Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010 Hi all, My brother Mark is scheduled for tonsillectomy at the end of next week. He was diagnosed with sleeping apnea. I am extremely worried because I don't know what to expect after the surgery. I am afraid that he will completely stop eating. He has feeding disorder, he is extremely picky eater and his food is mostly in a pureed form. Even color of the spoon matters while he eats his food. He doesn't know how to chew on food and instead he swallows it. Can some of you share your experience with this kind of surgery? How should I prepare for the surgery in terms of what I should ask doctors before and after the procedure? My concerns are also based on the fact that his drinking skills are not well developed and he will definitely not take a sip of any liquid after the surgery not to mention ice cubes or iced lolly pops. I know that they will provide him with IV while he's in hospital but what will we do after he's released from hospital? How long will it take to heal his throat after the surgery and how quick your kids started to eat normally again. Any regression in eating skills? Maggie, sister to Mark (10, DS-Autism), Chicago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010 is a willing eater and always has been. He was eating pretty well two days after the surgery. Especially--cold applesauce, cold fruit baby food. Another of my sons had T/A surgery several months before 's, and I was concerned because was supposed to chew a lot... was only 3 and not likely to chew gum or candy...but he loved chewing cheeseburgers, especially Burger King. He got two kids' meals each day, for a while. Lol. very obviously felt much better pretty quickly after the surgery. Sent from my iPhone Hi all, My brother Mark is scheduled for tonsillectomy at the end of next week. He was diagnosed with sleeping apnea. I am extremely worried because I don't know what to expect after the surgery. I am afraid that he will completely stop eating. He has feeding disorder, he is extremely picky eater and his food is mostly in a pureed form. Even color of the spoon matters while he eats his food. He doesn't know how to chew on food and instead he swallows it. Can some of you share your experience with this kind of surgery? How should I prepare for the surgery in terms of what I should ask doctors before and after the procedure? My concerns are also based on the fact that his drinking skills are not well developed and he will definitely not take a sip of any liquid after the surgery not to mention ice cubes or iced lolly pops. I know that they will provide him with IV while he's in hospital but what will we do after he's released from hospital? How long will it take to heal his throat after the surgery and how quick your kids started to eat normally again. Any regression in eating skills? Maggie, sister to Mark (10, DS-Autism), Chicago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010 Get pain meds to be given by the clock - not when he 'asks for it'. he spent the nite in the hospital as his o2 sats were very low prior to surgery and they were concerned about swelling after surgery. He never took pain meds once we left the hospital. We left the hospital after T and A and went out for burgers and ff - my son's favorite food. But he also drank quarts of coal drink (diet) and ice cream. HE wouldn't touch an ice pop. Also his surgery was on Thurs and he returned to school Mon or Tues. after. On Thu, Feb 25, 2010 at 4:10 PM, Magdalena wrote: > > > Hi all, > My brother Mark is scheduled for tonsillectomy at the end of next week. He > was diagnosed with sleeping apnea. I am extremely worried because I don't > know what to expect after the surgery. I am afraid that he will completely > stop eating. He has feeding disorder, he is extremely picky eater and his > food is mostly in a pureed form. Even color of the spoon matters while he > eats his food. He doesn't know how to chew on food and instead he swallows > it. Can some of you share your experience with this kind of surgery? How > should I prepare for the surgery in terms of what I should ask doctors > before and after the procedure? My concerns are also based on the fact that > his drinking skills are not well developed and he will definitely not take a > sip of any liquid after the surgery not to mention ice cubes or iced lolly > pops. I know that they will provide him with IV while he's in hospital but > what will we do after he's released from hospital? How long will it take to > heal his throat after the surgery and how quick your kids started to eat > normally again. Any regression in eating skills? > > Maggie, sister to Mark (10, DS-Autism), Chicago > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010 My daughter had her tonsils and adenoids out a few yrs ago and I must say the recovery was tough. She was on a puree diet and still is, but luckily for us she had a g-tube put in so that was a big help as far as keeping her hydrated. We were sent home with an Rx for Tylenol with Codeine. The only advice I can give to you is to see if you can get the Tylenol with Codeine so that your brothers pain may ease off and allow him to drink. Im sorry, I wasnt that much help.... > Get pain meds to be given by the clock - not when he 'asks for it'. he > spent the nite in the hospital as his o2 sats were very low prior to > surgery > and they were concerned about swelling after surgery. He never took > pain > meds once we left the hospital. We left the hospital after T and A > and went > out for burgers and ff - my son's favorite food. But he also drank > quarts > of coal drink (diet) and ice cream. HE wouldn't touch an ice pop. > > Also his surgery was on Thurs and he returned to school Mon or Tues. > after. > > On Thu, Feb 25, 2010 at 4:10 PM, Magdalena <maggiehuggies@... > >wrote: > > > > > > > Hi all, > > My brother Mark is scheduled for tonsillectomy at the end of next > week. He > > was diagnosed with sleeping apnea. I am extremely worried because > I don't > > know what to expect after the surgery. I am afraid that he will > completely > > stop eating. He has feeding disorder, he is extremely picky eater > and his > > food is mostly in a pureed form. Even color of the spoon matters > while he > > eats his food. He doesn't know how to chew on food and instead he > swallows > > it. Can some of you share your experience with this kind of > surgery? How > > should I prepare for the surgery in terms of what I should ask > doctors > > before and after the procedure? My concerns are also based on the > fact that > > his drinking skills are not well developed and he will definitely > not take a > > sip of any liquid after the surgery not to mention ice cubes or > iced lolly > > pops. I know that they will provide him with IV while he's in > hospital but > > what will we do after he's released from hospital? How long will > it take to > > heal his throat after the surgery and how quick your kids started > to eat > > normally again. Any regression in eating skills? > > > > Maggie, sister to Mark (10, DS-Autism), Chicago > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010 Maggie, You are a wonderful sister to seek for any type of solutions for your brother. Sending huge hugs your way. May your brother Mark have a successful surgery, prayers as well during his recovering time. By chance any luck with an OT that could assist with this? Like with applying some oral activities to his mouth. Something to desensitize his jaws due to his muscles shutting down here. It is very important to chew well & when not in use, the muscles decreases here & forgot what else I was told but do remember this part. Hope your brother comes around & not regress, wishing Mark well. Irma,21,DS/ASD > > Hi all, > My brother Mark is scheduled for tonsillectomy at the end of next week. He was diagnosed with sleeping apnea. I am extremely worried because I don't know what to expect after the surgery. I am afraid that he will completely stop eating. He has feeding disorder, he is extremely picky eater and his food is mostly in a pureed form. Even color of the spoon matters while he eats his food. He doesn't know how to chew on food and instead he swallows it. Can some of you share your experience with this kind of surgery? How should I prepare for the surgery in terms of what I should ask doctors before and after the procedure? My concerns are also based on the fact that his drinking skills are not well developed and he will definitely not take a sip of any liquid after the surgery not to mention ice cubes or iced lolly pops. I know that they will provide him with IV while he's in hospital but what will we do after he's released from hospital? How long will it take to heal his throat after the surgery and how quick your kids started to eat normally again. Any regression in eating skills? > > Maggie, sister to Mark (10, DS-Autism), Chicago > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2010 Report Share Posted February 26, 2010 nathan was and still is pretty much the same as mark with his eating skills. He is 18 now and does get better and better each year, but he had his tonsils and adnoids out around 2yrs i think it was, a toddler anyways. His tonsils and adnoids were sooo huge making his sleep apnea worse so we tired this option first. One thing to note is you think they snore loud now, for a few weeks after the surgery his snoring will be even worse, then it will get eventually better. As for the drinking, nathan will pretty much drink anything, cold or hot. They have to stay with soft foods for a short while if i remember right maybe up to a week ?? not sure that was years ago and may have chagned that. The biggest factor would be pain control I do beleive. If it hurts they are less likey to eat or drink and swallow. I would use the priscribed pain medication routinely for the first few days at least, especially as our kids often dont verbalize or express pain as others. Around here its usually tylenol #3 (with codiene) for the little ones, its a liquid ofcourse and tastes pretty good compared to what they use to use, lol. good luck iwth the surgery, will keep mark in my prayers for an uneventful time and a speedy recovery. shawna May all your ups and downs in life be with a needle and thread. http://sewshawna.blogspot.com To: From: maggiehuggies@... Date: Thu, 25 Feb 2010 21:10:35 +0000 Subject: tonsillectomy Hi all, My brother Mark is scheduled for tonsillectomy at the end of next week. He was diagnosed with sleeping apnea. I am extremely worried because I don't know what to expect after the surgery. I am afraid that he will completely stop eating. He has feeding disorder, he is extremely picky eater and his food is mostly in a pureed form. Even color of the spoon matters while he eats his food. He doesn't know how to chew on food and instead he swallows it. Can some of you share your experience with this kind of surgery? How should I prepare for the surgery in terms of what I should ask doctors before and after the procedure? My concerns are also based on the fact that his drinking skills are not well developed and he will definitely not take a sip of any liquid after the surgery not to mention ice cubes or iced lolly pops. I know that they will provide him with IV while he's in hospital but what will we do after he's released from hospital? How long will it take to heal his throat after the surgery and how quick your kids started to eat normally again. Any regression in eating skills? Maggie, sister to Mark (10, DS-Autism), Chicago Quote Link to comment Share on other sites More sharing options...
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