Re: Methotrexate - Sandie

[Guest guest]

Sandie:

Boy, do I understand how you are feeling. I am so

sorry that you are having so much pain, and not

getting the understanding and help you need from your

doctor. I hope the next one is better. How long have

you been on the Mtx? Are you on an anti-inflammatory?

Even Prednisone can be of benefit in the short term

until you see your new doctor. How a pap test can

have anything to do with your RA is beyond me -how

weird. Good for you for lodging a complaint.

You have really been under a lot of stress lately so

it is not surprising that your RA is flaring up.

Also, the hurricane coming your way, aside from being

just plain scary, is probably also upping the

barometric pressure which also can cause more pain and

inflammation - it sure does for me. Rainy and cold

weather like we have had here recently in CA threw me

into a bad flare - and I had been doing so well for a

while. I am glad that I am not in an area where we

have snow - don't know how I would survive that when

60 degrees is so painful.

About 2 years into my RA journey, I finally talked to

my doctor about how I was feeling - gradually feeling

more depressed, down, no urge to do anything but lay

in bed, lost my sense of humor and became grouchy (or

grouchier lol). My family was worried about me, and I

was too. She told me that depression is quite common

with chronic pain and chronic disease, and started me

on Effexor XR. What a difference - within a week, my

family and friends, and myself, could definately tell

the difference. I was able to laugh and joke again,

and was better able to cope with the pain and stress

of RA. I am still on it 4 years later. Don't be afraid

of asking for help if you feel you need it -

Maybe you can ask your mom to come at another time

when you are doing better, and that even though you

love to see her, you just can't do it at this time -

she should understand. Have you tried rice socks? I

really like them because they can form to your joint

and are easy to make and use. Just fill an old sock

with some rice, heat in the microwave for 2 minutes,

and apply it to where your pain is. Some days I have

both rice socks on my wrists or elbows, and am resting

on my heating/massage pad too.

Hope that this is helpful to you - keep in touch - we

are here 24/7 for you -

Kathe in CA

--- slmcc93@... wrote:

> Sue,

> I am just disgusted with this whole stinking

> disease. I have tons going on

> personally and my hubby has been having trouble with

> hypertension. along with

> that and taking care of the kids daily we have also

> had 2 deaths in the family

> in the past 2 months. now it looks like this silly

> hurricane is headed my way

> and i just cant take it anymore. I honestly cant

> tell you when I felt good.

> It seems like such a long time ago and it is so

> disheartening. I will go to

> the hematologist like my rheumy wants but i do see

> him on tuesday and want to

> go over how I am feeling. I dont think I am getting

> much relief from the mtx as

> my hands and feet hurt so much now. when my gfeet

> start the pain is so bad it

> turns my stomach. Ultram does nothing to relieve the

> pain and my doc wont

> prescribe anything else. My primary doc made me sign

> a controlled substance paper

> and then gave me one prescription for lortab. I

> guess he wanted me to kiss

> his feet because i hoarded these meds and only took

> them when absolutley

> necessary and when I made an appointment to have

> them renewed 3 months later his

> nurse called me and very rudely told me he would not

> renew my prescription as I

> did not keep an appointment for a pap test(yup you

> heard right) so therefore he

> was stopping all meds to me. I was so infuriated

> that I actually called my

> insurance company and put in a formal complain

> against him and then switched

> docs. I now have to wait til the middle of november

> for a new paitient visit with

> him. Sorry to ramble on it is just that so much is

> getting to me and I feel

> like no doctor will listen to me or help me.I am

> thinking of asking for my

> rheumy to prescribe something for depression for me.

> I feel so bad for my kids,

> some days I snap at them for the least little thing

> just because of how lousy I

> feel. I cant remember when I got my last good nights

> sleep and now my mom is

> supposed to come for a visit in a few weeks and I

> just dont feel up to

> " visiting " UGh. If you got this far in my

> complaining thanks- sorry to go on and on.

> take care

> sandie

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe in CA

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Sandie:

Boy, do I understand how you are feeling. I am so

sorry that you are having so much pain, and not

getting the understanding and help you need from your

doctor. I hope the next one is better. How long have

you been on the Mtx? Are you on an anti-inflammatory?

Even Prednisone can be of benefit in the short term

until you see your new doctor. How a pap test can

have anything to do with your RA is beyond me -how

weird. Good for you for lodging a complaint.

You have really been under a lot of stress lately so

it is not surprising that your RA is flaring up.

Also, the hurricane coming your way, aside from being

just plain scary, is probably also upping the

barometric pressure which also can cause more pain and

inflammation - it sure does for me. Rainy and cold

weather like we have had here recently in CA threw me

into a bad flare - and I had been doing so well for a

while. I am glad that I am not in an area where we

have snow - don't know how I would survive that when

60 degrees is so painful.

About 2 years into my RA journey, I finally talked to

my doctor about how I was feeling - gradually feeling

more depressed, down, no urge to do anything but lay

in bed, lost my sense of humor and became grouchy (or

grouchier lol). My family was worried about me, and I

was too. She told me that depression is quite common

with chronic pain and chronic disease, and started me

on Effexor XR. What a difference - within a week, my

family and friends, and myself, could definately tell

the difference. I was able to laugh and joke again,

and was better able to cope with the pain and stress

of RA. I am still on it 4 years later. Don't be afraid

of asking for help if you feel you need it -

Maybe you can ask your mom to come at another time

when you are doing better, and that even though you

love to see her, you just can't do it at this time -

she should understand. Have you tried rice socks? I

really like them because they can form to your joint

and are easy to make and use. Just fill an old sock

with some rice, heat in the microwave for 2 minutes,

and apply it to where your pain is. Some days I have

both rice socks on my wrists or elbows, and am resting

on my heating/massage pad too.

Hope that this is helpful to you - keep in touch - we

are here 24/7 for you -

Kathe in CA

--- slmcc93@... wrote:

> Sue,

> I am just disgusted with this whole stinking

> disease. I have tons going on

> personally and my hubby has been having trouble with

> hypertension. along with

> that and taking care of the kids daily we have also

> had 2 deaths in the family

> in the past 2 months. now it looks like this silly

> hurricane is headed my way

> and i just cant take it anymore. I honestly cant

> tell you when I felt good.

> It seems like such a long time ago and it is so

> disheartening. I will go to

> the hematologist like my rheumy wants but i do see

> him on tuesday and want to

> go over how I am feeling. I dont think I am getting

> much relief from the mtx as

> my hands and feet hurt so much now. when my gfeet

> start the pain is so bad it

> turns my stomach. Ultram does nothing to relieve the

> pain and my doc wont

> prescribe anything else. My primary doc made me sign

> a controlled substance paper

> and then gave me one prescription for lortab. I

> guess he wanted me to kiss

> his feet because i hoarded these meds and only took

> them when absolutley

> necessary and when I made an appointment to have

> them renewed 3 months later his

> nurse called me and very rudely told me he would not

> renew my prescription as I

> did not keep an appointment for a pap test(yup you

> heard right) so therefore he

> was stopping all meds to me. I was so infuriated

> that I actually called my

> insurance company and put in a formal complain

> against him and then switched

> docs. I now have to wait til the middle of november

> for a new paitient visit with

> him. Sorry to ramble on it is just that so much is

> getting to me and I feel

> like no doctor will listen to me or help me.I am

> thinking of asking for my

> rheumy to prescribe something for depression for me.

> I feel so bad for my kids,

> some days I snap at them for the least little thing

> just because of how lousy I

> feel. I cant remember when I got my last good nights

> sleep and now my mom is

> supposed to come for a visit in a few weeks and I

> just dont feel up to

> " visiting " UGh. If you got this far in my

> complaining thanks- sorry to go on and on.

> take care

> sandie

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe in CA

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.