Beth/Lori P/ Maggie/now Sjogren's

[Guest guest]

<<That sure sounds like a reach of a diagnosis - a kiddo with AD?>>

Hi, Everyone....Beth.....haven't you been reading about Ashton? She was

dx'd by Duke with early, progressive AD last summer. It's real....they have

found that one form of AD is on the 21st chromosome and our kids have 3 of

them.....thus the higher level of AD in DS people. Usually, though, it

starts to affect them (DS population) in the late 30 - 40's. Normal

population for AD is 65 on up with rare occurrences of early onset starting in

the

late 40-early 50's. I am assuming with Ashton's case, and others that Leah

has met up with online, would fall into the normal population of rare early

onset AD. Does that make any sense?

Lori....thank you for that web site. I have lots of reading to do.

Maggie......are you going through CHOC? I am sure if you told the docs

about your concerns they will address them. Is the surgery to help his sleep

apnea or does he use a CPAP machine?

We just got back from the eye doc and he did the Schirmer's test for

Sjogren's of the eye. Gareth flunked it big time......now we have the eye

drops to use daily. I had mentioned to the doc that his dentist commented last

month about how dry his mouth was and he went and got the strips to test

him. Oh, well.......what's one more thing?!?!? At least, for now, it's

only eye drops!!!

Take care, Everyone.

Margaret