Fwd: ARI e-newsletter for January 2010

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January 2010

[image:

Logo]<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz7S7mIrPGi3EFK\

3IqQgySNzTMv1-YB-n4vvj7zl51oMer6_7i1aPHsi-ZNgcAU0mUdupG0Qq2naTjLNIUIG53YWF_G_oHT\

_ECIpiU5vmzdReA==>

*In This Issue*

In Memoriam: Allan

Goldblatt<http://mail.google.com/mail/?ui=2 & view=js & name=js & ver=qEnx5VtnzxI.en. & \

am=!5GA6FQbNn1G5A3Gi0fgGIitGXn1ddknb4PNa9hCwdcEWxw#1261d8a809145ee8_LETTER.BLOCK\

13>

Winter Clinician Conference Registration

Continues<http://mail.google.com/mail/?ui=2 & view=js & name=js & ver=qEnx5VtnzxI.en. & \

am=!5GA6FQbNn1G5A3Gi0fgGIitGXn1ddknb4PNa9hCwdcEWxw#1261d8a809145ee8_LETTER.BLOCK\

17>

New Papers Investigate GI Disorders in

ASD<http://mail.google.com/mail/?ui=2 & view=js & name=js & ver=qEnx5VtnzxI.en. & am=!5G\

A6FQbNn1G5A3Gi0fgGIitGXn1ddknb4PNa9hCwdcEWxw#1261d8a809145ee8_LETTER.BLOCK15>

A Foot in Each World: Dr.

Shore<http://mail.google.com/mail/?ui=2 & view=js & name=js & ver=qEnx5VtnzxI.en. & am=!\

5GA6FQbNn1G5A3Gi0fgGIitGXn1ddknb4PNa9hCwdcEWxw#1261d8a809145ee8_LETTER.BLOCK16>

Events in the

Community<http://mail.google.com/mail/?ui=2 & view=js & name=js & ver=qEnx5VtnzxI.en. & \

am=!5GA6FQbNn1G5A3Gi0fgGIitGXn1ddknb4PNa9hCwdcEWxw#1261d8a809145ee8_LETTER.BLOCK\

18>

[image:

shield]<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz7TWicAMHMDC\

fUs8nmZAIFfTOOWHGq08e361gYDT2TMu1nmVqCOCzGqmQRhqODZuxF_pAtVI-Aa-u2vwDairlY7yNJ2w\

cla7bq3Ec0K2fEsDD_kR5v1_iyR>

*UPCOMING EVENTS*

*Winter 2010 Clinician

Conference*

Clinician Seminars - Level I and II

Feb. 6-7, 2010

Marriott Waterside Tampa, FL

Register

Now<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz7TWicAMHMDCfUs8\

nmZAIFfTOOWHGq08e361gYDT2TMu1nmVqCOCzGqmQRhqODZuxF_pAtVI-Aa-u2vwDairlY7yNJ2wcla7\

bq3Ec0K2fEsDD_kR5v1_iyR>

*Spring 2010 Conference**

*Level 1 & 2 Clinician Seminars, Nutrition Seminar, Parent, & Science

Sessions

Baltimore, MD

April 8-11, 2010

*Online registration starts later this month*

*-----------------------*

*Fall 2010 Conference*

Level 1 & 2 Clinician Seminars, Nutrition Seminar, Parent, & Science

Sessions

Long Beach, CA

Oct. 7-10, 2010

*[image:

beatles]<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz6i1xdIHHSf\

-fy2fLw-KVdRmew8N6RQfMaOX9kliM4yJ4ESOjC6x6WUjoPwwkADGlfyN4pyxK-hNok2qY4CX45Wu_q5\

V5A4WfHG-gifL8nt3iyeWMpM4pQJ>

*

*Beatles show at ARI's Edgeware Gallery continues*

*Don't delay: Ends Feb. 14th*

Edgeware Gallery's *Beatles: Art and Artifacts* show set a record for the

largest opening night crowd in the gallery's one-year history. A crowd was

lined up 20 minutes before the doors opened at 5 p.m., and the attendance

was excellent. The fundraising event was promoted by local radio stations,

newspapers, and half-a-dozen Beatles sites also picked up the press

releases. For any readers who would like to get a 'flavor' of the event, a

Beatles-related video that Edgeware produced is available online.

Edgeware

Website<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz6i1xdIHHSf-\

fy2fLw-KVdRmew8N6RQfMaOX9kliM4yJ4ESOjC6x6WUjoPwwkADGlfyN4pyxK-hNok2qY4CX45Wu_q5V\

5A4WfHG-gifL8nt3iyeWMpM4pQJ>

*<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz7ZpZ2I2IVzJ9s6NM4\

pyZFosCO0lZQLpS5QU9y3rXDaDN8nBIQT1t1SMS6bN56V9pScchjEMEjYKegMTVDdb1eN3XubxQdRHLz\

0CsOMIO4uQ2lrzC_lejGEZK4VZL-Q_MQVTwVcDFcqOw==>

***

*Gear Up for Autism Awareness Month

**Join ARI's Million Dollar Puzzle Campaign *

Now's the perfect time to order your free Puzzle Piece kits and prepare to

launch a campaign in your community during Autism Awareness Month this

April.

*Request Puzzle

Pieces*<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz4F2ZPOIT-oB\

hZE6Ymitl54AhShQ84xKP3QkpruFxaBhIF2wsnwVpprodWMQ4AF6CmZmdgJQD09C9G_4MivAteuu3jl8\

YiUdYXEvYOc6d0PGf9Y8FkmmKOgOh4upd7_mhOW5z3CYPJH-zPM8wCjafRP>

*Read more Puzzle Piece Success

Stories*<http://rs6.net/tn.jsp?et=1102915092502 & s=3413 & e=001II_bT08iUz5GwFCLvDne\

lEnOkoD5a4qC3e2iRXtvZJej3dEztYCGAoeOfkHefNIRd6ggfb7TGOd0stOuvuDLg8N2BXzIQ3q_vMR5\

y_X9VyWFjHCVGgWI45fM3-DrLaVHKnF4pqzps7sfY3MH0H4JnsktZykvXYfT>

*Campaign Update: *

*The Puzzle Pieces Project continues to receive requests for puzzle packets

from folks allover the country. Parents, grandparents, siblings, cousins,

teachers, doctors, therapists, and many, many others have joined our efforts

to fund badly needed autism research. I love hearing the stories of the

unique ways the puzzle pieces have been distributed. *

* *

*Kids have built puzzles on school walls, brides have distributed them to

wedding guests, grocery stores and other businesses (some of which have

actually matched funds collected) have lined their walls with the brightly

colored puzzle pieces, professional organizations have adopted us as their

philanthropy project, and folks have set up booths at autism workshops and

conferences. *

* *

*Most recently I was told that the puzzle pieces are mounted around the

entire front office of the ton, IL Parks, Forestry & Recreation in City

Hall. You guys are certainly finding unique ways to increase autism

awareness! We also had several online donations at the end of 2009. Every

dollar helps!We are an all-volunteer effort, and every penny of every dollar

collected is forwarded to ARI and is dedicated to funding research. As of

today (including donations I have just received) we have collected

$89,600.64. We are now in 526 cities. *

* *

*I know that our goal of a million dollars may seem a long way off, but

together we will make it happen. Hey, we're closing in on our first $100,000

now! How I wish we could get some national chain to adopt our project. Let

me know if you have any ideas along that line. Now is a good time to

approach businesses in your communities about distributing the puzzle pieces

during Autism Awareness Month next April. Locally our plans include a

Motorcycle Run for Autism. *

* *

*My sincere thanks to everyone who is helping build the Million Dollar

Puzzle.I wish you all a very happy New Year. Let's make 2010 a great year

for Autism Research.** *

* *

*Hugs, *

*Lynda Huggins*

*Mom to Jon, age 34***

*Autism Seizure-Treatment Survey Continues: Parents Urged to Provide Dat**a*

*

**Survey aims to assess treatment efficacy and possible side effects*

You can help advance research by filling out a survey form designed by Prof.

, Co-Chair of ARI's Scientific Advisory Panel, and Dr.

Frye. This very detailed form will provide a deeper understanding of the

efficacy and the possible side effects of seizure treatments.

Complete the Seizure Treatment Survey

Online<http://rs6.net/tn.jsp?et=1102616824293 & s=-1 & e=001QSQ7NDvew1y6N45vWO8IVxc5\

7Augat_rPCEVaMYUerC2yYSRklmEEv1giyR_87SPk4g_d63tMIUZa7YLcM9bejLuiTc7HRtkcqf4xVxJ\

b6YqfPlV18PXs3jYcPAxH07foscHxTg54EPsjd0Aie0XE8O6-FkUt7ev>

*Visit our website:*

*www.autism.com*<http://rs6.net/tn.jsp?t=r4ui5kcab.0.0.urleaacab.0 & p=http%3A%2F%\

2Fwww.autism.com%2F & id=preview & id=preview & id=preview>

Accomplishments

2009<http://rs6.net/tn.jsp?t=waqznfdab.0.u9ljfwcab.urleaacab.3413 & ts=S0441 & p=htt\

p%3A%2F%2Fwww.autism.com%2Fari%2Faccomp2008.htm>

AAP reaches out to

ARI<http://rs6.net/tn.jsp?t=waqznfdab.0.v9ljfwcab.urleaacab.3413 & ts=S0441 & p=http\

%3A%2F%2Fwww.aap.org%2Fadvocacy%2Freleases%2Fapr08autismday.htm>

Research Advances

<http://rs6.net/tn.jsp?t=waqznfdab.0.ty94k9cab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.autism.com%2Fmedical%2Fresearch%2Fbiomedical%2Fbiomedical.htm>

<http://rs6.net/tn.jsp?t=7wxdbmcab.0.0.urleaacab.0 & p=http%3A%2F%2Fautism.com%2Ft\

reatable%2Fform34qr.htm & id=preview & id=preview>

*Treatment Ratings

<http://rs6.net/tn.jsp?t=7wxdbmcab.0.0.urleaacab.0 & p=http%3A%2F%2Fautism.com%2Ft\

reatable%2Fform34qr.htm & id=preview & id=preview>

*

<http://rs6.net/tn.jsp?t=uv7inmcab.0.0.urleaacab.0 & p=http%3A%2F%2Fautism.com%2Ff\

amilies%2Fdiet%2FGFCF_science.pdf & id=preview>

*Science of GF/CF

(pdf)<http://rs6.net/tn.jsp?t=uv7inmcab.0.0.urleaacab.0 & p=http%3A%2F%2Fautism.co\

m%2Ffamilies%2Fdiet%2FGFCF_science.pdf & id=preview>

*

Find a

Clinician<http://rs6.net/tn.jsp?t=7wxdbmcab.0.0.urleaacab.0 & p=http%3A%2F%2Fautis\

m.com%2Fdan%2Findex.htm%23practlist & id=preview & id=preview>

ARI-Funded

Research<http://rs6.net/tn.jsp?t=7wxdbmcab.0.0.urleaacab.0 & p=http%3A%2F%2Fautism\

..com%2Fmedical%2Fresearch%2Fresearch07.htm & id=preview & id=preview>

Conference

Webcasts<http://rs6.net/tn.jsp?t=waqznfdab.0.cc6mixcab.urleaacab.3413 & ts=S0441 & p\

=http%3A%2F%2Fautism.com%2Fdanwebcast%2Findex.htm>

*Our Partners *

<http://rs6.net/tn.jsp?t=waqznfdab.0.vrmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.autism-society.org%2Fsite%2FPageServer>

<http://rs6.net/tn.jsp?t=waqznfdab.0.4rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.autismone.org%2Fhomepage.cfm>

*

<http://rs6.net/tn.jsp?t=waqznfdab.0.4rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.autismone.org%2Fhomepage.cfm>

*

<http://rs6.net/tn.jsp?t=waqznfdab.0.4rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.autismone.org%2Fhomepage.cfm>

<http://rs6.net/tn.jsp?t=waqznfdab.0.9rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.generationrescue.org%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.8rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.medigenesis.com%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.pnolfwcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fmindd.org%2Fserendipity%2Farchives.php%2F41-Frontpage.html>

<http://rs6.net/tn.jsp?t=waqznfdab.0.zrmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.nationalautismassociation.org%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.7rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fsafeminds.org%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.asmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.sarnet.org%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.6rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.tacanow.org%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.69ljfwcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.treatingautism.co.uk%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.5rmofbcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.unlockingautism.org%2F>

----------------------------

*The Autism Research Institute collaborates with autism groups abroad:**

Defeat Autism Now! - Europe

(headquartered in Bologna, Italy)*

Australia & New

Zealand<http://rs6.net/tn.jsp?t=waqznfdab.0.x9ljfwcab.urleaacab.3413 & ts=S0441 & p=\

http%3A%2F%2Fwww.mindd.org%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.y9ljfwcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.autismcanada.org%2F>

Canada

<http://rs6.net/tn.jsp?t=waqznfdab.0.z9ljfwcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.filariane.org%2F>

France

<http://rs6.net/tn.jsp?t=waqznfdab.0.99ljfwcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.emergenzautismo.org%2F>

Italy

Our Lady of Guadalupe Health and Defeat Autism

Nigeria<http://rs6.net/tn.jsp?t=waqznfdab.0.89ljfwcab.urleaacab.3413 & ts=S0441 & p=\

http%3A%2F%2Fwww.olgautismnigeria.org%2F>

<http://rs6.net/tn.jsp?t=waqznfdab.0.79ljfwcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.bebepingo.com%2F>

Mexico

United

Kingdom<http://rs6.net/tn.jsp?t=waqznfdab.0.69ljfwcab.urleaacab.3413 & ts=S0441 & p=\

http%3A%2F%2Fwww.treatingautism.co.uk%2F>

*About the ARI **E-Newsletter*:

This newsletter is compiled, written, and edited by ARI parents, and

we welcome your input. If you have questions you would like answered, a

story you would like to submit, or an idea for something you would like to

see discussed or explained, please contact us

..

*Contributing Editors:*

*Jane ***

*Dave Gillerman

Edelson, Ph.D. *

* ***

*Technical Support:*

* Fulton *

*Additional Assistance:*

*ARI maintains a toll-free line with information, contacts, and access to

resources available through the Autism Research Institute.**

English:

Español: ,

ext 5*

<http://visitor.constantcontact.com/email.jsp?m=1101659254324>

From the Director:

<http://rs6.net/tn.jsp?t=waqznfdab.0.gamechcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fautism.com%2Findex.html>[image:

dr.

edelson]<http://rs6.net/tn.jsp?t=waqznfdab.0.gamechcab.urleaacab.3413 & ts=S0441 & p\

=http%3A%2F%2Fautism.com%2Findex.html><http://rs6.net/tn.jsp?t=waqznfdab.0.gamec\

hcab.urleaacab.3413 & ts=S0441 & p=http%3A%2F%2Fautism.com%2Findex.html>The

new year has begun - I hope your plans, hopes and wishes for 2010 come true.

This first month of the year is turning out to be an important one. Earlier

this week an article titled " Gastrointestinal Disorders in Individuals with

Autism Spectrum Disorder " was published in Pediatrics. Twenty-seven experts

reviewed the research on gastrointestinal problems associated with autism,

concluding that pediatricians need to be aware of, and treat, such problems.

In addition, they urged that more research be conducted in order to

determine prevalence, cause, and treatment. View it online through the

Pediatrics website.

Later this week ARI will sponsor a 2½-day think tank in Dallas. Many of the

top researchers and clinicians in the field will meet to discuss

cutting-edge topics as well as develop an agenda on how to proceed with

future research in autism. ARI will begin investigating the topography of

self-injury, and we plan to distribute an online survey within a few weeks.

Once we upload the survey to the Internet, we will send out an announcement

to subscribers to this e-newsletter.

ARI also sponsors an art gallery in which a portion of the proceeds is used

to fund autism research. Our 'Beatles at Edgeware' opening on December 26th

was a huge success with approximately 250 people in attendance. The show

will close in mid-February. You can learn more about the exhibit at

www.EdgewareGallery.com<http://rs6.net/tn.jsp?t=waqznfdab.0.dc6mixcab.urleaacab.\

3413 & ts=S0441 & p=http%3A%2F%2Fwww.edgewaregallery.com%2F>.

You can also view a live video stream of the gallery as well as watch a

Beatles-related video online.

*Wishing everyone a Happy New Year in 2010! *

*Steve Edelson, Ph.D.**

Director, Autism Research Institute*

*In Memoriam: Allan Goldblatt*

*ARI mourns the passing of a pioneering clinician who helped develop the

biomedical/Defeat Autism Now! approach** *

[image: goldblatt]It is with great sadness that we announce that Allan

Goldblatt passed away last week, on December 29th. He played an important

role in the development of the biomedical/Defeat Autism Now! approach. He

attended most of our think tanks and presented several times at the science

portion of our conferences. A kind and warm person, his brilliance and

insight into autism has had a significant impact in the autism community. *We

are so grateful for all of his contributions to advancing effective

treatments for autism - he will be remembered with deep affection,

and greatly missed. *

*Registration Continues for Tampa *

*Clinician's Seminars set for Feb. 6-7*

[image: tampa2]Hotel rooms at the Conference Hotel - the Tampa Marriott

Waterside Hotel and Marina - are available for $169 per night, February 3-9,

2010. Reserve your room with a credit card through our secure online

registration

form<http://rs6.net/tn.jsp?t=waqznfdab.0.eudgvddab.urleaacab.3413 & ts=S0441 & p=htt\

p%3A%2F%2Fdefeatautismnow.com%2FTampa%2Frates.html>.

Rooms are going fast! *Want to reserve your room now but register for

conference sessions at a later date? Visit our conference **hotel

registration

site.*<http://rs6.net/tn.jsp?t=waqznfdab.0.euaheadab.urleaacab.3413 & ts=S0441 & p=h\

ttps%3A%2F%2Fresweb.passkey.com%2FResweb.do%3Fmode%3Dwelcome_ei_new%26eventID%3D\

1453353>

Next month's clinician seminars in Tampa are designed exclusively for

licensed healthcare professionals who provide primary medical care to

children and adults diagnosed with autism spectrum disorders. We'll be

offering our Level 1 and Level 2 clinician seminars Saturday-Sunday, Feb.

6-7:

- Level 1 Clinician Seminar - $695 (includes CME): A two-day seminar for

review of the scientific data supporting the medical treatment of ASD. LEVEL

1

SCHEDULE<http://rs6.net/tn.jsp?t=waqznfdab.0.fudgvddab.urleaacab.3413 & ts=S0441 & p\

=http%3A%2F%2Fdefeatautismnow.com%2FTampa%2Fclinician.html>

- Level 2 Clinician Seminar - $695 (includes CME): A two-day seminar

designed for clinicians with prior experience. LEVEL 2

SCHEDULE<http://rs6.net/tn.jsp?t=waqznfdab.0.gudgvddab.urleaacab.3413 & ts=S0441 & p\

=http%3A%2F%2Fdefeatautismnow.com%2FTampa%2Fclinician2.html>

Both seminars are approved for 14 hours of *AMA-PRA Category 1

Credits™*. *Don't

need CME credits? Waive this option when you register online and you'll save

$50 off your conference fees.*

***************************************************** ***

* *

*Online Spring Conference registration for parents, caregivers &

clinicians coming soon *

*Join us April 8-11 in Baltimore for **Level 1 & 2 Clinician Seminars,

Nutrition Seminar, Parent, & Science Sessions*

* *

We are very pleased to announce that the Spring Conference will offer a

variety of financial support options for families, including: Early-Bird

Rates, free attendance for volunteers on days they help, and Angel Fund

discounts for families in financial need. Angel funds and volunteer options

are limited and offered on a first-come/first-served basis.

Watch for our eblast when online registration begins later this month!

*New Papers Suggest Guidelines for Diagnosing and Treating GI Disorders in

Individuals with Autism*

Pediatrics* reports need to evaluate and treat ASD individuals for GI

symptoms*

All too often parents are told that their child's GI symptoms are " normal "

for someone with autism, and sent home without investigation. Because many

individuals with ASD might have undiagnosed medical conditions, often

involving the gastrointestinal tract, ARI, ASA, Northwest Autism Foundation,

and Easter Seals of Oregon sponsored an unbiased review of the evidence

linking gastrointestinal disorders with autism. ARI's Dr. Edelson

commented, " This is truly a human rights issue; every child deserves proper

medical attention--whether or not they have autism. "

On May 29-30, 2008, a multidisciplinary panel led by Dr. Harland Winter and

Dr. Buie of Harvard Medical School met in Boston, Massachusetts to

develop consensus statements and recommendations for evaluating, diagnosing

and treating GI disorders in individuals with ASD. Working groups included

27 experts in child psychiatry, developmental pediatrics, epidemiology,

medical genetics, immunology, nursing, pediatric allergy, pediatric

gastroenterology, pediatric pain, pediatric neurology, pediatric nutrition,

and psychology. The meeting resulted in the publication of two papers in

the January 4th edition of *Pediatrics*: " Evaluation, Diagnosis and

Treatment of Gastrointestinal Disorders in Individuals with ASDs, " and

" Recommendations for Evaluation and Treatment of Common Gastrointestinal

Problems in Children With

ASDs<http://rs6.net/tn.jsp?t=waqznfdab.0.wiulwfdab.urleaacab.3413 & ts=S0441 & p=htt\

p%3A%2F%2Fpediatrics.aappublications.org%2Fcgi%2Freprint%2F125%2FSupplement_1%2F\

S1%3Fmaxtoshow%3D%26HITS%3D10%26hits%3D10%26RESULTFORMAT%3D%26fulltext%3Dautism%\

2Bgastrointestinal%26andorexactfulltext%3Dand%26searchid%3D1%26FIRSTINDEX%3D0%26\

sortspec%3Drelevance%26resourcetype%3DHWCIT>

.. "

The crux of the problem is that " for children with ASD, behavioral

indicators may be the only manifestation of pain. " The medical literature

does not address modifications in the diagnostic evaluation based on the

needs of people with disabilities, such as impaired language, and when

symptoms are not recognized as related to an underlying medical condition,

relevant diagnostic studies might not be considered.Parents and physicians

should be on the lookout for the most common GI disorders reported in people

with ASD: chronic constipation, abdominal pain with or without diarrhea,

encopresis, GERD, and abdominal bloating. Problem behaviors such as

self-injury and aggression, as well as sleep disturbance or irritability,

might be indicators of stomach pain.

Many families report improvements in behavior following initiation of

gluten-free and casein-free (GF/CF) diets. The authors wrote: " Anecdotal

reports that restricted diets may ameliorate symptoms of ASDs in some

children have not been supported or refuted in the scientific literature,

but these data do not address the possibility that there exists a sub-group

of individuals who may respond to such diets. Professional supervision of

restricted diets is recommended to prevent nutritional inadequacies. "

It's noteworthy that of the 3,593 parents who responded to ARI's

survey<http://rs6.net/tn.jsp?t=waqznfdab.0.xiulwfdab.urleaacab.3413 & ts=S0441 & p=h\

ttp%3A%2F%2Fwww.autism.com%2Ftreatable%2Ftreatment_09.pdf>,

69 percent felt that their child improved on the diet while only 3

percent felt that their child got worse. (We agree that a trained

nutritionist or dietitian should guide any trial of a restricted diet.

Toward that end, ARI sponsors a Nutrition Seminar twice a year to train

professionals in the proper implementation of this and other diets.)

Dr. Buie, et al. conclude, " The approach to evaluation and diagnosis of

possible underlying medical conditions, in particular GI disorders, should

be no different from the standard of care for persons without ASD " - in other

words, *there is no excuse for sending a patient home without* *the same

investigation that would be granted to neurotypical peers. *Parents who feel

their child might have GI dysfunction or disease should bring these

important papers to the attention of their physician. " These published

reports bring much-needed focus to gastrointestinal problems that are

commonly associated with the autism spectrum. The conclusions are clear:

physicians need to be alert and responsive to such problems when treating

these patients; additional research on prevalence, cause, and appropriate

treatment is imperative, " says Dr. Edelson.

Dr. Shore: A Foot in Each World

*Living, learning, and loving with ASD*

<http://rs6.net/tn.jsp?t=waqznfdab.0.qamechcab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.autismasperger.net%2F>[image:

Shore]<http://rs6.net/tn.jsp?t=waqznfdab.0.qamechcab.urleaacab.3413 & ts=S0441 & p=h\

ttp%3A%2F%2Fwww.autismasperger.net%2F><http://rs6.net/tn.jsp?t=waqznfdab.0.qamec\

hcab.urleaacab.3413 & ts=S0441 & p=http%3A%2F%2Fwww.autismasperger.net%2F>Dr.

Shore is well known to the community, and undoubtedly gives hope to

countless parents concerned about how their child on the spectrum will fare

in the " real " world.

was initially diagnosed with " Atypical Development with strong

autistic tendencies, " was nonverbal until age four, and was recommended for

institutionalization. Today, 's accomplishments speak for themselves:

he's a professor at Adelphi University where he teaches courses in autism

and special education; he's a media powerhouse, having authored, edited or

been involved with four books and one DVD dealing with autism; he's an

accomplished speaker, speaking often both domestically and internationally,

and he's happily married, to boot.

The common thread of all of 's activities is his passion both to help

his fellow " spectrum-mates, " specifically in the areas of self-advocacy and

disclosure, and simultaneously, to increase awareness and understanding of

autism in the neurotypical world. is able to move effortlessly

between the two worlds, and is accepted and respected in both.

" I serve as sort of an ambassador between people with autism and those who

aren't on the spectrum, " says Shore. " I'm able to function in both spheres

by engaging an 'NT emulator,' " he says, displaying his frequent

tongue-in-cheek wit.

If purports to engage his NT emulator in some situations, in his

latest DVD project " Living Along the Autism Spectrum, " he is merely

himself. , and Naseef, a psychologist specializing in autism

who is also the father of a son on the spectrum, tell how autism has

affected each of them personally. In doing so, both Dr. Shore and Dr.

Naseef reflect on such issues as social skills, sensory sensitivity, family

grief, and coping mechanisms, the effect on siblings, and many other topics

that are approached from both an academic perspective as well as from an

intimate first-person point of view. The moderator of the DVD is Dr.

Gottlieb, a psychologist who has a grandson on the spectrum.

Dr. Shore's first book Beyond the Wall: Personal Experiences with Autism and

Asperger Syndrome delivers pragmatic information in an accessible manner.

The book, written in an autobiographical style, focuses on strategies for

educating a child with autism.

His critically acclaimed breakout book Understanding Autism for Dummies " is

a compendium of different approaches, from ABA to biomedical, matching best

practice to the unique characteristics of every individual with ASD. There

is certainly no " one size fits all. " As Dr. Shore says, " When you've met

one person with autism, you've met one person with autism. Everyone's

different. "

Ask and Tell: Self-Advocacy and Disclosure for People on the Autism

Spectrum, as the title suggests, largely deals with issues relating to the

acceptance and accommodation to the reality of ASD within school, workplace,

and other environments. All six of the chapters are written by people on the

autism spectrum.

It is worth noting that Dr. Shore is very confident and competent as a

professor at Adelphi, as well as in the role of conference presenter,

working as an author, and giving music lessons to children with autism.

Nevertheless he is acutely aware of his limitations in some social arenas.

" I can be oblivious when it comes to office politics, " says Shore. " Whereas

the NT population can intuitively decode non-verbal signals and can gain

information from 'the grapevine,' these are areas in which I know I am

challenged. " Consequently - both in his writing and in his speaking - Dr.

Shore seeks to empower those on the spectrum to also be aware of their

particular needs and deficits - whether they be sensory, or social - and

through self-advocacy, to accommodate for those needs.

Dr. Shore is a professional colleague and close personal friend of ARI's

Director Dr. Edelson. " I find Dr. Edelson's combination of

acceptance and understanding of people with autism, combined with his

commitment to helping people with autism lead fulfilling and productive

lives to their greatest potential, a true gift to the autism community. "

More than 25 of Dr. Shore's scholarly articles can also be found on ARI's

www.autism.com<http://rs6.net/tn.jsp?t=waqznfdab.0.kgsptbcab.urleaacab.3413 & ts=S\

0441 & p=http%3A%2F%2Fwww.autism.com%2F>site,

including articles on such topics as dating, marriage, teaching

strategies, and employment.

" ARI (and its website,

www.autism.com<http://rs6.net/tn.jsp?t=waqznfdab.0.kgsptbcab.urleaacab.3413 & ts=S\

0441 & p=http%3A%2F%2Fwww.autism.com%2F>)

is a great resource for people seeking information on biomedical causes and

treatment of autism - not as a cure - but rather with the objective of

improving the health, and therefore the lives, of people with autism, " Dr.

Shore said.

More about , his writings, and activities can be found on his

website:

www.autismasperger.net<http://rs6.net/tn.jsp?t=waqznfdab.0.qamechcab.urleaacab.3\

413 & ts=S0441 & p=http%3A%2F%2Fwww.autismasperger.net%2F>

..

Events in the Community ...

[image: shield]*Winter 2010 ARI/Defeat Autism Now! Clinician Conference*

Level 1 & 2 Clinician Seminars

Tampa, FL | February 6-7, 2010

Register

Now<http://rs6.net/tn.jsp?t=waqznfdab.0.usqexhcab.urleaacab.3413 & ts=S0441 & p=http\

%3A%2F%2Fwww.defeatautismnow.com%2F>

*Spring 2010 ARI/Defeat Autism Now! Conference*

Level 1 & 2 Clinician Seminars, Nutrition Seminar,

Parent & Science Sessions

Baltimore, MD | April 8-11, 2010

*Registration starts later this month**

*

*Fall 2010 ARI/Defeat Autism Now! Conference**

*Level 1 & 2 Clinician Seminars, Nutrition Seminar,

Parent & Science Sessions

Long Beach, CA | Oct. 7-10, 2010

* *

*---------------------------------------------------------------*

* *

*Anaheim Autism/Asperger Conference - Anaheim*

*Feb 6-7, 2010 *

* *

[image: aca]*When: **

*Saturday & Sunday Feb. 6-7, 2010

* *

*Where: *

Anaheim Convention Center (3rd floor)

800 W. Katella Ave., Anaheim, CA, 92802

* *

*Learn more & Register Online: *

*Register*<http://rs6.net/tn.jsp?t=waqznfdab.0.judgvddab.urleaacab.3413 & ts=S0441\

& p=http%3A%2F%2Fwww.regonline.com%2Fbuilder%2Fsite%2Ftab2.aspx%3FEventID%3D79321\

6>

*Schedule at a

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http%3A%2F%2Fwww.regonline.com%2Fbuilder%2Fsite%2Ftab3.aspx%3FEventID%3D793216>

* *

*Anaheim Marriott - $99 per

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*Maps and Driving Directions

*<http://rs6.net/tn.jsp?t=waqznfdab.0.dbiepddab.urleaacab.3413 & ts=S0441 & p=http%3\

A%2F%2Fwww.regonline.com%2Fbuilder%2Fsite%2Ftab1.aspx%3FEventID%3D793216>

* *

Organized by: Autism Conferences of America

In Collaboration With: ASU Autism/Aspergers Research Program, ARI, Autism

Society of California, Autism Speaks, Autism Spectrum of Support (ASOS),

Center for Autism and Related Disorders, TACA (Talk About Curing Autism)

*---------------------------------------------------------------*

*TACA's Real Help Now Conference - Madison, WI***

<http://rs6.net/tn.jsp?t=waqznfdab.0.iuaheadab.urleaacab.3413 & ts=S0441 & p=http%3A\

%2F%2Fwww.realhelpnowconference.org%2F>[image:

rhn]<http://rs6.net/tn.jsp?t=waqznfdab.0.iuaheadab.urleaacab.3413 & ts=S0441 & p=htt\

p%3A%2F%2Fwww.realhelpnowconference.org%2F><http://rs6.net/tn.jsp?t=waqznfdab.0.\

iuaheadab.urleaacab.3413 & ts=S0441 & p=http%3A%2F%2Fwww.realhelpnowconference.org%2\

F>

9 a.m. - 5 p.m. Saturday, Feb. 27

* *

Where:

Candlewood Suites

5421 Caddis Bend, Madison, WI 53711

*Featuring:**

* Underwood, Ph.D.

Van Dyke, M.D.

Anju Usman, M.D.

Dan Rossignol, M.D.

Information<http://rs6.net/tn.jsp?t=waqznfdab.0.iuaheadab.urleaacab.3413 & ts=S044\

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Register

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*Make a Monthly Pledge to Support Research** ***

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