Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Well, we are now on day 3. Not too bad. the first night was rough, she was screaming in pain. Horrible sounding. It got under control, and especially once dad stayed with her over night, she loves to snuggle up next to him. day 2, she slept mostly, had a fever, which also got under control. She ate a soy yogurt orally as we are waiting orders for a tube feed. last I heard, they were going to try a tube feed over night. It has been great since dad got time off and can stay with her. We take turns during the day, and he stays over night. She really has been a trouper and doing well. From what I know, the foley that is in now will come out in 6 weeks and the mic-key will go in. They were going to give her a milk-base formula and I said, she has a milk protein allergy, family has it she will get fevers etc and the dietican said this formula the milk is broken down, but we have her on NO MILK AT ALL why risk it? So anyways, hubby was going to talk to them tonight. He is the other one with milk issues. So it bothers me they do not listen to me. What the heck????? Quote Link to comment Share on other sites More sharing options...
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