Re: For my friends with FM

[Guest guest]

Judi,

I am so glad to hear that you are doing so well with this new med.

Frequently I believe that many of us are very leary of starting a new med

when we read the print out from the pharmacy. I hope this med continues to

prove well for you.

My goodness with all that you have accomplished and getting some good nights

sleep I would say you must be feeling part human again. Don't overdue!!

Terri

[ ] For my friends with FM

> Hi all,

>

> I just started taking a new medication, Lyrica (pregabalin) that I

> first heard about when I saw something posted here (probably from

> or a.) It is by Pfizer, and they said it " shows great

> promise in treating Fibromyalgia. "

>

> Since Dercum's Disease is so similar to FM, my doctor agreed to my

> trying it, especially after such a dismal reaction to the Pimozide I

> did try. I have taken 2 doses, one Thursday night and one last

> night, not even near the dosage I'm supposed to take. So far I have

> had 2 very good nights' sleep, and my pain level has gone from about

> 20 down to a 2 (on a scale of 1-10.) The only negative has been some

> dizziness, but that usually goes away after breakfast and coffee.

> Yesterday I worked 3 hours cleaning one Sunday School room, and did

> not have the grinding pain in my hips that usually comes from being

> on my feet. Today I did 2 loads of laundry, cut grass, and baked 2

> different kinds of cookies for church tomorrow, and it's only 2:45!

>

> I just wanted to share this with you in case any of you who are not

> satisfied with your FM meds might want to ask your doctor if you can

> try this. It is in the same general category as Neurontin, but I

> took Neurontin and believe me, this doesn't act at all the same!

>

> Hoping you're having a good weekend,

>

> Judi in Indiana--enjoying sunny and 70's

>

>

>

>

>

>

[Guest guest]

Judi,

I am so glad to hear that you are doing so well with this new med.

Frequently I believe that many of us are very leary of starting a new med

when we read the print out from the pharmacy. I hope this med continues to

prove well for you.

My goodness with all that you have accomplished and getting some good nights

sleep I would say you must be feeling part human again. Don't overdue!!

Terri

[ ] For my friends with FM

> Hi all,

>

> I just started taking a new medication, Lyrica (pregabalin) that I

> first heard about when I saw something posted here (probably from

> or a.) It is by Pfizer, and they said it " shows great

> promise in treating Fibromyalgia. "

>

> Since Dercum's Disease is so similar to FM, my doctor agreed to my

> trying it, especially after such a dismal reaction to the Pimozide I

> did try. I have taken 2 doses, one Thursday night and one last

> night, not even near the dosage I'm supposed to take. So far I have

> had 2 very good nights' sleep, and my pain level has gone from about

> 20 down to a 2 (on a scale of 1-10.) The only negative has been some

> dizziness, but that usually goes away after breakfast and coffee.

> Yesterday I worked 3 hours cleaning one Sunday School room, and did

> not have the grinding pain in my hips that usually comes from being

> on my feet. Today I did 2 loads of laundry, cut grass, and baked 2

> different kinds of cookies for church tomorrow, and it's only 2:45!

>

> I just wanted to share this with you in case any of you who are not

> satisfied with your FM meds might want to ask your doctor if you can

> try this. It is in the same general category as Neurontin, but I

> took Neurontin and believe me, this doesn't act at all the same!

>

> Hoping you're having a good weekend,

>

> Judi in Indiana--enjoying sunny and 70's

>

>

>

>

>

>

[Guest guest]

This is just the best news Judi. You've suffered so much that even

the tiniest bit of relief is a blessing, but to have such major

relief is just fabulous.

I'm so happy for you. I hope it continues and you keep being able to

do all that you want to do. Now if only you can find something to

help the Dercums.

Hopefully the dizziness will go away as you adjust.

a

On Sep 3, 2005, at 3:45 PM, nonny46 wrote:

> Hi all,

>

> I just started taking a new medication, Lyrica (pregabalin) that I

> first heard about when I saw something posted here (probably from

> or a.) It is by Pfizer, and they said it " shows great

> promise in treating Fibromyalgia. "

>

> Since Dercum's Disease is so similar to FM, my doctor agreed to my

> trying it, especially after such a dismal reaction to the Pimozide I

> did try. I have taken 2 doses, one Thursday night and one last

> night, not even near the dosage I'm supposed to take. So far I have

> had 2 very good nights' sleep, and my pain level has gone from about

> 20 down to a 2 (on a scale of 1-10.) The only negative has been some

> dizziness, but that usually goes away after breakfast and coffee.

> Yesterday I worked 3 hours cleaning one Sunday School room, and did

> not have the grinding pain in my hips that usually comes from being

> on my feet. Today I did 2 loads of laundry, cut grass, and baked 2

> different kinds of cookies for church tomorrow, and it's only 2:45!

>

> I just wanted to share this with you in case any of you who are not

> satisfied with your FM meds might want to ask your doctor if you can

> try this. It is in the same general category as Neurontin, but I

> took Neurontin and believe me, this doesn't act at all the same!

>

> Hoping you're having a good weekend,

>

> Judi in Indiana--enjoying sunny and 70's

>

>

>

>

>

[Guest guest]

This is just the best news Judi. You've suffered so much that even

the tiniest bit of relief is a blessing, but to have such major

relief is just fabulous.

I'm so happy for you. I hope it continues and you keep being able to

do all that you want to do. Now if only you can find something to

help the Dercums.

Hopefully the dizziness will go away as you adjust.

a

On Sep 3, 2005, at 3:45 PM, nonny46 wrote:

> Hi all,

>

> I just started taking a new medication, Lyrica (pregabalin) that I

> first heard about when I saw something posted here (probably from

> or a.) It is by Pfizer, and they said it " shows great

> promise in treating Fibromyalgia. "

>

> Since Dercum's Disease is so similar to FM, my doctor agreed to my

> trying it, especially after such a dismal reaction to the Pimozide I

> did try. I have taken 2 doses, one Thursday night and one last

> night, not even near the dosage I'm supposed to take. So far I have

> had 2 very good nights' sleep, and my pain level has gone from about

> 20 down to a 2 (on a scale of 1-10.) The only negative has been some

> dizziness, but that usually goes away after breakfast and coffee.

> Yesterday I worked 3 hours cleaning one Sunday School room, and did

> not have the grinding pain in my hips that usually comes from being

> on my feet. Today I did 2 loads of laundry, cut grass, and baked 2

> different kinds of cookies for church tomorrow, and it's only 2:45!

>

> I just wanted to share this with you in case any of you who are not

> satisfied with your FM meds might want to ask your doctor if you can

> try this. It is in the same general category as Neurontin, but I

> took Neurontin and believe me, this doesn't act at all the same!

>

> Hoping you're having a good weekend,

>

> Judi in Indiana--enjoying sunny and 70's

>

>

>

>

>