Re: Finally Off Prednisone & Minocycline

[Guest guest]

Congratulations! It can be so hard to get off of prednisone. The

longer on it, the harder it is to deal with the pain.

I hope you continue to feel better.

a

On Sep 5, 2005, at 11:34 PM, ltlmisscrankypants wrote:

> Hi all.

> I was finally able to taper off of my Prednisone after being on it

> for 8

> months. Everytime I tried to get off of it, my joints would swell

> up and I

> ended up in terrible pain. It's as though my body had become

> dependent on the Prednisone and could not function without it. I

> started

> tapering a few weeks ago and just stuck out the flare that started up.

> After a few days, it subsided.....and things have gotten better.

>

> After much research and consideration, I also decided to stop using my

> Minocycline as well. I had been using it for years off and on

> prior to

> being diagnosed with RA, and had read some study that may suggest

> that it can trigger auto-immune disorders in people who use it long-

> term. I read up on everything I could find and made a decision to

> stop

> using it and see if things would improve or not. Well, after the

> second

> day of being off the Minocycline - the swelling and pain in my

> joints had

> gone down quite a bit. I am shocked at how much improvement there

> has been. I am going to re-introduce the Minocycline again sometime

> soon to see if it triggers pain/swelling in my joints, so I can

> determine if

> it's part of why I am not getting better despite the meds I am taking.

>

> While I am still very much aware of the fact that I have RA and

> Sjogren's Syndrome, the symptoms and pain have diminished quite a

> bit. I am still weak, and feel pain in my joints from time to

> time, but it's

> a drastic improvement from being confined to my bed 75% of the time.

> I've been doing so well that I've only needed a pain med at bedtime.

>

> Take care,

>

>

>

>

>

>

[Guest guest]

Congratulations! It can be so hard to get off of prednisone. The

longer on it, the harder it is to deal with the pain.

I hope you continue to feel better.

a

On Sep 5, 2005, at 11:34 PM, ltlmisscrankypants wrote:

> Hi all.

> I was finally able to taper off of my Prednisone after being on it

> for 8

> months. Everytime I tried to get off of it, my joints would swell

> up and I

> ended up in terrible pain. It's as though my body had become

> dependent on the Prednisone and could not function without it. I

> started

> tapering a few weeks ago and just stuck out the flare that started up.

> After a few days, it subsided.....and things have gotten better.

>

> After much research and consideration, I also decided to stop using my

> Minocycline as well. I had been using it for years off and on

> prior to

> being diagnosed with RA, and had read some study that may suggest

> that it can trigger auto-immune disorders in people who use it long-

> term. I read up on everything I could find and made a decision to

> stop

> using it and see if things would improve or not. Well, after the

> second

> day of being off the Minocycline - the swelling and pain in my

> joints had

> gone down quite a bit. I am shocked at how much improvement there

> has been. I am going to re-introduce the Minocycline again sometime

> soon to see if it triggers pain/swelling in my joints, so I can

> determine if

> it's part of why I am not getting better despite the meds I am taking.

>

> While I am still very much aware of the fact that I have RA and

> Sjogren's Syndrome, the symptoms and pain have diminished quite a

> bit. I am still weak, and feel pain in my joints from time to

> time, but it's

> a drastic improvement from being confined to my bed 75% of the time.

> I've been doing so well that I've only needed a pain med at bedtime.

>

> Take care,

>

>

>

>

>

>