Re: /Beth/Jayne/Anne

[Guest guest]

Hi,

isn't one of " our " kids--his brother has DS/ASD. just has

Asperger's. I just noticed the thread about meds and had questions about .

Over the summer, becomes the sweetest kid. Then during the school year he

gets surly and angry. I think school is too much for him, but he likes his

friends and specials. He just hates writing, and his OCD tendencies and ADHD

make it really hard for him to go from worksheet to worksheet. tests in

the highly gifted range but thinks of himself as " stupid " because he can't keep

up with classmates.

I don't know if I have the ability to meet his academic needs. He also is a

perfectionist who will build up these huge, crippling expectations of himself

and then not be able to begin a task for fear of not meeting his own (overblown)

expectations.

He started the Buspar on Wednesday afternoon. He had a rough morning at school

in Thurs and Fri, and he's been unusually aggressive at home this weekend. She

started him at 5mg, which I believe is the lowest dose. The Dr seemed to really

want to put him on Abilify but that stuff scares me. He's only 6 and so tiny

for his age. I feel torn between not wanting to put him on a potentially

dangerous drug just to make him easier to handle at school, and not knowing if I

can teach him myself.

Sigh.

Sent from my iPhone

<<The Buspar seems to be making him more aggressive.>>

Hi, Everyone........how long has he been on the Buspar? Did you start

at the lowest dose before raising it? If it is making him more

aggressive, then you need to wean him off it. Meds are suppose to help our kids,

not

make them worse. Many of us older Moms know that we give a med the

shortest period of time to see positive results and never tolerate adverse

behaviors from the meds.

Also, if anyone wants to read more on meds, they can click on the *File*

section and go into the *General Information* category and read up on some

meds. Also, there's articles from Dr Capone for reading, too.

Beth....glad to hear is on the road to recovery. I will keep you all

in my prayers. Hopefully, you won't have PTSD to add to his labels

because of it like they say Gareth has.

<<We are also looking for positive stories to tell, situations where an

individual is able to live a full and joyful life because adequate supports

are in place.>>

Jayne....before Gareth's Sclero/UCTD dx, and now, with the possible AD dx,

I would have said Gareth could do this, but now with all his medical

issues, I think he's better off right at home. If only they would bring the

support into the homes, that would be ideal!!!

< it is not the kind of drug you would want to give just to see if it helps

your kid communicate better ..the bad for that child would far outweigh the

good....>>

Anne....on the flip side of the coin, Gareth was nob-verbal before the R.

Within 2-3 months after starting, he came home from school and told me

" food tube hurt " . An endoscopy showed that his esophagus looked like " raw

meat " because he had undetected GERD and could never tell us. If he didn't

talk, we wouldn't have found his eroded hip socket from low muscle tone and

popping his hip in and out all the time. He was able to tell us his " food

stuck " --- the first sign of his Scleroderma, esophageal dismotility.

Granted, I say he talks, but it's only 2-3 word sentences and I won't ever take

that away from him.

Take care, Everyone.

Margaret