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Irma

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No problem, could be used as a catchy name for cyberland though.

Plus this is close to the mascot from my HS days as a RAM, so break it as I-RAM

..

Irma

>

> IRAM!!!! How in the world did I miss that!!! Sorry, IRMA!!!

>

> M

>

>

>

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  • 3 months later...

<< Endoscopic biopsy. To get a definitive diagnosis of celiac

disease, you must have an endoscopic biopsy>>

Hi, Everyone...Irma...you said this was wrong, but it is what the celiac

disease center says. That is all I was posting about. It has nothing to do

with you or . Sorry.

Tae care, Everyone.

Margaret

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Thank you for clarifying this, just wanted to make sure.

But, I did not imply on this test was wrong, it was towards this wording -

* " If there is no celiac, then you don't need the diet " .*

Very true when one would like to apply the testing needed, it is usually

pretty accurate before applying the diet.

This is why I had asked, thank you once again.

Irma

>

>

> << Endoscopic biopsy. To get a definitive diagnosis of celiac

> disease, you must have an endoscopic biopsy>>

>

> Hi, Everyone...Irma...you said this was wrong, but it is what the celiac

> disease center says. That is all I was posting about. It has nothing to do

> with you or . Sorry.

>

> Tae care, Everyone.

> Margaret

>

>

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Isaac has never had the test for Celiac and yet both his former pediatrician

and our current one said to me, " why do you want the test. It is clear this

child should not have gluten " .

When the first doctor said it I thought he was being kind of careless but

when the second doctor said it I was really thankful for her perspective and

felt supported in our decision to live a gluten free life. My kid had so

many digestive difficulties clearly tied to something he was eating. I only

add this because I (like most parents) wanted a definitive diagnosis for

what was going to help my kid and these two pediatricians encouraged me to

trust our experience of Isaac and gluten, particularly in light of his

allergy testing. They both felt pretty confident that if a child tests for

a gluten allergy they will also test as a Celiac - but I don't think either

could quote a medical text on that.

I tried the link but a window popped up that said it was having difficulty.

I wonder if the genetic tests or screening work with kids who have been

adopted and there is no medical information?

I think it is all pretty complicated and again, dependent on each

individual. I know the first pediatrician refused to test Isaac for Celiacs

(because it was clear he should not have gluten). I wonder if I could talk

our current one into it. Probably she would say it was medically

contraindicated and then say that he is allergic to gluten to get around the

question. But she told me to consider him a celiac and I do know if he has

gluten he spends many painful and smelly hours in the bathroom.

And see, here we are, back to a favorite topic - bathroom habits!

Lori

Mom to Isaac 13, and Tony, 11

_____

From: [mailto: ] On Behalf

Of mfroof@...

Sent: Sunday, February 28, 2010 7:44 PM

To:

Subject: Irma

<< Endoscopic biopsy. To get a definitive diagnosis of celiac

disease, you must have an endoscopic biopsy>>

Hi, Everyone...Irma...you said this was wrong, but it is what the celiac

disease center says. That is all I was posting about. It has nothing to do

with you or . Sorry.

Tae care, Everyone.

Margaret

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