Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 <<So HOW can someone pee so much!!!!! And could our kids actually have this problem of excessive peeing and NO one really know it ???>> Hi, Everyone....Kiarra....WOW....another Gareth!!! I have no clue how G can pee so much but even the nurses in the hospitals would comment on his huge bladder. To be honest with you, I thought I was the one with the problem because I only put out a couple hundred cc's each time......my tiny, itty, bitty bladder!!! .....an SSRI is a mood stabilizer (that's the only words I can come up with right now to explain it) that can be used in conjunction with Risperdal.....at low doses, they tend to complement each other. Many of our kids also have severe OCD behaviors and the SSRI's can damper that tendency. Risperdal does nothing for mood swings, OCD, depression, anxiety issues, etc. G's best SSRI's are Luvox, Lexapro, and then, Prozac. BUT....he has really bad OCD and those are for OCD behaviors, too. IF you do decide to try and add more meds, please, make a chart of all behaviors and what they are like before starting the meds. That way, once a new med is initiated, you have the groundwork to base any changes on. An example would be that G had horrible teeth grinding and growling for communication before the Risperdal and they stopped after he went on R. We added Paxil and those symptoms came back. Well, off the Paxil and on to another SSRI. You know they went away with R, so that wasn't the problem. In reality, Paxil did increase the autistic behavior in G. There are so many SSRI meds out there but each one is tweaked a tiny bit different from the next and each one only works on 10-15% of the population. Our brains run on chemical interactions.....it may take some trial and error but when you get the right meds, it can make all the difference in the world. Anne.....Gareth use to be a horrendous head banger.......I didn't want him going blind or end up in some institution bedridden and brain damaged. We do have one lady on this sight whose son is blind in one eye due to head banging and she is the one who made me realize that it was time to do something about it. The day he banged his head on the tile floor and didn't even flinch in pain made me realize I had to do something. I have tried many times over the yrs to wean him off the R but the aggressiveness/noncompliance/ Dr J and Mr Hyde behaviors come back in full force. Even Gareth doesn't like THAT Gareth since he always apologizes for his behaviors when nasty. All I ma saying it to keep an open mind. It's like one doc told me yrs ago, " What is MY problem? " because I was trying to wean him off the R. If he was diabetic, would I have a problem giving him insulin? If he was sick, would I deny him Tylenol, etc? Gareth needs the R to function. Oh........and I have never had him to the doc you're referring to. Even the docs at HMC (Hershey) and CHOC (Chicago) recommended the Risperdal. Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Hi...maybe I should have just sat back and continued to read posts before I commented....but Jayne's poop comments got me roped in...since that is a part of my daily world.....cleaning smeared poo poo from the cracks of the wood floor etc... but I really came here to glean and not as a judge...and I am sooooo not judgmental about what drugs people choose to try....my son should not have been prescribed that ...not because he is more advanced etc....obviously cleaning smeared poop every day from here and there shows I do not have a mature normally developing 10 year old child... we all have areas where our shoes are hard to walk in....God forbid I would expect your kid to go blind from damaging his retina from head banging rather than try the unholy R drug.....I would do the same in your shoes...I know I would.... I just don't think KK had dealt with the utmost of integrity...and do not think children one and all who show up should be given this drug and be asked to fill out the papers...I did not go there to be a part of a study on Risperdal ....I went to seek help and see if he has seen similar symptoms as my son.......I do not think this was just a matter of inexperienced me being disgruntled...I believe wrong was done not just to me ...so I just felt inclined to speak when one list member was planning on travelling all of that way and felt how disappointing it would be to not feel her whole child was considered.....anyway....I did not come to this site with a plan to criticize Dr. C...I hope things are different....that was about 10 months ago......and I also am a bit glad to have written as I really want to get a grasp on this circle of parents of dual Dx kiddos/adults and see what is going on with them.....I have never been in a group with like situations before.... Annie To: From: mfroof@... Date: Fri, 15 Jan 2010 14:01:46 -0500 Subject: Kiarra//Anne <<So HOW can someone pee so much!!!!! And could our kids actually have this problem of excessive peeing and NO one really know it ???>> Hi, Everyone....Kiarra....WOW....another Gareth!!! I have no clue how G can pee so much but even the nurses in the hospitals would comment on his huge bladder. To be honest with you, I thought I was the one with the problem because I only put out a couple hundred cc's each time......my tiny, itty, bitty bladder!!! .....an SSRI is a mood stabilizer (that's the only words I can come up with right now to explain it) that can be used in conjunction with Risperdal.....at low doses, they tend to complement each other. Many of our kids also have severe OCD behaviors and the SSRI's can damper that tendency. Risperdal does nothing for mood swings, OCD, depression, anxiety issues, etc. G's best SSRI's are Luvox, Lexapro, and then, Prozac. BUT....he has really bad OCD and those are for OCD behaviors, too. IF you do decide to try and add more meds, please, make a chart of all behaviors and what they are like before starting the meds. That way, once a new med is initiated, you have the groundwork to base any changes on. An example would be that G had horrible teeth grinding and growling for communication before the Risperdal and they stopped after he went on R. We added Paxil and those symptoms came back. Well, off the Paxil and on to another SSRI. You know they went away with R, so that wasn't the problem. In reality, Paxil did increase the autistic behavior in G. There are so many SSRI meds out there but each one is tweaked a tiny bit different from the next and each one only works on 10-15% of the population. Our brains run on chemical interactions.....it may take some trial and error but when you get the right meds, it can make all the difference in the world. Anne.....Gareth use to be a horrendous head banger.......I didn't want him going blind or end up in some institution bedridden and brain damaged. We do have one lady on this sight whose son is blind in one eye due to head banging and she is the one who made me realize that it was time to do something about it. The day he banged his head on the tile floor and didn't even flinch in pain made me realize I had to do something. I have tried many times over the yrs to wean him off the R but the aggressiveness/noncompliance/ Dr J and Mr Hyde behaviors come back in full force. Even Gareth doesn't like THAT Gareth since he always apologizes for his behaviors when nasty. All I ma saying it to keep an open mind. It's like one doc told me yrs ago, " What is MY problem? " because I was trying to wean him off the R. If he was diabetic, would I have a problem giving him insulin? If he was sick, would I deny him Tylenol, etc? Gareth needs the R to function. Oh........and I have never had him to the doc you're referring to. Even the docs at HMC (Hershey) and CHOC (Chicago) recommended the Risperdal. Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Anne, Please you did no wrong with what you have shared, my motto is to all when I share something some are not going to agree with what I do but have received numerous emails privately due to when someone shares a feedback then feel like walking on eggshells when they to realize that their individuals are not making ends meet when under meds & seek other alternative avenues. We all understand it is not one size fits all treatments but sure keeps this topic shaking. So, please you have not poo poo when you responded here as this is what it is all about hearing from both sides of such challenges. So, it is take it or leave motto at my end but have chosen to share what I do for information purpose only & not a medical professional but always see if there is at least one person who is in a similar boat as I have crossed when ready to take such other routes when all fails. I heard of research from pharmaceuticals who really target many clinics just promote their drugs which many doc's who choose to take this route are swayed within profits which have witnessed with several of my son's former doc's who are no longer in the picture. Not that I want to open this can of worms so please do not feel bad w/what you have shared we are all big girls here with whatever mentioned & yes there will be some that can vouch what their individuals benefit from but many can also say that they will agree w/your input. Even though some are not ready to seek other avenues, one must be ready for it so you give others that HOPE. Yes, can say been there & that w/the poop ordeal as well & thensome. HUGS! Irma,21,DS/ASD > > Hi...maybe I should have just sat back and continued to read posts before I > commented....but Jayne's poop comments got me roped in...since that is a > part of my daily world.....cleaning smeared poo poo from the cracks of the > wood floor etc... > but I really came here to glean and not as a judge...and I am sooooo not > judgmental about what drugs people choose to try....my son should not have > been prescribed that ...not because he is more advanced etc....obviously > cleaning smeared poop every day from here and there shows I do not have a > mature normally developing 10 year old child... > we all have areas where our shoes are hard to walk in....God forbid I would > expect your kid to go blind from damaging his retina from head banging > rather than try the unholy R drug.....I would do the same in your shoes...I > know I would.... > I just don't think KK had dealt with the utmost of integrity...and do not > think children one and all who show up should be given this drug and be > asked to fill out the papers...I did not go there to be a part of a study on > Risperdal ....I went to seek help and see if he has seen similar symptoms as > my son.......I do not think this was just a matter of inexperienced me being > disgruntled...I believe wrong was done not just to me ...so I just felt > inclined to speak when one list member was planning on travelling all of > that way and felt how disappointing it would be to not feel her whole child > was considered.....anyway....I did not come to this site with a plan to > criticize Dr. C...I hope things are different....that was about 10 months > ago......and I also am a bit glad to have written as I really want to get a > grasp on this circle of parents of dual Dx kiddos/adults and see what is > going on with them.....I have never been in a group with like situations > before.... > Annie > > > To: > From: mfroof@... > Date: Fri, 15 Jan 2010 14:01:46 -0500 > Subject: Kiarra//Anne > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <<So HOW can someone pee so much!!!!! And could our kids actually > have > > this problem of excessive peeing and NO one really know it ???>> > > > > Hi, Everyone....Kiarra....WOW....another Gareth!!! I have no clue how G > > can pee so much but even the nurses in the hospitals would comment on his > > huge bladder. To be honest with you, I thought I was the one with the > problem > > because I only put out a couple hundred cc's each time......my tiny, itty, > > bitty bladder!!! > > > > .....an SSRI is a mood stabilizer (that's the only words I can come up > > with right now to explain it) that can be used in conjunction with > > Risperdal.....at low doses, they tend to complement each other. Many of > our kids > > also have severe OCD behaviors and the SSRI's can damper that tendency. > > Risperdal does nothing for mood swings, OCD, depression, anxiety issues, > etc. > > G's best SSRI's are Luvox, Lexapro, and then, Prozac. BUT....he has > > really bad OCD and those are for OCD behaviors, too. IF you do decide to > try > > and add more meds, please, make a chart of all behaviors and what they are > > like before starting the meds. That way, once a new med is initiated, you > > have the groundwork to base any changes on. An example would be that G > had > > horrible teeth grinding and growling for communication before the > Risperdal > > and they stopped after he went on R. We added Paxil and those symptoms > > came back. Well, off the Paxil and on to another SSRI. You know they > went > > away with R, so that wasn't the problem. In reality, Paxil did increase > the > > autistic behavior in G. There are so many SSRI meds out there but each > > one is tweaked a tiny bit different from the next and each one only works > on > > 10-15% of the population. Our brains run on chemical interactions.....it > > may take some trial and error but when you get the right meds, it can make > > all the difference in the world. > > > > Anne.....Gareth use to be a horrendous head banger.......I didn't want him > > going blind or end up in some institution bedridden and brain damaged. We > > do have one lady on this sight whose son is blind in one eye due to head > > banging and she is the one who made me realize that it was time to do > > something about it. The day he banged his head on the tile floor and > didn't even > > flinch in pain made me realize I had to do something. I have tried many > > times over the yrs to wean him off the R but the > > aggressiveness/noncompliance/ Dr J and Mr Hyde behaviors come back in full > force. Even Gareth doesn't > > like THAT Gareth since he always apologizes for his behaviors when nasty. > > All I ma saying it to keep an open mind. It's like one doc told me yrs > > ago, " What is MY problem? " because I was trying to wean him off the R. > If > > he was diabetic, would I have a problem giving him insulin? If he was > > sick, would I deny him Tylenol, etc? Gareth needs the R to function. > > Oh........and I have never had him to the doc you're referring to. Even > the docs > > at HMC (Hershey) and CHOC (Chicago) recommended the Risperdal. > > > > Take care, Everyone. > > Margaret > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Hi thanks Irma! as far as what you said: >>>>>>I heard of research from pharmaceuticals who really target many clinics just promote their drugs which many doc's who choose to take this route are swayed within profits which have witnessed with several of my son's former doc's who are no longer in the picture. Not that I want to open this can of worms<<<<<<< I cannot accuse anyone of this but I have to say it had been strongly on my mind as that is how many of those doctors in research institutions manage to have a better salary....it can be done within the realm of integrity but then again it might not be in other situations...but like you said...why open a can of worms...but we do have to keep our ears and eyes open for our kids.....even nice people who are good speakers may feel pressured to make a better living and not always have the best interest of every individual patient... ... >> > > > > > > __________________________________________________________ > Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. > http://clk.atdmt.com/GBL/go/196390709/direct/01/ > > Quote Link to comment Share on other sites More sharing options...
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