Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Where do your children sleep? , 4, (DS/autism) is a wanderer. Right now, he's still small enough to sleep in a crib with a crib tent to keep him in there. But we don't know what to do next as he outgrows the crib. It's scary to imagine the trouble he can get into at 2 in the morning while we sleep!!! Let alone once he's able to leave the house. What do you do to keep your little angels safe? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 Elie never slept in a crib after he was three due to his climbing. We had a mattress on the floor and a gate on the door. once he learned to climb the gate, we had a dutch door. When he climbed that, we put a screen door with heavy rat screen (instead of insect screen) on his room and put it so the lock was on the OUTSIDE> That kept him from wandering at night.. > > > > Where do your children sleep? , 4, (DS/autism) is a wanderer. Right > now, he's still small enough to sleep in a crib with a crib tent to keep him > in there. But we don't know what to do next as he outgrows the crib. It's > scary to imagine the trouble he can get into at 2 in the morning while we > sleep!!! Let alone once he's able to leave the house. What do you do to keep > your little angels safe? > > > > Sent from my iPhone > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 This is the exact topic I have been discussing with Tori's Doc AGAIN! She is waking up every night/morn between 2:30-5:00. One of her suggestions is: " You could also put an alarm on her door, and state, visually and verbally th rule that you ahve to stay in bed until the sun comes up. " Liz Mom to Tori 9 1/2 DS-ASD/ODD/OCD/NLD/GERD Hashimotos plus a few more acronyms > > > Elie never slept in a crib after he was three due to his climbing. We had a > mattress on the floor and a gate on the door. once he learned to climb the > gate, we had a dutch door. When he climbed that, we put a screen door with > heavy rat screen (instead of insect screen) on his room and put it so the > lock was on the OUTSIDE> That kept him from wandering at night.. > > > On Thu, Dec 10, 2009 at 6:48 PM, Cookson <macookson@...<macookson%40yahoo.com>> > wrote: > > > > > > > > > Where do your children sleep? , 4, (DS/autism) is a wanderer. Right > > now, he's still small enough to sleep in a crib with a crib tent to keep > him > > in there. But we don't know what to do next as he outgrows the crib. It's > > scary to imagine the trouble he can get into at 2 in the morning while we > > sleep!!! Let alone once he's able to leave the house. What do you do to > keep > > your little angels safe? > > > > > > > > Sent from my iPhone > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 I hope she is planning to come and demonstrate! we did finally get Elie to notice the red flashing light on the alarm on the OUTSIDE door. So he watched until we forgot to set it and boogied!!! I personally slept very well with a screen door. On Thu, Dec 10, 2009 at 8:37 PM, Liz DeSantis wrote: > This is the exact topic I have been discussing with Tori's Doc AGAIN! She > is waking up every night/morn between 2:30-5:00. One of her suggestions > is: > > " You could also put an alarm on her door, and state, visually and verbally > th rule that you ahve to stay in bed until the sun comes up. " > > Liz > Mom to Tori 9 1/2 > DS-ASD/ODD/OCD/NLD/GERD > Hashimotos plus a few more acronyms > > > > > > > > > > > > Elie never slept in a crib after he was three due to his climbing. We had > a > > mattress on the floor and a gate on the door. once he learned to climb > the > > gate, we had a dutch door. When he climbed that, we put a screen door > with > > heavy rat screen (instead of insect screen) on his room and put it so the > > lock was on the OUTSIDE> That kept him from wandering at night.. > > > > > > On Thu, Dec 10, 2009 at 6:48 PM, Cookson <macookson@... > <macookson%40yahoo.com>> > > wrote: > > > > > > > > > > > > > > Where do your children sleep? , 4, (DS/autism) is a wanderer. > Right > > > now, he's still small enough to sleep in a crib with a crib tent to > keep > > him > > > in there. But we don't know what to do next as he outgrows the crib. > It's > > > scary to imagine the trouble he can get into at 2 in the morning while > we > > > sleep!!! Let alone once he's able to leave the house. What do you do to > > keep > > > your little angels safe? > > > > > > > > > > > > Sent from my iPhone > > > > > > > > > > > > > -- > > Sara- different pathways lead to Nirvana. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 , We live in a two story house with an open cat walk that over looks our family room. We moved into this house when was 4 yrs old. I wanted a half door like day cares have. My father in law cut a door in half and put a ledge on the top of the door. We put the lock on the outside of the door. has never got out of the door. When my son was 4 I did not know about melatonin slow release so like you my son would wake up at 2 and party until an hour before he should wake for school. In 2008 we started doing biomedical and put him on melatonin slow release just a 2mg tablet. He never wakes up unless he has to go to the bathroom or is sick. If it is the bathroom he goes and then falls back to sleep. Walgreen Drugs has these alarms that you can stick on or screw into a door. If the door is opened they go off. Also you could get a travel alarm that hangs on the door know and if open it goes off because some of these alarms have a piece you stick in the door and when the door opens it falls out. Once was to big for a crib I bought a car bed from Toys R Us that took a crib mattress and it was very close to the floor. Now he sleeps in a twin bed without rails and he never falls out. They make beds for kids that roam that have railings like hospital beds and there is one with a netting but I would be afraid to use that one.Cyndi B > > > Where do your children sleep? , 4, (DS/autism) is a wanderer. Right now, he's still small enough to sleep in a crib with a crib tent to keep him in there. But we don't know what to do next as he outgrows the crib. It's scary to imagine the trouble he can get into at 2 in the morning while we sleep!!! Let alone once he's able to leave the house. What do you do to keep your little angels safe? > > > > > > Sent from my iPhone > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 We use a safety gate, the sturdy one that screws into the side of the door way and swings open and locks. We would never get any sleep w/o it! Also, I met a woman a few months back that has a child w/autism and she designed a special safety device for beds. She just got the patent and also now some states are providing medicare coverage on it. Her site is www.thesafetysleeper.com  I guess it's portable too so if you want to take it with you to grandma's house or to a hotel you can do that. V.Phoenix, AZ 7 yrs (DS/ASD) Villanueva Viajes To Go Vacations erika@... www.viajestogo.com Subject: Where does your child sleep? To: " " < > Date: Thursday, December 10, 2009, 4:48 PM  Where do your children sleep? , 4, (DS/autism) is a wanderer. Right now, he's still small enough to sleep in a crib with a crib tent to keep him in there. But we don't know what to do next as he outgrows the crib. It's scary to imagine the trouble he can get into at 2 in the morning while we sleep!!! Let alone once he's able to leave the house. What do you do to keep your little angels safe? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Hi We have Amy, 5 1/2, sleep in her room with only a mattress on the floor. There is nothing else in her room for her to get into. We shut the door at night. Right now she can't open doors so this works for us. We also have an alarm on the door (more like a chime) that we bought at a local hardware store in case she learns how to open the door one night. Ali > > > Where do your children sleep? , 4, (DS/autism) is a wanderer. Right now, he's still small enough to sleep in a crib with a crib tent to keep him in there. But we don't know what to do next as he outgrows the crib. It's scary to imagine the trouble he can get into at 2 in the morning while we sleep!!! Let alone once he's able to leave the house. What do you do to keep your little angels safe? > > > > > > Sent from my iPhone > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 We had difficulty with this too. Emma also has CP so doesn't walk and has no safety awareness. We have 5 children so having a mattress on the floor in an empty room wasn't an option for our busy home. After much looking at the expensive beds made for this sort of situation my dad modified a bunk bed for us to use with her. It is WONDERFUL! And it didn't take a whole lot of work to do it, nor was it very expensive. He raised the top bunk for us as a little 'extra' something since we plan to use this long-term with her and we wanted to be able to easily reach in and get her out. Here's a link to the bed. I have typed up directions if anyone's interested! I don't follow this group as well as I'd like to, so if you want the directions please email me off list at mkp1982 at hotmail dot com. http://cornishadoptionjourney.blogspot.com/2009/07/emma-new-adaptive-bed.html Blessings, Meredith Meredith Cornish Family Coordinator- Ukraine Program Reece's Rainbow Down Syndrome Adoption Ministry www.reecesrainbow.com Mom to Emma (6, Ds) Kristopher (5) na (3, Ds) Micah (3, Ds) Lynae (born 9.9.09) mkp1982@... _________________________________________________________________ Hotmail: Free, trusted and rich email service. http://clk.atdmt.com/GBL/go/171222984/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 We rock Darwyn (5 and 1/2) to sleep wrapped in his favourite blue " sleep " blanket (we have a stockpile of identical ones)and then lay him down and he sleeps on a king size mattress on the floor. He rolls around a lot and in a small bed hits his head on the wall or rolls off and wakes up. So he got our mattress and we were somehow demoted to a queen size bed! If he wakes up we sometimes find him sitting in front of his TV which is in his room. The TV is like a magnet so he is tempted to stay in his room. Sometimes he wakes us up by coming into our room clutching a DVD case. We have a baby gate on the stairs, but keep our door open and we have become very light sleepers. Our floors are old and squeaky so this helps us hear him. We started Dar on melatonin a month or so ago and it has been fantastic! We sometimes get 6 or 7 hours without a noise. If he sleeps longer I wake up in a panic that something is wrong. Hotel rooms or vacations are nervewracking. We're visiting my parents this weekend and sleeping in the basement (me beside Darwyn on matttess on the floor). I will come home exhausted. Mom to Darwyn age 5 DS/ASD , Canada Where does your child sleep? Where do your children sleep? , 4, (DS/autism) is a wanderer. Right now, he's still small enough to sleep in a crib with a crib tent to keep him in there. But we don't know what to do next as he outgrows the crib. It's scary to imagine the trouble he can get into at 2 in the morning while we sleep!!! Let alone once he's able to leave the house. What do you do to keep your little angels safe? Sent from my iPhone ------------------------------------ -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 , We solved the problem of bumping his head on the wall while he is sleeping or playing in his bed by buying a couple of portable crib mattresses and wedging them between his mattress and the wall. I cover them in blue sheets to match his walls. It is much safer for his especially because he likes to dive into his blankets when he is playing and constantly bumps the wall. Terry Where does your child sleep? Where do your children sleep? , 4, (DS/autism) is a wanderer. Right now, he's still small enough to sleep in a crib with a crib tent to keep him in there. But we don't know what to do next as he outgrows the crib. It's scary to imagine the trouble he can get into at 2 in the morning while we sleep!!! Let alone once he's able to leave the house. What do you do to keep your little angels safe? Sent from my iPhone ------------------------------------ -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Such fond memories you are all bringing back. So many changeups over the course of 20 years...You have to be incredibly intelligent to outsmart these " intellectually disabled " children. We used portable bedrails on the side and at the end of the bed for awhile...brought them with us when we travelled. We put a mattress for her on the floor next to our bed for awhile, and ultimately we ended up with one of us sleeping on an air mattress on the floor next to her bed...now at age 20 we have the perfect solution. sigh. She sleeps in the same room as we do. She doesn't fall out of bed anymore so she's pretty comfy in her bed but it just happened that the only way we could *all* get sleep was to all be in the same room. Not ideal obviously Sherry We rock Darwyn (5 and 1/2) to sleep wrapped in his favourite blue " sleep " blanket (we have a stockpile of identical ones)and then lay him down and he sleeps on a king size mattress on the floor. He rolls around a lot and in a small bed hits his head on the wall or rolls off and wakes up. So he got our mattress and we were somehow demoted to a queen size bed! If he wakes up we sometimes find him sitting in front of his TV which is in his room. The TV is like a magnet so he is tempted to stay in his room. Sometimes he wakes us up by coming into our room clutching a DVD case. We have a baby gate on the stairs, but keep our door open and we have become very light sleepers. Our floors are old and squeaky so this helps us hear him. We started Dar on melatonin a month or so ago and it has been fantastic! We sometimes get 6 or 7 hours without a noise. If he sleeps longer I wake up in a panic that something is wrong. Hotel rooms or vacations are nervewracking. We're visiting my parents this weekend and sleeping in the basement (me beside Darwyn on matttess on the floor). I will come home exhausted. Mom to Darwyn age 5 DS/ASD , Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Sherry, Oh my gosh I hope you get some respite?? was a screamer through the night until we put him on melatonin slow release and that really does something to the romantic lives of couples when you have a screamer but to have the child in the same room. Wow you are a saint. Bless you my dear. Cyndi B > > Such fond memories you are all bringing back. So many changeups over the course of 20 years...You have to be incredibly intelligent to outsmart these " intellectually disabled " children. We used portable bedrails on the side and at the end of the bed for awhile...brought them with us when we travelled. We put a mattress for her on the floor next to our bed for awhile, and ultimately we ended up with one of us sleeping on an air mattress on the floor next to her bed...now at age 20 we have the perfect solution. sigh. She sleeps in the same room as we do. She doesn't fall out of bed anymore so she's pretty comfy in her bed but it just happened that the only way we could *all* get sleep was to all be in the same room. > Not ideal obviously > Sherry > > > > > > > We rock Darwyn (5 and 1/2) to sleep wrapped in his favourite blue " sleep " blanket (we have a stockpile of identical ones)and then lay him down and he sleeps on a king size mattress on the floor. He rolls around a lot and in a small bed hits his head on the wall or rolls off and wakes up. So he got our mattress and we were somehow demoted to a queen size bed! If he wakes up we sometimes find him sitting in front of his TV which is in his room. The TV is like a magnet so he is tempted to stay in his room. Sometimes he wakes us up by coming into our room clutching a DVD case. We have a baby gate on the stairs, but keep our door open and we have become very light sleepers. Our floors are old and squeaky so this helps us hear him. We started Dar on melatonin a month or so ago and it has been fantastic! We sometimes get 6 or 7 hours without a noise. If he sleeps longer I wake up in a panic that something is wrong. Hotel rooms or vacations are nervewracking. We're visiting my parents this weekend and sleeping in the basement (me beside Darwyn on matttess on the floor). I will come home exhausted. > > Mom to Darwyn age 5 DS/ASD > , Canada > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Hi Cyndi, actually sleeps pretty well these days but she's up till midnite then up at 8. I'm so paranoid about her breathing and getting sick...so many times she woke up vomitting or with diarrhea I need to have her close in order for me to sleep. Can't help it...just one overprotective mom to my only child. I'll post more about her next. Sherry Sherry, Oh my gosh I hope you get some respite?? was a screamer through the night until we put him on melatonin slow release and that really does something to the romantic lives of couples when you have a screamer but to have the child in the same room. Wow you are a saint. Bless you my dear. Cyndi B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Are we supposed to have romantic pieces in our life too???? > > > Hi Cyndi, > actually sleeps pretty well these days but she's up till midnite then > up at 8. I'm so paranoid about her breathing and getting sick...so many > times she woke up vomitting or with diarrhea I need to have her close in > order for me to sleep. Can't help it...just one overprotective mom to my > only child. I'll post more about her next. > Sherry > > Sherry, Oh my gosh I hope you get some respite?? was a screamer > through the night until we put him on melatonin slow release and that really > does something to the romantic lives of couples when you have a screamer but > to have the child in the same room. Wow you are a saint. Bless you my dear. > Cyndi B > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 " Are we supposed to have romantic pieces in our life too???? " heh heh.....yeah...little itty bitty pieces when noone's looking. I can't even remember the last time.............oh! nevermind! Sherry Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.