I feel unwelcome here. Sorry so longggg.

December 15, 2001

Ladies,

I'd like everyone to know how I feel, and why I came to this

forum. First I came here from a forum on hair loss, another poster on

the forum (Hairsite) posted the link. So I thought I'd check it out.

Now I'll tell you my story so you can understand why I am

looking into everything. I have had alopecia areata for around 20

years. That is hair loss in round spots, and it can also be diffuse.

It started in my early 20's. They say it is genetic and you can

inherit alopecia areata. No big deal, I have learned to live with it

and had to wear a wig for a year.

My life has been crazy for years, my Dad has had 5 spinal

operations and is not well, and was told he won't be able to get

around in a few years. I have been his caregiver, housekeeper, and my

heart breaks to see my Dad in pain. So my stress is very high.

I got saline Mc Ghan implants October of 93, over the muscle and

they turned out great. I had no complications, they are still soft

and I have no pain in my implants.

A little over 4 years ago, I got pregnant. The only reason I

knew I was pregnant was my dermatologist. I had marks on my skin,

above my lip. Like someone took a pencil and shaded it in. During

this time, my Mom almost died and my Dad is disabled. I was the one

holding down the house. I did not continue with the pregnancy. Now

most pregnancy related things go away within a year. Many peels,

bleach, and gels. I still had the pregnancy mask. It took over 3

years for it to get 75% lighter. The doc said some women keep it for

life. It also took 3 years for my periods to get on track, no thanks

to the nutty endo that put me on aldactone with no birth control.

Thanks to him, giving me 3 periods a month. I have a ferritin level

of 34. Which does not help hair loss, and is a cause of it and it

takes a ferritin of 80 to regrow hair.

Also since age 25, I have had milk in my breast and I high

prolactin level that every doctor blows off. Prolactin is a major

cause of hair loss. I had high prolactin 5 years before implants, and

alopecia areata 10 years before implants.

Today I am a hair stylist, but I was a stripper for 15 years. I

blew both my knees out many times and was a very hard dancer. I

always had ice on one part of my body or another and use to wrap my

knees and right wrist in order to work. Which I covered with leg

warmers and bandanas. I quit dancing for my boyfriend 3 years ago.

Must be love as I quit for no man.

So after the pregnancy, I had the pregnancy mask, short cycles

with heavy bleeding and about 8 months later I noticed hair loss in

an all over shedding of 100 to 300 hairs a day. My hair still grows

back in with thick strands so it is not female pattern baldness. I do

get my areata spots once a year, which grow back in 6 months. I shed

like my cat.

OK, this is also what I have noticed but not to the point of

telling a doctor.

Mild joint pain, wrists, elbow, and kness, not everyday, and it

seems to come with my period. ( my friend and I chart our joint pain,

she has no implants.) Feet and hands have been swollen first 5 mins

in AM. Not everyday, maybe 3 times a month. Heel pain, not everyday

and only when I sit weird or my feet are up higher then my body.

This last thing is what lead me here. I had burning skin for a few

weeks. My back, butt, shoulders and side of my body, top of legs.

After the burn I broke out, butt, chest back, top of legs. All but a

few on my back have cleared up now.

Now, my hair loss can be my areata or my pregnancy, because if my

hormones did not go back to normal on their own. I need a doctor to

correct it, and that is a guessing game even for a great doc. If it

is my areata gone diffusa, well I'll have to deal as I'll probably go

bald and there is no cure.

As for my joint pain, I did dance for 15 years and the pain is mild

not even enough to take a pill. Heel pain 5 inch heels will kill your

feet and the damage might be from that.

Burning skin is why I came here and why I will never post again. I

started taking a hair supplement. I never really looked at everything

in it. When I talked to my derm's nurse today, she told me it might

be the biotin in my hair supplement. See I stopped taking it and no

burning skin. The only reason I know I have a problem on biotin, as I

overdosed on it years ago. Why? Well, as a dancer we had to be tan

and sexy. So biotin in a high dose, makes your skin hot and red.

Under black lights it looks like a killer tan. I took way to much and

ended up in the ER. They had ice bags all over me, my body was

burning up. Later the ER Doc yelled at me telling me high doses of

biotin causes organ failure. Biotin can cause burning skin. My skin

has not burned since I stopped taking it a month ago. I will take it

now to prove my point.

I came on this forum for advice and to learn what implants can do.

I thought I had made a friend. It seems I am not welcome here unless

I believe everything that is wrong with me is implant related, even

if I had the problem before implants.

Now yes I do believe implants can be harmful to some women. Yes my

eyes are open. Here is my point to everyone and the friend I thought

I had on this forum.

Isn't it in my best interest to find out why my prolactin is high,

could be a pituitary tumor. which can cause hair loss and my hormones

to be off. Or should I blow it off say it's my implants and get them

out and keep the tumor? Now I'm not saying that is what is wrong.

High prolactin levels can be from a pituitary tumor. Since the hair

loss, high prolactin levels, and some of the joint pain were pre

implants shouldn't I look in all directions?

Now it seems I am not welcome here because I won't blame it on my

implants right away and I'm exploring everything. It seems if I'm

not willing to get them out, I am not wanted or allowed to be

informed and up to date on the implant info. When I told my friend

that I have in the past had a reaction to biotin, she said why are

you on the forum then. Well if you didn't get sick, most of you would

still have implants. If it is not my implants why should I rip them

out. If my scalp biopsy comes back it is not my areata. I'll have to

look at my implants as the cause. YES if it is the implants I will

get them out. Maybe I'm nuts, but I think I'll make sure I don't have

a brain tumor from the prolactin before I run to explant. Yes, I'm

looking at other reasons, as half of what is wrong with me was pre

implants.

I'd like to stay on the forum to keep up on all the info. I won't

post or e mail anyone, as I have been asked why I'm even here.

I hope you all get better and wish you the best. Nik

December 15, 2001

Dear Nik: Please take a look at the Mentor saline implant booklet and the

FDA information. They recommend that if you have an autoimmune disease

(which alopecia acreata is) that you do not have saline implants. The

implants may not be the cause of the hair loss but they can exacerbate the

condition. I believe the hair loss is a combination of nutritional and

hormonal conditions which the silicone immune disease can create although

their are many other causes of hair loss as there are other causes of

fibromyalgia. Heavy metal testing would also be a good idea. .

----- Original Message -----

From: nikkipep <GP369@...>

< >

Sent: Saturday, December 15, 2001 3:47 AM

Subject: I feel unwelcome here. Sorry so longggg.

> Ladies,

> I'd like everyone to know how I feel, and why I came to this

> forum. First I came here from a forum on hair loss, another poster on

> the forum (Hairsite) posted the link. So I thought I'd check it out.

> Now I'll tell you my story so you can understand why I am

> looking into everything. I have had alopecia areata for around 20

> years. That is hair loss in round spots, and it can also be diffuse.

> It started in my early 20's. They say it is genetic and you can

> inherit alopecia areata. No big deal, I have learned to live with it

> and had to wear a wig for a year.

> My life has been crazy for years, my Dad has had 5 spinal

> operations and is not well, and was told he won't be able to get

> around in a few years. I have been his caregiver, housekeeper, and my

> heart breaks to see my Dad in pain. So my stress is very high.

> I got saline Mc Ghan implants October of 93, over the muscle and

> they turned out great. I had no complications, they are still soft

> and I have no pain in my implants.

> A little over 4 years ago, I got pregnant. The only reason I

> knew I was pregnant was my dermatologist. I had marks on my skin,

> above my lip. Like someone took a pencil and shaded it in. During

> this time, my Mom almost died and my Dad is disabled. I was the one

> holding down the house. I did not continue with the pregnancy. Now

> most pregnancy related things go away within a year. Many peels,

> bleach, and gels. I still had the pregnancy mask. It took over 3

> years for it to get 75% lighter. The doc said some women keep it for

> life. It also took 3 years for my periods to get on track, no thanks

> to the nutty endo that put me on aldactone with no birth control.

> Thanks to him, giving me 3 periods a month. I have a ferritin level

> of 34. Which does not help hair loss, and is a cause of it and it

> takes a ferritin of 80 to regrow hair.

> Also since age 25, I have had milk in my breast and I high

> prolactin level that every doctor blows off. Prolactin is a major

> cause of hair loss. I had high prolactin 5 years before implants, and

> alopecia areata 10 years before implants.

> Today I am a hair stylist, but I was a stripper for 15 years. I

> blew both my knees out many times and was a very hard dancer. I

> always had ice on one part of my body or another and use to wrap my

> knees and right wrist in order to work. Which I covered with leg

> warmers and bandanas. I quit dancing for my boyfriend 3 years ago.

> Must be love as I quit for no man.

> So after the pregnancy, I had the pregnancy mask, short cycles

> with heavy bleeding and about 8 months later I noticed hair loss in

> an all over shedding of 100 to 300 hairs a day. My hair still grows

> back in with thick strands so it is not female pattern baldness. I do

> get my areata spots once a year, which grow back in 6 months. I shed

> like my cat.

> OK, this is also what I have noticed but not to the point of

> telling a doctor.

> Mild joint pain, wrists, elbow, and kness, not everyday, and it

> seems to come with my period. ( my friend and I chart our joint pain,

> she has no implants.) Feet and hands have been swollen first 5 mins

> in AM. Not everyday, maybe 3 times a month. Heel pain, not everyday

> and only when I sit weird or my feet are up higher then my body.

> This last thing is what lead me here. I had burning skin for a few

> weeks. My back, butt, shoulders and side of my body, top of legs.

> After the burn I broke out, butt, chest back, top of legs. All but a

> few on my back have cleared up now.

> Now, my hair loss can be my areata or my pregnancy, because if my

> hormones did not go back to normal on their own. I need a doctor to

> correct it, and that is a guessing game even for a great doc. If it

> is my areata gone diffusa, well I'll have to deal as I'll probably go

> bald and there is no cure.

> As for my joint pain, I did dance for 15 years and the pain is mild

> not even enough to take a pill. Heel pain 5 inch heels will kill your

> feet and the damage might be from that.

> Burning skin is why I came here and why I will never post again. I

> started taking a hair supplement. I never really looked at everything

> in it. When I talked to my derm's nurse today, she told me it might

> be the biotin in my hair supplement. See I stopped taking it and no

> burning skin. The only reason I know I have a problem on biotin, as I

> overdosed on it years ago. Why? Well, as a dancer we had to be tan

> and sexy. So biotin in a high dose, makes your skin hot and red.

> Under black lights it looks like a killer tan. I took way to much and

> ended up in the ER. They had ice bags all over me, my body was

> burning up. Later the ER Doc yelled at me telling me high doses of

> biotin causes organ failure. Biotin can cause burning skin. My skin

> has not burned since I stopped taking it a month ago. I will take it

> now to prove my point.

> I came on this forum for advice and to learn what implants can do.

> I thought I had made a friend. It seems I am not welcome here unless

> I believe everything that is wrong with me is implant related, even

> if I had the problem before implants.

> Now yes I do believe implants can be harmful to some women. Yes my

> eyes are open. Here is my point to everyone and the friend I thought

> I had on this forum.

> Isn't it in my best interest to find out why my prolactin is high,

> could be a pituitary tumor. which can cause hair loss and my hormones

> to be off. Or should I blow it off say it's my implants and get them

> out and keep the tumor? Now I'm not saying that is what is wrong.

> High prolactin levels can be from a pituitary tumor. Since the hair

> loss, high prolactin levels, and some of the joint pain were pre

> implants shouldn't I look in all directions?

> Now it seems I am not welcome here because I won't blame it on my

> implants right away and I'm exploring everything. It seems if I'm

> not willing to get them out, I am not wanted or allowed to be

> informed and up to date on the implant info. When I told my friend

> that I have in the past had a reaction to biotin, she said why are

> you on the forum then. Well if you didn't get sick, most of you would

> still have implants. If it is not my implants why should I rip them

> out. If my scalp biopsy comes back it is not my areata. I'll have to

> look at my implants as the cause. YES if it is the implants I will

> get them out. Maybe I'm nuts, but I think I'll make sure I don't have

> a brain tumor from the prolactin before I run to explant. Yes, I'm

> looking at other reasons, as half of what is wrong with me was pre

> implants.

> I'd like to stay on the forum to keep up on all the info. I won't

> post or e mail anyone, as I have been asked why I'm even here.

> I hope you all get better and wish you the best. Nik

>

December 15, 2001

Nik

This is kind of what I have been telling you not in so many words. I think

you may have misinterpreted my intentions to you, I just felt that you want

to keep the implants so bad that you are letting it kind of blind you to

what is going on. You say your eyes are open and I hope and pray that they

are, ok.

You are always welcome to post here, just relax, remember this is a support

site and not a pro implant site, no one here is going to tell you to keep

implants if you are sick, or even if your not sick, at least not Patty and

I, or most others, e, , Martha etc etc, we all have had bad

experiences and know enough to know implants are bad news.

please try to stay calm I don't want this group to turn into an argumentive

place, we need to remember what we are dealing with here, illness and

implants, and that includes hair loss and autoimmune disorders. I think Dr

Kolb summed it up well, if you want to keep your implants then at least

start doing some serious detoxing,

I do care and so do the rest of us, Love

----- Original Message -----

From: " Dr. Kolb " <drkolb@...>

< >

Sent: Saturday, December 15, 2001 6:14 AM

Subject: Re: I feel unwelcome here. Sorry so longggg.

> Dear Nik: Please take a look at the Mentor saline implant booklet and the

> FDA information. They recommend that if you have an autoimmune disease

> (which alopecia acreata is) that you do not have saline implants. The

> implants may not be the cause of the hair loss but they can exacerbate the

> condition. I believe the hair loss is a combination of nutritional and

> hormonal conditions which the silicone immune disease can create although

> their are many other causes of hair loss as there are other causes of

> fibromyalgia. Heavy metal testing would also be a good idea. .

> ----- Original Message -----

> From: nikkipep <GP369@...>

> < >

> Sent: Saturday, December 15, 2001 3:47 AM

> Subject: I feel unwelcome here. Sorry so longggg.

>

> > Ladies,

> > I'd like everyone to know how I feel, and why I came to this

> > forum. First I came here from a forum on hair loss, another poster on

> > the forum (Hairsite) posted the link. So I thought I'd check it out.

> > Now I'll tell you my story so you can understand why I am

> > looking into everything. I have had alopecia areata for around 20

> > years. That is hair loss in round spots, and it can also be diffuse.

> > It started in my early 20's. They say it is genetic and you can

> > inherit alopecia areata. No big deal, I have learned to live with it

> > and had to wear a wig for a year.

> > My life has been crazy for years, my Dad has had 5 spinal

> > operations and is not well, and was told he won't be able to get

> > around in a few years. I have been his caregiver, housekeeper, and my

> > heart breaks to see my Dad in pain. So my stress is very high.

> > I got saline Mc Ghan implants October of 93, over the muscle and

> > they turned out great. I had no complications, they are still soft

> > and I have no pain in my implants.

> > A little over 4 years ago, I got pregnant. The only reason I

> > knew I was pregnant was my dermatologist. I had marks on my skin,

> > above my lip. Like someone took a pencil and shaded it in. During

> > this time, my Mom almost died and my Dad is disabled. I was the one

> > holding down the house. I did not continue with the pregnancy. Now

> > most pregnancy related things go away within a year. Many peels,

> > bleach, and gels. I still had the pregnancy mask. It took over 3

> > years for it to get 75% lighter. The doc said some women keep it for

> > life. It also took 3 years for my periods to get on track, no thanks

> > to the nutty endo that put me on aldactone with no birth control.

> > Thanks to him, giving me 3 periods a month. I have a ferritin level

> > of 34. Which does not help hair loss, and is a cause of it and it

> > takes a ferritin of 80 to regrow hair.

> > Also since age 25, I have had milk in my breast and I high

> > prolactin level that every doctor blows off. Prolactin is a major

> > cause of hair loss. I had high prolactin 5 years before implants, and

> > alopecia areata 10 years before implants.

> > Today I am a hair stylist, but I was a stripper for 15 years. I

> > blew both my knees out many times and was a very hard dancer. I

> > always had ice on one part of my body or another and use to wrap my

> > knees and right wrist in order to work. Which I covered with leg

> > warmers and bandanas. I quit dancing for my boyfriend 3 years ago.

> > Must be love as I quit for no man.

> > So after the pregnancy, I had the pregnancy mask, short cycles

> > with heavy bleeding and about 8 months later I noticed hair loss in

> > an all over shedding of 100 to 300 hairs a day. My hair still grows

> > back in with thick strands so it is not female pattern baldness. I do

> > get my areata spots once a year, which grow back in 6 months. I shed

> > like my cat.

> > OK, this is also what I have noticed but not to the point of

> > telling a doctor.

> > Mild joint pain, wrists, elbow, and kness, not everyday, and it

> > seems to come with my period. ( my friend and I chart our joint pain,

> > she has no implants.) Feet and hands have been swollen first 5 mins

> > in AM. Not everyday, maybe 3 times a month. Heel pain, not everyday

> > and only when I sit weird or my feet are up higher then my body.

> > This last thing is what lead me here. I had burning skin for a few

> > weeks. My back, butt, shoulders and side of my body, top of legs.

> > After the burn I broke out, butt, chest back, top of legs. All but a

> > few on my back have cleared up now.

> > Now, my hair loss can be my areata or my pregnancy, because if my

> > hormones did not go back to normal on their own. I need a doctor to

> > correct it, and that is a guessing game even for a great doc. If it

> > is my areata gone diffusa, well I'll have to deal as I'll probably go

> > bald and there is no cure.

> > As for my joint pain, I did dance for 15 years and the pain is mild

> > not even enough to take a pill. Heel pain 5 inch heels will kill your

> > feet and the damage might be from that.

> > Burning skin is why I came here and why I will never post again. I

> > started taking a hair supplement. I never really looked at everything

> > in it. When I talked to my derm's nurse today, she told me it might

> > be the biotin in my hair supplement. See I stopped taking it and no

> > burning skin. The only reason I know I have a problem on biotin, as I

> > overdosed on it years ago. Why? Well, as a dancer we had to be tan

> > and sexy. So biotin in a high dose, makes your skin hot and red.

> > Under black lights it looks like a killer tan. I took way to much and

> > ended up in the ER. They had ice bags all over me, my body was

> > burning up. Later the ER Doc yelled at me telling me high doses of

> > biotin causes organ failure. Biotin can cause burning skin. My skin

> > has not burned since I stopped taking it a month ago. I will take it

> > now to prove my point.

> > I came on this forum for advice and to learn what implants can do.

> > I thought I had made a friend. It seems I am not welcome here unless

> > I believe everything that is wrong with me is implant related, even

> > if I had the problem before implants.

> > Now yes I do believe implants can be harmful to some women. Yes my

> > eyes are open. Here is my point to everyone and the friend I thought

> > I had on this forum.

> > Isn't it in my best interest to find out why my prolactin is high,

> > could be a pituitary tumor. which can cause hair loss and my hormones

> > to be off. Or should I blow it off say it's my implants and get them

> > out and keep the tumor? Now I'm not saying that is what is wrong.

> > High prolactin levels can be from a pituitary tumor. Since the hair

> > loss, high prolactin levels, and some of the joint pain were pre

> > implants shouldn't I look in all directions?

> > Now it seems I am not welcome here because I won't blame it on my

> > implants right away and I'm exploring everything. It seems if I'm

> > not willing to get them out, I am not wanted or allowed to be

> > informed and up to date on the implant info. When I told my friend

> > that I have in the past had a reaction to biotin, she said why are

> > you on the forum then. Well if you didn't get sick, most of you would

> > still have implants. If it is not my implants why should I rip them

> > out. If my scalp biopsy comes back it is not my areata. I'll have to

> > look at my implants as the cause. YES if it is the implants I will

> > get them out. Maybe I'm nuts, but I think I'll make sure I don't have

> > a brain tumor from the prolactin before I run to explant. Yes, I'm

> > looking at other reasons, as half of what is wrong with me was pre

> > implants.

> > I'd like to stay on the forum to keep up on all the info. I won't

> > post or e mail anyone, as I have been asked why I'm even here.

> > I hope you all get better and wish you the best. Nik

> >

December 15, 2001

Dear : What types of heavy metal testing are there. And did your hair

loss stop when you had your silicon implants replaced with saline or before.

Thanks

----- Original Message -----

From: Dr. Kolb <drkolb@...>

< >

Sent: Saturday, December 15, 2001 8:14 AM