Guest guest Posted July 30, 2010 Report Share Posted July 30, 2010 thanks. I've never heard of them. I'll check it out. > > > > > > > > > > > > > > > Jenn, > > > > > > > > Don't feel guilty for having more kids. I don't know why outside people > > > > want to make us feel bad for trying to balance everything. My family > > also > > > > said the same about my youngest son who is now 2 1/2 but then the first > > > > mother's day as a mother of 3 my parents threw me a party like it was > > my > > > > first mother's day ever. My older two are not biologically mine. See so > > you > > > > can't win with people. Just ignore those people. Children area a gift. > > All > > > > perfect gifts are from above. They are all wonderfully made by the hand > > of > > > > the creator. He made them just for you. > > > > > > > > I wish I had something to say about the self injury that isn't what you > > > > already know. It's communication. Maybe he gets pain with swallowing? > > > > > > > > , > > > > > > > > I agree about the benefits of being a sibling. My daughter is a twin to > > my > > > > son with DS-ASD and while she is in that embarassed phase I know she > > will > > > > get bac k to that protectiveness that I remember. She once chase a boy > > down > > > > the street to get her brother's toy back and since he isn't socially > > cued in > > > > he hadn't minded having it taken. He'd just found himself something > > else to > > > > play with. My favorite twin sibling story. > > > > > > > > Sara, > > > > My son's favorite is small size stuffed plushes that he's chewed until > > they > > > > are really stringy. I toss them at that point because he has wrapped > > them > > > > around his finger and made it turn blue. So then he starts all over. > > The > > > > only think he likes more than plushies is see and says. He breaks the > > > > spinner because he LOVES to feel it spin. > > > > > > > > I too have cracked people up with my descriptions. My son's most > > > > embarassing (to his twin sister) habit it that he Moos and I tell > > people he > > > > will be the voice of the chick-fil-a cow when he grows up! Last time I > > had > > > > him at church a boy told him to " eat grass cow " . I almost laughed until > > I > > > > looked and realized he was being mean. A visiting child. If he comes > > back he > > > > will be my new best friend. > > > > > > > > Margaret, > > > > So far no side effects from the Depakote and I was told that it might > > even > > > > help with his hand flapping. They will at some point need to check the > > blood > > > > levels so I'll see if I can find out from the Dr about those EEGs. Also > > I > > > > will ask the NP who did him autism screening about 24 hr EEG that is > > used > > > > with newly Dx autism. The neuro didn't really care if he got one even > > though > > > > he was suspected of haveing autism. > > > > > > > > Jayne, > > > > DSAHR still isn't DS-ASD friendly but the new president asked me if I > > were > > > > interested in starting a playgroup/mini-support group for it. She sin't > > sure > > > > how many will come out. I'm going to try and have teen volunteers with > > > > energy on hand so the parents can talk and the kids can work on play > > skills. > > > > I do like the schools in VB and I hear Norfolk is still good too. A > > friend > > > > of mine's husband used to be the adaptive PE teacher in Norfolk. I > > wonder if > > > > he taught you son. Last name LaFlur (spelling off). He traveled between > > the > > > > schools. > > > > > > > > Yes, we were here in 2004-2006. 2004 is when we stopped going to any > > event > > > > because my son had been kicked out of PALS by the evil descriminating > > > > program supervisor. My Mom had the kids so we could honeymoon and well > > my > > > > son didn't sleep the whole week and went into the PALS day care and > > bite > > > > somebody (after we thought he'd out grown it), tried to sit on older > > teens > > > > laps who had G-tubes (he though they were adults), push other kids off > > the > > > > therapy ball, and made a huge mess with his food (I told them he eats > > well > > > > and to let him feed himself for skill building - he'd make it up at > > > > dinner!). It was the start of the downward spiral that didn't let up > > until > > > > her was admitted to the ICF. Holiday House of Portsmouth. I was saved > > in > > > > 2005, found a new daycare run by a former SECEP teacher whose LOVE my > > son > > > > and didn't mind his lack of Dx, and in 2008 prayerfully he was admitted > > to > > > > holiday house because he aged out of that day care and was now refusing > > to > > > > get out of the tub and climbing his bedroom furniture. this is the > > stuff > > > > that I couldn't put in the essay because it was for skillquest which is > > run > > > > by the city just like PALS. I work for the city so I didn't want to > > piss of > > > > the department director my bosses boss. My son just turned 14 on last > > > > monday. > > > > > > > > so that is hwy you say wicked all the time. My high school sweethart > > was > > > > from Maine. Bar Harbor. Well actually his parents were. I'll check your > > blog > > > > and probably link it. > > > > > > > > Beth, > > > > Challenger Baseball was crazy hgard for my son. I was again the only > > one > > > > whose kid needed hand over hand and couldn't follow one step > > instructions. I > > > > can't even get special olympics to call me back but everyone else seems > > to > > > > get in no prob. > > > > > > > > > > > > http://thekitchenexperiments.blogspot.com/ > > > > > > > > > > > > > > > > > > > > > > > > -- > > > Sara- different pathways lead to Nirvana. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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