Re: Some answers? Getting closer....

[Guest guest]

Sorry your going through so much. Just know your in my prayers, Tawny

> I survived my spinal tap, and found out yesterday I get to go

through

> another one. YIPPEE! Just what I want to hear. My CSF was

extremely

> high, and my protein count was low, so my doctor now suspects

> pseudotumor cerebri, though that does not explain the hearing loss,

> weakness, tremors, speech, etc. She also found some abnormalities

on

> my EEG, and has started me on anticonvulsants, which SUCK.

Horrible

> headache, " buzzing " feeling in my head and hands, and just genrally

> icky. This can last for 3-6 weeks,and I'm only on the juvenile

dose!

> I'd rather have the seizures, thanks. I guess I need to call her

> Tuesday and get off this junk. I'm also on diomox to lower the

> pressure in my skull and spine, and need to have another LP next

week,

> as well as more tests to try to find clots near my jugular, which

she

> thinks may be preventing the CSF from draining. Finding

information

> on PTC is difficult, since I guess it is very rare. Figures.

>

> Wish me luck and pass the cold towel...my head feels like it is

going

> to explode! YUCK.

>

>

[Guest guest]

Sorry your going through so much. Just know your in my prayers, Tawny

> I survived my spinal tap, and found out yesterday I get to go

through

> another one. YIPPEE! Just what I want to hear. My CSF was

extremely

> high, and my protein count was low, so my doctor now suspects

> pseudotumor cerebri, though that does not explain the hearing loss,

> weakness, tremors, speech, etc. She also found some abnormalities

on

> my EEG, and has started me on anticonvulsants, which SUCK.

Horrible

> headache, " buzzing " feeling in my head and hands, and just genrally

> icky. This can last for 3-6 weeks,and I'm only on the juvenile

dose!

> I'd rather have the seizures, thanks. I guess I need to call her

> Tuesday and get off this junk. I'm also on diomox to lower the

> pressure in my skull and spine, and need to have another LP next

week,

> as well as more tests to try to find clots near my jugular, which

she

> thinks may be preventing the CSF from draining. Finding

information

> on PTC is difficult, since I guess it is very rare. Figures.

>

> Wish me luck and pass the cold towel...my head feels like it is

going

> to explode! YUCK.

>

>

[Guest guest]

Ohhh, God Bless you , spinal taps can be very

painful. I had one and I had what they called a spinal

headache. Everytime I got up it felt like my head

would explode. It is caused from a leak in the spinal

cord where they did the tap. They took me back in and

withdrew some blood and then used it to stop the leak,

it is very precise and the doctor that did the spinal

had to do the plugging of the leak. My thoughts and

prayers are with you ... Better days ahead, in

MO .

__________________________________________________

[Guest guest]

Ohhh, God Bless you , spinal taps can be very

painful. I had one and I had what they called a spinal

headache. Everytime I got up it felt like my head

would explode. It is caused from a leak in the spinal

cord where they did the tap. They took me back in and

withdrew some blood and then used it to stop the leak,

it is very precise and the doctor that did the spinal

had to do the plugging of the leak. My thoughts and

prayers are with you ... Better days ahead, in

MO .

__________________________________________________

[Guest guest]

Thanks, guys. I'm just hoping they get to the bottom of this soon.

I'm getting rather annoyed with the headaches and tremors (which

have come back with a vengeance in the past few days). I'm also

getting double vision off and on, which is even more fun.

June...I'm not being brave - this is the only way I know how to

react to this. I do get scared (and depressed) sometimes, but you

can't let it get to you. Remember, I could be a lot worse off (like

dead...) I just consider this another chapter of my life, and a

rather interesting one, at that. There is a plaque in a catalog I

have that I wanted to get for work...now I want to get it for home.

More for my husband than myself, I think, but it is simple...and

words to live by. It just says " SUCK IT UP " ....and I LOVE it . I

think that my husband's reaction to all of this hurts much more than

the health problems, actually. I don't want pity, and I don't want

to be doted on, but my husband has become increasingly selfish

through all this, and that hurts. I'd like him to sit next to me

and ask me how I'm doing once in awhile, instead of coming in the

door, and telling me he's really tired of all the sickness in the

house, and leaving (our daughter has a severe sinus infection, as

well). Instead of making me feel better, and stronger, he seems to

be trying to make me feel guilty about all this, and I don't

appreciate it. I'd tell him where to go, but when I'm not feeling

well I don't think straight all the time, and instead I get

depressed and feel sorry for myself, which is the wrong thing to do,

and then I get mad at myself. Only for a little bit, though...I

then have to feel grateful for what I DO have, and I can't stay

depressed too long.

...yeah, those spinal headaches really stink. I'm just not

sure if this one is due to low pressure or high pressure, though. I

had a slight headache immediately after the LP, but stayed down the

rest of the day, and the next day I was fine. It wasn't until the

end of the third day that this one hit, and boy, it has been a

doozy. At first it was only if I stood. Now I've got it if I stand

too long, or lay down flat. If I sit or lay propped, I'm fine. My

eyes ache, now, too. As long as I'm sitting on the couch with my

legs up, staring blankly at the tv, I'm fine . So, couch potato

it is.

Anyway, hope you guys all have a good three-day weekend. I'm going

back onto the couch for a bit...my head is starting to try to blow

off my head and into orbit.

> Ohhh, God Bless you , spinal taps can be very

> painful. I had one and I had what they called a spinal

> headache. Everytime I got up it felt like my head

> would explode. It is caused from a leak in the spinal

> cord where they did the tap. They took me back in and

> withdrew some blood and then used it to stop the leak,

> it is very precise and the doctor that did the spinal

> had to do the plugging of the leak. My thoughts and

> prayers are with you ... Better days ahead, in

> MO .

>

>

> __________________________________________________

>

[Guest guest]

Thanks, guys. I'm just hoping they get to the bottom of this soon.

I'm getting rather annoyed with the headaches and tremors (which

have come back with a vengeance in the past few days). I'm also

getting double vision off and on, which is even more fun.

June...I'm not being brave - this is the only way I know how to

react to this. I do get scared (and depressed) sometimes, but you

can't let it get to you. Remember, I could be a lot worse off (like

dead...) I just consider this another chapter of my life, and a

rather interesting one, at that. There is a plaque in a catalog I

have that I wanted to get for work...now I want to get it for home.

More for my husband than myself, I think, but it is simple...and

words to live by. It just says " SUCK IT UP " ....and I LOVE it . I

think that my husband's reaction to all of this hurts much more than

the health problems, actually. I don't want pity, and I don't want

to be doted on, but my husband has become increasingly selfish

through all this, and that hurts. I'd like him to sit next to me

and ask me how I'm doing once in awhile, instead of coming in the

door, and telling me he's really tired of all the sickness in the

house, and leaving (our daughter has a severe sinus infection, as

well). Instead of making me feel better, and stronger, he seems to

be trying to make me feel guilty about all this, and I don't

appreciate it. I'd tell him where to go, but when I'm not feeling

well I don't think straight all the time, and instead I get

depressed and feel sorry for myself, which is the wrong thing to do,

and then I get mad at myself. Only for a little bit, though...I

then have to feel grateful for what I DO have, and I can't stay

depressed too long.

...yeah, those spinal headaches really stink. I'm just not

sure if this one is due to low pressure or high pressure, though. I

had a slight headache immediately after the LP, but stayed down the

rest of the day, and the next day I was fine. It wasn't until the

end of the third day that this one hit, and boy, it has been a

doozy. At first it was only if I stood. Now I've got it if I stand

too long, or lay down flat. If I sit or lay propped, I'm fine. My

eyes ache, now, too. As long as I'm sitting on the couch with my

legs up, staring blankly at the tv, I'm fine . So, couch potato

it is.

Anyway, hope you guys all have a good three-day weekend. I'm going

back onto the couch for a bit...my head is starting to try to blow

off my head and into orbit.

> Ohhh, God Bless you , spinal taps can be very

> painful. I had one and I had what they called a spinal

> headache. Everytime I got up it felt like my head

> would explode. It is caused from a leak in the spinal

> cord where they did the tap. They took me back in and

> withdrew some blood and then used it to stop the leak,

> it is very precise and the doctor that did the spinal

> had to do the plugging of the leak. My thoughts and

> prayers are with you ... Better days ahead, in

> MO .

>

>

> __________________________________________________

>