Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 I mixed the powdered with peanut butter at first - Elie didn't otice. > > > I have tried liquid and powdered multivitamins for my 4 y/o and he detects > them in whatever I put them in and will not take it. He doesn't eat well > and needs them, but I am at a loss as to how to get him to. He will not > take the chewable and gummies. > Ruth > > > > From: agirlnamedsuess21 <agirlnamedsuess@...<agirlnamedsuess%40hotmail.com> > > > Subject: Re: Einstein Syndrome - venting > To: > Date: Monday, August 2, 2010, 10:08 PM > > > > Heidi, > I belong to a lot of those *technical* list servs as well. It *is* > overwhelming! Everyone talking about biomed, diets, chelation, etc... What > is good, what is bad, what their protocol is. I have just in the past few > months ventured into this territory. EVERYONE has a different protoco;. Some > are stuck on yeast. Some are stuck on soy. Some are promoting ALA/DMSA (ALA > has sulfur and I just learned that before we bought it since we cannot do > sulfur). Some are stuck on vaccine injuries. And the list goes on. > I do know for certain that a GFCF non GMO diet helps, mainly because of the > genetic modifications in our food sources over the past years. The rising > increase of autism is NOT as simple as vaccine injuries. It is more global > than that when dealing with the environmental changes over the past 30-40 > years including natural changes over time in DNA. Otherwise, EVERYONE who > took a vaccine would be injured, which is not so. > It is a lot of information to digest and I am still having problems > assimilating it all. I can do simple, for now, and get results. Everything > has it's start in life with good nutrition. So, I start there. We do extra > antioxidants (A, C, E, Selenium, etc...) because they are helpful with the > immune system. One week off of daily multivitamins for my children, any of > them, and they are automatically sick. That is a staple in our house. 8) > Gummies work well. > You do what you can and the best you can do at it and that is all you can > do. > 8) > susan > > > > > > I was on the Einstein Syndrome list serve for many years and took myself > > off of it earlier this year. I took myself off it due to the fact that I > > thought it was just for DS really (didn't realize there were some others > like > > you Sherry on the list with the dual-dx). Anyway, I also found so many of > > > the discussions way over my head, as I do on this list and others. Not > > only that, but so much information to sift through when on multiple > lists. > > I'm trying to wean down to a list or two that is most beneficial for me > to be > > on. > > > > Do any of you on this list feel like many of the topics that deal with > > biochemistry, science, etc. with regard to autism so overwhelming and so > over > > your head, or is it just me? Sometimes my head hurts just trying to > > understand/read what is being said or articles being shared, that I give > up and > > delete the message before I finish reading. Sometimes I think maybe I > just > > don't want to learn anymore about it. Sometimes I feel like I'm not smart > > > enough to understand it. My BA in Business doesn't help here! ;-) > > > > Other problems with lists (at least for me) is that when people are > overly > > optimistic about their child's future or you get all the inspirational > > articles of children with special needs doing things I know my child will > > > probably never do, it's hard for me. I'm so stuck between realistic and > > optimistic - then I feel like I'm limiting my child (even though I feel > like I'm > > doing the best to my ability overall - including what I can handle, and > > financially). Am I? > > > > Anyway, thanks for listening... just needing to vent I guess. Jenn, I can > > > totally relate to your recent venting post. I feel the same way! I cry > > when I hit the bed at night... many, many nights. I was handling the DS > > just fine (not completely at first, but worked through it)... then the > > seizures came (took on that)... now the autism (which was probably there > since > > started seizures at 10 months - I just didn't figure it out until > > > she was 6yo - then not dx'd until 7yo). I hate the autism and I hate how > it > > competes with the DS! Let's see McCarthy have to handle that! > > > > Heidi -- Wisconsin, USA > > (Mom to 8-1/2 w/ DS, ASD, epilepsy; Clara 3-1/2 going on 13!) > > No two flowers bloom in exactly the same way, but all are beautiful ! > > > > Quote Link to comment Share on other sites More sharing options...
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