Re: Doctors Aarrrrghhhhh part 753 ANOTHER Links for -REDUX!

[Guest guest]

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YEAH I found it. Here is the link to pdf:

http://www.hdwg.org/files/resources/Paying_for_Additional_Services.pdf

And pasted below is what the section I was talking about says.

Open I am sure to interpetation, I am sure, BUT I have found when talking

to/emailing/writing state officials that referencing THEIR very own actual

verbiage that is on the books (state regs/fed regs etc)=a win situation.

This works best the higher up the food chain one goes-at least IMHO- cause the

soldier (case worker/coordinater/whatever title used)has almost zero power to do

wrap arounds or creative " think outside the box " problem solving. Not the

soldiers fault.

(I used to be one in the 1970's with the caveat being a progresive director was

in charge which=a good thing)

So start at the top-maybe the names on the F2F New Jersey link is a start. If

you can't get anywhere with them, find their boss on their website & try again.

I think this could work for you since you have 3 kiddos with special needs.

Ok, here is the exact wording. NOTE THE LAST SENTENCE!! Oh & this is actually a

FEDERAL program-Title V of the Social Security Act. Used to be called the

" Crippled Childrens Fund back in the 1970s in the state I worked in, however

each state calls it something different. The key to look for is any program a

state has under Title V:

" In New Jersey and Massachusetts (which modeled its program after the one in New

Jersey) the Catastrophic Illness in Children Relief Funds are special trusts

established through a levy on employers (those who contribute to the state's

unemployment fund) at $1.00 or $1.50 per employee. The funds cover out-of-pocket

expenses that are not covered by insurance and exceed 10%-15% of the family's

annual gross income. Thus, the term " catastrophic " refers not to the conditions

for which expenses are incurred, but rather to the impact on the family's

finances. "

Hope this helps.

Kris

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> > > > > > I hear you Cyndi..

> > > > >

> > > > > > keeping a job as a boat captain is not the easiest thing in this

type of

> > > > >

> > > > > > economy. Jim has always had work but after leaving the job with the

BCBS

> > > > >

> > > > > > insurance...right when we found out Children's Medical Services

would be

> > > > >

> > > > > > dropping her and miracle of miracles...her getting on the waiver

which

> > > > >

> > > > > > automatically meant medicaid at age 11...he's always been afraid to

try

> > > > > to

> > > > >

> > > > > > get jamie on our policies...he's afraid he'll get fired. I guess you

> > > > > can't

> > > > >

> > > > > > ever go back to insurance once a kid like is off right? He

can't

> > > > > even

> > > > >

> > > > > > talk about her all that much as all his bosses are rich folks who

want to

> > > > >

> > > > > > have a good time..certainly not hear about how the other half lives.

Even

> > > > >

> > > > > > people with not much money want to hear about the horrors of

> > > > > DSASD+medical.

> > > > >

> > > > > > And actually....most folks with regular DS kids don't want to hear

about

> > > > >

> > > > > > poop smearing, violent behaviored dual dx stuff either. Looks like

we're

> > > > > all

> > > > >

> > > > > > stuck with each other.

> > > > >

> > > > > > Oh and BTW... has the " straight " medicaid not the new HMO

versions

> > > > >

> > > > > > that nobody at all wants to take. Did medicaid move to HMOs in other

> > > > > states?

> > > > >

> > > > > > Sherry

> > > > >

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> > > > > >

> > > > >

> > > > > > >>>every time we start using the insurance a lot the companies my

husband

> > > > >

> > > > > > has worked for start questioning my husbands work capabilities.After

my

> > > > > son

> > > > >

> > > > > > had his cardio cath my husbands boss who previously had cancer to my

> > > > > husband

> > > > >

> > > > > > to watch his back. My husband had been with this company for 13 yrs.

So

> > > > > for

> > > > >

> > > > > > a while my son only had medicaid no private insurance and that makes

> > > > > finding

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> > > > > > Dr.'s for our kiddos even more limited. Cyndi B<<<

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