Re: what does autism look like in people who have DS?

[Guest guest]

My son has stretchable arms regarding food as well. It's almost OCD-ish the way

he targets food. He can tell when his sister isn't paying attention and that is

when he grabs her food. We normally seat him at the head of the table with

adults flanking him so he doens't bother the other kids plates. I still put a

baby gate at the door of thek itchen while cooking for the grabbing and also he

burned himself on the stove once. High tolerance for pain but he did feel it

and let out a noise I hope to never hear again. Had blisters.

>

> >

> >

> > >>>>Elie cleared table tops, emptied drawers and THREW THINGS for years.

> > But as

> > we learned that actions and sounds are all communication, we learned to try

> > to understand his need to communicate anda all of these things

> > lessened.<<<<

> >

> > OK so Sara...did you ever determine what Elie was trying to communicate

> > when he swiped everything off a table or flat surface? I'm still undecided.

> > I tend to think it was 's way of saying " that doesn't belong there "

> > then again I wonder if it was just the pure fun of it all as often she would

> > do it very very slowly waiting for the dropping off of every object

> > individually. She has no need to still do this. For instance when Elie

> > swiped the new computer at school off the desk what was he saying? (sorry

> > gotta admit this one still cracks me up).

> > Sherry

> >

> >

[Guest guest]

Could it be that they have trouble tasting the food so why bother? If I

couldn't taste I don't think I'd be interested in food. I have always noted

that it takes my son a bit longer to realize that his stomach is full after

eating so I got into the habit of making him wait at least 5 minutes between

first helping and second helping jsut to be sure he really was still hungry. He

used to eat until overfull and then would vomit.

>

> Thank you so much to all of you for the replies. I can tell that this is a

great group and I know I will learn a lot from you.

>

> Oh, another thing about Aimee that I wanted to ask about. I have heard the

food issues can be an autism trait. Does anyone here have a child with infantile

anorexia? We got that diagnosis at the beginning of the year after spending 3

weeks in an in-patient feeding program. Aimee does not appear to have any desire

to eat or drink. She either does not feel hunger/thirst or else she doesn't care

about those feelings. We finally had a g-tube placed back in February. She gets

about 90% of her calories and all of her fluids through the tube. She is healthy

now but still has very little interest in eating.

>

> Just curious if anyone has ever seen this with autism. I have not yet found

anyone with just DS who has such severe feeding issues.

>

> ~

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[Guest guest]

my son was opposite. he outgrew his DS features. At 5ft 4 and still growing

and not an ounce of baby fat people are surprised when they find out he has DS.

> > > >

> > > >

> > > > Go to medical series on the left, then click on Autism and PDD

> > > > http://www.riverbendds.org/index.htm

> > > > Read especially Capone and Joan Medlen's article from Disability

Solutions...it's 10 years old but still relevant. Dr. Capone at Kennedy Krieger

is someone who has researched the dual dx....not too much info out there

actually.

> > > >

> > > > You can pretty much go by the criteria for Autism itself allowing for a

bit more demonstration of affection and sometimes more imitative play. This

wasn't true for us but the diagnosis is handed out a bit more freely these days.

> > > >

> > > >

> > > > More saved info:

> > > >

> > > > http://www.disabilitysolutions.org/newsletters/files/three/3-5-6.pdf

> > > >

> > > > " Down Syndrome and Autism Internet Information Center

> > > >

> > > > A child with Down syndrome is born in 1 out of every 800 births. An

> > > > estimated 7-10% of those children will be diagnosed as also having an

> > > > autistic spectrum disorder. That means somewhere between 1 in every 10

> > > > and 1 in every 14 children with Down syndrome will also have an

> > > > autistic spectrum disorder. This is much higher than the incidence

> > > > rate for children without Down syndrome. According to the information

> > > > that is available, children with Down syndrome are often not diagnosed

> > > > or evaluated for autism spectrum disorders until much later in life.

> > > > The average age of diagnosis in children being between 9 and 14 years

> > > > old. I have heard from families whose adult children with Down

> > > > syndrome are only now being diagnosed as also having autism. "

> > > > (http://disabilitysolutions.org/dsaiic/downsyndrome.htm)

> > > >

> > > > Sherry, mom to 21 DS-Autism

> > > > PS welcome to the list!!!!

> > > >

> > > >

> > > >

[Guest guest]

do you have a mini-muffin pan? My kids love when I make mini-muffins.

Some of my recipies are on my blog. the pumpkin and peach muffins were to get

more fruit into my son who would not eat them raw. The lemon poppy sead one is

NOT for my son it causes diareah due to the poppy seeds.

http://thekitchenexperiments.blogspot.com/

> >

> > Thank you so much to all of you for the replies. I can tell that this is a

great group and I know I will learn a lot from you.

> >

> > Oh, another thing about Aimee that I wanted to ask about. I have heard the

food issues can be an autism trait. Does anyone here have a child with infantile

anorexia? We got that diagnosis at the beginning of the year after spending 3

weeks in an in-patient feeding program. Aimee does not appear to have any desire

to eat or drink. She either does not feel hunger/thirst or else she doesn't care

about those feelings. We finally had a g-tube placed back in February. She gets

about 90% of her calories and all of her fluids through the tube. She is healthy

now but still has very little interest in eating.

> >

> > Just curious if anyone has ever seen this with autism. I have not yet found

anyone with just DS who has such severe feeding issues.

> >

> > ~

> >

> >

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> >

[Guest guest]

He tastes, at least some things. I think he tastes too much. We have huge

trouble if we switch brands or anything. And he has an amazing ability to sense

tomato sauce! I make a mango sauce for fish, which he can't stand. But he

loves raw mango. The sauce is just pureed mango and a little oil or butter to

emulsify.

DH thinks that I'm a supertaster. Could be. I use a very light hand with herbs

and spices! And cannot stand even small amounts of caraway and pickles make me

feel ill!

Sent from my iPhone

Could it be that they have trouble tasting the food so why bother? If I couldn't

taste I don't think I'd be interested in food. I have always noted that it takes

my son a bit longer to realize that his stomach is full after eating so I got

into the habit of making him wait at least 5 minutes between first helping and

second helping jsut to be sure he really was still hungry. He used to eat until

overfull and then would vomit.

>

> Thank you so much to all of you for the replies. I can tell that this is a

great group and I know I will learn a lot from you.

>

> Oh, another thing about Aimee that I wanted to ask about. I have heard the

food issues can be an autism trait. Does anyone here have a child with infantile

anorexia? We got that diagnosis at the beginning of the year after spending 3

weeks in an in-patient feeding program. Aimee does not appear to have any desire

to eat or drink. She either does not feel hunger/thirst or else she doesn't care

about those feelings. We finally had a g-tube placed back in February. She gets

about 90% of her calories and all of her fluids through the tube. She is healthy

now but still has very little interest in eating.

>

> Just curious if anyone has ever seen this with autism. I have not yet found

anyone with just DS who has such severe feeding issues.

>

> ~

>

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>

>

>

>

[Guest guest]

IMHO _ASD is overload of all senses. Some it is sound, motion, crowds, so

why couldn't taste also be an issue for some people?

Elie eats by sight. He doesn't know if I feed him a burger from soy or

turkey - as long as it is brown. HE doesn;'t notice the taste of his soda -

only that it also must be black or brown. Milk can be lite brown so that

you and I taste only milk - to him that is chocolate milk.. FF must be a

certain shape - but can be made in the oven.

>

>

> He tastes, at least some things. I think he tastes too much. We have huge

> trouble if we switch brands or anything. And he has an amazing ability to

> sense tomato sauce! I make a mango sauce for fish, which he can't stand. But

> he loves raw mango. The sauce is just pureed mango and a little oil or

> butter to emulsify.

>

> DH thinks that I'm a supertaster. Could be. I use a very light hand with

> herbs and spices! And cannot stand even small amounts of caraway and pickles

> make me feel ill!

>

>

>

> Sent from my iPhone

>

> On Aug 14, 2010, at 11:50 AM, " darsmom "

<rcjacobs4@...<rcjacobs4%40cox.net>>

> wrote:

>

> Could it be that they have trouble tasting the food so why bother? If I

> couldn't taste I don't think I'd be interested in food. I have always noted

> that it takes my son a bit longer to realize that his stomach is full after

> eating so I got into the habit of making him wait at least 5 minutes between

> first helping and second helping jsut to be sure he really was still hungry.

> He used to eat until overfull and then would vomit.

>

>

>

>

> >

> > Thank you so much to all of you for the replies. I can tell that this is

> a great group and I know I will learn a lot from you.

> >

> > Oh, another thing about Aimee that I wanted to ask about. I have heard

> the food issues can be an autism trait. Does anyone here have a child with

> infantile anorexia? We got that diagnosis at the beginning of the year after

> spending 3 weeks in an in-patient feeding program. Aimee does not appear to

> have any desire to eat or drink. She either does not feel hunger/thirst or

> else she doesn't care about those feelings. We finally had a g-tube placed

> back in February. She gets about 90% of her calories and all of her fluids

> through the tube. She is healthy now but still has very little interest in

> eating.

> >

> > Just curious if anyone has ever seen this with autism. I have not yet

> found anyone with just DS who has such severe feeding issues.

> >

> > ~

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Once we removed casein, my son noticeably had an increased sense of smell and

taste. It was odd, but a good thing. I am still trying to figure out why the

casein would have affected him. You think it made his sinuses and tastebuds

swell where he could not smell or taste?

Now, he smells (noticeably) when I cook and then when he eats, he always says

" Ummm, good. " He makes me feel good, at least. :0)

[Guest guest]

Nope. The little bites muffins are moist like a twinkie. doesn't like

homemade anything. My mom is a chef and brings over cookies and stuff

sometimes. , Anya and guzzle it all down, but not . He eats

her dinner rolls...as long as they're not " too brown " . Mostly he licks the

butter off.

Sent from my iPhone

do you have a mini-muffin pan? My kids love when I make mini-muffins.

Some of my recipies are on my blog. the pumpkin and peach muffins were to get

more fruit into my son who would not eat them raw. The lemon poppy sead one is

NOT for my son it causes diareah due to the poppy seeds.

http://thekitchenexperiments.blogspot.com/

> >

> > Thank you so much to all of you for the replies. I can tell that this is a

great group and I know I will learn a lot from you.

> >

> > Oh, another thing about Aimee that I wanted to ask about. I have heard the

food issues can be an autism trait. Does anyone here have a child with infantile

anorexia? We got that diagnosis at the beginning of the year after spending 3

weeks in an in-patient feeding program. Aimee does not appear to have any desire

to eat or drink. She either does not feel hunger/thirst or else she doesn't care

about those feelings. We finally had a g-tube placed back in February. She gets

about 90% of her calories and all of her fluids through the tube. She is healthy

now but still has very little interest in eating.

> >

> > Just curious if anyone has ever seen this with autism. I have not yet found

anyone with just DS who has such severe feeding issues.

> >

> > ~

> >

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