Guest guest Posted April 10, 2005 Report Share Posted April 10, 2005 Hi, Is there anyway you can shorten your workday or work week? It is amazing that you are hanging in there working and I did for as long as I could and slowly started decreasing the work amount until I just could not do it anymore, but if there is some way that you can work perhaps less hours or less days a week until you get your bounce back that would be great huh? Also, the biggest thing I have learned so far is never multitask too much, that means no doing five errands, cut back to two. Rest is so important with RA and any of these autoimmune diseases. Again, the fact that you are working is truly amazing to me right now. I am at a very active point in my disease process. Good luck and take care of yourself, you need to rest, rest, rest. You can still do stuff, just pace yourself more. I know how difficult that is to accept, but hang in there. Hugs and prayers from Tracie in Maine. > > > Fatigue from RA is wearing me down. There are many weekends in which I > park the car in the garage on Friday after work and do not leave the > house again until Monday morning. This is so unlike me...prior to RA, > that is. > Even when the pain is bearable/in control, I am just SO TIRED! > Anybody have success easing fatigue? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 I can empathize with you. There are times when I get home, I park the car in the garage, and just sit there because I don't have the energy or the will to get out. I had to give up my sports car because the fatigue was so bad I couldn't make it out of the car. Sometimes I think the fatigue is more difficult to deal with than the pain. It takes me a few days to get over it, and even come monday, I'm still not completely over it. I have found that a hot bath, usually sitting in the hot tub, relaxes me enough that I can actually fall asleep. But, it doesn't always work. That, and the fact I am usually to fatigued to get the cover of the hot tub. There are days, too many days, where I just feel soooo pathetic!! Trying to get someone to understand what you are going through (the ones who don't go through this) is just a tiring as what the disease itself does. <<<sigh>>> I wish I could offer some advice, but I am still looking for the answer, myself!!.....Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 You know, I thought it was just me. I hate trying to explain what's going on, even to my wife. She tries but just doesn't get it, I don't really blame her though. I've found that for me, at least, the fatigue is worse than the pain. I can handle high amounts of pain but being tired all the time drives me nuts. I've found that the best method of fatigue management is meditation. I am a Buddhist, so I have my biases. :-) I usually meditate for 15 minutes or so in the morning before my walk and 15 minutes at night before my nightly exercises. It really helps the focus during the day. I used to only do this as part of my philosophical practices but now its far more rewarding with a purpose. The medication, I think, makes the fatigue worse, I would ask the Dr. about that. Bill - newly diagnosed, new member, trying to get the hang of this support group thing. marina_troi wrote: > > I can empathize with you. There are times when I get home, I park > the car in the garage, and just sit there because I don't have the > energy or the will to get out. I had to give up my sports car > because the fatigue was so bad I couldn't make it out of the car. > > Sometimes I think the fatigue is more difficult to deal with than > the pain. It takes me a few days to get over it, and even come > monday, I'm still not completely over it. I have found that a hot > bath, usually sitting in the hot tub, relaxes me enough that I can > actually fall asleep. But, it doesn't always work. That, and the > fact I am usually to fatigued to get the cover of the hot tub. > > There are days, too many days, where I just feel soooo pathetic!! > Trying to get someone to understand what you are going through (the > ones who don't go through this) is just a tiring as what the disease > itself does. <<<sigh>>> > > I wish I could offer some advice, but I am still looking for the > answer, myself!!.....Marina > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 It's amazing to hear about the fatigue factor--I too think it's more debilitating than the pain. Add to that the fact that the medication I take contributes to my fatigue. If I try to " work through it " I end up wiped out on my living room floor with my dog licking my face and my husband asking me where supper is. Ugh. Re: [ ] Re: so tired You know, I thought it was just me. I hate trying to explain what's going on, even to my wife. She tries but just doesn't get it, I don't really blame her though. I've found that for me, at least, the fatigue is worse than the pain. I can handle high amounts of pain but being tired all the time drives me nuts. I've found that the best method of fatigue management is meditation. I am a Buddhist, so I have my biases. :-) I usually meditate for 15 minutes or so in the morning before my walk and 15 minutes at night before my nightly exercises. It really helps the focus during the day. I used to only do this as part of my philosophical practices but now its far more rewarding with a purpose. The medication, I think, makes the fatigue worse, I would ask the Dr. about that. Bill - newly diagnosed, new member, trying to get the hang of this support group thing. marina_troi wrote: > > I can empathize with you. There are times when I get home, I park > the car in the garage, and just sit there because I don't have the > energy or the will to get out. I had to give up my sports car > because the fatigue was so bad I couldn't make it out of the car. > > Sometimes I think the fatigue is more difficult to deal with than > the pain. It takes me a few days to get over it, and even come > monday, I'm still not completely over it. I have found that a hot > bath, usually sitting in the hot tub, relaxes me enough that I can > actually fall asleep. But, it doesn't always work. That, and the > fact I am usually to fatigued to get the cover of the hot tub. > > There are days, too many days, where I just feel soooo pathetic!! > Trying to get someone to understand what you are going through (the > ones who don't go through this) is just a tiring as what the disease > itself does. <<<sigh>>> > > I wish I could offer some advice, but I am still looking for the > answer, myself!!.....Marina > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Yeah, " working through it " only works if you can get the energy to start working in the first place. :-) I find the best thing to do is to take slow deep breaths and focus on one thing at a time. That's pretty hard for me, since I'm an extreme Type-A personality, that's why this has been so hard on me. Oh well, back to work. Bill wrote: > > It's amazing to hear about the fatigue factor--I too think it's more > debilitating than the pain. Add to that the fact that the medication I > take contributes to my fatigue. If I try to " work through it " I end up > wiped out on my living room floor with my dog licking my face and my > husband asking me where supper is. Ugh. > > > > Re: [ ] Re: so tired > > > > You know, I thought it was just me. I hate trying to explain what's > going on, even to my wife. She tries but just doesn't get it, I don't > really blame her though. I've found that for me, at least, the fatigue > is worse than the pain. I can handle high amounts of pain but being > tired all the time drives me nuts. I've found that the best method of > fatigue management is meditation. I am a Buddhist, so I have my biases. > :-) I usually meditate for 15 minutes or so in the morning before my > walk and 15 minutes at night before my nightly exercises. It really > helps the focus during the day. I used to only do this as part of my > philosophical practices but now its far more rewarding with a purpose. > The medication, I think, makes the fatigue worse, I would ask the Dr. > about that. > > Bill - newly diagnosed, new member, trying to get the hang of this > support group thing. > > > marina_troi wrote: > > > > I can empathize with you. There are times when I get home, I park > > the car in the garage, and just sit there because I don't have the > > energy or the will to get out. I had to give up my sports car > > because the fatigue was so bad I couldn't make it out of the car. > > > > Sometimes I think the fatigue is more difficult to deal with than > > the pain. It takes me a few days to get over it, and even come > > monday, I'm still not completely over it. I have found that a hot > > bath, usually sitting in the hot tub, relaxes me enough that I can > > actually fall asleep. But, it doesn't always work. That, and the > > fact I am usually to fatigued to get the cover of the hot tub. > > > > There are days, too many days, where I just feel soooo pathetic!! > > Trying to get someone to understand what you are going through (the > > ones who don't go through this) is just a tiring as what the disease > > itself does. <<<sigh>>> > > > > I wish I could offer some advice, but I am still looking for the > > answer, myself!!.....Marina > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 In a message dated 4/11/2005 8:10:00 P.M. Eastern Daylight Time, Bill writes: I've found that the best method of fatigue management is meditation. I am a Buddhist, so I have my biases. :-) I usually meditate for 15 minutes or so in the morning before my walk and 15 minutes at night before my nightly exercises. It really helps the focus during the day. I used to only do this as part of my philosophical practices but now its far more rewarding with a purpose. Bill ... I am not a Buddhist, although I certainly respect the practice. I am a Christian who meditates and I also find it extremely helpful. It is truly something that helps. Good luck to you! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Boy, do I agree about the fatigue factor! There is no way I could continue to work full time as a Vet tech if I couldn't come home and take a nap most afternoons, then I go back to work for 3 more hours. I have been diagnoised with 3 auto-immune diaseases, so I thought it was just me, too. I rarely go " out " on weekends, never during the week. I have found when I do try and work throught it, or try and plan to do something " special " by getting some extra rest, I still end up " paying for it " I'm wiped out for a few days. I can travel, have a pretty good time if I'm on Pred, but then I pay for it when I come off of it. I have a Grandson who turned " 1 " on April 5th and another expected the first week in May. They live in CO and I in VA. I visited before the birth in Feb. of last years, was on Steriods for two weeks to make the trip. I'm afraid to go back on Pred. just to take a trip, so I've not seen my grandson. Steriods are the only thing I have found to " help " with the fatigue, and the side effects, I've decided, just aren't worth it. Sorry, please share any solutions to the fatigue problem. That is by far my biggest problem. Colleen > > Yeah, " working through it " only works if you can get the energy to start > working in the first place. > > > > It's amazing to hear about the fatigue factor--I too think it's more > > debilitating than the pain. Add to that the fact that the medication I > > take contributes to my fatigue. If I try to " work through it " I end up > > wiped out on my living room floor with my dog licking my face and my > > husband asking me where supper is. Ugh. > > > > > > > > You know, I thought it was just me. I hate trying to explain what's > > going on, even to my wife. She tries but just doesn't get it, I don't > > really blame her though. I've found that for me, at least, the fatigue > > is worse than the pain. I can handle high amounts of pain but being > > tired all the time drives me nuts. > > > I can empathize with you. There are times when I get home, I park > > > the car in the garage, and just sit there because I don't have the > > > energy or the will to get out. I had to give up my sports car > > > because the fatigue was so bad I couldn't make it out of the car. > > > > > > Sometimes I think the fatigue is more difficult to deal with than > > > the pain. It takes me a few days to get over it, and even come > > > monday, I'm still not completely over it. I have found that a hot > > > bath, usually sitting in the hot tub, relaxes me enough that I can > > > actually fall asleep. But, it doesn't always work. > > > Trying to get someone to understand what you are going through (the > > > ones who don't go through this) is just a tiring as what the disease > > > itself does. <<<sigh>>> > > > > > > I wish I could offer some advice, but I am still looking for the > > > answer, myself!!.....Marina > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Colleen, I'm the same way. I try to avoid the steroids at all costs. But, the Enbrel has begun to wear off and I am finding that I am requiring steroids more frequently. I try to go no longer than a week and no more than once a month, if I can. I told my rheumy that I will take 20mg (the lowest dose to have some effect) and taper off at about 5mg a day. Sometimes I have to longer than a week only because I stay on the 20mg for a few days. I hate doing that. I have been avoiding using them lately because I want them to have their peek effect when I go on vacation this week. I'm going to Vegas Thursday and, damn it, I want to be able to enjoy myself. So, my pal Prednisone is going with me!! <<sigh>> The things we must endure!!......Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 GoAwayRA@... wrote: > Bill ... I am not a Buddhist, although I certainly respect the > practice. I > am a Christian who meditates and I also find it extremely helpful. It is > truly something that helps. > > Good luck to you! > > Beth Thank you Beth. Same to you. Meditation certainly doesn't have to have religious overtones (Buddihism is more a philosophy to me than a religion), although it often does. There are a multitude of websites and books out there focusing on meditation for pain management: http://myturl.com/001AO http://myturl.com/001AP Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 well i started on mtx yesterday night and well today they called me into work at 7:30am and i clocked out of work tonight at 7:00pm what a long day i'm so tired and my stomic hurts. i still have to feed the kids (dinner is on the stove ) and my husband is out of town this weekend for work he is so scared about me starting this why he was out of town but my dr wanted me to start it last night so i did well i got to go for now time to feed the kids melissa in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 , What a bummer! I'm sorry to hear, you had such a long day at work. It helps me to take the MTX on Saturday, and I know that I can rest for the weekend. Make sure you take the Folic acid every day, except the day of MTX. I don't have much stomach problem with the Mtx, but I do feel so fatiqued from it. I hope the side effects of the med goes away, after you get use to it. Will keep you in my prayes, Tawny > well i started on mtx yesterday night and well today they called me > into work at 7:30am and i clocked out of work tonight at 7:00pm what a > long day i'm so tired and my stomic hurts. i still have to feed the > kids (dinner is on the stove ) and my husband is out of town this > weekend for work > he is so scared about me starting this why he was out of town but my > dr wanted me to start it last night so i did > well i got to go for now time to feed the kids > > > melissa in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2007 Report Share Posted April 3, 2007 Hi Sandi I have been on mtx since last September. When I first started I was extremely tired for a couple of days. I took dosage on Sunday night, zombie Monday & Tuesday, but Wednesday ok. My rhuemy increased my folic acid and it made a world of difference!!! You might check on it. take care Dotti > > Hey Everyone, Sandi here. I am on methotrexate, only. and I am soooo > tired the last few days I can barely hold my head up. What's going on? > Has this happened to any of you? Please advise. I am off all pain meds > at this time. Trying to see if the methotrex works. > Help! > Sandi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2007 Report Share Posted April 3, 2007 hey Sandi, when I was being treated with methotrexate l too was very tired...my Uncle is currently on this therapy and takes his meds all in one shot and then sleeps for the rest of the day...he then feels better the next day... hope that helps...Arla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Hi, The 1st time I was on on MTX, my MD at that time had me on 6 pills at a time and told me to take them all at one time. I was thoroughly exhausted and told her that and she said it couldn't be. Hah! I finally changed MDs. Found a great dermatologist in NYC who started me on 2 pills, spread over a 24hr period then gradually increased 1 pill at a time till my psoriasis was gone which took about 6 months. Just a lttle tired, but functional. I am now on 4 MTX spread over a 24 hr period and have found an excellent rheumy who has be on Remicade and it seems to be working well. I had my initial treatments at 0, 3, 6 weeks and then at 8 weeks later. Was feeling achy at about 6 weeks, so he upped the dosage of Remicade and continue with 4 MTX and wants to see me at 7 weeks and see what my status is. Also, he is doing liver panels every month. I was told by the rheumy that MTX along with biologics complement each other and it is mportant to continue them together for allow your body not to reject itself. Also, need to take the folic acid. Hope this helps everyone. Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Yes Bob, I take that as well... Thanks for mentioning it... Love and peace always, Shaun and Barb... Quote Link to comment Share on other sites More sharing options...
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