Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 I pissed people off on the Arc facebook page. There are things I don't agree with and I voice it. They are so hard harted that they are blind. The ARC is trying to close the SEVTC even though there are peole there who don't want to move. Moveing someone to a community group home when thye aren't ready is going to set them up for failure and give group homes a bad image. Just saying. I have issues with their adgenda too. http://thekitchenexperiments.blogspot.com/ > > > > > > > Jenn, > > > > Don't feel guilty for having more kids. I don't know why outside people > > want to make us feel bad for trying to balance everything. My family also > > said the same about my youngest son who is now 2 1/2 but then the first > > mother's day as a mother of 3 my parents threw me a party like it was my > > first mother's day ever. My older two are not biologically mine. See so you > > can't win with people. Just ignore those people. Children area a gift. All > > perfect gifts are from above. They are all wonderfully made by the hand of > > the creator. He made them just for you. > > > > I wish I had something to say about the self injury that isn't what you > > already know. It's communication. Maybe he gets pain with swallowing? > > > > , > > > > I agree about the benefits of being a sibling. My daughter is a twin to my > > son with DS-ASD and while she is in that embarassed phase I know she will > > get bac k to that protectiveness that I remember. She once chase a boy down > > the street to get her brother's toy back and since he isn't socially cued in > > he hadn't minded having it taken. He'd just found himself something else to > > play with. My favorite twin sibling story. > > > > Sara, > > My son's favorite is small size stuffed plushes that he's chewed until they > > are really stringy. I toss them at that point because he has wrapped them > > around his finger and made it turn blue. So then he starts all over. The > > only think he likes more than plushies is see and says. He breaks the > > spinner because he LOVES to feel it spin. > > > > I too have cracked people up with my descriptions. My son's most > > embarassing (to his twin sister) habit it that he Moos and I tell people he > > will be the voice of the chick-fil-a cow when he grows up! Last time I had > > him at church a boy told him to " eat grass cow " . I almost laughed until I > > looked and realized he was being mean. A visiting child. If he comes back he > > will be my new best friend. > > > > Margaret, > > So far no side effects from the Depakote and I was told that it might even > > help with his hand flapping. They will at some point need to check the blood > > levels so I'll see if I can find out from the Dr about those EEGs. Also I > > will ask the NP who did him autism screening about 24 hr EEG that is used > > with newly Dx autism. The neuro didn't really care if he got one even though > > he was suspected of haveing autism. > > > > Jayne, > > DSAHR still isn't DS-ASD friendly but the new president asked me if I were > > interested in starting a playgroup/mini-support group for it. She sin't sure > > how many will come out. I'm going to try and have teen volunteers with > > energy on hand so the parents can talk and the kids can work on play skills. > > I do like the schools in VB and I hear Norfolk is still good too. A friend > > of mine's husband used to be the adaptive PE teacher in Norfolk. I wonder if > > he taught you son. Last name LaFlur (spelling off). He traveled between the > > schools. > > > > Yes, we were here in 2004-2006. 2004 is when we stopped going to any event > > because my son had been kicked out of PALS by the evil descriminating > > program supervisor. My Mom had the kids so we could honeymoon and well my > > son didn't sleep the whole week and went into the PALS day care and bite > > somebody (after we thought he'd out grown it), tried to sit on older teens > > laps who had G-tubes (he though they were adults), push other kids off the > > therapy ball, and made a huge mess with his food (I told them he eats well > > and to let him feed himself for skill building - he'd make it up at > > dinner!). It was the start of the downward spiral that didn't let up until > > her was admitted to the ICF. Holiday House of Portsmouth. I was saved in > > 2005, found a new daycare run by a former SECEP teacher whose LOVE my son > > and didn't mind his lack of Dx, and in 2008 prayerfully he was admitted to > > holiday house because he aged out of that day care and was now refusing to > > get out of the tub and climbing his bedroom furniture. this is the stuff > > that I couldn't put in the essay because it was for skillquest which is run > > by the city just like PALS. I work for the city so I didn't want to piss of > > the department director my bosses boss. My son just turned 14 on last > > monday. > > > > so that is hwy you say wicked all the time. My high school sweethart was > > from Maine. Bar Harbor. Well actually his parents were. I'll check your blog > > and probably link it. > > > > Beth, > > Challenger Baseball was crazy hgard for my son. I was again the only one > > whose kid needed hand over hand and couldn't follow one step instructions. I > > can't even get special olympics to call me back but everyone else seems to > > get in no prob. > > > > > > http://thekitchenexperiments.blogspot.com/ > > > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > > Quote Link to comment Share on other sites More sharing options...
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