Oxytocin/rx from DAN doc??

[Guest guest]

This is a crosspost...trying to see if anyone who has been to a DAN doc perhaps

has ever tried Oxytocin for their DS/Aut child?

Thanks

Sherry

[Guest guest]

No go here. Look forward to see if any response.

I did take a glance to see what it entailed?

http://www.wisegeek.com/what-is-oxytocin.htm

Irma

>

>

> This is a crosspost...trying to see if anyone who has been to a DAN doc

> perhaps has ever tried Oxytocin for their DS/Aut child?

>

> Thanks

> Sherry

>

>

[Guest guest]

Sherry, Yes used Oxytocin nose spray and it made him more hyper. Now that

is not to say that it will do that to all but he could not tolerate it. I guess

you know they use this for social interaction?? Cyndi B

>

> This is a crosspost...trying to see if anyone who has been to a DAN doc

perhaps has ever tried Oxytocin for their DS/Aut child?

>

> Thanks

> Sherry

>

>

>

>

[Guest guest]

http://www.sciencedaily.com/releases/2009/10/091021212247.htm

Irma and Cyndi...here's a little better picture of why oxytocin is being

explored in Autism, Irma. Cyndi....I just read a whole bunch of positive reports

on one of my autism lists about this treatment...nasal spray and even an oral

administration. I'm curious about it because is totally in her own world

with absolutely no empathy or affection shown...it's also supposed to help with

OCD and repetitive behaviors.

If didn't have these problems perhaps that's why it didn't work for

him....perhaps his oxytocin gene is undamaged. Who knows. One concern would be

lactation......don't want any part of that lol. Thanks for responding you two.

Sherry

[Guest guest]

Sherry, Yes was OCD and picking his clothes if he spilled a drink or food

on his clothes until we got his PANDAS under control.He was never even OCD until

a child bit him at school. I just thought OCD was part of the autism until I

took him to a DAN doc. The Dr. said sounds like PANDAS and the test confirmed

this. We started the Oxytocin in the summer of 2008 and he took it about 3

months.He was hyper. The Dr. said we could try it later after some of the other

behaviors were under control. I wasn't trying to be negative just letting you

know how reacted to it. Everything we can do to help these kids is a plus

and what happened when took it may never happen with . Hey I am all

for anything that can help these kids.Cyndi B

>

> http://www.sciencedaily.com/releases/2009/10/091021212247.htm

>

> Irma and Cyndi...here's a little better picture of why oxytocin is being

explored in Autism, Irma. Cyndi....I just read a whole bunch of positive reports

on one of my autism lists about this treatment...nasal spray and even an oral

administration. I'm curious about it because is totally in her own world

with absolutely no empathy or affection shown...it's also supposed to help with

OCD and repetitive behaviors.

>

> If didn't have these problems perhaps that's why it didn't work for

him....perhaps his oxytocin gene is undamaged. Who knows. One concern would be

lactation......don't want any part of that lol. Thanks for responding you two.

> Sherry

>

>

[Guest guest]

>>>I wasn't trying to be negative just letting you know how reacted to it.

Everything we can do to help these kids is a plus and what happened when

took it may never happen with . Hey I am all for anything that can help

these kids.Cyndi B<<<<

No no....I didn't take it that way at all. So many things work for so many kids

and then tries them and...nothing! or a worsening. We never know with any

of them do we? I'm sure that whole methylation angle is involved too...if kids

are over or undermethylators they respond in opposite ways. Oh well....at least

you tried huh?

Sherry

[Guest guest]

Sherry, Glad everything is ok. We have used transdermal glutathione. Had to take

him off this summer but we are starting again. No problems with glutathione just

money. Cyndi B

>

> >>>I wasn't trying to be negative just letting you know how reacted to

it. Everything we can do to help these kids is a plus and what happened when

took it may never happen with . Hey I am all for anything that can

help these kids.Cyndi B<<<<

>

> No no....I didn't take it that way at all. So many things work for so many

kids and then tries them and...nothing! or a worsening. We never know with

any of them do we? I'm sure that whole methylation angle is involved too...if

kids are over or undermethylators they respond in opposite ways. Oh well....at

least you tried huh?

> Sherry

>

>

>

>

[Guest guest]

So, have you tried this already Sherry?

I hear y'all, always seek when all fails & even though have not gotten my

back as once upon a time with such regression, sure glad to see

tremendous outcomes in other avenues compared to last year & here it is

entering another year, still have him w/us & will sure continue to monitor

him where needed.

Today, the door bell rang & he said out loud " I'll get it " . He sure has been

expressing lots of words lately.

I allowed him to sleep in & then he chose from his choice board what he

wanted to eat, it was his GF/CF pancakes w/ham. I made this from scratch,

they were delicious as I too could not resist eating one of them. All I

could hear coming out from was, " mmm, mmm, more " .

At our local DS Holiday party. I took some homemade GF/CF cupcakes & they

were gone in a jiffy. One of my niece who is a very picky eater ended up

tasting one & on our way home, she told me " May I please put in an order of

GF/CF cupcakes " ? just smiled at her. Such understanding this, right?

Nice how well, he is cooperates when told it is time for your supplements &

meds, restroom then bed. Sure enough follows through w/out any battles &

usually within 15 min., he is fast asleep. What a difference?

Thank you all for sharing on what you do.

Irma

[Guest guest]

On Tue, Dec 29, 2009 at 7:57 PM, cynthiamiltonburns <

cynthiamiltonburns@...> wrote:

>

>

> Sherry, Glad everything is ok. We have used transdermal glutathione. Had to

> take him off this summer but we are starting again. No problems with

> glutathione just money. Cyndi B

>

I remember we had just begun using this but had to stop due to the closure

of the clinic, did begin noticing some huge gains here but of course bummer

when no longer under this medical team. There is another doctor who is from

another city here in Texas who came out to speak at one of the support group

I run & she was incredible so at least I have her should I decide to get

back on this road again.

Good luck Cyndi, when this happens.

Irma