RE: DAN Dr.'s and Tourette's and getting better.

March 23, 2010

Hi Lori..I do the changing minds too........we use ginkgold.....I only give him

60 mg per day which is less than the recommended for his weight...but I am leery

to raise it.....at least for now....Annie

To:

From: uccpowell@...

Date: Tue, 23 Mar 2010 16:21:13 -0500

Subject: DAN Dr.'s and Tourette's and getting better.

Hi:

I missed the conversation regarding DAN doctor's and bio-medical - at least

the part that has people apologizing. We had the same kind of communication

glitch in a staff meeting today, I wonder if it is spring fever.

We do follow a gfcf (and soy free, yeast free, dye free, oranges free) diet

due to allergies but we have never seen a DAN doctor. I used to want to go

and try it but following the allergy free diet works for us so I began to

think, " what's the point? " And we don't have the money for that. Would

much rather do something fun.

However, along these lines I have a question; after reading about the

Changing Minds Foundation on this list serve we tried the fluxetine and

Ginkgo Biloba mix. It really made a difference for my younger son. It made

some difference for my older son - he is less sensitive and that makes it

easier to solve disagreements. But, I either bought a brand of Ginkgo that

does not obsorb as well or my Tony has cycled back into Tourette's. His

Tourette's cycles in and out. The psychiatrist says this is normal. No

medication has ever worked for this. He has lots of facial gestures and

tics but nothing more. It just is a distraction as he is trying to read.

So while he made a great leap forward after going on the fluexetine, the

last two weeks have been more of a struggle - just with reading.

Anyone else have Tourette's? Any success stories?

Anyone else have spring fever? Spring break for us starts on Friday and I

really think my boys are in desperate need.

I will also say that as my boys have gotten older life for us has gotten

much better. Of course they are only 13 and 11 and by reading the posts I

know to keep my eyes and ears open for changes in their behavior. When they

were 4 and 6 they were so wild. They just wanted to motor, motor, motor.

For us, life has gotten better. There is always hope, even after a

regression this can continue to be true for others.

Happy Spring!

Lori

Mom to Isaac 13, and Tony 11

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