Guest guest Posted April 8, 2010 Report Share Posted April 8, 2010 Margaret, One more thing after reading this post, did not get sleepy after many of his drops and many other children I know don't. If there was no injury he would just get up and continue whatever he was doing. He had 2 different types the tonic type and then one where he would just go limp. Those sometimes made him sleepy eyed. Terry Jayne <<So what exactly is it that happened, is the tonic episode the same as a tonic seizure? What's syncope? ............. Of course I thought of the whole Travolta's son thing as I'm sure you did too. UGH! ........ Do they think his blood pressure dropped just from him getting up?>> Hi, Everyone.....Jayne.....he said the tonic episode was basically the same as tonic seizure but since we know he doesn't have epilepsy and he wasn't tired/sleeping after the *incident* then it wasn't an ES. Syncope is fainting. He's had Orthostatic hypotension since 15 y/o. They said he'd grow out of it but hasn't. His BP is normally low (100/60) but when he goes from sitting to standing or laying in bed to getting up, it's been recorded to drop as low as 75/40. And, yes, all I could think of afterwards is JT's son dying from falling in the tub. As for TIA's, the neuro doc never mentioned that as a possibility. I need to go back to school to be a doctor just to take care of this kid!!! Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
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