Writing Down Meds in A Notebook

July 26, 2010

Good idea Sara!

You are still a nurse at heart! ;0)

>

> >

> > We've had our share of tests and lots of different drugs. If the test is

> > really necessary then the drugs can be worth it - even though it goes

> > against our instincts. Darwyn (6) did NOT do well on something called

> > methazadazaline (or something like that). He was knocked out for an hour for

> > an echocardiogram and woke up miserable and biting and yelling in loud

> > bursts for the rest of the day. He also took a really long time to wake up

> > when morphine was used (that was 5 years ago - I think it was morphine) when

> > he was under for a cardio probe.

> > Chloral hydrate we used for a 2 hour EEG but his oxygen levels got a little

> > low and the nurses and resident dr got anxious. We've been through much

> > lower Oxygen numbers so for us the worst part was that we had to wait extra

> > time before they let us leave the hospital. (And yes Dar had blue goo on his

> > head for weeks after, I'd forgotten that part). His last echocardiogram we

> > gave him melatonin and he watched a video all mellow and that was a nice

> > change. But 24 hours is a loooong time. I can't remember if you already

> > explained, but what is the 24 hour eeg for?

> > I've found I have to remember to tell medical staff that he really reacts

> > differently to many meds as they tend to assume all will go well and that's

> > not always the case.

> > Best of luck.

> > ,

> > Mom to Dar (DS ASD and a few heart surgeries)

> > , Canada

> > muscle relaxant

> >

> > Has anyone's kiddo been given a muscle relaxant for a test? We have to do

> > to

> > Angie's EEG and they want me to give her Tizanidine for the whole 24 hours

> > while she is hooked up. I feel really uneasy about this. NOT a good feeling

> >

> > at all. Wondering if anyone else has used it? I talk to my mom and she

> > always thinks doctors know best, but I disagree.

> >

> > DS-ASD 7 years

> >

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