Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Please go in to the yahoo groups andregister your mail id. Don’t send these mails and fill our mail box. Dear Moderator, Please intervene andinstruct the members. Kind regards, Magesh R From:indiansafetyprofessionals [mailto:indiansafetyprofessionals ] On Behalf Of Deepak Dorik (BC)Sent: Tuesday, May 22, 2007 12:30PMTo:'indiansafetyprofessionals 'Subject: new member Dear Moderator, Pl. include the name of my friend Mr. Sri Veddalapali, at present he is workingin Hyderabadas Fire officer his mail address is vshrishailamyahoo (DOT) co.in Regards Deepak B DorikAssistant Manager - Safety Birla CellulosicGujarat -----OriginalMessage-----From: indiansafetyprofessionals [mailto:] On Behalf Of Dahima,Mohan L. - ECL EEC (HAZ)Sent: Tuesday, May 22, 200710:39 AMTo: indiansafetyprofessionals Subject: RE: [indiansafetyprofessi: indiansafetyprofessionals Let us share thoughts on environment, that will be some meaningful. Celebration of World Environment Day every year on 5th Junehas become just a ritual.The deterioration of environment has come to such an alarming levelthat immediate corrective and preventive action is required from all concerned. Environment is not the responsibility of just the Pollution Boards,We all can contribute towards this. Regards,M L Dahima From: indiansafetyprofessionals [mailto:indiansafetyprofessionals ] On Behalf Of R PatilSent: Tuesday, May 22, 20079:49 AMTo: indiansafetyprofessionals Subject: hi sharethouths on celebration of world environment day---------------------------------------------------------- " Our Corporate Office Board number has changed from 26780643 to 66 888333. Our Fax numbers remain unchanged. " .--------------------------------------------------------------------------------------------------------------------The information contained in this electronic message and anyattachments to this message are intended for the exclusive use of theaddressee(s) and may contain confidential or privileged information. Ifyou are not the intended recipient, please notify the sender at UnichemLaboratories Limited or itunichemindiaimmediately and destroy allcopies of this message and any attachments.----------------------------------------------------------P Pleasedon't print this e-mail unless you really need to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Dear Moderator Please include the instruction to join the group directly by sending mail (indiansafetyprofessionals-subscribe ) , in the footer of the message so that our existing members could help others to join directly by email. ranjeet new member Dear Moderator, Pl. include the name of my friend Mr. Sri Veddalapali, at present he is working in Hyderabad as Fire officer his mail address is vshrishailamyahoo (DOT) co.in Regards Deepak B Dorik Assistant Manager - Safety Birla Cellulosic Gujarat -----Original Message-----From: indiansafetyprofessionals [mailto:] On Behalf Of Dahima, Mohan L. - ECL EEC (HAZ)Sent: Tuesday, May 22, 2007 10:39 AMTo: indiansafetyprofessionals Subject: RE: [indiansafetyprofessi: indiansafetyprofessionals Let us share thoughts on environment, that will be some meaningful. Celebration of World Environment Day every year on 5th June has become just a ritual. The deterioration of environment has come to such an alarming level that immediate corrective and preventive action is required from all concerned. Environment is not the responsibility of just the Pollution Boards, We all can contribute towards this. Regards, M L Dahima From: indiansafetyprofessionals [mailto:indiansafetyprofessionals ] On Behalf Of R PatilSent: Tuesday, May 22, 2007 9:49 AMTo: indiansafetyprofessionals Subject: hi share thouths on celebration of world environment day----------------------------------------------------------"Our Corporate Office Board number has changed from 26780643 to 66 888333. Our Fax numbers remain unchanged.".--------------------------------------------------------------------------------------------------------------------The information contained in this electronic message and anyattachments to this message are intended for the exclusive use of theaddressee(s) and may contain confidential or privileged information. Ifyou are not the intended recipient, please notify the sender at UnichemLaboratories Limited or itunichemindia immediately and destroy allcopies of this message and any attachments.---------------------------------------------------------- P Please don't print this e-mail unless you really need to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Dear Professionals, Kindly send your mails to info4safety@.... Don't send to the group id. Regards Moderator. vennela b wrote: Dear Moderator Please include Mr. Vasudeva Rao Tandyala who is working as safety officer since last one year inThe Andhra Pradesh Paper Mills Ltd., Unit: CP, MR Palem, East Godavari Dist., A.P. His mail Id is : vasudevaraotandyala Tahnk you BV Raghavulu Chat on a cool, new interface. No download required. Click here. Save all your chat conversations. Find them online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Hello, My son Zachary received his Autism diagnosis about a month ago, and I must admit I have been sitting back reading all the post just overwhelmed with all the information. I have a couple of questions, and I am hoping you guys can help me out. I do want to try GFCF diet because I think that will help, but I want to get him allergy tested first to make sure we identify everything he is allergic to prior to starting this. I am not a fan of his Pedi who is great at prescribing meds to typical kids w/ ear infections, but doesn't stay up to date in the DS/Autism world. Are most of you working with an allergy doctor on this or through their GI doctor? Are there any books out there that can easily tell me what to buy in the store? I've heard that even Hot Dogs can have some gluten in them so a cheat sheet would be nice. Any advice is appreciated. Mom to Zachary 5 North Texas/DFW area Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 , since your son has had ear infections, may I suggest you contact Dr. 's office, he also travels out to the Dallas area who I would highly recommend your son seen before placing him on any diet. Why? Because it is to rule out if any other viral issues going on that may need to get treated first. A diet would help but could also lean towards other food reactive when not addressing some of the root causes like their immune system or gut or strep in the brain or triggered off due to other medical condition. This is so true wieners are not gluten-free unless purchased at a Whole Foods or health food stores and even at Costco there are some gluten-free wieners. But then what if your son has some chemical reactive towards like the nitrate ingredients. There is so much to learn but at least when ready to seek this route, you are not alone. Since your son is young and if he had major gut problems then would recommend a GI doc and highly recommend one like out at the Thoughtful House out in Austin. But, seems like one is not needed right now for your son unless he is suffering tremendously from gut issues. Depends on the physicians. There are several out in the DFW area but since there is a demand there may be a wait list. There is a North Texas National Autism Association which use to be part of another organization who could recommend a medical physician or whatever resource information your way. Your welcome to use my name if you would like to contact Nagla at - A very proactive parent on this mission who I just admire. nagla_alvin@... Check this out. http://www.autismspot.com/ Irma,21,DS/ASD,TX > > Hello, > > > > My son Zachary received his Autism diagnosis about a month ago, and I must > admit I have been sitting back reading all the post just overwhelmed with > all the information. I have a couple of questions, and I am hoping you guys > can help me out. > > > > I do want to try GFCF diet because I think that will help, but I want to get > him allergy tested first to make sure we identify everything he is allergic > to prior to starting this. I am not a fan of his Pedi who is great at > prescribing meds to typical kids w/ ear infections, but doesn't stay up to > date in the DS/Autism world. > > > > Are most of you working with an allergy doctor on this or through their GI > doctor? > > > > Are there any books out there that can easily tell me what to buy in the > store? I've heard that even Hot Dogs can have some gluten in them so a > cheat sheet would be nice. > > > > Any advice is appreciated. > > > > > > Mom to Zachary 5 > > North Texas/DFW area > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 , Welcome to the group. My son, , is 13 and we live in Dallas. He was diagnosed when he was about 5. Where in DFW area are you? The Down Syndrome Guild of Dallas has started a dual diagnosis subgroup this year. We meet about 4 times a year to share information, etc. If you contact the DSG office (dsged@... or ) they'll put you on the list to notify you of the next meeting. I've only been able to go to 1 meeting, but met moms with kids from 4-22. They have been a great support & it's been reassuring to meet other local families. I'd be happy to share more with you if you want to e-mail me off-list. Regards, Carole, mom to Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi Karmen, I am a two week newbie to the group. My son, Mark is 9 years old with Down Syndrome. He was diagnosed with Autism very recently. We knew something else was " wrong " but didn't know what it was.............. Welcome and condolences to this group. Peri Query Illinois new member > > Hello everyone. My name is Karmen. I am from Indiana. I have a 13 year > old son with DS and Autism. I have joined this group for support and > advice. I have enjoyed reading all of your recent conversations.....even > had to chuckle at times. We have had our share of poopy nightmares. Who > knows, I may have one right now but just don't know it yet!!! hahaha.. > have to laugh about it. Glad to be here. Thanks for letting me be a part > of your group! kw > _________________________________________________________________ > Hotmail is redefining busy with tools for the New Busy. Get more from your > inbox. > http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_2 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 We never used ativan for anything except pre-op. Benedryl worked so good from day one. We also never tried heavy duty antipsychotics like Lexipro, buspar, ect. We also never so much change in behavior with meds. We did try GF - no change. Testing for Celiac was negative but still we tried it. We have gone dye free - no change. Leatonin was worthless for Elie. Once Elie goes to sleep, he rarely if ever gets up during the nite. On Sat, Jun 19, 2010 at 4:19 PM, karmen wagler wrote: > > Thank you, Sara. We have tried buspar, trazadone, lexapro, ativan, > melatonin, klonopin, and that is all that comes to mind at this point. Our > son has had trouble sleeping since about age 2 or so. Melatonin worked > great for him but when he got out of bed, he knocked everyone down that he > saw! He was very agressive after taking it. He slept great tho. Lexapro > made him nauseated...he wallked around with that look on his face that tells > us he is about to vomit. We know that look. He didn't eat very much either > while on it and we did not notice a change in behavior. Ativan causes him > to get really drowsy and he goes to sleep great but may get up after 4 > hours. He usually goes to bathroom and back to sleep tho. We just have not > found anything that eases the aggression or that makes him agreeable. He > seems grouchy, angry, frustrated, and just bent on being rough. He is > jerkish with his care and just plain rough. We used to always be able to > reason with him and calm him fairly easily. Since about last Sept. he has > steadily become this way. He was sick this winter with lots of coughing and > congestion. That is gone (after several bouts with it) but he is much more > agressive now. He takes probiotics alot and is gluten free (about 6 years > now). We have tried the biomedical route and he did improve (thank God). > He tends to have a high blood iron count too. Just set back by this > behavior. We see a hematologist next month. I can ask about testing the > Testerone at that time. We have to check his iron again then anyhow. The > only thing we give him now is 1/2 Ativan at bedtime to help him sleep. He > has folic acid and b 12 in the morning also. > > > > To: > From: pastmidvale@... > Date: Sat, 19 Jun 2010 15:58:32 -0400 > Subject: Re: new member > > > > > > Elie's life was a series of horrors from about age 12-19. He was on > Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to > lose weight but didn't affect behavior), Benedryl for sleep (works great). > What helped most? Summer camp for kids with special needs and weekly > respite with monthly overnites at camp!!! As for him - he gradually outgrew > the worst bursts sof aggression. We body blocked him both at home and at > school to prevent his reaching targets (seemed more as running away and > flailing rather than targeted aiming to hit someone MOST OF THE TIME> We > had a strict 24 inch distance rule for instructors so he would not flail > out > and hit someone - and of couse he couldn't IF they observed the rule. We > had it written in his IEP. > > Now I have learned from another friend that the testoterone storm may have > had a lot to do with it, so my suggestion is to have an endocrinologist do > a > blood test fro testosterone level. My friends son (who has TBI which > resembles autism) is on anti testosterone meds whihc help with the very > worst of the aggression. > > We didn't know about it when Elie was a teen. > > On Sat, Jun 19, 2010 at 3:51 PM, karmen wagler <karmenwagler@... > >wrote: > > > > > Thank you all for the welcome!!! My son did not show signs of Autism > until > > about age 2. He was talking and doing well but at some point, he > regressed > > and lost all speech. He lost the ability to ride a battery powered 3 > > wheeler as well. He began to flap his arms and then more and more > > regression came. Now at the age of 13, we are dealing with aggression and > > what seems like typical teenage dissatisfaction but maginified. We have > > tried numerous meds to help but NOTHING works. He just gets worse on > them. > > I would love to hear what others are using to help with agression and > > tantrums. We continue to search for that " happy pill " and maybe a little > > something for our son too! lol!! Seriously, need to hear what is working > > for others. We want our son to have his life back. At this point, with > his > > behavior the way it is, he can not go anywhere and he used to go just > about > > everywhere. He hates loud noises but in the past, we could just redirect > > his attention and get him past it. Not now. He seems determined to have a > > full fit each and everytime. And not just to loud noises. So many things > > trigger him now. He is about 5 ft or slightly taller and about 156 or so > > pounds. Not a little guy anymore. His fits are scarey and at times > > dangerous. > > > > To: > > From: gerryannemeyer@... > > Date: Sat, 19 Jun 2010 11:38:43 -0700 > > Subject: Re: new member > > > > > > > > > > > > > > Hi Karmen, I'm a newbie, too. My son Drew is 12 with DS & ASD, also a new > > diagnosis. I have already found this group to be helpful to my son's > cause. > > And have laughed & cried at the posts on a daily basis! I'm in St. > > Louis.....so if you are ever here, please look us up! > > > > ________________________________ > > > > To: > > Sent: Fri, June 18, 2010 6:36:59 PM > > Subject: new member > > > > Hello everyone. My name is Karmen. I am from Indiana. I have a 13 year > old > > son with DS and Autism. I have joined this group for support and advice. > I > > have enjoyed reading all of your recent conversations.....even had to > > chuckle at times. We have had our share of poopy nightmares. Who knows, I > > may have one right now but just don't know it yet!!! hahaha.. have to > laugh > > about it. Glad to be here. Thanks for letting me be a part of your group! > kw > > __________________________________________________________ > > Hotmail is redefining busy with tools for the New Busy. Get more from > your > > inbox. > > > > > http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_2 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Hi Karmen, welcome...I'm Sherry mom to 21 DS-Autism. I was happy to read you've tried things in addition to pharmaceuticals. Have you worked with a CBA to set up a program for eliminating/controlling behaviors? 's behavior program has saved us all, combined with SCDiet that made huge changes for her. You're dealing, like Sara mentioned, with a tricky age what with puberty and all. Interestingly even was dxed with high testosterone before puberty. She was like a wild animal for a few years there. 's being treated for an inability to absorb iron at all...so we're at the opposite end of the spectrum. Anyway, just wanted to welcome you and say I'm glad you're here. Sherry Thank you, Sara. We have tried buspar, trazadone, lexapro, ativan, melatonin, klonopin, and that is all that comes to mind at this point. Our son has had trouble sleeping since about age 2 or so. Melatonin worked great for him but when he got out of bed, he knocked everyone down that he saw! He was very agressive after taking it. He slept great tho. Lexapro made him nauseated...he wallked around with that look on his face that tells us he is about to vomit. We know that look. He didn't eat very much either while on it and we did not notice a change in behavior. Ativan causes him to get really drowsy and he goes to sleep great but may get up after 4 hours. He usually goes to bathroom and back to sleep tho. We just have not found anything that eases the aggression or that makes him agreeable. He seems grouchy, angry, frustrated, and just bent on being rough. He is jerkish with his care and just plain rough. We used to always be able to reason with him and calm him fairly easily. Since about last Sept. he has steadily become this way. He was sick this winter with lots of coughing and congestion. That is gone (after several bouts with it) but he is much more agressive now. He takes probiotics alot and is gluten free (about 6 years now). We have tried the biomedical route and he did improve (thank God). He tends to have a high blood iron count too. Just set back by this behavior. We see a hematologist next month. I can ask about testing the Testerone at that time. We have to check his iron again then anyhow. The only thing we give him now is 1/2 Ativan at bedtime to help him sleep. He has folic acid and b 12 in the morning also. To: From: pastmidvale@... Date: Sat, 19 Jun 2010 15:58:32 -0400 Subject: Re: new member Elie's life was a series of horrors from about age 12-19. He was on Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to lose weight but didn't affect behavior), Benedryl for sleep (works great). What helped most? Summer camp for kids with special needs and weekly respite with monthly overnites at camp!!! As for him - he gradually outgrew the worst bursts sof aggression. We body blocked him both at home and at school to prevent his reaching targets (seemed more as running away and flailing rather than targeted aiming to hit someone MOST OF THE TIME> We had a strict 24 inch distance rule for instructors so he would not flail out and hit someone - and of couse he couldn't IF they observed the rule. We had it written in his IEP. Now I have learned from another friend that the testoterone storm may have had a lot to do with it, so my suggestion is to have an endocrinologist do a blood test fro testosterone level. My friends son (who has TBI which resembles autism) is on anti testosterone meds whihc help with the very worst of the aggression. We didn't know about it when Elie was a teen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Hi Sherry. We are working with a behavioral specialist at this time. My son was not able to go to school much at all since last Sept so we have qualified for a behavioralist to help him at school. He doesn't even want to go anymore and he used to love to go. When we pull up at the school, he throws himself backwards in his seat and yells " no! " . School staff tells me that he has big reactions to all noises....lockers being shut, voices, bell, anything can set him off. He then scratches anyone near him and screams loudly. It scares the other kids. He gets this wild look on his face that is terrifying. We are pretty used to it but for others, it is pretty scarey. He will not wear ear plugs or anything near his head. We have tried the SCD. It does help him. Very difficult to stick to. We have raw goat milk and he loves it so we have not given it up. We do eat most all organic. He eats well. We eat fruit too. But we do eat some gluten free snacks. Guess we should try SCD again. We are in the process of desensitizing him to noises that we know is a trigger like a horn honking. We practise warning him that someone is going to honk a horn and then we honk it. We make sure he is a distance from it or the windows are up. This is getting better. In the beginning of this he would push at and scratch anyone he could reach. He still will if someone honks and he doesnt know it ahead of time like in a parking lot when someone locks their car. Even a soft honk sets him off. This makes going to walmart a challenge! We have a 2 year old as well and we have to watch them at all times. We think this has brought a lot of this on. Our 2 year old throws his own tantrums and all the commotion is hard on Talon, our son with ds and autism. We have not ever wanted to medicate him but feel that we have to do something at this point. To: From: gldcst@... Date: Sat, 19 Jun 2010 17:15:26 -0400 Subject: Re: new member Hi Karmen, welcome...I'm Sherry mom to 21 DS-Autism. I was happy to read you've tried things in addition to pharmaceuticals. Have you worked with a CBA to set up a program for eliminating/controlling behaviors? 's behavior program has saved us all, combined with SCDiet that made huge changes for her. You're dealing, like Sara mentioned, with a tricky age what with puberty and all. Interestingly even was dxed with high testosterone before puberty. She was like a wild animal for a few years there. 's being treated for an inability to absorb iron at all...so we're at the opposite end of the spectrum. Anyway, just wanted to welcome you and say I'm glad you're here. Sherry Thank you, Sara. We have tried buspar, trazadone, lexapro, ativan, melatonin, klonopin, and that is all that comes to mind at this point. Our son has had trouble sleeping since about age 2 or so. Melatonin worked great for him but when he got out of bed, he knocked everyone down that he saw! He was very agressive after taking it. He slept great tho. Lexapro made him nauseated...he wallked around with that look on his face that tells us he is about to vomit. We know that look. He didn't eat very much either while on it and we did not notice a change in behavior. Ativan causes him to get really drowsy and he goes to sleep great but may get up after 4 hours. He usually goes to bathroom and back to sleep tho. We just have not found anything that eases the aggression or that makes him agreeable. He seems grouchy, angry, frustrated, and just bent on being rough. He is jerkish with his care and just plain rough. We used to always be able to reason with him and calm him fairly easily. Since about last Sept. he has steadily become this way. He was sick this winter with lots of coughing and congestion. That is gone (after several bouts with it) but he is much more agressive now. He takes probiotics alot and is gluten free (about 6 years now). We have tried the biomedical route and he did improve (thank God). He tends to have a high blood iron count too. Just set back by this behavior. We see a hematologist next month. I can ask about testing the Testerone at that time. We have to check his iron again then anyhow. The only thing we give him now is 1/2 Ativan at bedtime to help him sleep. He has folic acid and b 12 in the morning also. To: From: pastmidvale@... Date: Sat, 19 Jun 2010 15:58:32 -0400 Subject: Re: new member Elie's life was a series of horrors from about age 12-19. He was on Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to lose weight but didn't affect behavior), Benedryl for sleep (works great). What helped most? Summer camp for kids with special needs and weekly respite with monthly overnites at camp!!! As for him - he gradually outgrew the worst bursts sof aggression. We body blocked him both at home and at school to prevent his reaching targets (seemed more as running away and flailing rather than targeted aiming to hit someone MOST OF THE TIME> We had a strict 24 inch distance rule for instructors so he would not flail out and hit someone - and of couse he couldn't IF they observed the rule. We had it written in his IEP. Now I have learned from another friend that the testoterone storm may have had a lot to do with it, so my suggestion is to have an endocrinologist do a blood test fro testosterone level. My friends son (who has TBI which resembles autism) is on anti testosterone meds whihc help with the very worst of the aggression. We didn't know about it when Elie was a teen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Hi Karmen: Welcome to the group. I have two boys, one 13 and the other 11 with DS and PDD. When my 13 year old was younger we tried a bunch of medications (he is allergic to gluten so going gluten free helped us immensely) but just wanted to have you check out the Changing Mind Foundation website. I was anti-medication because they never worked for this son. He wasn't so much aggressive as just busy, busy, busy and then when he got a negative reaction from those around him, he would dwell in the negative, be very defensive and anti-social. However, we tried prozac or rather the generic fluxetine (I know I spelled that wrong) because of what I saw on the Changing Mind Foundation website. It is the only medication that has made any difference for us. I mention this only because this is not a medication that you had listed. Our pediatrician just shakes her head when we go in for a med check because both boys are doing so well. I will admit that the 13 year old had matured some and we were in a better place, though not a great place until we tried the protocol from the Changing Mind Foundation. My boys take the fluxetine, the Ginko and the fish oil. They do not take an ADD medication that is recommended. I don't offer this as a solution to YOUR sons issues, just to say that you have tried so many other things, this is a website you might want to check out as well. Good luck and let us know what new things you try and whether they work or not. Lori Mom to Isaac, 13 and Tony 11 Re: new member Elie's life was a series of horrors from about age 12-19. He was on Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to lose weight but didn't affect behavior), Benedryl for sleep (works great). What helped most? Summer camp for kids with special needs and weekly respite with monthly overnites at camp!!! As for him - he gradually outgrew the worst bursts sof aggression. We body blocked him both at home and at school to prevent his reaching targets (seemed more as running away and flailing rather than targeted aiming to hit someone MOST OF THE TIME> We had a strict 24 inch distance rule for instructors so he would not flail out and hit someone - and of couse he couldn't IF they observed the rule. We had it written in his IEP. Now I have learned from another friend that the testoterone storm may have had a lot to do with it, so my suggestion is to have an endocrinologist do a blood test fro testosterone level. My friends son (who has TBI which resembles autism) is on anti testosterone meds whihc help with the very worst of the aggression. We didn't know about it when Elie was a teen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 For the noise sensitivities...you can try OT. My oldest was very sensitive to noise as an infant, toddler, preschooler. We found an OT who does sensory integration therapy and Vital Sounds listening therapy. The listening therapy uses specially modulated music to train the muscles around the inner ear to deal with changes in frequency, pitch, etc. It worked really really well for him. Hth!!! Sent from my iPhone Hi Sherry. We are working with a behavioral specialist at this time. My son was not able to go to school much at all since last Sept so we have qualified for a behavioralist to help him at school. He doesn't even want to go anymore and he used to love to go. When we pull up at the school, he throws himself backwards in his seat and yells " no! " . School staff tells me that he has big reactions to all noises....lockers being shut, voices, bell, anything can set him off. He then scratches anyone near him and screams loudly. It scares the other kids. He gets this wild look on his face that is terrifying. We are pretty used to it but for others, it is pretty scarey. He will not wear ear plugs or anything near his head. We have tried the SCD. It does help him. Very difficult to stick to. We have raw goat milk and he loves it so we have not given it up. We do eat most all organic. He eats well. We eat fruit too. But we do eat some gluten free snacks. Guess we should try SCD again. We are in the process of desensitizing him to noises that we know is a trigger like a horn honking. We practise warning him that someone is going to honk a horn and then we honk it. We make sure he is a distance from it or the windows are up. This is getting better. In the beginning of this he would push at and scratch anyone he could reach. He still will if someone honks and he doesnt know it ahead of time like in a parking lot when someone locks their car. Even a soft honk sets him off. This makes going to walmart a challenge! We have a 2 year old as well and we have to watch them at all times. We think this has brought a lot of this on. Our 2 year old throws his own tantrums and all the commotion is hard on Talon, our son with ds and autism. We have not ever wanted to medicate him but feel that we have to do something at this point. To: From: gldcst@... Date: Sat, 19 Jun 2010 17:15:26 -0400 Subject: Re: new member Hi Karmen, welcome...I'm Sherry mom to 21 DS-Autism. I was happy to read you've tried things in addition to pharmaceuticals. Have you worked with a CBA to set up a program for eliminating/controlling behaviors? 's behavior program has saved us all, combined with SCDiet that made huge changes for her. You're dealing, like Sara mentioned, with a tricky age what with puberty and all. Interestingly even was dxed with high testosterone before puberty. She was like a wild animal for a few years there. 's being treated for an inability to absorb iron at all...so we're at the opposite end of the spectrum. Anyway, just wanted to welcome you and say I'm glad you're here. Sherry Thank you, Sara. We have tried buspar, trazadone, lexapro, ativan, melatonin, klonopin, and that is all that comes to mind at this point. Our son has had trouble sleeping since about age 2 or so. Melatonin worked great for him but when he got out of bed, he knocked everyone down that he saw! He was very agressive after taking it. He slept great tho. Lexapro made him nauseated...he wallked around with that look on his face that tells us he is about to vomit. We know that look. He didn't eat very much either while on it and we did not notice a change in behavior. Ativan causes him to get really drowsy and he goes to sleep great but may get up after 4 hours. He usually goes to bathroom and back to sleep tho. We just have not found anything that eases the aggression or that makes him agreeable. He seems grouchy, angry, frustrated, and just bent on being rough. He is jerkish with his care and just plain rough. We used to always be able to reason with him and calm him fairly easily. Since about last Sept. he has steadily become this way. He was sick this winter with lots of coughing and congestion. That is gone (after several bouts with it) but he is much more agressive now. He takes probiotics alot and is gluten free (about 6 years now). We have tried the biomedical route and he did improve (thank God). He tends to have a high blood iron count too. Just set back by this behavior. We see a hematologist next month. I can ask about testing the Testerone at that time. We have to check his iron again then anyhow. The only thing we give him now is 1/2 Ativan at bedtime to help him sleep. He has folic acid and b 12 in the morning also. To: From: pastmidvale@... Date: Sat, 19 Jun 2010 15:58:32 -0400 Subject: Re: new member Elie's life was a series of horrors from about age 12-19. He was on Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to lose weight but didn't affect behavior), Benedryl for sleep (works great). What helped most? Summer camp for kids with special needs and weekly respite with monthly overnites at camp!!! As for him - he gradually outgrew the worst bursts sof aggression. We body blocked him both at home and at school to prevent his reaching targets (seemed more as running away and flailing rather than targeted aiming to hit someone MOST OF THE TIME> We had a strict 24 inch distance rule for instructors so he would not flail out and hit someone - and of couse he couldn't IF they observed the rule. We had it written in his IEP. Now I have learned from another friend that the testoterone storm may have had a lot to do with it, so my suggestion is to have an endocrinologist do a blood test fro testosterone level. My friends son (who has TBI which resembles autism) is on anti testosterone meds whihc help with the very worst of the aggression. We didn't know about it when Elie was a teen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 Just got home and read your comments. , we do have an OT so I will check with her about vital sounds listening therapy. Maybe he will do that. He has large holes in both ear drums from tubes that he had as a toddler. For some reason, he developed large holes that have never healed.....we are thinking a bad reaction to the tubes. Margaret, Talon(my son) is considered nonverbal. He can approximate some words like mayonnaise, water, Mc s, and such. Very difficult to understand but he does try. He does not tell us of any of his needs. He has never shown us that he was hurting. He HATES pain. He is very sensitive to any kind of pain.....he gets very upset if he almost gets hurt. He had a physical....as much as was possible. He refuses to let anyone look in his mouth. We took him to 2 large dental centers to have him checked....no way. They want to sedate. We might. We did get some lab work done and that was when we found the sky high iron. We are to have a test for hemachromotosis the next time we get blood drawn (dreading that...takes several people and very upsetting for him). I do brush his teeth, he does not like it but he lets me. So, to answer your question, we have taken him to several doctors but he is not cooperative at all. He is afraid of them. He has had numerous health issues during his life and I think he does not forget a bit of it. Now that he is bigger, he is going to stand his ground. He does not trust anyone. Lori, did you mean you have 2 boys with ds and pdd???? I might have misread that. I plan on checking into the changing mind foundation tonight. I have never heard of it. We have not tried prozac but i am sure we can. I think this is a phase we are going thru because of having a 2 year old. They play well together so much of the time. Our baby is not talking like we would like and he is starting speech next week. He immitates his older brother and makes the same sounds. WE don't see any autism with him and we pray we don't. To: From: macookson@... Date: Sat, 19 Jun 2010 18:14:22 -0700 Subject: Re: new member For the noise sensitivities...you can try OT. My oldest was very sensitive to noise as an infant, toddler, preschooler. We found an OT who does sensory integration therapy and Vital Sounds listening therapy. The listening therapy uses specially modulated music to train the muscles around the inner ear to deal with changes in frequency, pitch, etc. It worked really really well for him. Hth!!! Sent from my iPhone Hi Sherry. We are working with a behavioral specialist at this time. My son was not able to go to school much at all since last Sept so we have qualified for a behavioralist to help him at school. He doesn't even want to go anymore and he used to love to go. When we pull up at the school, he throws himself backwards in his seat and yells " no! " . School staff tells me that he has big reactions to all noises....lockers being shut, voices, bell, anything can set him off. He then scratches anyone near him and screams loudly. It scares the other kids. He gets this wild look on his face that is terrifying. We are pretty used to it but for others, it is pretty scarey. He will not wear ear plugs or anything near his head. We have tried the SCD. It does help him. Very difficult to stick to. We have raw goat milk and he loves it so we have not given it up. We do eat most all organic. He eats well. We eat fruit too. But we do eat some gluten free snacks. Guess we should try SCD again. We are in the process of desensitizing him to noises that we know is a trigger like a horn honking. We practise warning him that someone is going to honk a horn and then we honk it. We make sure he is a distance from it or the windows are up. This is getting better. In the beginning of this he would push at and scratch anyone he could reach. He still will if someone honks and he doesnt know it ahead of time like in a parking lot when someone locks their car. Even a soft honk sets him off. This makes going to walmart a challenge! We have a 2 year old as well and we have to watch them at all times. We think this has brought a lot of this on. Our 2 year old throws his own tantrums and all the commotion is hard on Talon, our son with ds and autism. We have not ever wanted to medicate him but feel that we have to do something at this point. To: From: gldcst@... Date: Sat, 19 Jun 2010 17:15:26 -0400 Subject: Re: new member Hi Karmen, welcome...I'm Sherry mom to 21 DS-Autism. I was happy to read you've tried things in addition to pharmaceuticals. Have you worked with a CBA to set up a program for eliminating/controlling behaviors? 's behavior program has saved us all, combined with SCDiet that made huge changes for her. You're dealing, like Sara mentioned, with a tricky age what with puberty and all. Interestingly even was dxed with high testosterone before puberty. She was like a wild animal for a few years there. 's being treated for an inability to absorb iron at all...so we're at the opposite end of the spectrum. Anyway, just wanted to welcome you and say I'm glad you're here. Sherry Thank you, Sara. We have tried buspar, trazadone, lexapro, ativan, melatonin, klonopin, and that is all that comes to mind at this point. Our son has had trouble sleeping since about age 2 or so. Melatonin worked great for him but when he got out of bed, he knocked everyone down that he saw! He was very agressive after taking it. He slept great tho. Lexapro made him nauseated...he wallked around with that look on his face that tells us he is about to vomit. We know that look. He didn't eat very much either while on it and we did not notice a change in behavior. Ativan causes him to get really drowsy and he goes to sleep great but may get up after 4 hours. He usually goes to bathroom and back to sleep tho. We just have not found anything that eases the aggression or that makes him agreeable. He seems grouchy, angry, frustrated, and just bent on being rough. He is jerkish with his care and just plain rough. We used to always be able to reason with him and calm him fairly easily. Since about last Sept. he has steadily become this way. He was sick this winter with lots of coughing and congestion. That is gone (after several bouts with it) but he is much more agressive now. He takes probiotics alot and is gluten free (about 6 years now). We have tried the biomedical route and he did improve (thank God). He tends to have a high blood iron count too. Just set back by this behavior. We see a hematologist next month. I can ask about testing the Testerone at that time. We have to check his iron again then anyhow. The only thing we give him now is 1/2 Ativan at bedtime to help him sleep. He has folic acid and b 12 in the morning also. To: From: pastmidvale@... Date: Sat, 19 Jun 2010 15:58:32 -0400 Subject: Re: new member Elie's life was a series of horrors from about age 12-19. He was on Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to lose weight but didn't affect behavior), Benedryl for sleep (works great). What helped most? Summer camp for kids with special needs and weekly respite with monthly overnites at camp!!! As for him - he gradually outgrew the worst bursts sof aggression. We body blocked him both at home and at school to prevent his reaching targets (seemed more as running away and flailing rather than targeted aiming to hit someone MOST OF THE TIME> We had a strict 24 inch distance rule for instructors so he would not flail out and hit someone - and of couse he couldn't IF they observed the rule. We had it written in his IEP. Now I have learned from another friend that the testoterone storm may have had a lot to do with it, so my suggestion is to have an endocrinologist do a blood test fro testosterone level. My friends son (who has TBI which resembles autism) is on anti testosterone meds whihc help with the very worst of the aggression. We didn't know about it when Elie was a teen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 A few people on this list had success making up social stories for surgeries and hospital visits. Maybe you can do the same for Dr/dentist visits?? Sent from my iPhone Just got home and read your comments. , we do have an OT so I will check with her about vital sounds listening therapy. Maybe he will do that. He has large holes in both ear drums from tubes that he had as a toddler. For some reason, he developed large holes that have never healed.....we are thinking a bad reaction to the tubes. Margaret, Talon(my son) is considered nonverbal. He can approximate some words like mayonnaise, water, Mc s, and such. Very difficult to understand but he does try. He does not tell us of any of his needs. He has never shown us that he was hurting. He HATES pain. He is very sensitive to any kind of pain.....he gets very upset if he almost gets hurt. He had a physical....as much as was possible. He refuses to let anyone look in his mouth. We took him to 2 large dental centers to have him checked....no way. They want to sedate. We might. We did get some lab work done and that was when we found the sky high iron. We are to have a test for hemachromotosis the next time we get blood drawn (dreading that...takes several people and very upsetting for him). I do brush his teeth, he does not like it but he lets me. So, to answer your question, we have taken him to several doctors but he is not cooperative at all. He is afraid of them. He has had numerous health issues during his life and I think he does not forget a bit of it. Now that he is bigger, he is going to stand his ground. He does not trust anyone. Lori, did you mean you have 2 boys with ds and pdd???? I might have misread that. I plan on checking into the changing mind foundation tonight. I have never heard of it. We have not tried prozac but i am sure we can. I think this is a phase we are going thru because of having a 2 year old. They play well together so much of the time. Our baby is not talking like we would like and he is starting speech next week. He immitates his older brother and makes the same sounds. WE don't see any autism with him and we pray we don't. To: From: macookson@... Date: Sat, 19 Jun 2010 18:14:22 -0700 Subject: Re: new member For the noise sensitivities...you can try OT. My oldest was very sensitive to noise as an infant, toddler, preschooler. We found an OT who does sensory integration therapy and Vital Sounds listening therapy. The listening therapy uses specially modulated music to train the muscles around the inner ear to deal with changes in frequency, pitch, etc. It worked really really well for him. Hth!!! Sent from my iPhone Hi Sherry. We are working with a behavioral specialist at this time. My son was not able to go to school much at all since last Sept so we have qualified for a behavioralist to help him at school. He doesn't even want to go anymore and he used to love to go. When we pull up at the school, he throws himself backwards in his seat and yells " no! " . School staff tells me that he has big reactions to all noises....lockers being shut, voices, bell, anything can set him off. He then scratches anyone near him and screams loudly. It scares the other kids. He gets this wild look on his face that is terrifying. We are pretty used to it but for others, it is pretty scarey. He will not wear ear plugs or anything near his head. We have tried the SCD. It does help him. Very difficult to stick to. We have raw goat milk and he loves it so we have not given it up. We do eat most all organic. He eats well. We eat fruit too. But we do eat some gluten free snacks. Guess we should try SCD again. We are in the process of desensitizing him to noises that we know is a trigger like a horn honking. We practise warning him that someone is going to honk a horn and then we honk it. We make sure he is a distance from it or the windows are up. This is getting better. In the beginning of this he would push at and scratch anyone he could reach. He still will if someone honks and he doesnt know it ahead of time like in a parking lot when someone locks their car. Even a soft honk sets him off. This makes going to walmart a challenge! We have a 2 year old as well and we have to watch them at all times. We think this has brought a lot of this on. Our 2 year old throws his own tantrums and all the commotion is hard on Talon, our son with ds and autism. We have not ever wanted to medicate him but feel that we have to do something at this point. To: From: gldcst@... Date: Sat, 19 Jun 2010 17:15:26 -0400 Subject: Re: new member Hi Karmen, welcome...I'm Sherry mom to 21 DS-Autism. I was happy to read you've tried things in addition to pharmaceuticals. Have you worked with a CBA to set up a program for eliminating/controlling behaviors? 's behavior program has saved us all, combined with SCDiet that made huge changes for her. You're dealing, like Sara mentioned, with a tricky age what with puberty and all. Interestingly even was dxed with high testosterone before puberty. She was like a wild animal for a few years there. 's being treated for an inability to absorb iron at all...so we're at the opposite end of the spectrum. Anyway, just wanted to welcome you and say I'm glad you're here. Sherry Thank you, Sara. We have tried buspar, trazadone, lexapro, ativan, melatonin, klonopin, and that is all that comes to mind at this point. Our son has had trouble sleeping since about age 2 or so. Melatonin worked great for him but when he got out of bed, he knocked everyone down that he saw! He was very agressive after taking it. He slept great tho. Lexapro made him nauseated...he wallked around with that look on his face that tells us he is about to vomit. We know that look. He didn't eat very much either while on it and we did not notice a change in behavior. Ativan causes him to get really drowsy and he goes to sleep great but may get up after 4 hours. He usually goes to bathroom and back to sleep tho. We just have not found anything that eases the aggression or that makes him agreeable. He seems grouchy, angry, frustrated, and just bent on being rough. He is jerkish with his care and just plain rough. We used to always be able to reason with him and calm him fairly easily. Since about last Sept. he has steadily become this way. He was sick this winter with lots of coughing and congestion. That is gone (after several bouts with it) but he is much more agressive now. He takes probiotics alot and is gluten free (about 6 years now). We have tried the biomedical route and he did improve (thank God). He tends to have a high blood iron count too. Just set back by this behavior. We see a hematologist next month. I can ask about testing the Testerone at that time. We have to check his iron again then anyhow. The only thing we give him now is 1/2 Ativan at bedtime to help him sleep. He has folic acid and b 12 in the morning also. To: From: pastmidvale@... Date: Sat, 19 Jun 2010 15:58:32 -0400 Subject: Re: new member Elie's life was a series of horrors from about age 12-19. He was on Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to lose weight but didn't affect behavior), Benedryl for sleep (works great). What helped most? Summer camp for kids with special needs and weekly respite with monthly overnites at camp!!! As for him - he gradually outgrew the worst bursts sof aggression. We body blocked him both at home and at school to prevent his reaching targets (seemed more as running away and flailing rather than targeted aiming to hit someone MOST OF THE TIME> We had a strict 24 inch distance rule for instructors so he would not flail out and hit someone - and of couse he couldn't IF they observed the rule. We had it written in his IEP. Now I have learned from another friend that the testoterone storm may have had a lot to do with it, so my suggestion is to have an endocrinologist do a blood test fro testosterone level. My friends son (who has TBI which resembles autism) is on anti testosterone meds whihc help with the very worst of the aggression. We didn't know about it when Elie was a teen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 When Elie was in his " difficult stage " we had him sedated yearly for dental care, blood work, and anyother necesary medical work - all done under anesthesia. Versed was given to him to sedate him enough to actually anesthetize him. One other thing I forgot to mention was increasing his level of sensory work - heavy work and balancing were the 2 major things as a teen. He worked for an hour or so a day with the school janitor moving trash cans, lifting cafeteria chairs so the floors could be swept, helping to empty trash. pushing the work cart. HE also was called upon to help move boxes as books arrived or at the end of the school year, carried office supplies - anything that was heavy work. Has anyone suggested working on a method of communication? Perhaps PECS or augmentary communication - some of us are experimenting with the I-touch and PROLOQUO 2 go (MUCH less expensive than traditional AT devices. On Sat, Jun 19, 2010 at 10:28 PM, karmen wagler wrote: > > Just got home and read your comments. , we do have an OT so I will > check with her about vital sounds listening therapy. Maybe he will do that. > He has large holes in both ear drums from tubes that he had as a toddler. > For some reason, he developed large holes that have never healed.....we are > thinking a bad reaction to the tubes. Margaret, Talon(my son) is considered > nonverbal. He can approximate some words like mayonnaise, water, Mc > s, and such. Very difficult to understand but he does try. He does > not tell us of any of his needs. He has never shown us that he was hurting. > He HATES pain. He is very sensitive to any kind of pain.....he gets very > upset if he almost gets hurt. He had a physical....as much as was possible. > He refuses to let anyone look in his mouth. We took him to 2 large dental > centers to have him checked....no way. They want to sedate. We might. We > did get some lab work done and that was when we found the sky high iron. We > are to have a test for hemachromotosis the next time we get blood drawn > (dreading that...takes several people and very upsetting for him). I do > brush his teeth, he does not like it but he lets me. So, to answer your > question, we have taken him to several doctors but he is not cooperative at > all. He is afraid of them. He has had numerous health issues during his > life and I think he does not forget a bit of it. Now that he is bigger, he > is going to stand his ground. He does not trust anyone. Lori, did you > mean you have 2 boys with ds and pdd???? I might have misread that. I plan > on checking into the changing mind foundation tonight. I have never heard > of it. We have not tried prozac but i am sure we can. I think this is a > phase we are going thru because of having a 2 year old. They play well > together so much of the time. Our baby is not talking like we would like > and he is starting speech next week. He immitates his older brother and > makes the same sounds. WE don't see any autism with him and we pray we > don't. > > > > To: > From: macookson@... > Date: Sat, 19 Jun 2010 18:14:22 -0700 > Subject: Re: new member > > > > > > For the noise sensitivities...you can try OT. My oldest was very sensitive > to noise as an infant, toddler, preschooler. We found an OT who does sensory > integration therapy and Vital Sounds listening therapy. The listening > therapy uses specially modulated music to train the muscles around the inner > ear to deal with changes in frequency, pitch, etc. It worked really really > well for him. > > Hth!!! > > > > Sent from my iPhone > > > > Hi Sherry. We are working with a behavioral specialist at this time. My son > was not able to go to school much at all since last Sept so we have > qualified for a behavioralist to help him at school. He doesn't even want to > go anymore and he used to love to go. When we pull up at the school, he > throws himself backwards in his seat and yells " no! " . School staff tells me > that he has big reactions to all noises....lockers being shut, voices, bell, > anything can set him off. He then scratches anyone near him and screams > loudly. It scares the other kids. He gets this wild look on his face that is > terrifying. We are pretty used to it but for others, it is pretty scarey. He > will not wear ear plugs or anything near his head. We have tried the SCD. It > does help him. Very difficult to stick to. We have raw goat milk and he > loves it so we have not given it up. We do eat most all organic. He eats > well. We eat fruit too. But we do eat some gluten free > snacks. Guess we should try SCD again. We are in the process of > desensitizing him to noises that we know is a trigger like a horn honking. > We practise warning him that someone is going to honk a horn and then we > honk it. We make sure he is a distance from it or the windows are up. This > is getting better. In the beginning of this he would push at and scratch > anyone he could reach. He still will if someone honks and he doesnt know it > ahead of time like in a parking lot when someone locks their car. Even a > soft honk sets him off. This makes going to walmart a challenge! We have a 2 > year old as well and we have to watch them at all times. We think this has > brought a lot of this on. Our 2 year old throws his own tantrums and all the > commotion is hard on Talon, our son with ds and autism. We have not ever > wanted to medicate him but feel that we have to do something at this point. > > To: > From: gldcst@... > Date: Sat, 19 Jun 2010 17:15:26 -0400 > Subject: Re: new member > > Hi Karmen, > welcome...I'm Sherry mom to 21 DS-Autism. I was happy to read you've > tried things in addition to pharmaceuticals. Have you worked with a CBA to > set up a program for eliminating/controlling behaviors? 's behavior > program has saved us all, combined with SCDiet that made huge changes for > her. You're dealing, like Sara mentioned, with a tricky age what with > puberty and all. Interestingly even was dxed with high testosterone > before puberty. She was like a wild animal for a few years there. > > 's being treated for an inability to absorb iron at all...so we're at > the opposite end of the spectrum. > > Anyway, just wanted to welcome you and say I'm glad you're here. > Sherry > > Thank you, Sara. We have tried buspar, trazadone, lexapro, ativan, > melatonin, klonopin, and that is all that comes to mind at this point. Our > son has had trouble sleeping since about age 2 or so. Melatonin worked great > for him but when he got out of bed, he knocked everyone down that he saw! He > was very agressive after taking it. He slept great tho. Lexapro made him > nauseated...he wallked around with that look on his face that tells us he is > about to vomit. We know that look. He didn't eat very much either while on > it and we did not notice a change in behavior. Ativan causes him to get > really drowsy and he goes to sleep great but may get up after 4 hours. He > usually goes to bathroom and back to sleep tho. We just have not found > anything that eases the aggression or that makes him agreeable. He seems > grouchy, angry, frustrated, and just bent on being rough. He is jerkish with > his care and just plain rough. We used to always be able to reason with him > and > calm him fairly easily. Since about last Sept. he has steadily become this > way. He was sick this winter with lots of coughing and congestion. That is > gone (after several bouts with it) but he is much more agressive now. He > takes probiotics alot and is gluten free (about 6 years now). We have tried > the biomedical route and he did improve (thank God). He tends to have a high > blood iron count too. Just set back by this behavior. We see a hematologist > next month. I can ask about testing the Testerone at that time. We have to > check his iron again then anyhow. The only thing we give him now is 1/2 > Ativan at bedtime to help him sleep. He has folic acid and b 12 in the > morning also. > > To: > From: pastmidvale@... > Date: Sat, 19 Jun 2010 15:58:32 -0400 > Subject: Re: new member > > Elie's life was a series of horrors from about age 12-19. He was on > Ritalin, Risperdal, Seroquel, Strattera, Concerta, Adderal (caused him to > lose weight but didn't affect behavior), Benedryl for sleep (works great). > What helped most? Summer camp for kids with special needs and weekly > respite with monthly overnites at camp!!! As for him - he gradually outgrew > the worst bursts sof aggression. We body blocked him both at home and at > school to prevent his reaching targets (seemed more as running away and > flailing rather than targeted aiming to hit someone MOST OF THE TIME> We > had a strict 24 inch distance rule for instructors so he would not flail > out > and hit someone - and of couse he couldn't IF they observed the rule. We > had it written in his IEP. > > Now I have learned from another friend that the testoterone storm may have > had a lot to do with it, so my suggestion is to have an endocrinologist do > a > blood test fro testosterone level. My friends son (who has TBI which > resembles autism) is on anti testosterone meds whihc help with the very > worst of the aggression. > > We didn't know about it when Elie was a teen. > > Quote Link to comment Share on other sites More sharing options...
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