me it made them sick to there stomach for the first few months and anytime

the dosage changed. That was NOT encouraging. That is the reason the doc

stopped Doxycylcine cause it was making me nauseated and then I would start

vomiting. So now I am in a dellemia about taking plaquinel.

When I went to drop it off I was going to ask if I could just buy 7 pills

and see if they make me sick....if not I would fill the rest of the script.

But I didn't bother after standing in line for 30 mins just to drop them off.

I was told it could take 5-6 months before I know if the plaquinel is going

to work. Hmmm...if it makes me sick I will NOT stay in it that long just to

see if its working. I did this with MTX and I will not be stupid like that

again. No drug is worth staying on and being sick as a dog with side

effects...I was too sick to enjoy any benefits the drug did have.

Well, I have decisions to make.....I will decide by the end of the day if I

am going to take this at all.

Toni in Texas

In a message dated 9/13/2005 4:13:21 P.M. Central Daylight Time,

writes:

Date: Tue, 13 Sep 2005 10:40:34 -0700

From: " Grammi B " <grammi_love@...>

Subject: Toni~ last rheummy visit

(((((((((((((Toni)))))))))))))))) ... I am sorry things are rough. I

certainly wish you well in finding a med. Just my own experience, but Humira

has

not been a bad experience for me at all...I'm on it once a week and have been

so for maybe 18 months. On one occasion I did feel a slight burn, but

otherwise, no problem.

In any event, know I am pulling for you.

Love & prayers...

Tess in Oregon

[Guest guest]

Tess,

Thank you for your input on Humira. I have thought long and hard on this

one after trying Enbrel. I am NOT interested in any of the " designer "

treatments. I will not take any injectables or IV meds now or in the future.

I

shared that with my new rheummy. I guess he is OK with it. He really had no

comment. I basicly gave him the list of what I had been prescribed in the past

and of course none of it worked and all had horrible side effects for me. I

let him know I will NEVER take those again and not to even suggest to me the

names of those drugs. There is also the problem of cost with the new group

of RA meds...LOL...I call them designer drugs or frankenstein meds! LOL My

insurance coverage for those is limited or there is none....so wasting money on

stuff that does not work is a big issue with me. I just do not have the

money to waste and I won't do it.

I let him know how my old rheummy treated me...basicly like a piece of meat.

No matter what I told him or how much I complained about side effects, if

my labs were good then he said keep taking whatever he wanted me on. After

about 6 months of that I finally stopped saying anything and did whatever I

wanted. If a med made me sick I stopped taking it or took it if I remembered

and felt the need. Many times I would leave his office and throw the Rx in the

trash right outside the door and keep walking. He was so stupid and would

not listen he did not even know I was lying to him and obviously he was NOT

really monitoring my labwork as he said he was. I let him know that WILL NOT

happen again. I will not take meds that make me sick nor will I put up with a

doc that does not listen. I don't care if he is the only one within 100

miles....I told him if he treated me poorly I would stop seeing anyone...which

in

all honesty is fine with me!

I am freaked by this whole plaquinel thing. I spoke with the support group

and was told the info on this med. I dropped it off at the pharmacy

yesterday and they had a 2.5 hr wait so I left it until today. Now after

hearing all

the stories I am not even sure I want to go pick it up. I have eye coverage

but only for annual routine eye exam...that is only ONE exam every 12 months

no matter what the reason. So I am not even sure I want to start this drug

if I can not keep up with the eye exams. I had many of the other ladies tell

me it made them sick to there stomach for the first few months and anytime

the dosage changed. That was NOT encouraging. That is the reason the doc

stopped Doxycylcine cause it was making me nauseated and then I would start

vomiting. So now I am in a dellemia about taking plaquinel.

When I went to drop it off I was going to ask if I could just buy 7 pills

and see if they make me sick....if not I would fill the rest of the script.

But I didn't bother after standing in line for 30 mins just to drop them off.

I was told it could take 5-6 months before I know if the plaquinel is going

to work. Hmmm...if it makes me sick I will NOT stay in it that long just to

see if its working. I did this with MTX and I will not be stupid like that

again. No drug is worth staying on and being sick as a dog with side

effects...I was too sick to enjoy any benefits the drug did have.

Well, I have decisions to make.....I will decide by the end of the day if I

am going to take this at all.

Toni in Texas

In a message dated 9/13/2005 4:13:21 P.M. Central Daylight Time,

writes:

Date: Tue, 13 Sep 2005 10:40:34 -0700

From: " Grammi B " <grammi_love@...>

Subject: Toni~ last rheummy visit

(((((((((((((Toni)))))))))))))))) ... I am sorry things are rough. I

certainly wish you well in finding a med. Just my own experience, but Humira

has

not been a bad experience for me at all...I'm on it once a week and have been

so for maybe 18 months. On one occasion I did feel a slight burn, but

otherwise, no problem.

In any event, know I am pulling for you.

Love & prayers...

Tess in Oregon

[Guest guest]

Toni,

You should check with your eye doctor about your coverage. I had a similar

thing with my insurance regarding eye exams but the optometrist would bill

it as being on high risk meds or whatever they did and it was covered by

having the exam every 6 months. Just a thought.

Terri

Toni~ last rheummy visit

>

> (((((((((((((Toni)))))))))))))))) ... I am sorry things are rough. I

> certainly wish you well in finding a med. Just my own experience, but

> Humira has

> not been a bad experience for me at all...I'm on it once a week and have

> been

> so for maybe 18 months. On one occasion I did feel a slight burn, but

> otherwise, no problem.

>

> In any event, know I am pulling for you.

>

> Love & prayers...

>

> Tess in Oregon

>

>

>

>

>

>

>

[Guest guest]

Toni,

You should check with your eye doctor about your coverage. I had a similar

thing with my insurance regarding eye exams but the optometrist would bill

it as being on high risk meds or whatever they did and it was covered by

having the exam every 6 months. Just a thought.

Terri

Toni~ last rheummy visit

>

> (((((((((((((Toni)))))))))))))))) ... I am sorry things are rough. I

> certainly wish you well in finding a med. Just my own experience, but

> Humira has

> not been a bad experience for me at all...I'm on it once a week and have

> been

> so for maybe 18 months. On one occasion I did feel a slight burn, but

> otherwise, no problem.

>

> In any event, know I am pulling for you.

>

> Love & prayers...

>

> Tess in Oregon

>

>

>

>

>

>

>