Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Emelinne has been off for almost 2 weeks. I figured I would take her out to lunch today to a real restaurant (Chili's) as soon as it opened so it wouldn't be crowded and noisy. I stress more if the atmosphere is not right. Anyway, so I did my morning stuff and then told her we were going out to lunch. I got her dressed and when we opened the door to get in garage she starts crying and biting her hand and hitting her head. She gets in her seat still going berserk. Ok, I am not in the mood for this. Tears and runny nose and saliva all over her face and hands and hair. Just lovely. I tell her to get out of car and she gets in the backseat and she is even louder and angrier. I always have the faint hope that she will stop and be calm so we can do as I planned and enjoy something normal. Finally she goes inside and sits in the livingroom. Within a minute she is calm and asking for Sesame Street. I wait a little while and we drive through 's. I think she got the message because she may have bit her hand once or twice but she didn't have a whole episode. I really wanted to go to Walmart but after that I knew I couldn't chance it. I'm gonna give her a couple hours and then try to head out again. It stinks when you need basic stuff like milk and you can't make it to the store. I'm sorry but I get angry. I look at her when she is having a fit and there is nothing I can do about it. Oh and to top it off I thought, she is already dressed so that's a good thing, we can just go later on. NOT. A little while ago she went into the bathroom. When I looked in on her she had stripped. The only thing she had on was her black undershirt. Joy. Oh, and she has an eval at TEACCH on Jan. 13 and an appt at the Duke DS clinic in April. Someone should be able to tell me how to handle things. Sometimes I feel like a deflated balloon. Nereida in NC Emelinne (17) DS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 I know how you feel. I am dreading taking to the doctor today. We had gotten to where I could pretty much eventually talk her into walking in most of the way. But the last time we went she absolutely refused. I talked, counted, offered rewards until I was blue in the face. We had talked about it ahead of time. Luckily my mom was with me and we each had to grab a leg and haul her into the exam room. Today she is sick and it is snowing. I can't have her sitting down on me in the snow. I can't pick her up anymore at all.So I am going to have to take her in her stroller into a very small office and exam rooms with everybody wondering why can't she get her to walk in. And I think what bothers me is I wonder why I can't do it too! Carla mom to , 13 DS/Autism, hearing loss and , 9 Emelinne has been off for almost 2 weeks. I figured I would take her out to lunch today to a real restaurant (Chili's) as soon as it opened so it wouldn't be crowded and noisy. I stress more if the atmosphere is not right. Anyway, so I did my morning stuff and then told her we were going out to lunch. I got her dressed and when we opened the door to get in garage she starts crying and biting her hand and hitting her head. She gets in her seat still going berserk. Ok, I am not in the mood for this. Tears and runny nose and saliva all over her face and hands and hair. Just lovely. I tell her to get out of car and she gets in the backseat and she is even louder and angrier. I always have the faint hope that she will stop and be calm so we can do as I planned and enjoy something normal. Finally she goes inside and sits in the livingroom. Within a minute she is calm and asking for Sesame Street. I wait a little while and we drive through 's. I think she got the message because she may have bit her hand once or twice but she didn't have a whole episode. I really wanted to go to Walmart but after that I knew I couldn't chance it. I'm gonna give her a couple hours and then try to head out again. It stinks when you need basic stuff like milk and you can't make it to the store. I'm sorry but I get angry. I look at her when she is having a fit and there is nothing I can do about it. Oh and to top it off I thought, she is already dressed so that's a good thing, we can just go later on. NOT. A little while ago she went into the bathroom. When I looked in on her she had stripped. The only thing she had on was her black undershirt. Joy. Oh, and she has an eval at TEACCH on Jan. 13 and an appt at the Duke DS clinic in April. Someone should be able to tell me how to handle things. Sometimes I feel like a deflated balloon. Nereida in NC Emelinne (17) DS <http://docs.yahoo.com/info/terms/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Sara, Very well said. Amen sister. Cyndi b > > > > Emelinne has been off for almost 2 weeks. I figured I would take her > > out to lunch today to a real restaurant (Chili's) as soon as it opened > > so it wouldn't be crowded and noisy. I stress more if the atmosphere is > > not right. Anyway, so I did my morning stuff and then told her we were > > going out to lunch. I got her dressed and when we opened the door to get > > in garage she starts crying and biting her hand and hitting her head. > > She gets in her seat still going berserk. Ok, I am not in the mood for > > this. Tears and runny nose and saliva all over her face and hands and > > hair. Just lovely. I tell her to get out of car and she gets in the > > backseat and she is even louder and angrier. I always have the faint > > hope that she will stop and be calm so we can do as I planned and enjoy > > something normal. Finally she goes inside and sits in the livingroom. > > Within a minute she is calm and asking for Sesame Street. I wait a > > little while and we drive through 's. I think she got the message > > because she may have bit her hand once or twice but she didn't have a > > whole episode. I really wanted to go to Walmart but after that I knew I > > couldn't chance it. I'm gonna give her a couple hours and then try to > > head out again. It stinks when you need basic stuff like milk and you > > can't make it to the store. I'm sorry but I get angry. I look at her > > when she is having a fit and there is nothing I can do about it. Oh and > > to top it off I thought, she is already dressed so that's a good thing, > > we can just go later on. NOT. A little while ago she went into the > > bathroom. When I looked in on her she had stripped. The only thing she > > had on was her black undershirt. Joy. > > > > Oh, and she has an eval at TEACCH on Jan. 13 and an appt at the Duke DS > > clinic in April. Someone should be able to tell me how to handle > > things. > > > > Sometimes I feel like a deflated balloon. > > > > Nereida in NC > > Emelinne (17) DS > > > > <http://docs.yahoo.com/info/terms/> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Sorry that the day you wanted was not what your daughter had planned. We all have had those days. Please stop worrying about what others are thinking when they see your beautiful child. Those people have something wrong with them ignorance and no manners. People that stare at our children have nothing else better to do. Well at least that is what I think in the moment of seeing someone stare. Just imagine that some of those people are wondering where you get your strength to help your child. Those people that stare know in their hearts they could not do what you do for your child for even one minute and you are doing it 24/7. You want to take your child to a quiet restaurant and I want it to be noisy. That way if my son decides to use his " outside " voice inside no one will notice. The more crowded the better. Today my son has used the toilet all day until now. He sat on the toilet and went and it less than 10 minutes he urinated all over himself. I thought I had the urine cleaned up but no I just stepped in another spot of wetness. Gross. Oh well things could be worst could be feces. That was no fun the years he used to do fecal smearing. I felt like I was going to have a complete breakdown. I would walk in his room fully dressed to go to work. All I had to do was get him dressed and I walked into feces all over him,carpeting, furniture, etc. Tell me about what kinds of things you have tried to help keep her from these meltdowns? Have you down picture schedules,etc. Cyndi B > > Emelinne has been off for almost 2 weeks. I figured I would take her out to lunch today to a real restaurant (Chili's) as soon as it opened so it wouldn't be crowded and noisy. I stress more if the atmosphere is not right. Anyway, so I did my morning stuff and then told her we were going out to lunch. I got her dressed and when we opened the door to get in garage she starts crying and biting her hand and hitting her head. She gets in her seat still going berserk. Ok, I am not in the mood for this. Tears and runny nose and saliva all over her face and hands and hair. Just lovely. I tell her to get out of car and she gets in the backseat and she is even louder and angrier. I always have the faint hope that she will stop and be calm so we can do as I planned and enjoy something normal. Finally she goes inside and sits in the livingroom. Within a minute she is calm and asking for Sesame Street. I wait a little while and we drive through 's. I think she got the message because she may have bit her hand once or twice but she didn't have a whole episode. I really wanted to go to Walmart but after that I knew I couldn't chance it. I'm gonna give her a couple hours and then try to head out again. It stinks when you need basic stuff like milk and you can't make it to the store. I'm sorry but I get angry. I look at her when she is having a fit and there is nothing I can do about it. Oh and to top it off I thought, she is already dressed so that's a good thing, we can just go later on. NOT. A little while ago she went into the bathroom. When I looked in on her she had stripped. The only thing she had on was her black undershirt. Joy. > > Oh, and she has an eval at TEACCH on Jan. 13 and an appt at the Duke DS clinic in April. Someone should be able to tell me how to handle things. > > Sometimes I feel like a deflated balloon. > > Nereida in NC > Emelinne (17) DS > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.