Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 We went about a year ago also for our initial consult with Dr. Capone. I guess I was just looking for more confirmation on the dual diagnosis and I wanted to get it from The Man. But I didn't really come away feeling like I had any new insights on Kayla, since her local developmental pediatrician already suggested Risperdal. I was debating on going back, but the economy being what it is, I'll probably skip it, since we have to pay for it out of pocket. I do follow up on any surveys and if they request info for research. When it comes to any " experts " on DS/ASD, I just turn to you guys. Ecki Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) http://oppositekids.blogspot.com/ _____ From: [mailto: ] On Behalf Of Dolly Schmitt Sent: Friday, January 15, 2010 6:51 AM To: Subject: Kennedy-Krieger I took my son to see Dr. Capone a year ago. I was so excited about finally getting him an appointment and had high hopes. Now don't get me wrong, the research they do at the institute is wonderful. But I wasn't impressed with the initial consult. It was alot of questions for my husband and I. Not much interaction with at all. He did think he had PDD, and was quick to prescribe Resperidal, in a low dose. I was disappointed in this. I thought he would suggest other methods of modication. To be fair, he said the drug may help focus better so we can try other ways to help him learn. I'm not a big fan of drugs to help our kids, but thats my own opinion. So I was quite disappointed. I would suggest going to Cincinnati Children's Hospital...Down Syndrome Clinic. They were much more focused on the whole child. From Nutrician, to sleep habits, to ABA therapy. I was quite pleased with their approach. Good luck....Dolly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 I had the opportunity to meet Dr. Capone at a conference he gave here at Children's Hospital Milwaukee over a year ago. So, I was fortunate to get his opinion for only $25. I had suspicions of having autism but no other doc or therapist would agree. He was also the only doc that told me myoclonic jerk seizures were pretty much always a pathway to autism - and she had those since age 10 months - neither of the two neurologists that she saw had told us that. Anyway, I'm interested in knowing more about Dr. Bonnie in Cincinnati. What type of doctor is she and what does it cost to see her? Cincinnati seems to be pretty progressive when it comes to Down syndrome. Thanks! Heidi -- Wisconsin, USA (Mom to 8 w/ DS, ASD, epilepsy; Clara 3) No two flowers bloom in exactly the same way, but all are beautiful ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Thanks Dolly you have given me another place to look into!!!! We do all need hope.....Ane To: From: dontsayduck627@... Date: Fri, 15 Jan 2010 03:50:56 -0800 Subject: Kennedy-Krieger I took my son to see Dr. Capone a year ago. I was so excited about finally getting him an appointment and had high hopes. Now don't get me wrong, the research they do at the institute is wonderful. But I wasn't impressed with the initial consult. It was alot of questions for my husband and I. Not much interaction with at all. He did think he had PDD, and was quick to prescribe Resperidal, in a low dose. I was disappointed in this. I thought he would suggest other methods of modication. To be fair, he said the drug may help focus better so we can try other ways to help him learn. I'm not a big fan of drugs to help our kids, but thats my own opinion. So I was quite disappointed. I would suggest going to Cincinnati Children's Hospital...Down Syndrome Clinic. They were much more focused on the whole child. From Nutrician, to sleep habits, to ABA therapy. I was quite pleased with their approach. Good luck....Dolly _________________________________________________________________ Hotmail: Powerful Free email with security by Microsoft. http://clk.atdmt.com/GBL/go/196390710/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Dolly, I too, was very pleased w/the Cincinnati Children's Hospital w/Dr. Bonnie . Irma,21,DS/ASD On Fri, Jan 15, 2010 at 3:50 AM, Dolly Schmitt wrote: > > > I took my son to see Dr. Capone a year ago. I was so excited about finally > getting him an appointment and had high hopes. Now don't get me wrong, the > research they do at the institute is wonderful. But I wasn't impressed with > the initial consult. It was alot of questions for my husband and I. Not much > interaction with at all. He did think he had PDD, and was quick to > prescribe Resperidal, in a low dose. I was disappointed in this. I thought > he would suggest other methods of modication. To be fair, he said the drug > may help focus better so we can try other ways to help him learn. I'm > not a big fan of drugs to help our kids, but thats my own opinion. So I was > quite disappointed. > I would suggest going to Cincinnati Children's Hospital...Down Syndrome > Clinic. They were much more focused on the whole child. From Nutrician, to > sleep habits, to ABA therapy. I was quite pleased with their approach. > Good luck....Dolly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Is Dr. still practicing? Someone who recently went to the Cincinnati DS clinic told me she retired? We vacation in Ohio every year since my family lives there. Was going to look into if our insurance would cover the DS clinic there. Ecki Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) Sullivan County, NY http://oppositekids.blogspot.com/ Re: Kennedy-Krieger Dolly, I too, was very pleased w/the Cincinnati Children's Hospital w/Dr. Bonnie . Irma,21,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Oh know would of love to have heard from Dr. that she was retiring. She always emailed us with " How are y'all doing Texas folks? " Nice to stay in touch across the miles, just to stay in tune w/'s update & would suggest who or what when things did not pan out. I hope other medical physician's learn from here if she is no longer with the Children's Cincinnati DS clinic. All the therapist were really great as well. Glad our insurance was part of their network which was United Healthcare. I would still look into it, isn't Dr. Malloy still here on the listserve or part of the DS clinic. She sounded pretty good. Irma, 21DS/ASD > > > Is Dr. still practicing? Someone who recently went to the > Cincinnati DS clinic told me she retired? We vacation in Ohio every year > since my family lives there. Was going to look into if our insurance would > cover the DS clinic there. > > > Ecki > Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > Sullivan County, NY > http://oppositekids.blogspot.com/ > > > Re: Kennedy-Krieger > > Dolly, > > I too, was very pleased w/the Cincinnati Children's Hospital w/Dr. Bonnie > . > > Irma,21,DS/ASD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Sorry for the typos. Oh well, same ole me butterfingers. Irma On Fri, Jan 15, 2010 at 12:36 PM, Irma Canfield wrote: > Oh no, would of love to have heard from Dr. that she was > retiring. She always emailed us with " How are y'all doing Texas folks? " Nice > to stay in touch across the miles, just to stay in tune w/'s update & > would suggest who or what when things did not pan out. I hope other medical > physician's learn from her if she is no longer with the Children's > Cincinnati DS clinic. All the therapist were really great as well. > Glad our insurance was part of their network which was United Healthcare. > I would still look into it, isn't Dr. Malloy still here on the listserve or > part of the DS clinic? > She sounded pretty good. > > > Irma, 21DS/ASD > > > > > >> >> >> Is Dr. still practicing? Someone who recently went to the >> Cincinnati DS clinic told me she retired? We vacation in Ohio every year >> since my family lives there. Was going to look into if our insurance would >> cover the DS clinic there. >> >> >> Ecki >> Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) >> Sullivan County, NY >> http://oppositekids.blogspot.com/ >> >> >> Re: Kennedy-Krieger >> >> Dolly, >> >> I too, was very pleased w/the Cincinnati Children's Hospital w/Dr. Bonnie >> . >> >> Irma,21,DS/ASD >> >> >> > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.