Anne

[Guest guest]

Hi, Everyone....Anne.....you keep printing that KK is only doing research

and pushing Risperdal on all kids. That is not the impression I have from

Dr C and all the conferences I have been to with him---4 in all so far. If

it weren't for Dr C, our kids would never have had a voice in this world.

He's the first doc to accept and validate that DS kids could also be

autistic --- that there was a reason behind their extreme behaviors. He's

devoted over 15 yrs or more on dual dx'g. Before that, we were always told that

they were just severely retarded and " all DS kids are like that. " When my

son was 6 y/o and non-verbal, I was told that DS kids either talked or they

didn't. At that age, he was a growler unless he was looking at a word and,

then, he could talk and say the word. He couldn't talk without seeing the

written word. As strange as it sounds, that is autism. Gareth will be

22 y/o this May, has been on Risperdal since he was 10 y/o, is 5' 6 " tall and

180# (way too heavy!!!). He only takes .5 mg in the am and 1 mg in the

pm.....just enough to keep him in our world and out of his with the growling,

head banging, sleepless nights, non-compliance, aggressiveness, and teeth

grinding!!!

Take care, Everyone.

Margaret

[Guest guest]

Sorry ..I am really glad to hear he is helping and has helped people.....I know

I have a right to my opinion but I don't want to falsely spread anything

negative or bring any harm to his reputation.....however the doctor's goal for

my son's appointment was clearly different than what my goal was....and I have

the choice not to go there again....perhaps other people just need to find their

own way without my big mouth...I plan to " help find help " for our children and

not to rip apart those who are in the field.....Annie =-O

To:

From: mfroof@...

Date: Fri, 15 Jan 2010 17:12:44 -0500

Subject: Anne

Hi, Everyone....Anne.....you keep printing that KK is only doing research

and pushing Risperdal on all kids. That is not the impression I have from

Dr C and all the conferences I have been to with him---4 in all so far. If

it weren't for Dr C, our kids would never have had a voice in this world.

He's the first doc to accept and validate that DS kids could also be

autistic --- that there was a reason behind their extreme behaviors. He's

devoted over 15 yrs or more on dual dx'g. Before that, we were always told that

they were just severely retarded and " all DS kids are like that. " When my

son was 6 y/o and non-verbal, I was told that DS kids either talked or they

didn't. At that age, he was a growler unless he was looking at a word and,

then, he could talk and say the word. He couldn't talk without seeing the

written word. As strange as it sounds, that is autism. Gareth will be

22 y/o this May, has been on Risperdal since he was 10 y/o, is 5' 6 " tall and

180# (way too heavy!!!). He only takes .5 mg in the am and 1 mg in the

pm.....just enough to keep him in our world and out of his with the growling,

head banging, sleepless nights, non-compliance, aggressiveness, and teeth

grinding!!!

Take care, Everyone.

Margaret