Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 IMHO - Fritos were pay for working!! :`) > > > Margaret: > > It will be interesting to see if other doctors have other theories. There > are some similarities between Gareth and Tony (pseudo seizures, maybe > hallucinations). Tony was first diagnosed with Post Traumatic Stress > Disorder instead of PDD. So my OPINION having both boys and having worked > previously with individuals with Down syndrome is that their " ego strength " > is not as strong just as their bodies are not as strong. Both of my boys > seem more traumatized by events than other children would be and it is > beyond explaining away with sensory issues. And I don't mean to generalize > because I so don't buy the generalization of children with Down syndrome > (loving but stubborn and all that crap). But Tony is still " recovering " > from his first three years of life and while I thought his foster home was > benignly neglectful - if there is such a thing - why did it cause PTSD? But > then maybe it is just the mixed signals that society constantly gives - > people are either treat my kids as if they are way younger than they are or > they have higher expectations that what is realistic and/or they dismiss > them altogether. Imagine trying to make sense of all of that? > > Tony had a bunch of medical procedures when he was in foster care and I > have > always wondered if that caused the PTSD. It was reported to me that he was > a very sickly child and I was supposed to pick up a nebulizer when I took > him home but I did not. And he has been very healthy since coming to our > house. > > Also, we are homeschooling him this year and he is doing so much better. > Not a sniffle yet this year and yet last year it appeared as if he was > allergic to the school he sniffed so bad Monday through Friday. > > It is really difficult to sift this all through. I appreciate more so for > you and Gareth because of the increased medical concerns. > > Tony has been telling me for weeks now that there are monkeys in the house > down the street. Every time we pass the house he says, " go here, visit the > monkeys. " I ask him how many monkeys and what are they doing because I > thought it was pretend play but it seems more extreme than typical pretend > play. So I'm either going to call Animal Control or worry that he sees > things I don't. > > All this to say that I haven't been very impressed with either the > psychologist, the neuropsychologist, or the neurologist that have all seen > Tony and seen something different. > > When we " sift " through the complications on our own we have Tony who had to > go to work with me today and happily did his homeschooling at a desk near > mine. He did it quietly and competently (though I did have to bribe him > with a trip to the vending machine to get Fritos) who since we have taken > him out of school no longer has many of the autistic characteristics and > certainly no more of the pseudo seizures. > > While I originally thought the person who diagnosed him with PTSD was off > the wall, I now think that is the best explanation though it also is still > lacking. > > It is all very complicated and no one is as probably invested as we the > parents. Maybe Gareth has PTSD and undiagnosed medical problem? > > Lori > > Mom to Isaac 13 and Tony 11 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2010 Report Share Posted January 8, 2010 (21) has a diagnosis of PTSD. He came to us at age 8 after a very chaotic life and had open heart surgery a month later. I really think it fits him more than the autism diagnosis, although I think apraxia and sensory issues are big. It is really clear when he is feeling unsafe in his life. He will do really well for most staff in his supported living arrangement but then someone will be hired that flips out. Fortunately they have agreed that if doesn't take to a new staff they go to another program. This has robbed of so many opportunities in life it just crushes me. He feels so secure in his school program and he is doing all the things I have dreamed for so long. BTW, we tried finding a therapist to work with him and biofeedback with poor follow through from the psychologist treating unfortunately I never found the answer. KARyn > > Margaret: > > > > It will be interesting to see if other doctors have other theories. There > are some similarities between Gareth and Tony (pseudo seizures, maybe > hallucinations). Tony was first diagnosed with Post Traumatic Stress > Disorder instead of PDD. So my OPINION having both boys and having worked > previously with individuals with Down syndrome is that their " ego strength " > is not as strong just as their bodies are not as strong. Both of my boys > seem more traumatized by events than other children would be and it is > beyond explaining away with sensory issues. And I don't mean to generalize > because I so don't buy the generalization of children with Down syndrome > (loving but stubborn and all that crap). But Tony is still " recovering " > from his first three years of life and while I thought his foster home was > benignly neglectful - if there is such a thing - why did it cause PTSD? But > then maybe it is just the mixed signals that society constantly gives - > people are either treat my kids as if they are way younger than they are or > they have higher expectations that what is realistic and/or they dismiss > them altogether. Imagine trying to make sense of all of that? > > > > Tony had a bunch of medical procedures when he was in foster care and I have > always wondered if that caused the PTSD. It was reported to me that he was > a very sickly child and I was supposed to pick up a nebulizer when I took > him home but I did not. And he has been very healthy since coming to our > house. > > > > Also, we are homeschooling him this year and he is doing so much better. > Not a sniffle yet this year and yet last year it appeared as if he was > allergic to the school he sniffed so bad Monday through Friday. > > > > It is really difficult to sift this all through. I appreciate more so for > you and Gareth because of the increased medical concerns. > > > > Tony has been telling me for weeks now that there are monkeys in the house > down the street. Every time we pass the house he says, " go here, visit the > monkeys. " I ask him how many monkeys and what are they doing because I > thought it was pretend play but it seems more extreme than typical pretend > play. So I'm either going to call Animal Control or worry that he sees > things I don't. > > > > All this to say that I haven't been very impressed with either the > psychologist, the neuropsychologist, or the neurologist that have all seen > Tony and seen something different. > > > > When we " sift " through the complications on our own we have Tony who had to > go to work with me today and happily did his homeschooling at a desk near > mine. He did it quietly and competently (though I did have to bribe him > with a trip to the vending machine to get Fritos) who since we have taken > him out of school no longer has many of the autistic characteristics and > certainly no more of the pseudo seizures. > > > > While I originally thought the person who diagnosed him with PTSD was off > the wall, I now think that is the best explanation though it also is still > lacking. > > > > It is all very complicated and no one is as probably invested as we the > parents. Maybe Gareth has PTSD and undiagnosed medical problem? > > > > Lori > > Mom to Isaac 13 and Tony 11 > > > > Quote Link to comment Share on other sites More sharing options...
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