Re: Just babbling our loud

[Guest guest]

PS: Apologies for my many typos. Still having senior moments, sigh.

Kris

>

> So after I make the " What ASD Looks Like " list about DJ & then came back & did

the " updates " , I find myself thinking about how very far he has come, the

battles I have learned to fight & win for him & how much no one seems to still

have a clue about...

> (in medical/services/edu/community arenas)

>

> I wish someone could tell me how to teach my DJ to wipe his hinney when his

arms are way too short to do so.

>

> I wish someone would tell me how he knows to do stuff on the new MAC computer

that we have no clue about. First Mac in this house-our other computers are

dell....apples & oranges..

>

> I wish someone could tell me how DJ knew how to program his new tv. It took

me forever to change it back to English. (He is trying to learn French this

time instead of Spanish I guess...)

>

> I wish someone would be as surprised as I am about stuff like this & just

wonder...

>

> To this day, no one has ever " got it " that DJ taught himself without our help

how to play all the Zelda games on the game cube.

>

> He started around age 5 & could not read anything back then. It still amazes

me. Maybe because I do not play video games it is more amazing to me than it

should be. But come on, I understand that Zelda is not exactly a plug & play

game. And he has managed to go to all the levels. On all the Zelda series &

Spiderman series.

>

> I do not get it. Why isn't this an indicator of something a bit higher than

what his psych scores indicate? And that could be used by others to think

outside the box?

>

> So, prior to last IEP, I wracked my brain for goals that included these &

other scattered & innate skills of his & had them put into the IEP. Much to the

horror of those involved. Evil chuckle.

>

> Twerks me no end that it never seems to occur to some in education to do this.

Especially when it is obvious that we have the technology in place that could &

should be used to promote skills & education for the disability population.

>

> So, you young parent's out there that grew up with Ninetendo & PS3 ( & now Wii)

& pc's, please do consider exposing your young being to them.

>

> Believe this or not, it will promote eye hand coordination, problem solving,

color-number-word recognition, typing skills, following directions & a host of

other things developmentally.

>

> We gave DJ free access to an old computer. Sesame street has interactive ed

games & Starfall has math & reading. For many age groups.

>

> We went to one of those second hand game stores to get him his 1st Ninetendo &

games, so it was inexpensive & not a biggie if he ended up demolishing it. (He

didn't)

>

> Those parent's already in grade school, start NOW at promoting functional

keyboard & mouse use. Someday, your child might be able to work, communicate

with the world or take college classes online because you did this.

>

> I am not kidding. Think about it in terms of your grown child having the

ability to access entertainment, shop, email, have a job etc. Independently.

No matter where they reside.

>

> Just do not assume this skill will be taught in school. Unless you put it in

the IEP every year until they do leave school (hint hint)

>

> I say this because it being the 21st century & all, I did assume. HA-learning

to put deodorant on & wash hands took precedence over such as this in 8th grade.

(and no I did not let that happen)

>

> Learn from my mistakes. Start NOW-even if your child is a toddler.

Developmental stages do not matter because skill sets can be modified for any

function level and provided incrementally. Because some things take time to be

mastered, it is not really in the child's best interest to " wait until they are

older " to introduce some things.

>

> Know that as long as your child is in public school,learn to think ahead &

outside the box. And put whatever you think of into the goals on the IEP.

>

> And no matter what anyone else says, you know your own child best, you know

your own abilities best, you know what you can & cannot take on or do and you

know what you envision for your child's future.

>

> For an example, I know that I can teach my child to shave or wash his hands

or put on deodorant. Aside from being totally inappropriate to teach this in

school (to me), it was a total waste of educational time (1.5 hours a day!).

Ditto with tying shoes by a certain age especially since mankind invented

velcro. Ditto with any goals rolling over every year. But I cannot teach him

regular HS curriculum which includes electives such as Intro to computers or

photography.

> Modified of course.

>

> Interestingly enough because I researched this, I accidently discovered our

state dept of ed had initiated (law) just such a program that began the year

that DJ started HS. So you can just imagine what a surprise the going into 9th

grade IEP was. Not as surprising though as my discovery that the HS teachers

knew nada about the new program!

>

> Pretty scary considering how many parents in my state might not even now this

program exists, eh.

>

> All because I got very very angry, started intensive researching & super

thinking outside the box, my son is taking modified regular curriculum in high

school & not " just " skill/job training.

>

> Avoid anger. Learn from my mistakes or victories.

>

> Rant babble over. Be the change.

>

> Hugs,

> Kris

> PS: Hinney wiping? Anyone? LOL, I will ask periodically. I can hope.

>

[Guest guest]

Kris agngel: Thinking about installing a bidet? Fixes the problem of

hinney wiping! Next best, white undies that can be bleached over and over.

LAstly - major surgery to fix arms?????

Sorry - needed something not too terribly serious after a w/e full of

non-Elie drama!

We have sort of given up.

Elie stands to wipe and twists his body sideways to reach behind to his

hinney. Our issue is that he is NOW at age 25 listening when we say " Need 4

pieces and wipe 4 times " . Why a number you ask - as you should - because

he carefully tears off one square of toilet paper and then quits wiping when

he soils his hand - and then quits to wash off the offense and then skips

anymore wiping!! AARRGGHH!

Thus the white tighty whities and bleach.

>

>

> So after I make the " What ASD Looks Like " list about DJ & then came back &

> did the " updates " , I find myself thinking about how very far he has come,

> the battles I have learned to fight & win for him & how much no one seems to

> still have a clue about...

> (in medical/services/edu/community arenas)

>

> I wish someone could tell me how to teach my DJ to wipe his hinney when his

> arms are way too short to do so.

>

> I wish someone would tell me how he knows to do stuff on the new MAC

> computer that we have no clue about. First Mac in this house-our other

> computers are dell....apples & oranges..

>

> I wish someone could tell me how DJ knew how to program his new tv. It took

> me forever to change it back to English. (He is trying to learn French this

> time instead of Spanish I guess...)

>

> I wish someone would be as surprised as I am about stuff like this & just

> wonder...

>

> To this day, no one has ever " got it " that DJ taught himself without our

> help how to play all the Zelda games on the game cube.

>

> He started around age 5 & could not read anything back then. It still

> amazes me. Maybe because I do not play video games it is more amazing to me

> than it should be. But come on, I understand that Zelda is not exactly a

> plug & play game. And he has managed to go to all the levels. On all the

> Zelda series & Spiderman series.

>

> I do not get it. Why isn't this an indicator of something a bit higher than

> what his psych scores indicate? And that could be used by others to think

> outside the box?

>

> So, prior to last IEP, I wracked my brain for goals that included these &

> other scattered & innate skills of his & had them put into the IEP. Much to

> the horror of those involved. Evil chuckle.

>

> Twerks me no end that it never seems to occur to some in education to do

> this. Especially when it is obvious that we have the technology in place

> that could & should be used to promote skills & education for the disability

> population.

>

> So, you young parent's out there that grew up with Ninetendo & PS3 ( & now

> Wii) & pc's, please do consider exposing your young being to them.

>

> Believe this or not, it will promote eye hand coordination, problem

> solving, color-number-word recognition, typing skills, following directions

> & a host of other things developmentally.

>

> We gave DJ free access to an old computer. Sesame street has interactive ed

> games & Starfall has math & reading. For many age groups.

>

> We went to one of those second hand game stores to get him his 1st

> Ninetendo & games, so it was inexpensive & not a biggie if he ended up

> demolishing it. (He didn't)

>

> Those parent's already in grade school, start NOW at promoting functional

> keyboard & mouse use. Someday, your child might be able to work, communicate

> with the world or take college classes online because you did this.

>

> I am not kidding. Think about it in terms of your grown child having the

> ability to access entertainment, shop, email, have a job etc. Independently.

> No matter where they reside.

>

> Just do not assume this skill will be taught in school. Unless you put it

> in the IEP every year until they do leave school (hint hint)

>

> I say this because it being the 21st century & all, I did assume.

> HA-learning to put deodorant on & wash hands took precedence over such as

> this in 8th grade. (and no I did not let that happen)

>

> Learn from my mistakes. Start NOW-even if your child is a toddler.

> Developmental stages do not matter because skill sets can be modified for

> any function level and provided incrementally. Because some things take time

> to be mastered, it is not really in the child's best interest to " wait until

> they are older " to introduce some things.

>

> Know that as long as your child is in public school,learn to think ahead &

> outside the box. And put whatever you think of into the goals on the IEP.

>

>

> And no matter what anyone else says, you know your own child best, you know

> your own abilities best, you know what you can & cannot take on or do and

> you know what you envision for your child's future.

>

> For an example, I know that I can teach my child to shave or wash his hands

> or put on deodorant. Aside from being totally inappropriate to teach this in

> school (to me), it was a total waste of educational time (1.5 hours a day!).

> Ditto with tying shoes by a certain age especially since mankind invented

> velcro. Ditto with any goals rolling over every year. But I cannot teach him

> regular HS curriculum which includes electives such as Intro to computers or

> photography.

> Modified of course.

>

> Interestingly enough because I researched this, I accidently discovered our

> state dept of ed had initiated (law) just such a program that began the year

> that DJ started HS. So you can just imagine what a surprise the going into

> 9th grade IEP was. Not as surprising though as my discovery that the HS

> teachers knew nada about the new program!

>

> Pretty scary considering how many parents in my state might not even now

> this program exists, eh.

>

> All because I got very very angry, started intensive researching & super

> thinking outside the box, my son is taking modified regular curriculum in

> high school & not " just " skill/job training.

>

> Avoid anger. Learn from my mistakes or victories.

>

> Rant babble over. Be the change.

>

> Hugs,

> Kris

> PS: Hinney wiping? Anyone? LOL, I will ask periodically. I can hope.

>

>

>

--

Sara- different pathways lead to Nirvana.

[Guest guest]

My daughter (PDD-NOS) does not wipe. (A battle still at 12!)

The other questions wondering how he does those things? Answer: Autism

Autism is not just " the bad " ; conversely, it is a unique " giftedness " .

>

> So after I make the " What ASD Looks Like " list about DJ & then came back & did

the " updates " , I find myself thinking about how very far he has come, the

battles I have learned to fight & win for him & how much no one seems to still

have a clue about...

> (in medical/services/edu/community arenas)

>

> I wish someone could tell me how to teach my DJ to wipe his hinney when his

arms are way too short to do so.

>

> I wish someone would tell me how he knows to do stuff on the new MAC computer

that we have no clue about. First Mac in this house-our other computers are

dell....apples & oranges..

>

> I wish someone could tell me how DJ knew how to program his new tv. It took

me forever to change it back to English. (He is trying to learn French this

time instead of Spanish I guess...)

>

> I wish someone would be as surprised as I am about stuff like this & just

wonder...

>

> To this day, no one has ever " got it " that DJ taught himself without our help

how to play all the Zelda games on the game cube.

>

> He started around age 5 & could not read anything back then. It still amazes

me. Maybe because I do not play video games it is more amazing to me than it

should be. But come on, I understand that Zelda is not exactly a plug & play

game. And he has managed to go to all the levels. On all the Zelda series &

Spiderman series.

>

> I do not get it. Why isn't this an indicator of something a bit higher than

what his psych scores indicate? And that could be used by others to think

outside the box?

>

> So, prior to last IEP, I wracked my brain for goals that included these &

other scattered & innate skills of his & had them put into the IEP. Much to the

horror of those involved. Evil chuckle.

>

> Twerks me no end that it never seems to occur to some in education to do this.

Especially when it is obvious that we have the technology in place that could &

should be used to promote skills & education for the disability population.

>

> So, you young parent's out there that grew up with Ninetendo & PS3 ( & now Wii)

& pc's, please do consider exposing your young being to them.

>

> Believe this or not, it will promote eye hand coordination, problem solving,

color-number-word recognition, typing skills, following directions & a host of

other things developmentally.

>

> We gave DJ free access to an old computer. Sesame street has interactive ed

games & Starfall has math & reading. For many age groups.

>

> We went to one of those second hand game stores to get him his 1st Ninetendo &

games, so it was inexpensive & not a biggie if he ended up demolishing it. (He

didn't)

>

> Those parent's already in grade school, start NOW at promoting functional

keyboard & mouse use. Someday, your child might be able to work, communicate

with the world or take college classes online because you did this.

>

> I am not kidding. Think about it in terms of your grown child having the

ability to access entertainment, shop, email, have a job etc. Independently.

No matter where they reside.

>

> Just do not assume this skill will be taught in school. Unless you put it in

the IEP every year until they do leave school (hint hint)

>

> I say this because it being the 21st century & all, I did assume. HA-learning

to put deodorant on & wash hands took precedence over such as this in 8th grade.

(and no I did not let that happen)

>

> Learn from my mistakes. Start NOW-even if your child is a toddler.

Developmental stages do not matter because skill sets can be modified for any

function level and provided incrementally. Because some things take time to be

mastered, it is not really in the child's best interest to " wait until they are

older " to introduce some things.

>

> Know that as long as your child is in public school,learn to think ahead &

outside the box. And put whatever you think of into the goals on the IEP.

>

> And no matter what anyone else says, you know your own child best, you know

your own abilities best, you know what you can & cannot take on or do and you

know what you envision for your child's future.

>

> For an example, I know that I can teach my child to shave or wash his hands

or put on deodorant. Aside from being totally inappropriate to teach this in

school (to me), it was a total waste of educational time (1.5 hours a day!).

Ditto with tying shoes by a certain age especially since mankind invented

velcro. Ditto with any goals rolling over every year. But I cannot teach him

regular HS curriculum which includes electives such as Intro to computers or

photography.

> Modified of course.

>

> Interestingly enough because I researched this, I accidently discovered our

state dept of ed had initiated (law) just such a program that began the year

that DJ started HS. So you can just imagine what a surprise the going into 9th

grade IEP was. Not as surprising though as my discovery that the HS teachers

knew nada about the new program!

>

> Pretty scary considering how many parents in my state might not even now this

program exists, eh.

>

> All because I got very very angry, started intensive researching & super

thinking outside the box, my son is taking modified regular curriculum in high

school & not " just " skill/job training.

>

> Avoid anger. Learn from my mistakes or victories.

>

> Rant babble over. Be the change.

>

> Hugs,

> Kris

> PS: Hinney wiping? Anyone? LOL, I will ask periodically. I can hope.

>

[Guest guest]

A Bidet! Now there is a thought (if they do not play in the water with

fascination, that is. LOL.

LOL on the arm surgery. His arms will grow. LOL

>

> >

> >

> > So after I make the " What ASD Looks Like " list about DJ & then came back &

> > did the " updates " , I find myself thinking about how very far he has come,

> > the battles I have learned to fight & win for him & how much no one seems to

> > still have a clue about...

> > (in medical/services/edu/community arenas)

> >

> > I wish someone could tell me how to teach my DJ to wipe his hinney when his

> > arms are way too short to do so.

> >

> > I wish someone would tell me how he knows to do stuff on the new MAC

> > computer that we have no clue about. First Mac in this house-our other

> > computers are dell....apples & oranges..

> >

> > I wish someone could tell me how DJ knew how to program his new tv. It took

> > me forever to change it back to English. (He is trying to learn French this

> > time instead of Spanish I guess...)

> >

> > I wish someone would be as surprised as I am about stuff like this & just

> > wonder...

> >

> > To this day, no one has ever " got it " that DJ taught himself without our

> > help how to play all the Zelda games on the game cube.

> >

> > He started around age 5 & could not read anything back then. It still

> > amazes me. Maybe because I do not play video games it is more amazing to me

> > than it should be. But come on, I understand that Zelda is not exactly a

> > plug & play game. And he has managed to go to all the levels. On all the

> > Zelda series & Spiderman series.

> >

> > I do not get it. Why isn't this an indicator of something a bit higher than

> > what his psych scores indicate? And that could be used by others to think

> > outside the box?

> >

> > So, prior to last IEP, I wracked my brain for goals that included these &

> > other scattered & innate skills of his & had them put into the IEP. Much to

> > the horror of those involved. Evil chuckle.

> >

> > Twerks me no end that it never seems to occur to some in education to do

> > this. Especially when it is obvious that we have the technology in place

> > that could & should be used to promote skills & education for the disability

> > population.

> >

> > So, you young parent's out there that grew up with Ninetendo & PS3 ( & now

> > Wii) & pc's, please do consider exposing your young being to them.

> >

> > Believe this or not, it will promote eye hand coordination, problem

> > solving, color-number-word recognition, typing skills, following directions

> > & a host of other things developmentally.

> >

> > We gave DJ free access to an old computer. Sesame street has interactive ed

> > games & Starfall has math & reading. For many age groups.

> >

> > We went to one of those second hand game stores to get him his 1st

> > Ninetendo & games, so it was inexpensive & not a biggie if he ended up

> > demolishing it. (He didn't)

> >

> > Those parent's already in grade school, start NOW at promoting functional

> > keyboard & mouse use. Someday, your child might be able to work, communicate

> > with the world or take college classes online because you did this.

> >

> > I am not kidding. Think about it in terms of your grown child having the

> > ability to access entertainment, shop, email, have a job etc. Independently.

> > No matter where they reside.

> >

> > Just do not assume this skill will be taught in school. Unless you put it

> > in the IEP every year until they do leave school (hint hint)

> >

> > I say this because it being the 21st century & all, I did assume.

> > HA-learning to put deodorant on & wash hands took precedence over such as

> > this in 8th grade. (and no I did not let that happen)

> >

> > Learn from my mistakes. Start NOW-even if your child is a toddler.

> > Developmental stages do not matter because skill sets can be modified for

> > any function level and provided incrementally. Because some things take time

> > to be mastered, it is not really in the child's best interest to " wait until

> > they are older " to introduce some things.

> >

> > Know that as long as your child is in public school,learn to think ahead &

> > outside the box. And put whatever you think of into the goals on the IEP.

> >

> >

> > And no matter what anyone else says, you know your own child best, you know

> > your own abilities best, you know what you can & cannot take on or do and

> > you know what you envision for your child's future.

> >

> > For an example, I know that I can teach my child to shave or wash his hands

> > or put on deodorant. Aside from being totally inappropriate to teach this in

> > school (to me), it was a total waste of educational time (1.5 hours a day!).

> > Ditto with tying shoes by a certain age especially since mankind invented

> > velcro. Ditto with any goals rolling over every year. But I cannot teach him

> > regular HS curriculum which includes electives such as Intro to computers or

> > photography.

> > Modified of course.

> >

> > Interestingly enough because I researched this, I accidently discovered our

> > state dept of ed had initiated (law) just such a program that began the year

> > that DJ started HS. So you can just imagine what a surprise the going into

> > 9th grade IEP was. Not as surprising though as my discovery that the HS

> > teachers knew nada about the new program!

> >

> > Pretty scary considering how many parents in my state might not even now

> > this program exists, eh.

> >

> > All because I got very very angry, started intensive researching & super

> > thinking outside the box, my son is taking modified regular curriculum in

> > high school & not " just " skill/job training.

> >

> > Avoid anger. Learn from my mistakes or victories.

> >

> > Rant babble over. Be the change.

> >

> > Hugs,

> > Kris

> > PS: Hinney wiping? Anyone? LOL, I will ask periodically. I can hope.

> >

> >

> >

>

>

>

> --

> Sara- different pathways lead to Nirvana.

>

>

>