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Hi Judi:

I am so sorry that the Lyrica has fizzled out on you -

it was looking so promising there for a while. What a

disappointment - I feel for you, kiddo. Well, darn

that Decrum's - I know you have had some tumors

removed before, but has the removal of them helped?

Could this one be removed? Good luck to you on your

babysitting tomorrow - get to bed early tonight -

you're going to need all of your energy tomorrow lol.

Kathe in CA

--- nonny46 <nonny46@...> wrote:

> Hi group,

>

> Well the problem with my back is solved, not that

> I'm happy with the

> solution, but at least I know. I have one of

> " those " tumors (one of

> hundreds of painful lipomas, for those who don't

> know about Dercum's

> disease) about the size of a golf ball growing right

> next to my

> spinal column. It is apparently causing me to have

> muscle spasms,

> and that is what caused all my pain and difficulty

> moving. It's much

> better today, but still very tender.

>

> I've been taking Lyrica for about 2 weeks now, but

> it is losing its

> effectiveness, as I have found with other meds I

> have taken. Sooooo,

> I am back to where I was, just taking my Voltaren

> and Ultram, but at

> least they help so I won't complain. Got another

> tumor acting up in

> the arch of my right foot, so had to stay off my

> feet today.

> Tomorrow is a marathon babysitting day, from about 2

> PM until maybe 9

> PM when comes home. Ah, but I can sleep in as

> late as I want

> Saturday! Maybe I'll ask Ron to fix me breakfast in

> bed.....nah, I'd

> probably get Poptarts and a dandelion. Hm, well, if

> they are

> cinnamon Poptarts...

>

> Blessings to all,

> Judi in IN

>

>

>

Kathe in CA

__________________________________________________

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Hi Judi:

I am so sorry that the Lyrica has fizzled out on you -

it was looking so promising there for a while. What a

disappointment - I feel for you, kiddo. Well, darn

that Decrum's - I know you have had some tumors

removed before, but has the removal of them helped?

Could this one be removed? Good luck to you on your

babysitting tomorrow - get to bed early tonight -

you're going to need all of your energy tomorrow lol.

Kathe in CA

--- nonny46 <nonny46@...> wrote:

> Hi group,

>

> Well the problem with my back is solved, not that

> I'm happy with the

> solution, but at least I know. I have one of

> " those " tumors (one of

> hundreds of painful lipomas, for those who don't

> know about Dercum's

> disease) about the size of a golf ball growing right

> next to my

> spinal column. It is apparently causing me to have

> muscle spasms,

> and that is what caused all my pain and difficulty

> moving. It's much

> better today, but still very tender.

>

> I've been taking Lyrica for about 2 weeks now, but

> it is losing its

> effectiveness, as I have found with other meds I

> have taken. Sooooo,

> I am back to where I was, just taking my Voltaren

> and Ultram, but at

> least they help so I won't complain. Got another

> tumor acting up in

> the arch of my right foot, so had to stay off my

> feet today.

> Tomorrow is a marathon babysitting day, from about 2

> PM until maybe 9

> PM when comes home. Ah, but I can sleep in as

> late as I want

> Saturday! Maybe I'll ask Ron to fix me breakfast in

> bed.....nah, I'd

> probably get Poptarts and a dandelion. Hm, well, if

> they are

> cinnamon Poptarts...

>

> Blessings to all,

> Judi in IN

>

>

>

Kathe in CA

__________________________________________________

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Girl, your positive attitude & sense of humor inspire me so much.

Hoping you have a great time with the babies, I know they can sure

take it out of you though. How do the lipomas act in dercums? Does

the pain wax and wane, or do you get flareups like in RA? I know

neurological diseases are mysterious things- I had never heard of

Dercums until I heard your story.

Careful hugs and wishes for pain free days.

Jane

> Hi group,

>

> Well the problem with my back is solved, not that I'm happy with

the

> solution, but at least I know. I have one of " those " tumors (one

of

> hundreds of painful lipomas, for those who don't know about

Dercum's

> disease) about the size of a golf ball growing right next to my

> spinal column. It is apparently causing me to have muscle spasms,

> and that is what caused all my pain and difficulty moving. It's

much

> better today, but still very tender.

>

> I've been taking Lyrica for about 2 weeks now, but it is losing its

> effectiveness, as I have found with other meds I have taken.

Sooooo,

> I am back to where I was, just taking my Voltaren and Ultram, but

at

> least they help so I won't complain. Got another tumor acting up

in

> the arch of my right foot, so had to stay off my feet today.

> Tomorrow is a marathon babysitting day, from about 2 PM until maybe

9

> PM when comes home. Ah, but I can sleep in as late as I want

> Saturday! Maybe I'll ask Ron to fix me breakfast in bed.....nah,

I'd

> probably get Poptarts and a dandelion. Hm, well, if they are

> cinnamon Poptarts...

>

> Blessings to all,

> Judi in IN

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Girl, your positive attitude & sense of humor inspire me so much.

Hoping you have a great time with the babies, I know they can sure

take it out of you though. How do the lipomas act in dercums? Does

the pain wax and wane, or do you get flareups like in RA? I know

neurological diseases are mysterious things- I had never heard of

Dercums until I heard your story.

Careful hugs and wishes for pain free days.

Jane

> Hi group,

>

> Well the problem with my back is solved, not that I'm happy with

the

> solution, but at least I know. I have one of " those " tumors (one

of

> hundreds of painful lipomas, for those who don't know about

Dercum's

> disease) about the size of a golf ball growing right next to my

> spinal column. It is apparently causing me to have muscle spasms,

> and that is what caused all my pain and difficulty moving. It's

much

> better today, but still very tender.

>

> I've been taking Lyrica for about 2 weeks now, but it is losing its

> effectiveness, as I have found with other meds I have taken.

Sooooo,

> I am back to where I was, just taking my Voltaren and Ultram, but

at

> least they help so I won't complain. Got another tumor acting up

in

> the arch of my right foot, so had to stay off my feet today.

> Tomorrow is a marathon babysitting day, from about 2 PM until maybe

9

> PM when comes home. Ah, but I can sleep in as late as I want

> Saturday! Maybe I'll ask Ron to fix me breakfast in bed.....nah,

I'd

> probably get Poptarts and a dandelion. Hm, well, if they are

> cinnamon Poptarts...

>

> Blessings to all,

> Judi in IN

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Oh Judi, I'm so sorry these darned things are so close to your spine.

That must really hurt.

The Lyrica is loosing it's effectiveness is such a shame. You are

just so full of bad news,

but your optimism is admirable. I know those babies will put plenty

of smiles on your face.

Handling 3 of them can't be an easy task, but I know you'll have fun.

Enjoy your triple blessings!

a

On Sep 15, 2005, at 7:41 PM, nonny46 wrote:

> Hi group,

>

> Well the problem with my back is solved, not that I'm happy with the

> solution, but at least I know. I have one of " those " tumors (one of

> hundreds of painful lipomas, for those who don't know about Dercum's

> disease) about the size of a golf ball growing right next to my

> spinal column. It is apparently causing me to have muscle spasms,

> and that is what caused all my pain and difficulty moving. It's much

> better today, but still very tender.

>

> I've been taking Lyrica for about 2 weeks now, but it is losing its

> effectiveness, as I have found with other meds I have taken. Sooooo,

> I am back to where I was, just taking my Voltaren and Ultram, but at

> least they help so I won't complain. Got another tumor acting up in

> the arch of my right foot, so had to stay off my feet today.

> Tomorrow is a marathon babysitting day, from about 2 PM until maybe 9

> PM when comes home. Ah, but I can sleep in as late as I want

> Saturday! Maybe I'll ask Ron to fix me breakfast in bed.....nah, I'd

> probably get Poptarts and a dandelion. Hm, well, if they are

> cinnamon Poptarts...

>

> Blessings to all,

> Judi in IN

>

>

>

>

>

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Oh Judi, I'm so sorry these darned things are so close to your spine.

That must really hurt.

The Lyrica is loosing it's effectiveness is such a shame. You are

just so full of bad news,

but your optimism is admirable. I know those babies will put plenty

of smiles on your face.

Handling 3 of them can't be an easy task, but I know you'll have fun.

Enjoy your triple blessings!

a

On Sep 15, 2005, at 7:41 PM, nonny46 wrote:

> Hi group,

>

> Well the problem with my back is solved, not that I'm happy with the

> solution, but at least I know. I have one of " those " tumors (one of

> hundreds of painful lipomas, for those who don't know about Dercum's

> disease) about the size of a golf ball growing right next to my

> spinal column. It is apparently causing me to have muscle spasms,

> and that is what caused all my pain and difficulty moving. It's much

> better today, but still very tender.

>

> I've been taking Lyrica for about 2 weeks now, but it is losing its

> effectiveness, as I have found with other meds I have taken. Sooooo,

> I am back to where I was, just taking my Voltaren and Ultram, but at

> least they help so I won't complain. Got another tumor acting up in

> the arch of my right foot, so had to stay off my feet today.

> Tomorrow is a marathon babysitting day, from about 2 PM until maybe 9

> PM when comes home. Ah, but I can sleep in as late as I want

> Saturday! Maybe I'll ask Ron to fix me breakfast in bed.....nah, I'd

> probably get Poptarts and a dandelion. Hm, well, if they are

> cinnamon Poptarts...

>

> Blessings to all,

> Judi in IN

>

>

>

>

>

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HiJane,

Gee, I'm glad that I am an inspiration (beats perspiration all to

heck!!) We had a great time with the babies--when the triplets woke

from their nap, it was fun to see the wonder in their eyes at seeing

us there, and then all we saw were arms and legs as they crawled all

over us from 2:30 until came home at 7:30. She got home

earlier than she thought, but tired from 2 days of classes and 8

hours of driving. TJ came flying off the school bus and I don't

think his feet hit the ground until he leaped into Papa's arms. You

should've seen those two playing with frogs outside, sitting on the

deck in their sock feet. After dinner, Rebekah was looking for her

sippy cup which she had put down, and then in her little 2-year old

voice, I heard " AHA!! There you are! " I nearly wet myself laughing.

Well, I've had a dish of sugar free chocolate cherry ice cream and

I'm ready for the rack. Now if my cat will just decide it's ok to

drink out of his normal water dish instead of my bathroom sink...

Pleasant dreams,

Judi

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HiJane,

Gee, I'm glad that I am an inspiration (beats perspiration all to

heck!!) We had a great time with the babies--when the triplets woke

from their nap, it was fun to see the wonder in their eyes at seeing

us there, and then all we saw were arms and legs as they crawled all

over us from 2:30 until came home at 7:30. She got home

earlier than she thought, but tired from 2 days of classes and 8

hours of driving. TJ came flying off the school bus and I don't

think his feet hit the ground until he leaped into Papa's arms. You

should've seen those two playing with frogs outside, sitting on the

deck in their sock feet. After dinner, Rebekah was looking for her

sippy cup which she had put down, and then in her little 2-year old

voice, I heard " AHA!! There you are! " I nearly wet myself laughing.

Well, I've had a dish of sugar free chocolate cherry ice cream and

I'm ready for the rack. Now if my cat will just decide it's ok to

drink out of his normal water dish instead of my bathroom sink...

Pleasant dreams,

Judi

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Thanks, a!

Yeah, it hurts, but hey what's new? As long as I don't turn real quick

(like to watch some hottie going down the street) it's not so bad. Oh,

and reaching for an extra helping of ice cream (see post to Jane...)

I'm really loopy tonight, and after being out in the country at

's, sneezing my eyeballs out. The grandbabies were angels...well,

ok, they were typical 2-year olds. Bekah tried to stomp her foot at me

and I just gave her my evil eye and she " innocently " waved her little

foot around like " oh, I wasn't going to really stomp my foot... "

Have a good weekend,

Judi

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Thanks, a!

Yeah, it hurts, but hey what's new? As long as I don't turn real quick

(like to watch some hottie going down the street) it's not so bad. Oh,

and reaching for an extra helping of ice cream (see post to Jane...)

I'm really loopy tonight, and after being out in the country at

's, sneezing my eyeballs out. The grandbabies were angels...well,

ok, they were typical 2-year olds. Bekah tried to stomp her foot at me

and I just gave her my evil eye and she " innocently " waved her little

foot around like " oh, I wasn't going to really stomp my foot... "

Have a good weekend,

Judi

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A hottie may be worth the pain LOL! I feel for you having to deal

with an allergy attack. We just got back from NJ and my poor husband

suffered terribly. One great thing about moving to Florida is that he

doesn't have to live on allergy pills anymore. So glad it went well.

Enjoy that ice cream. I think it's time I took a break from trying to

catch up and indulged!!

Hope you also have a good weekend.

a

On Sep 16, 2005, at 10:01 PM, nonny46 wrote:

> Thanks, a!

>

> Yeah, it hurts, but hey what's new? As long as I don't turn real

> quick

> (like to watch some hottie going down the street) it's not so bad.

> Oh,

> and reaching for an extra helping of ice cream (see post to Jane...)

> I'm really loopy tonight, and after being out in the country at

> 's, sneezing my eyeballs out. The grandbabies were

> angels...well,

> ok, they were typical 2-year olds. Bekah tried to stomp her foot

> at me

> and I just gave her my evil eye and she " innocently " waved her little

> foot around like " oh, I wasn't going to really stomp my foot... "

>

> Have a good weekend,

> Judi

>

>

>

>

>

>

>

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A hottie may be worth the pain LOL! I feel for you having to deal

with an allergy attack. We just got back from NJ and my poor husband

suffered terribly. One great thing about moving to Florida is that he

doesn't have to live on allergy pills anymore. So glad it went well.

Enjoy that ice cream. I think it's time I took a break from trying to

catch up and indulged!!

Hope you also have a good weekend.

a

On Sep 16, 2005, at 10:01 PM, nonny46 wrote:

> Thanks, a!

>

> Yeah, it hurts, but hey what's new? As long as I don't turn real

> quick

> (like to watch some hottie going down the street) it's not so bad.

> Oh,

> and reaching for an extra helping of ice cream (see post to Jane...)

> I'm really loopy tonight, and after being out in the country at

> 's, sneezing my eyeballs out. The grandbabies were

> angels...well,

> ok, they were typical 2-year olds. Bekah tried to stomp her foot

> at me

> and I just gave her my evil eye and she " innocently " waved her little

> foot around like " oh, I wasn't going to really stomp my foot... "

>

> Have a good weekend,

> Judi

>

>

>

>

>

>

>

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