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-Hi welcome to the group. I am sorry to hear about your pain.I

wasn't sure from your post if you had problems with your neck or in

your back. Although in this group the two seem to go hand in hand. I

know for me letting and asking others to do things for me was one of

the hardest things to do. I fought and fought with that one for a long

time, hurting myself over and over for days because I was too stubborn

to ask or let others do things for me. I never really thought about it

before I had to go thru this but it has made me appreciate what

handicapped and older people have to go thru. And after one neck

surgery and three back ones and almost 7 yrs later I still overdo from

time to time cause I hate asking others for help. But I think most

people learn the hard way its usually not worth doing somethings when

you end up suffering for several days. And my kids even yell at me when

they see me about to do something they know I shouldn't do :) it makes

me feel bad sometimes but I know they are doing it because they care

and have seen me suffer so much they don't want to see me go thru it

again. SO I try and remember people help me because they do care and

not cause they see me as weak for needing help but to avoid the pain it

can cause later. Still its not easy even after 7 yrs so you are not

alone. Again welcome to the group I pray the shots help you wherever

your pain is. Sharon Group Owner

-- In neck pain , " " <broth49@...> wrote:

>

> I everyone, my name is . I was diagnosed with spinal stenosis

> among other problems with the spine and have suffered since last

> November. I recently had an injection in my spine and the jury is

> still out as to whether it worked or not. Somedays are worse than

> others. It is difficult, I know, for friends and family to

understand

> just how painful this is and I hate relying on others to take care of

> normal everyday things.

>

> I am glad I am here and look forward to getting to know you all.

>

A

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-Hi welcome to the group. Sounds like you have had to live with

pain almost all your life. I am sure that was hard as a kid dealing

with knee issues. Did they ever consider replacing your kneecaps or

would that not help you? My sister in law had that done on both knees

now and it has made a big improvement in her life. But I know they were

tough surgeries too. And she had one done years ago and just finally

had the other one done recently cause the pain had gotten too bad.

Anyway welcome to the group I am sure you will find lots of wonderful

people here who understand your pain. Feel free to post whenever you

want. This is a really good group of helpful and understanding people

who all deal with pain somehow in their lives. Welcome again. Sharon

Group Owner

-- In neck pain , " sifusco73 " <sifusco73@...>

wrote:

>

> Greeings all,

>

> My name is and I've suffered from chronic pain basically since

> the age of 10. It started out with one bad right knee, then a bad

> left knee, and then went up to my back. I was diagnosed with

> degenerative disc disease in 4 disc's in my back at the age of 29.

>

> So, for most of my life my physical, mental, emotional, and spiritual

> sides have been affected by pain....

>

> Nice to meet everybody,

>

>

>

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-Hi welcome to the group. Sounds like you have had to live with

pain almost all your life. I am sure that was hard as a kid dealing

with knee issues. Did they ever consider replacing your kneecaps or

would that not help you? My sister in law had that done on both knees

now and it has made a big improvement in her life. But I know they were

tough surgeries too. And she had one done years ago and just finally

had the other one done recently cause the pain had gotten too bad.

Anyway welcome to the group I am sure you will find lots of wonderful

people here who understand your pain. Feel free to post whenever you

want. This is a really good group of helpful and understanding people

who all deal with pain somehow in their lives. Welcome again. Sharon

Group Owner

-- In neck pain , " sifusco73 " <sifusco73@...>

wrote:

>

> Greeings all,

>

> My name is and I've suffered from chronic pain basically since

> the age of 10. It started out with one bad right knee, then a bad

> left knee, and then went up to my back. I was diagnosed with

> degenerative disc disease in 4 disc's in my back at the age of 29.

>

> So, for most of my life my physical, mental, emotional, and spiritual

> sides have been affected by pain....

>

> Nice to meet everybody,

>

>

>

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-Hi welcome to the group. Sounds like you have had to live with

pain almost all your life. I am sure that was hard as a kid dealing

with knee issues. Did they ever consider replacing your kneecaps or

would that not help you? My sister in law had that done on both knees

now and it has made a big improvement in her life. But I know they were

tough surgeries too. And she had one done years ago and just finally

had the other one done recently cause the pain had gotten too bad.

Anyway welcome to the group I am sure you will find lots of wonderful

people here who understand your pain. Feel free to post whenever you

want. This is a really good group of helpful and understanding people

who all deal with pain somehow in their lives. Welcome again. Sharon

Group Owner

-- In neck pain , " sifusco73 " <sifusco73@...>

wrote:

>

> Greeings all,

>

> My name is and I've suffered from chronic pain basically since

> the age of 10. It started out with one bad right knee, then a bad

> left knee, and then went up to my back. I was diagnosed with

> degenerative disc disease in 4 disc's in my back at the age of 29.

>

> So, for most of my life my physical, mental, emotional, and spiritual

> sides have been affected by pain....

>

> Nice to meet everybody,

>

>

>

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-Hi welcome to the group. Sounds like you have had to live with

pain almost all your life. I am sure that was hard as a kid dealing

with knee issues. Did they ever consider replacing your kneecaps or

would that not help you? My sister in law had that done on both knees

now and it has made a big improvement in her life. But I know they were

tough surgeries too. And she had one done years ago and just finally

had the other one done recently cause the pain had gotten too bad.

Anyway welcome to the group I am sure you will find lots of wonderful

people here who understand your pain. Feel free to post whenever you

want. This is a really good group of helpful and understanding people

who all deal with pain somehow in their lives. Welcome again. Sharon

Group Owner

-- In neck pain , " sifusco73 " <sifusco73@...>

wrote:

>

> Greeings all,

>

> My name is and I've suffered from chronic pain basically since

> the age of 10. It started out with one bad right knee, then a bad

> left knee, and then went up to my back. I was diagnosed with

> degenerative disc disease in 4 disc's in my back at the age of 29.

>

> So, for most of my life my physical, mental, emotional, and spiritual

> sides have been affected by pain....

>

> Nice to meet everybody,

>

>

>

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  • 1 month later...

> >

> > Hi everyone.I hope you are having a great day.

> > I am Kelley.I am new to the group.Thank you for having me in your

> > group.I think everyday of all the good things I can find in life

to

> > keep from depression and pain.I thank God for all of you and the

> > experiences you have shared.I wish I could make everyone better.

> > I have herniated discs (C5 C6 and C7) growing into the spinal

> cord.

> > I know this is frustrating and painful.

> > I have always been an on the go type person,constantly working

> and

> > doing all I can do in life to better,

> > My children and I have really been having to change our lives

> > drastically since I was hurt.It is depressing when I think about

> > it;but,I read some of your stories and cry because the things you

> have

> > experienced.I wish I could help each and everyone one of us and

> make

> > it all better.

> > I donot think these doctors can really know what pain we

> > have ;because,they have never felt it.

> > please have a great day and be safe.God Bless All.

> >

>

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  • 3 months later...

I can certainly empathize with your fatigue! That is one of the most bothersome

symptoms I have! I am quite a bit older than you (49) and I was recently

diagnosed with early RA and mild Lupus. I have found that sublingual B12, a

good B complex vitamin, and CoQ10 help alot with the fatigue. It doesn't cure

it, but I am able to get up in the morning and get to work. Before, I was

getting up, and laying on the couch for an hour before I could get going! Diet

is important too. I have recently eliminated wheat, and cut way back on sugar.

I am pretty close to you. I live in San Diego!

---------------------------------

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Hey !

I'm in SD too, 48, and diagnosed in December. Who's your rheumy?

Kim

--- In , Merlich <cruisintheseas@...>

wrote:

>

> I can certainly empathize with your fatigue! That is one of the

most bothersome symptoms I have! I am quite a bit older than you (49)

and I was recently diagnosed with early RA and mild Lupus. I have

found that sublingual B12, a good B complex vitamin, and CoQ10 help

alot with the fatigue. It doesn't cure it, but I am able to get up in

the morning and get to work. Before, I was getting up, and laying on

the couch for an hour before I could get going! Diet is important

too. I have recently eliminated wheat, and cut way back on sugar.

> I am pretty close to you. I live in San Diego!

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

>

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Hi ,

I am originally from San Diego, met my husband when I was going to

CSUSM. I grew up in North County. I have tried the exact vitamin

combo you speak of and unfortunately it didn't help me. All it did

was make it impossible for me to diet, because I was so hungry all

the time. It was like my metabolism increased but without the energy.

I havn't tried eliminating wheat, I have heard that it could be good

for some people. Do you know exactly why, is it an allergy thing? I

have cut back on the sugar, virtually no sugar sometimes....and I

can't honestly remember a change in energy. I've always wondered if I

maybe have an underlying hormonal issue that is intensifying my

symptoms, but could never get a doctor to diagnose it. The only thing

that has ever somewhat worked is the Cycle Diet, but at the time it

was hard to stick to because it's pretty much vegan half the month,

and I was living in a remote area at the time (my husband was in the

military) and it was really hard to buy anything organic/vegan.

Hmmmm...

I should try it again , now that I live closer to civilization!

Thanks for making me think of that!!!!!

Thanks for the input!

Your awsome!

Hope you are feeling good today!

-

--- In , Merlich <cruisintheseas@...>

wrote:

>

> I can certainly empathize with your fatigue! That is one of the

most bothersome symptoms I have! I am quite a bit older than you

(49) and I was recently diagnosed with early RA and mild Lupus. I

have found that sublingual B12, a good B complex vitamin, and CoQ10

help alot with the fatigue. It doesn't cure it, but I am able to get

up in the morning and get to work. Before, I was getting up, and

laying on the couch for an hour before I could get going! Diet is

important too. I have recently eliminated wheat, and cut way back on

sugar.

> I am pretty close to you. I live in San Diego!

>

>

>

>

>

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Did we get a new "Guy" awesome, haven't seen the email yet, iwas off yesterday so i have a ton to go thru but Welcome to . SherryPatti Journey <pjpoo78363@...> wrote: Welcome , watch out, there are a lot of momma tigers here. lol Fun and good debating women, and men. pj Looking for last minute shopping deals? Find them fast with Search.

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LOL its funny you say that, reminded me of what my mother once called herself mamabear, "mess with my cubs and you're going to get teeth and claws in the face"boy do I feel like that some days. welcome to the other new ppl, I'm new myself so I'm still learning. conniePatti Journey <pjpoo78363@...> wrote: Welcome , watch out, there are a lot of momma tigers here. lol Fun and good debating women, and men.

pj Looking for last minute shopping deals? Find them fast with Search.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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ROFLMAO !!Patti Journey <pjpoo78363@...> wrote: Welcome , watch out, there are a lot of momma tigers here. lol Fun and good debating women, and men. pj Looking for last minute shopping deals? Find them fast with Search.

Looking for last minute shopping deals? Find them fast with Search.

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I hit the send to fast. Hi , your son sounds like an awesome kid and you sound like an awesome dad... its great having a dad back on this site to hear their concerns and suggestions.Patti Journey <pjpoo78363@...> wrote: Welcome , watch out, there are a lot of momma tigers here. lol Fun and good debating women, and men. pj Looking for last minute shopping deals? Find them fast with Search.

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  • 2 months later...
Guest guest

Hi Ann

thank your for your feedback.

I will inquire about the lyrica.

I just always worry about the side effects being worse you know...

if anyone has tried it or is on it- I would appreciate hearing how they feel

about it.

Thank you.

Welcome

HI ,

Welcome to the group and hopefully you can find many here to empathize and

answer many of your questions or just give you support---

I do not know much about your condition but I do want to say that my PT had a

serious accident over 25 years ago and she was married to a radiologist who

tried to help her to no avail.

But she has recently told me that she has a new drug that has worked wonders for

her nerve pain-- called Lyrica--- have you heard of it?

Ask your Dr about it; it is to help with neuropathic nerve pain.

Annie

>

> Hello

> I am a new member-44 year old woman.

> I have been looking for a support group as a way to help with what

has become daily chronic pain.

> I have been dealing with low back/ radiculopathy since a severe

back spasm summer 2003.

>

> So far no surgery, but that is only due to conservative therapists,

physical medicine doctors, a conservative Osteopath and

Neurosurgeon. Let me also say that I have had Physical Therapy for

about 2 years.

>

> However this past year I have had 4 epidurals in L5 and the last

one last week- no help. The sciatic type pain is pretty much every

day, worse in the am and difficult to cope with. Now the Physical

Medicine Doctors want me to have a discogram to confirm if it is

indeed a disc causing all the pain.

>

> Unfortunatley there has always been some discrepancy of which is

causing the pain- SI joint, or L5.

>

> So now Im facing the Discogram- yet another painful procedure to

which end Im just not sure where it will lead.

>

> They Physical Medicine Doctor wants to try Prolotherapy in the

Discs, but that still leaves me with daily nerve pain.

>

> It is just kind of a long drawn out, round and round scenario.....

what to try next. I have been curious about the radiofrequency

treatments. But who knows- I guess depending on the outcome of the

discogram they may want to do surgery.

> I welcome any feedback. thanks.

>

>

>

>

> ---

> --- wendy.tom@...

> --- EarthLink: The #1 provider of the Real Internet.

>

>

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Guest guest

nice to meet you too.

Welcome

Hi ,

Welcome to the group.

I'm new too. :)

Nice to meet you!

Liz

--

The Pets Pal

http://360./petspal2003

-------------- Original message from Ann Wood Fuller <gatorma1@...>:

--------------

>

> HI ,

> Welcome to the group and hopefully you can find many here to empathize and

> answer many of your questions or just give you support---

> I do not know much about your condition but I do want to say that my PT had a

> serious accident over 25 years ago and she was married to a radiologist who

> tried to help her to no avail.

> But she has recently told me that she has a new drug that has worked wonders

> for her nerve pain-- called Lyrica--- have you heard of it?

> Ask your Dr about it; it is to help with neuropathic nerve pain.

> Annie

>

>

> >

> > Hello

> > I am a new member-44 year old woman.

> > I have been looking for a support group as a way to help with what

> has become daily chronic pain.

> > I have been dealing with low back/ radiculopathy since a severe

> back spasm summer 2003.

> >

> > So far no surgery, but that is only due to conservative therapists,

> physical medicine doctors, a conservative Osteopath and

> Neurosurgeon. Let me also say that I have had Physical Therapy for

> about 2 years.

> >

> > However this past year I have had 4 epidurals in L5 and the last

> one last week- no help. The sciatic type pain is pretty much every

> day, worse in the am and difficult to cope with. Now the Physical

> Medicine Doctors want me to have a discogram to confirm if it is

> indeed a disc causing all the pain.

> >

> > Unfortunatley there has always been some discrepancy of which is

> causing the pain- SI joint, or L5.

> >

> > So now Im facing the Discogram- yet another painful procedure to

> which end Im just not sure where it will lead.

> >

> > They Physical Medicine Doctor wants to try Prolotherapy in the

> Discs, but that still leaves me with daily nerve pain.

> >

> > It is just kind of a long drawn out, round and round scenario.....

> what to try next. I have been curious about the radiofrequency

> treatments. But who knows- I guess depending on the outcome of the

> discogram they may want to do surgery.

> > I welcome any feedback. thanks.

> >

> >

> >

> >

> > ---

> > --- wendy.tom@...

> > --- EarthLink: The #1 provider of the Real Internet.

> >

> >

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Guest guest

Well, I went to a psychiatrist and he felt I had anxiety so he recommended it

but I stopped taking it today. I don't need counseling .. quit wine six weeks

ago and haven't lost a lb so maybe the lexapro was not what I needed! We'll

see now that I've quit. Thanks for the input.

mike jones <mike229892@...> wrote:

& nbsp;

& nbsp;

where do I start ? & nbsp;- you don't mention having a mental health problem such

as anxiety or depression so why are you taking an anti-depressant ? & nbsp;

& nbsp;

if you have a drink problem then counselling is probably the way to go first but

you say you only want to stop drinking for two months to lose weight & nbsp;

- & nbsp;well a common side effect of lexapro is weight gain

& nbsp;

taking an odd tablet here or there is definitely not the way to use anti -

depressants & nbsp; - no wonder you say it didnt do much for you & nbsp; - the only

good thing is it probably wont do you much harm either although the

manufacturers recommend against drinking alcohol when on it

& nbsp;

& nbsp;

Mike

& nbsp;

& nbsp;

& gt;

& gt; I hope this group will help others like myself who would prefer

& gt; talking to other people about how a drug affects them , rather than

& gt; just read the information you get at the drugstore.Feel free to

& gt; discuss any anti depressant and how it affects you .

& gt;

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Guest guest

Hi ,

& nbsp;

are you saying that your drinking was in response to anxiety which re-surfaced

when you stopped?

& nbsp;

if your anxiety is fairly mild I would suggest trying a few alternative

therapies such as yoga / relaxation tapes / exercise etc. & nbsp; & nbsp; - good for

losing weight too

& nbsp;

anti depressants are not somethimng I would recommend getting on to if you can

help it - they take at least 2 weeks to start working and then most doctors

recommend taking them for at least 6 months to prevent symptoms recurring

& nbsp;

lexapro did help me but its certainly no magic pill - & nbsp; having seen what

people with mental health issues go through I dont think there is one & nbsp;

& nbsp;

I dont think there is & nbsp;a magic pill & nbsp;for weight loss either & nbsp;

- & nbsp; I lost a 25 lbs in a month when my anxiety first started - & nbsp; 6months

on lexapro and I have put it all back on

& nbsp;

mike

& nbsp;

I

& amp;gt;

& amp;gt; I hope this group will help others like myself who would prefer

& amp;gt; talking to other people about how a drug affects them , rather than

& amp;gt; just read the information you get at the drugstore.Feel free to

& amp;gt; discuss any anti depressant and how it affects you .

& amp;gt;

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Guest guest

I was anxious about STOPPING. I'm fine now, just got used to going to concerts

and such without it. But, it's not forever and a pleasure that I'm looking

forward to taking up again at some future time.

mike jones <mike229892@...> wrote: Hi ,

& nbsp;

are you saying that your drinking was in response to anxiety which re-surfaced

when you stopped?

& nbsp;

if your anxiety is fairly mild I would suggest trying a few alternative

therapies such as yoga / relaxation tapes / exercise etc. & nbsp; & nbsp; - good for

losing weight too

& nbsp;

anti depressants are not somethimng I would recommend getting on to if you can

help it - they take at least 2 weeks to start working and then most doctors

recommend taking them for at least 6 months to prevent symptoms recurring

& nbsp;

lexapro did help me but its certainly no magic pill - & nbsp; having seen what

people with mental health issues go through I dont think there is one & nbsp;

& nbsp;

I dont think there is & nbsp;a magic pill & nbsp;for weight loss either & nbsp;

- & nbsp; I lost a 25 lbs in a month when my anxiety first started - & nbsp; 6months

on lexapro and I have put it all back on

& nbsp;

mike

& nbsp;

I

& amp;gt;

& amp;gt; I hope this group will help others like myself who would prefer

& amp;gt; talking to other people about how a drug affects them , rather than

& amp;gt; just read the information you get at the drugstore.Feel free to

& amp;gt; discuss any anti depressant and how it affects you .

& amp;gt;

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Guest guest

I don't get it. If people feel good taking it

why stop?

Re: Re: Welcome

I was anxious about STOPPING. I'm fine now, just got used to going to concerts

and such without it. But, it's not forever and a pleasure that I'm looking

forward to taking up again at some future time.

mike jones <mike229892@...> wrote: Hi ,

& nbsp;

are you saying that your drinking was in response to anxiety which re-surfaced

when you stopped?

& nbsp;

if your anxiety is fairly mild I would suggest trying a few alternative

therapies such as yoga / relaxation tapes / exercise etc. & nbsp; & nbsp; - good for

losing weight too

& nbsp;

anti depressants are not somethimng I would recommend getting on to if you can

help it - they take at least 2 weeks to start working and then most doctors

recommend taking them for at least 6 months to prevent symptoms recurring

& nbsp;

lexapro did help me but its certainly no magic pill - & nbsp; having seen what

people with mental health issues go through I dont think there is one & nbsp;

& nbsp;

I dont think there is & nbsp;a magic pill & nbsp;for weight loss either & nbsp;

- & nbsp; I lost a 25 lbs in a month when my anxiety first started - & nbsp; 6months

on lexapro and I have put it all back on

& nbsp;

mike

& nbsp;

I

& amp;gt;

& amp;gt; I hope this group will help others like myself who would prefer

& amp;gt; talking to other people about how a drug affects them , rather than

& amp;gt; just read the information you get at the drugstore.Feel free to

& amp;gt; discuss any anti depressant and how it affects you .

& amp;gt;

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Guest guest

I felt the same before I started taking it. Only took it for a month. I don't

like taking pills that I don't need. It was my doctor's idea, I think a

kneejerk reaction. Drug companies make a lot of money on this stuff.

Like your " elvis rocks " .. the only other site I use is

Browne's.

Carol Vail <elvisrocks1@...> wrote:

I don't get it. If people feel good taking it

why stop?

Re: Re: Welcome

I was anxious about STOPPING. I'm fine now, just got used to going to concerts

and such without it. But, it's not forever and a pleasure that I'm looking

forward to taking up again at some future time.

mike jones <mike229892@...> wrote: Hi ,

& nbsp;

are you saying that your drinking was in response to anxiety which re-surfaced

when you stopped?

& nbsp;

if your anxiety is fairly mild I would suggest trying a few alternative

therapies such as yoga / relaxation tapes / exercise etc. & nbsp; & nbsp; - good for

losing weight too

& nbsp;

anti depressants are not somethimng I would recommend getting on to if you can

help it - they take at least 2 weeks to start working and then most doctors

recommend taking them for at least 6 months to prevent symptoms recurring

& nbsp;

lexapro did help me but its certainly no magic pill - & nbsp; having seen what

people with mental health issues go through I dont think there is one & nbsp;

& nbsp;

I dont think there is & nbsp;a magic pill & nbsp;for weight loss either & nbsp;

- & nbsp; I lost a 25 lbs in a month when my anxiety first started - & nbsp; 6months

on lexapro and I have put it all back on

& nbsp;

mike

& nbsp;

I

& amp;gt;

& amp;gt; I hope this group will help others like myself who would prefer

& amp;gt; talking to other people about how a drug affects them , rather than

& amp;gt; just read the information you get at the drugstore.Feel free to

& amp;gt; discuss any anti depressant and how it affects you .

& amp;gt;

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Guest guest

I've been on it for so long. I still get samples from my

doctor so I luckily don't have to pay for them so far...

til they go generic. I ran out of them once and didn't

have them for 2-1/2 days and I thought I was dying!

I am not in a point in my life where I could say, hey

things seem ok, I'll try to wean off...so I'm on them

for the long haul I guess.

Yes, I'm an Elvis freak! lol

Re: Re: Welcome

I was anxious about STOPPING. I'm fine now, just got used to going to concerts

and such without it. But, it's not forever and a pleasure that I'm looking

forward to taking up again at some future time.

mike jones <mike229892@...> wrote: Hi ,

& nbsp;

are you saying that your drinking was in response to anxiety which re-surfaced

when you stopped?

& nbsp;

if your anxiety is fairly mild I would suggest trying a few alternative

therapies such as yoga / relaxation tapes / exercise etc. & nbsp; & nbsp; - good for

losing weight too

& nbsp;

anti depressants are not somethimng I would recommend getting on to if you can

help it - they take at least 2 weeks to start working and then most doctors

recommend taking them for at least 6 months to prevent symptoms recurring

& nbsp;

lexapro did help me but its certainly no magic pill - & nbsp; having seen what

people with mental health issues go through I dont think there is one & nbsp;

& nbsp;

I dont think there is & nbsp;a magic pill & nbsp;for weight loss either & nbsp;

- & nbsp; I lost a 25 lbs in a month when my anxiety first started - & nbsp; 6months

on lexapro and I have put it all back on

& nbsp;

mike

& nbsp;

I

& amp;gt;

& amp;gt; I hope this group will help others like myself who would prefer

& amp;gt; talking to other people about how a drug affects them , rather than

& amp;gt; just read the information you get at the drugstore.Feel free to

& amp;gt; discuss any anti depressant and how it affects you .

& amp;gt;

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  • 1 month later...
Guest guest

Thanks so much for the warm welcome and all the info. I'll do my

homework and keep you all posted. Really appreciate your help!

Cyrine

> > Hi there,

> >

> > Very glad to have found this group! I was wondering if someone could

> > help with some advice. I had my scoliosis operation in the early 90s

> > in Germany . I don't really know what the rod type is called, all it

> > says on the file summary I was given is that it's a traditional " VDS "

> > procedure TH4-11.

> > Everything's been cool for a looong time but the last couple of years

> > I've experienced more and more pain in different parts of the back.

> > What's worrying me in particular is that I've had really bad pains in

> > my feet over the last few months, I literally can't stand for more

> > than 2 minutes before the pain kicks in. Also, my leg muscles

> > constantly feel tired and my general posture and balance seems to

have

> > changed a bit. Are these early signs of the flatback syndrome?

> > My GP just sent me to a podiatrist who gave me a stretching exercise

> > to do but that's it. Neither seem to link it to the back but I'm

> > worried this might just be cause they don't know much about post-op

> > scoliosis problems. Am I being too paranoid? Unfortunately, I don't

> > have a specialist I can see in this country (UK) but was wondering

> > what kind of doctor I could see who'd assess the entire posture

(would

> > that be a chiropractor?).

> > Any tip would be tremendously appreciated!

> >

> > Thanks a lot

> >

> > Cyrine

> >

> >

------------------------------------------------------------------------

> > Not happy with your email address?

> > Get the one you really want <http://uk.docs./ymail/new.html>

> > - millions of new email addresses available now at

> > <http://uk.docs./ymail/new.html>

> >

>

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Guest guest

You're quite welcome, Cyrine. Best of luck to you.

Sharon

cyrineamor wrote:

Thanks so much for the warm welcome and all the info. I'll do my

homework and keep you all posted. Really appreciate your help!

Cyrine

> > Hi there,

> >

> > Very glad to have found this group! I was wondering if

someone could

> > help with some advice. I had my scoliosis operation in the

early 90s

> > in Germany . I don't really know what the rod type is called,

all it

> > says on the file summary I was given is that it's a

traditional "VDS"

> > procedure TH4-11.

> > Everything's been cool for a looong time but the last couple

of years

> > I've experienced more and more pain in different parts of the

back.

> > What's worrying me in particular is that I've had really bad

pains in

> > my feet over the last few months, I literally can't stand for

more

> > than 2 minutes before the pain kicks in. Also, my leg muscles

> > constantly feel tired and my general posture and balance

seems to

have

> > changed a bit. Are these early signs of the flatback syndrome?

> > My GP just sent me to a podiatrist who gave me a stretching

exercise

> > to do but that's it. Neither seem to link it to the back but

I'm

> > worried this might just be cause they don't know much about

post-op

> > scoliosis problems. Am I being too paranoid? Unfortunately, I

don't

> > have a specialist I can see in this country (UK) but was

wondering

> > what kind of doctor I could see who'd assess the entire

posture

(would

> > that be a chiropractor?).

> > Any tip would be tremendously appreciated!

> >

> > Thanks a lot

> >

> > Cyrine

> >

> >

----------------------------------------------------------

> > Not happy with your email address?

> > Get the one you really want <http://uk.docs./ymail/new.html>

> > - millions of new email addresses available now at

> > <http://uk.docs./ymail/new.html>

> >

>

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Guest guest

I'm the titch in question :o) I'm sorry to hear you're having

problems, but the good news is that there are quite a few specialists

around - ones in London, Bristol, Oxford, Birmingham, Nottingham,

Leeds, Sheffield and Newcastle spring to mind, so if you give me a

rough idea of where you live I can give you some suggestions on where

to look for a specialist.

If it goes ahead, there may also be a meet up of various members of

the scoliosis-support.org forums at the end of August, so I'll update

when I know more in case you're able (and want) to come :o)

Cheers,

titch

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Guest guest

Thanks Titch, lovely to hear from you. Yeah, I'd love to hear about

the London specialists. I contacted SAUK in the meantime and they told

me about two doctors at Guys and St (sorry can't find the piece

of paper with their names right now). Any other suggestions would be

great! My main problem at the moment is trying to figure out whether

the pain in my legs, and especially the feet, are related to the back

and then getting my GP to help me find that out. So far the GP only

referred me to a foot specialist who gave me an exercise to stretch my

calves for a couple of months, that's it. Of course he knew nothing

about backs and couldn't tell what might cause the pain. It's getting

so bad now I'm finding it hard to stand even for a couple of minutes

whilst waiting for a bus and having to swallow painkillers in

anticipation of the supermarket queuing. Maybe it isn't related to the

scoliosis but would love to be reassured. The way the NHS works, I

have big doubts whether they'll let me see a scoliosis specialist

because of leg pain.

Btw, I was told you're running a Uk based forum or did I misunderstand

that? What is it called?

Again, thanks so much for getting in touch!

Cyrine

>

> I'm the titch in question :o) I'm sorry to hear you're having

> problems, but the good news is that there are quite a few specialists

> around - ones in London, Bristol, Oxford, Birmingham, Nottingham,

> Leeds, Sheffield and Newcastle spring to mind, so if you give me a

> rough idea of where you live I can give you some suggestions on where

> to look for a specialist.

>

> If it goes ahead, there may also be a meet up of various members of

> the scoliosis-support.org forums at the end of August, so I'll update

> when I know more in case you're able (and want) to come :o)

>

> Cheers,

>

> titch

>

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