Guest guest Posted January 18, 1999 Report Share Posted January 18, 1999 Hey , Welcome. The random swelling in the joints is a concern if joint destruction is occurring over time, which it may well be. That is the reason that a lot of us take DMARDs- disease modifying agents - The last one I took was Arava which was great except for bad stomach pain that developed at about six weeks -- and it took a good 4-5 weeks to work. Once it did work, it took away 90% of the psoriasis, and got the PA to only two joints -- my right shoulder and one joint in the hand. Pretty dang good! I hope to start Enbrel in a few weeks myself. Good luck with your next Rheumatologist appt. All the best to you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 1999 Report Share Posted January 18, 1999 Thanks for the advice on Arava - I'll ask my new rhemy about it. veronica [ ] Re: Welcome >From: CTNATIVE@... > >Hey , > >Welcome. The random swelling in the joints is a concern if joint destruction >is occurring over time, which it may well be. That is the reason that a lot >of us take DMARDs- disease modifying agents - > >The last one I took was Arava which was great except for bad stomach pain that >developed at about six weeks -- and it took a good 4-5 weeks to work. Once it >did work, it took away 90% of the psoriasis, and got the PA to only two joints >-- my right shoulder and one joint in the hand. Pretty dang good! > >I hope to start Enbrel in a few weeks myself. > >Good luck with your next Rheumatologist appt. > >All the best to you, > > > >------------------------------------------------------------------------ >To unsubscribe from this mailing list, or to change your subscription >to digest, go to the ONElist web site, at and >select the User Center link from the menu bar on the left. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 hi to all on this list my name is zainab from Cape town, south africa i am 48 and currently experiencing many bodily discomforts like constant fatigue, sore feet and legs, water retention, putting on weight etc. i have come to the conclusion this is all due to toxins nd are now desperate to detoxify my insides. i hope we can exchange ideas, advise nd support one another, especially those with or who had similar symptons thks nd regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 At 19:27 13.05.99 +0200, you wrote: >From: zahir@... (zahir s) > >hi to all on this list > >my name is zainab from Cape town, south africa >i am 48 and currently experiencing many bodily discomforts like constant >fatigue, sore feet and legs, water retention, putting on weight etc. >i have come to the conclusion this is all due to toxins nd are now desperate >to detoxify my insides. >i hope we can exchange ideas, advise nd support one another, especially >those with or who had similar symptons > >thks nd regards Hi Zainab, Welcome to the group. I am guessing that you are our first member from Afrika. Group is becoming more and more intercontinental! We have members from Asia, Europe, South and North America, Australia, New Zealand, Hawaii,GB, Japan,... Nobody from Antarctica, so far. I guess, we will have to wait until they get some cheaper telephone lines. Anybody from Island or from Greenland ? After the symptoms that you have explained, I guess you are either poisoned with something, either infected with something, either have been too long time on refined and processed foods and are infected with candida, or all of those, some of them in higher, some of them in lower grade. You can try to get those herbs http://home.sol.no/~dusan/herbalcure1.html and do some parasite cleanse together with some kind of bowel cleanse : http://home.sol.no/~dusan/bowel cleanse.html Or you can try to find some herbalist in your town, who will be using native African herbs for parasites/bowel cleansing . Whatewer you choose, make sure you avoid eating foods that kill: http://home.sol.no/~dusan/foods_that_kill.html If I would be living in Afrika, and have some health problems, I would have at least 80%- 90% of my foods raw (vegetable, fruits, sprouted grains and beans, grases, vegetable juices), and I would try to adjust my diet as much as possible to my blood type: http://home.sol.no/~dusan/blood_type.html Also occasionaly fish soups, and if eating some heated foods, that would be soups, and dishes made from vegetable, grains, beans and fish. I would avoid flour products, until cured. You will, of course, have to find diet that you can accept. Please , share with us any information that you think can be of value. Especialy information about different parasites and parasite killing remedies. I believe that African doctors and herbalist have far more experience with parasites, then what I have. Healthy regards from frozen Norway (-1C in Oslo). Even parasites are frozen in this country :-) (I would love to feel a little of Afrikan sun, now). Dusan Stojkovic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 1999 Report Share Posted June 22, 1999 Hi- I recently joined this list. I have psychomotor seizures-I've been taking Dilantin 100mg. TID since I was 19 (I'm now 39). Since I starting taking my medicine, life completely turned around for me. I withdrew eight semesters in a row from college, but after I got my medicine, I stopped drinking (drinking was my medication, and THAT caused another problem...), gave birth to a beautiful daughter when I was 25, got my driver's license back, and earned a BA degree when I was 29. The symptoms of a psychomotor seizure rival a panic attack; I belong to two panic attack lists, but it's very despairing. It seems no one wants to get any better, and they want to continue suffering with panic attacks. A panic attack just might be a seizure, but my mentioning that has been ignored. I was so glad to find this list! I plan on going to medical school, and I find the brain is fascinating. Right now, I'm also taking Impramine 50 mg (impramine is the generic form of Tofranil). When I was 19 and began taking Dilantin, I also took Phenobarbital. I stopped after seven years (with a doctor's guidance). I've found that every ten years, I become depressed and need to take Tofranil. But that's another story. Would like to hear from others with epilepsy-Also, my maternal grandfather was gassed with mustard gas during World War I in France. Since mustard gas affects the nervous system, I always thought this was related. But also, my father was in World War II and on clean-up detail for Nagasaki after the US dropped the bomb. So I guess it's a double whammy. Becky >From: Dusan Stojkovic <dusan@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 You're in my thoughts- What does the military have to say about it? Can he receive disability and services at a VA Hospital because of the seizure disorder? My grandfather was in Walter Hospital after World War I. he was gassed with mustard gas. Was your husband exposed to mustard gas in any form? I also have a friend who served in Desert Storm and she's had 13 surgeries. She was in so much pain, but with the last operation, they put a pump in her body that releases the pain medication when it's needed. 6 lesions have mysteriously appeared on her brain, and her vertebrae are disintegrating one by one. Dad was in World War II and on clean-up detail shortly (DAYS after...) after the U.S. dropped the bomb in Nagasaki. Seizures are mostly a symptom of something else. My brother had a brain tumor removed about ten years ago; we've never had anything like that happen in our family. Nor does anyone have epilepsy, and I have psychomotor seizures. We have a strong military tradition in our family, (I'm directly descended from SEVEN Revolutionary War soldiers) and I have a hunch that my epilepsy was caused by something Dad or my grandfather experienced during service. No scientific proof, just a hunch. I hope everything works out for you- Becky >My husband is in the Army....and was perfectly healthy until he went on a >deployment to Haiti in March.....a month later he was being medivac to >Walter > in D.C. There is one more soldier to come back with seizures. He had >a >grand mal seizure....in Haiti...all tests came back neg. he had another >seizure a week after getting out of the hospital. He was then put on >Dilantin 300MG....a day....he has several small seizures (petit mal) but >nothing big. We are still trying to figure out why this happened. > >Please keep us in your thoughts > >Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 My husband is in the Army....and was perfectly healthy until he went on a deployment to Haiti in March.....a month later he was being medivac to Walter in D.C. There is one more soldier to come back with seizures. He had a grand mal seizure....in Haiti...all tests came back neg. he had another seizure a week after getting out of the hospital. He was then put on Dilantin 300MG....a day....he has several small seizures (petit mal) but nothing big. We are still trying to figure out why this happened. Please keep us in your thoughts Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 At 15:33 23.06.99 EDT, you wrote: >From: ShareeMQ@... > >My husband is in the Army....and was perfectly healthy until he went on a >deployment to Haiti in March.....a month later he was being medivac to Walter > in D.C. There is one more soldier to come back with seizures. He had a >grand mal seizure....in Haiti...all tests came back neg. he had another >seizure a week after getting out of the hospital. He was then put on >Dilantin 300MG....a day....he has several small seizures (petit mal) but >nothing big. We are still trying to figure out why this happened. > >Please keep us in your thoughts > >Cheri Hi Cheri, Your husband should stop eating foods containing sugar and aspartame. Try also to get Bob Becks Silver pulser and also Dr.Hulda Parasite killing herbs. Your husband may have parasites larvae in his brain. Dusan Stojkovic http://home.sol.no/~dusan/epilepsy.html http://home.sol.no/~dusan/parasitespage.html http://home.sol.no/~dusan/aspartame.html http://home.sol.no/~dusan/sugarpage.html Parasites and seizures : _______________________________________ Symptoms: seizures, mental disturbances, focal neurologic deficits, and signs of a space-occupying intracerebral lesion. Paraistes and your health http://www.dpd.cdc.gov/dpdx/html/frames/a%2Df/cysticercosis/body_Cysticercos is_page1.htm Cysticercosis [Taenia solium] [Taenia spp.] (Tapeworm) ---------------------------------------------------------------------- Causal Agent: The cestode (tapeworm) Taenia solium (pork tapeworm) is the main cause of human cysticercosis. In addition, other Taenia species (e.g., multiceps, serialis, browni, taeniaformis, crassiceps) can cause occasionally cysticercosis in various sites including the brain, subcutaneous tissue, eye, or liver. Life Cycle: Cysticercosis occurs when a human ingests eggs of Taenia solium. See the life cycle of T. solium in taeniasis. Geographic Distribution: Taenia solium is found worldwide. Because pigs are intermediate hosts of the parasite, completion of the life cycle occurs in regions where humans live in close contact with pigs and eat undercooked pork.(sausagges) Taeniasis and cysticercosis are very rare in Muslim countries. It is important to note that human cysticercosis is acquired by ingesting T. solium eggs shed in the feces of a human T. solium tapeworm carrier, and thus can occur in populations that neither eat pork nor share environments with pigs. Clinical Features: The symptoms of cysticercosis are due to the development of cysticerci in various sites. Of greatest concern is cerebral cysticercosis, which can cause diverse manifestations including seizures, mental disturbances, focal neurologic deficits, and signs of a space-occupying intracerebral lesion. Death can occur suddenly. Extracerebral cysticercosis can cause ocular, cardiac, or spinal lesions with resulting symptoms. Asymptomatic subcutaneous nodules and calcified intramuscular nodules can be encountered. Laboratory Diagnosis: The definitive diagnosis consists of demonstrating the cysticercus in the tissue involved. Demonstration of Taenia solium eggs and proglottids in the feces diagnoses taeniasis and not cysticercosis. While suggestive, it does not necessarily prove that cysticercosis is present. Persons who are found to have eggs or proglottids in their feces should be evaluated serologically since autoinfection, resulting in cysticercosis, can occur. Diagnostic findings Antibody detection provides a useful adjunct in specific diagnosis. ________________________________________________________ Symptoms: severe headaches, nausea, vomiting, neck stiffness, seizures, and neurologic abnormalities. Angiostrongyliasis Parasites and health http://www.dpd.cdc.gov/DPDx/ [Angiostrongylus cantonensis] [Angiostrongylus costaricensis] ---------------------------------------------------------------------------- ---- Clinical Features: Clinical symptoms of eosinophilic meningitis are caused by the presence of the larvae in the brain and by the local host reactions. Symptoms include severe headaches, nausea, vomiting, neck stiffness, seizures, and neurologic abnormalities. Occasionally, ocular invasion occurs. Eosinophilia is present in the majority of cases. Most patients recover fully. Abdominal angiostrongyliasis mimics appendicitis, with eosinophilia. Causal Agents: The nematode (roundworm) Angiostrongylus cantonensis, the rat lungworm, is the most common cause of human eosinophilic meningitis. In addition, Angiostrongylus (Parastrongylus) costaricensis is the causal agent of abdominal, or intestinal, angiostrongyliasis. Life Cycle: Adult worms of A. cantonensis live in the pulmonary arteries of rats and rodents. The females lay eggs that hatch, yielding first stage larvae, in the terminal branches of the pulmonary arteries. The first stage larvae migrate to the pharynx, are swallowed and are passed in the feces. They invade an intermediate host (snail or slug). After two molts, third stage larvae are produced, which are infective to mammalian hosts. When the mollusk is ingested by the definitive host, the third stage larvae migrate to the brain where they develop into young adults. The young adults return to the venous system and then the pulmonary arteries where they become sexually mature. Of note, various animals act as paratenic (transport) hosts: after ingesting the infected snails, they carry the third stage larvae which can resume their development when the paratenic host is ingested by a definitive host. Humans acquire the infection by eating uncooked snails or slugs, vegetables contaminated with mollusks secretions, or infected paratenic animals (crabs, freshwater shrimps). In humans, the development of the third stage larvae is stalled in the brain, where they die. The life cycle of Angiostrongylus (Parastrongylus) costaricensis is similar, except that the adult worms reside in the arterioles of the ileocaecal area of the definitive host. In humans, the eggs and larvae degenerate and cause local inflammatory reactions. Geographic Distribution: Most cases of eosinophilic meningitis have been reported from Southeast Asia and the Pacific Basin. Abdominal angiostrongyliasis has been reported from Costa Rica, and occurs mainly in children less than 13 years old. Laboratory Diagnosis: In eosinophilic meningitis the cerebrospinal fluid (CSF) is abnormal (elevated pressure, proteins, and leukocytes; eosinophilia). On rare occasions, larvae have been found in the CSF. In abdominal angiostrongyliasis, eggs and larvae can be identified in the tissues removed at surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 --- ShareeMQ@... wrote: > From: ShareeMQ@... > I've had Epilepsy for 35 years. I've had brain surgery , i've been on 13 different meds in 35 years. Its been a few years since I've had a grand mal SZ. Belinda > My husband is in the Army....and was perfectly > healthy until he went on a > deployment to Haiti in March.....a month later he > was being medivac to Walter > in D.C. There is one more soldier to come back > with seizures. He had a > grand mal seizure....in Haiti...all tests came back > neg. he had another > seizure a week after getting out of the hospital. > He was then put on > Dilantin 300MG....a day....he has several small > seizures (petit mal) but > nothing big. We are still trying to figure out why > this happened. > > Please keep us in your thoughts > > Cheri > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 1999 Report Share Posted June 23, 1999 Well....the military....hasn't said much of anything....his doc put him on a permanent profile P3 is what it is called and they are sending that to the MMRB board....so we should no something soon....I will keep you posted... I am not sure whether he was exposed to anything...but like in Desert Storm as you know....I am sure it will be kept hush hush!!! Thanks for sharing your info. Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Hi- The worms in the brain remind me of an episode of Night Gallery I saw as a kid-while a guy was sleeping in the tropics, a hired assassin came and put a worm in his ear. It scared me to death! But this is interesting-what medical tests do you determine there's a worm/larvae? What effects do caffeine have on epilepsy? (sugar=Pepsi; I drink lots of it) No aspartame-In a college biology class, we were warned about the neurological damages it can cause. And how it can kill a PKU baby. Becky You wrote: >Your husband should stop eating foods containing sugar and aspartame. > >Try also to get Bob Becks Silver pulser and also Dr.Hulda Parasite >killing herbs. > >Your husband may have parasites larvae in his brain. > > >Dusan Stojkovic >http://home.sol.no/~dusan/epilepsy.html >http://home.sol.no/~dusan/parasitespage.html >http://home.sol.no/~dusan/aspartame.html >http://home.sol.no/~dusan/sugarpage.html > > > > >Parasites and seizures : >_______________________________________ > >Symptoms: >seizures, mental disturbances, focal neurologic deficits, and signs of a >space-occupying intracerebral lesion. > > >Paraistes and your health > >http://www.dpd.cdc.gov/dpdx/html/frames/a%2Df/cysticercosis/body_Cysticercos >is_page1.htm > > > >Cysticercosis >[Taenia solium] [Taenia spp.] >(Tapeworm) > > >---------------------------------------------------------------------- > >Causal Agent: > >The cestode (tapeworm) Taenia solium (pork tapeworm) is the main cause of >human cysticercosis. In addition, other Taenia species (e.g., multiceps, >serialis, browni, taeniaformis, crassiceps) can cause occasionally >cysticercosis in various sites including the brain, subcutaneous tissue, >eye, or liver. > >Life Cycle: >Cysticercosis occurs when a human ingests eggs of Taenia solium. >See the life cycle of T. solium in taeniasis. > >Geographic Distribution: > >Taenia solium is found worldwide. Because pigs are intermediate hosts of >the parasite, completion of the life cycle occurs in regions where humans >live in close contact with pigs and eat undercooked pork.(sausagges) >Taeniasis and cysticercosis are very rare in Muslim countries. It is >important to note that human cysticercosis is acquired by ingesting T. >solium eggs shed in the feces of a human T. solium tapeworm carrier, and >thus can occur in populations that neither eat pork nor share environments >with pigs. > >Clinical Features: >The symptoms of cysticercosis are due to the development of cysticerci in >various sites. Of greatest concern is cerebral cysticercosis, which can >cause diverse manifestations including seizures, mental disturbances, focal >neurologic deficits, and signs of a space-occupying intracerebral lesion. >Death can occur suddenly. Extracerebral cysticercosis can cause ocular, >cardiac, or spinal lesions with resulting symptoms. Asymptomatic >subcutaneous nodules and calcified intramuscular nodules can be >encountered. > > >Laboratory Diagnosis: >The definitive diagnosis consists of demonstrating the cysticercus in the >tissue involved. Demonstration of Taenia solium eggs and proglottids in >the >feces diagnoses taeniasis and not cysticercosis. While suggestive, it does >not necessarily prove that cysticercosis is present. Persons who are found >to have eggs or proglottids in their feces should be evaluated >serologically >since autoinfection, resulting in cysticercosis, can occur. > >Diagnostic findings > >Antibody detection provides a useful adjunct in specific diagnosis. > >________________________________________________________ > > > > > > > > > >Symptoms: severe headaches, nausea, vomiting, neck stiffness, seizures, and >neurologic abnormalities. > > > >Angiostrongyliasis > > >Parasites and health >http://www.dpd.cdc.gov/DPDx/ > >[Angiostrongylus cantonensis] [Angiostrongylus costaricensis] > >---------------------------------------------------------------------------- >---- > >Clinical Features: > >Clinical symptoms of eosinophilic meningitis are caused by the presence of >the larvae in the brain and by the local host reactions. Symptoms include >severe headaches, nausea, vomiting, neck stiffness, seizures, and >neurologic abnormalities. Occasionally, ocular invasion occurs. >Eosinophilia is present in the majority of cases. Most patients recover >fully. Abdominal angiostrongyliasis mimics appendicitis, with >eosinophilia. > > > >Causal Agents: > >The nematode (roundworm) Angiostrongylus cantonensis, the rat lungworm, is >the most common cause of human eosinophilic meningitis. In addition, >Angiostrongylus (Parastrongylus) costaricensis is the causal agent of >abdominal, or intestinal, angiostrongyliasis. > >Life Cycle: > >Adult worms of A. cantonensis live in the pulmonary arteries of rats and >rodents. The females lay eggs that hatch, yielding first stage larvae, in >the terminal branches of the pulmonary arteries. The first stage larvae >migrate to the pharynx, are swallowed and are passed in the feces. They >invade an intermediate host (snail or slug). After two molts, third stage >larvae are produced, which are infective to mammalian hosts. When the >mollusk is ingested by the definitive host, the third stage larvae migrate >to the brain where they develop into young adults. The young adults return >to the venous system and then the pulmonary arteries where they become >sexually mature. Of note, various animals act as paratenic (transport) >hosts: after ingesting the infected snails, they carry the third stage >larvae which can resume their development when the paratenic host is >ingested by a definitive host. Humans acquire the infection by eating >uncooked snails or slugs, vegetables contaminated with mollusks secretions, >or infected paratenic animals (crabs, freshwater shrimps). In humans, the >development of the third stage larvae is stalled in the brain, where they >die. The life cycle of Angiostrongylus (Parastrongylus) costaricensis is >similar, except that the adult worms reside in the arterioles of the >ileocaecal area of the definitive host. In humans, the eggs and larvae >degenerate and cause local inflammatory reactions. > >Geographic Distribution: >Most cases of eosinophilic meningitis have been reported from Southeast >Asia and the Pacific Basin. Abdominal angiostrongyliasis has been >reported from Costa Rica, and occurs mainly in children less than 13 years >old. > > > >Laboratory Diagnosis: >In eosinophilic meningitis the cerebrospinal fluid (CSF) is abnormal >(elevated pressure, proteins, and leukocytes; eosinophilia). On rare >occasions, larvae have been found in the CSF. In abdominal >angiostrongyliasis, eggs and larvae can be identified in the tissues >removed at surgery. > > > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Hey Belinda, Do you have your driver's license? Becky >From: Belinda Brown <belinda5000@...> >Reply- onelist > onelist >Subject: Re: [ ] Welcome >Date: Wed, 23 Jun 1999 14:48:48 -0700 (PDT) > >From: Belinda Brown <belinda5000@...> > > > >--- ShareeMQ@... wrote: > > From: ShareeMQ@... > > >I've had Epilepsy for 35 years. >I've had brain surgery , i've been on 13 different meds in 35 years. >Its been a few years since I've had a grand mal SZ. > Belinda > > > > My husband is in the Army....and was perfectly > > healthy until he went on a > > deployment to Haiti in March.....a month later he > > was being medivac to Walter > > in D.C. There is one more soldier to come back > > with seizures. He had a > > grand mal seizure....in Haiti...all tests came back > > neg. he had another > > seizure a week after getting out of the hospital. > > He was then put on > > Dilantin 300MG....a day....he has several small > > seizures (petit mal) but > > nothing big. We are still trying to figure out why > > this happened. > > > > Please keep us in your thoughts > > > > Cheri > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Hi- I have my driver's license, and haven't had a sz in years. My state is so backward on the laws, when I was 21 I felt honest that day an told them I had seizures, and explained what type they were (I don't lose consouisness). They WHISPERED " She checked the black box... " I thought, " Where am I? Is this a state agency? " It took years, but I finally got it back. It's just part of the discrimination against people with epilepsy. They didn't ask what the seizures were like, or the duration of the episode, etc. Nuts! Becky >From: Belinda Brown <belinda5000@...> >Reply- onelist > onelist >Subject: Re: [ ] Welcome >Date: Thu, 24 Jun 1999 05:23:54 -0700 (PDT) > >From: Belinda Brown <belinda5000@...> > > >dear, Becky No I dont have a drivers liscense I've never had one. > It scares me to drive and anyone who drives and has seizures who isn't >controlled is breaking the law you have to go 1 yr sz free before you >get a liscense in my state. > Belinda >--- rebecca baldwin <calicomist@...> wrote: > > From: rebecca baldwin <calicomist@...> > > > > Hey Belinda, > > Do you have your driver's license? > > > > Becky > > > > > > >From: Belinda Brown <belinda5000@...> > > >Reply- onelist > > > onelist > > >Subject: Re: [ ] Welcome > > >Date: Wed, 23 Jun 1999 14:48:48 -0700 (PDT) > > > > > >From: Belinda Brown <belinda5000@...> > > > > > > > > > > > >--- ShareeMQ@... wrote: > > > > From: ShareeMQ@... > > > > > > >I've had Epilepsy for 35 years. > > >I've had brain surgery , i've been on 13 different > > meds in 35 years. > > >Its been a few years since I've had a grand mal SZ. > > > Belinda > > > > > > > > > > My husband is in the Army....and was perfectly > > > > healthy until he went on a > > > > deployment to Haiti in March.....a month later > > he > > > > was being medivac to Walter > > > > in D.C. There is one more soldier to come > > back > > > > with seizures. He had a > > > > grand mal seizure....in Haiti...all tests came > > back > > > > neg. he had another > > > > seizure a week after getting out of the > > hospital. > > > > He was then put on > > > > Dilantin 300MG....a day....he has several small > > > > seizures (petit mal) but > > > > nothing big. We are still trying to figure out > > why > > > > this happened. > > > > > > > > Please keep us in your thoughts > > > > > > > > Cheri > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Hang in there! Are you taking any anti-convulsive medication? I'm very lucky-my seizures are controlled. Is your medication at the right level? If my Dilantin is low, I can go into epileptic emergency (a bunch of seizures in a row). I have to have blood levels run every six months or so to make sure my Dilantin levels are even. My brother had a brain tumor removed ten years ago, and he came through it okay. They can do amazing things today. He went back to work in a few months after his surgery. It wasn't the money issue; but it was the logic and operational/analytical thinking that we were worried about. But he does fine. Have you looked at http://www.dana.org ? They have identified so many different types of seizures. I know you're terrified. Stress can also play a big part in agitating seizures because it affects sleep, eating, and the immune system, etc. Relax! I don't know if you're spiritual, but I believe that God doesn't give us any more than we can handle-that helps me get through EEGs and blood tests I have to go through. Thanks for sharing-I'm here if you ever want to talk-- Becky >From: Belinda Brown <belinda5000@...> > > >Becky I've had 5 seizures this month that I know about. >I have complex partial,absence, absence and Phychomotor seizures. >I go see a neuro July 1st and I'm going to discuss about having >something done for my Epilepsy . >Where going to discuss the VAgal nerve stimulator and I'll discuss if >brain surgery would be another for me. >Im scared to death of having either done and I've done alot of crying . > Belinda >--- rebecca baldwin <calicomist@...> wrote: > > From: rebecca baldwin <calicomist@...> > > > > Hi- > > I have my driver's license, and haven't had a sz > > in years. My state is so > > backward on the laws, when I was 21 I felt honest > > that day an told them I > > had seizures, and explained what type they were (I > > don't lose consouisness). > > They WHISPERED " She checked the black box... " I > > thought, " Where am I? Is > > this a state agency? " It took years, but I finally > > got it back. > > It's just part of the discrimination against > > people with epilepsy. They > > didn't ask what the seizures were like, or the > > duration of the episode, etc. > > Nuts! > > > > Becky > > > > > > > > >From: Belinda Brown <belinda5000@...> > > >Reply- onelist > > > onelist > > >Subject: Re: [ ] Welcome > > >Date: Thu, 24 Jun 1999 05:23:54 -0700 (PDT) > > > > > >From: Belinda Brown <belinda5000@...> > > > > > > > > >dear, Becky No I dont have a drivers liscense I've > > never had one. > > > It scares me to drive and anyone who drives and > > has seizures who isn't > > >controlled is breaking the law you have to go 1 yr > > sz free before you > > >get a liscense in my state. > > > Belinda > > >--- rebecca baldwin <calicomist@...> wrote: > > > > From: rebecca baldwin <calicomist@...> > > > > > > > > Hey Belinda, > > > > Do you have your driver's license? > > > > > > > > Becky > > > > > > > > > > > > >From: Belinda Brown <belinda5000@...> > > > > >Reply- onelist > > > > > onelist > > > > >Subject: Re: [ ] Welcome > > > > >Date: Wed, 23 Jun 1999 14:48:48 -0700 (PDT) > > > > > > > > > >From: Belinda Brown <belinda5000@...> > > > > > > > > > > > > > > > > > > > >--- ShareeMQ@... wrote: > > > > > > From: ShareeMQ@... > > > > > > > > > > >I've had Epilepsy for 35 years. > > > > >I've had brain surgery , i've been on 13 > > different > > > > meds in 35 years. > > > > >Its been a few years since I've had a grand mal > > SZ. > > > > > Belinda > > > > > > > > > > > > > > > > My husband is in the Army....and was > > perfectly > > > > > > healthy until he went on a > > > > > > deployment to Haiti in March.....a month > > later > > > > he > > > > > > was being medivac to Walter > > > > > > in D.C. There is one more soldier to > > come > > > > back > > > > > > with seizures. He had a > > > > > > grand mal seizure....in Haiti...all tests > > came > > > > back > > > > > > neg. he had another > > > > > > seizure a week after getting out of the > > > > hospital. > > > > > > He was then put on > > > > > > Dilantin 300MG....a day....he has several > > small > > > > > > seizures (petit mal) but > > > > > > nothing big. We are still trying to figure > > out > > > > why > > > > > > this happened. > > > > > > > > > > > > Please keep us in your thoughts > > > > > > > > > > > > Cheri > > > > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 dear, Becky No I dont have a drivers liscense I've never had one. It scares me to drive and anyone who drives and has seizures who isn't controlled is breaking the law you have to go 1 yr sz free before you get a liscense in my state. Belinda --- rebecca baldwin <calicomist@...> wrote: > From: rebecca baldwin <calicomist@...> > > Hey Belinda, > Do you have your driver's license? > > Becky > > > >From: Belinda Brown <belinda5000@...> > >Reply- onelist > > onelist > >Subject: Re: [ ] Welcome > >Date: Wed, 23 Jun 1999 14:48:48 -0700 (PDT) > > > >From: Belinda Brown <belinda5000@...> > > > > > > > >--- ShareeMQ@... wrote: > > > From: ShareeMQ@... > > > > >I've had Epilepsy for 35 years. > >I've had brain surgery , i've been on 13 different > meds in 35 years. > >Its been a few years since I've had a grand mal SZ. > > Belinda > > > > > > > My husband is in the Army....and was perfectly > > > healthy until he went on a > > > deployment to Haiti in March.....a month later > he > > > was being medivac to Walter > > > in D.C. There is one more soldier to come > back > > > with seizures. He had a > > > grand mal seizure....in Haiti...all tests came > back > > > neg. he had another > > > seizure a week after getting out of the > hospital. > > > He was then put on > > > Dilantin 300MG....a day....he has several small > > > seizures (petit mal) but > > > nothing big. We are still trying to figure out > why > > > this happened. > > > > > > Please keep us in your thoughts > > > > > > Cheri > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Becky I've had 5 seizures this month that I know about. I have complex partial,absence, absence and Phychomotor seizures. I go see a neuro July 1st and I'm going to discuss about having something done for my Epilepsy . Where going to discuss the VAgal nerve stimulator and I'll discuss if brain surgery would be another for me. Im scared to death of having either done and I've done alot of crying . Belinda --- rebecca baldwin <calicomist@...> wrote: > From: rebecca baldwin <calicomist@...> > > Hi- > I have my driver's license, and haven't had a sz > in years. My state is so > backward on the laws, when I was 21 I felt honest > that day an told them I > had seizures, and explained what type they were (I > don't lose consouisness). > They WHISPERED " She checked the black box... " I > thought, " Where am I? Is > this a state agency? " It took years, but I finally > got it back. > It's just part of the discrimination against > people with epilepsy. They > didn't ask what the seizures were like, or the > duration of the episode, etc. > Nuts! > > Becky > > > > >From: Belinda Brown <belinda5000@...> > >Reply- onelist > > onelist > >Subject: Re: [ ] Welcome > >Date: Thu, 24 Jun 1999 05:23:54 -0700 (PDT) > > > >From: Belinda Brown <belinda5000@...> > > > > > >dear, Becky No I dont have a drivers liscense I've > never had one. > > It scares me to drive and anyone who drives and > has seizures who isn't > >controlled is breaking the law you have to go 1 yr > sz free before you > >get a liscense in my state. > > Belinda > >--- rebecca baldwin <calicomist@...> wrote: > > > From: rebecca baldwin <calicomist@...> > > > > > > Hey Belinda, > > > Do you have your driver's license? > > > > > > Becky > > > > > > > > > >From: Belinda Brown <belinda5000@...> > > > >Reply- onelist > > > > onelist > > > >Subject: Re: [ ] Welcome > > > >Date: Wed, 23 Jun 1999 14:48:48 -0700 (PDT) > > > > > > > >From: Belinda Brown <belinda5000@...> > > > > > > > > > > > > > > > >--- ShareeMQ@... wrote: > > > > > From: ShareeMQ@... > > > > > > > > >I've had Epilepsy for 35 years. > > > >I've had brain surgery , i've been on 13 > different > > > meds in 35 years. > > > >Its been a few years since I've had a grand mal > SZ. > > > > Belinda > > > > > > > > > > > > > My husband is in the Army....and was > perfectly > > > > > healthy until he went on a > > > > > deployment to Haiti in March.....a month > later > > > he > > > > > was being medivac to Walter > > > > > in D.C. There is one more soldier to > come > > > back > > > > > with seizures. He had a > > > > > grand mal seizure....in Haiti...all tests > came > > > back > > > > > neg. he had another > > > > > seizure a week after getting out of the > > > hospital. > > > > > He was then put on > > > > > Dilantin 300MG....a day....he has several > small > > > > > seizures (petit mal) but > > > > > nothing big. We are still trying to figure > out > > > why > > > > > this happened. > > > > > > > > > > Please keep us in your thoughts > > > > > > > > > > Cheri > > > > > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 1999 Report Share Posted June 24, 1999 Becky yes I take AEDs I take 1500MG Tegretol a day 400MG Topamax and 0.5MG Klomopin. Im in the 30% that's not controllable by meds or surgery. The doc that delivered caused my epilepsy. I've had brain surgery. I've taken 13 different drugs in my life time. I gave up long ago on my seizures ever getting under control. My neuro has never found the right drug to work for me to control my seizures. Epilepsy emergency is called Status for short. Sorry I dont mean to sound like a know it all. I get toxic on Dilantin at 300MG I was on it for 30 years. what state you in ? Im in Georgia Belinda --- rebecca baldwin <calicomist@...> wrote: > From: rebecca baldwin <calicomist@...> > > Hang in there! Are you taking any anti-convulsive > medication? I'm very > lucky-my seizures are controlled. Is your medication > at the right level? If > my Dilantin is low, I can go into epileptic > emergency (a bunch of seizures > in a row). I have to have blood levels run every six > months or so to make > sure my Dilantin levels are even. > My brother had a brain tumor removed ten years > ago, and he came through it > okay. They can do amazing things today. He went back > to work in a few months > after his surgery. It wasn't the money issue; but it > was the logic and > operational/analytical thinking that we were worried > about. But he does > fine. > Have you looked at http://www.dana.org ? They > have identified so many > different types of seizures. > I know you're terrified. Stress can also play a > big part in agitating > seizures because it affects sleep, eating, and the > immune system, etc. > Relax! I don't know if you're spiritual, but I > believe that God doesn't give > us any more than we can handle-that helps me get > through EEGs and blood > tests I have to go through. > Thanks for sharing-I'm here if you ever want to > talk-- > > Becky > > > > >From: Belinda Brown <belinda5000@...> > > > > > >Becky I've had 5 seizures this month that I know > about. > >I have complex partial,absence, absence and > Phychomotor seizures. > >I go see a neuro July 1st and I'm going to discuss > about having > >something done for my Epilepsy . > >Where going to discuss the VAgal nerve stimulator > and I'll discuss if > >brain surgery would be another for me. > >Im scared to death of having either done and I've > done alot of crying . > > Belinda > >--- rebecca baldwin <calicomist@...> wrote: > > > From: rebecca baldwin <calicomist@...> > > > > > > Hi- > > > I have my driver's license, and haven't had a > sz > > > in years. My state is so > > > backward on the laws, when I was 21 I felt > honest > > > that day an told them I > > > had seizures, and explained what type they were > (I > > > don't lose consouisness). > > > They WHISPERED " She checked the black box... " > I > > > thought, " Where am I? Is > > > this a state agency? " It took years, but I > finally > > > got it back. > > > It's just part of the discrimination against > > > people with epilepsy. They > > > didn't ask what the seizures were like, or the > > > duration of the episode, etc. > > > Nuts! > > > > > > Becky > > > > > > > > > > > > >From: Belinda Brown <belinda5000@...> > > > >Reply- onelist > > > > onelist > > > >Subject: Re: [ ] Welcome > > > >Date: Thu, 24 Jun 1999 05:23:54 -0700 (PDT) > > > > > > > >From: Belinda Brown <belinda5000@...> > > > > > > > > > > > >dear, Becky No I dont have a drivers liscense > I've > > > never had one. > > > > It scares me to drive and anyone who drives > and > > > has seizures who isn't > > > >controlled is breaking the law you have to go 1 > yr > > > sz free before you > > > >get a liscense in my state. > > > > Belinda > > > >--- rebecca baldwin <calicomist@...> > wrote: > > > > > From: rebecca baldwin > <calicomist@...> > > > > > > > > > > Hey Belinda, > > > > > Do you have your driver's license? > > > > > > > > > > Becky > > > > > > > > > > > > > > > >From: Belinda Brown <belinda5000@...> > > > > > >Reply- onelist > > > > > > onelist > > > > > >Subject: Re: [ ] Welcome > > > > > >Date: Wed, 23 Jun 1999 14:48:48 -0700 (PDT) > > > > > > > > > > > >From: Belinda Brown <belinda5000@...> > > > > > > > > > > > > > > > > > > > > > > > >--- ShareeMQ@... wrote: > > > > > > > From: ShareeMQ@... > > > > > > > > > > > > >I've had Epilepsy for 35 years. > > > > > >I've had brain surgery , i've been on 13 > > > different > > > > > meds in 35 years. > > > > > >Its been a few years since I've had a grand > mal > > > SZ. > > > > > > Belinda > > > > > > > > > > > > > > > > > > > My husband is in the Army....and was > > > perfectly > > > > > > > healthy until he went on a > > > > > > > deployment to Haiti in March.....a month > > > later > > > > > he > > > > > > > was being medivac to Walter > > > > > > > in D.C. There is one more soldier > to > > > come > > > > > back > > > > > > > with seizures. He had a > > > > > > > grand mal seizure....in Haiti...all > tests > > > came > > > > > back > > > > > > > neg. he had another > > > > > > > seizure a week after getting out of the > > > > > hospital. > > > > > > > He was then put on > > > > > > > Dilantin 300MG....a day....he has > several > > > small > > > > > > > seizures (petit mal) but > > > > > > > nothing big. We are still trying to > figure > > > out > > > > > why > > > > > > > this happened. > > > > > > > > > > > > > > Please keep us in your thoughts > > > > > > > > > > > > > > Cheri > > > > > > > > > > > > > > --------------------------- ONElist > Sponsor > > > > > > > ---------------------------- > > > > > > > > > > > > > > Where do some of the Internet's largest > > > email > > > > > lists > > > > > > > reside? > > > > > > > > > > > > > > At ONElist - the most scalable and > reliable > > > > > service > > > > > > > on the Internet. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------------------------------------------ > > > > > > > _ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 Belinda Brown wrote: > I go see a neuro July 1st and I'm going to discuss about having something > done for my Epilepsy . > Where going to discuss the VAgal nerve stimulator and I'll discuss if brain > surgery would be another for me. Yikes! Why don't you try Hulda 's methods first? Get The Cure for All Diseases (available in most health food stores) and check out Self Health's web site for updates on info (which does change as she discovers more). The lowdown is that epilepsy, as well as asthma (of which I have both) is caused by a stubborn parasite called ascaris. It is hard to kill, but it can be done, with the parasite program and a supplementary program using coenzyme Q10, cysteine, and ozonated olive oil. You must also work to avoid all toxins, which depress your immune system, which you need in order to fight off the parasites. Also avoid pets, which will cause reinfection of ascaris. I have well-controlled juvenile myoclonic epilepsy, which yields tonic clonics and myoclonic twitches, and psychomotor seizures. However, I don't like being on medication (Depakote and now Felbatol), especially with the effects it has on my mental functioning, most notably short-term memory. So in the near future, I am planning on lightening my work load and concentrating on doing the parasite killing and cleansing program and then slowly going off my meds. We'll see what happens. If I'm seizure free, then I'd like to take an EEG so I can prove to my neurologist the results. (Did you all see the post from the woman who cured her son of epilepsy this way? It was about two weeks ago.) Let me warn you advance that you will not get supported in this endeavor by your neurologist, so I wouldn't recommend bringing it up to him, because he'll just try to talk you out of it. aa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 The treatment for parasites in the brain sounds interesting, but I'm a medical person. I'm biased-I'm on my way to medical school and Dad was a hospital administrator. If my neurolgist tries to talk me out of anything, I'll listen to him. S/he's spent many years studying the functions of the human body and the effect chemical therapy (medicine) has on diseases and disorders. Is there a medical test to determine if there are parasites in the brain? I've lived with a seizure disorder too long not to take it seriously (twenty plus years). Fooling around with herbs may cost me my life, since any absence of anti-convulsant medication allows me to have seizures, and too many in a row can cause an epileptic emergency, and death. And I only have one life. Herbs used in conjunction with regular trips to a neurologist and anti-convulsant meds are okay; but expecting to live without anti-convulsant meds are not an option for me. After I started taking the meds, I gave birth to a daughter, earned a college degree, (I'm a teacher), and got my driver's license back. I refuse to voluntarily give up my quality of life that the anti-convulsive meds and medical science has given me. BTW, what are Hulda s' medical credentials? There is NO way around the anti-convulsive medications. I cook with olive oil, and I still have to take my meds. If someone cured someone else of epilepsy, then in all probability they didn't have epilepsy in the first place-where adnormal brain waves are recorded on an EEG. And what about the role pets play in relieving stress? Stress affects hte immune system. And stress is a trigger for seizures. Wouldn't that be throwing the baby out with the bath water to say . " Eliminate pets! " ? Becky >From: " A.A. Milne " <poohbear@...> >Reply- onelist >Belinda Brown wrote: > > > I go see a neuro July 1st and I'm going to discuss about having >something > > done for my Epilepsy . > > Where going to discuss the VAgal nerve stimulator and I'll discuss if >brain > > surgery would be another for me. > >Yikes! Why don't you try Hulda 's methods first? Get The Cure for >All >Diseases (available in most health food stores) and check out Self Health's >web site for updates on info (which does change as she discovers more). >The >lowdown is that epilepsy, as well as asthma (of which I have both) is >caused >by a stubborn parasite called ascaris. It is hard to kill, but it can be >done, with the parasite program and a supplementary program using coenzyme >Q10, cysteine, and ozonated olive oil. You must also work to avoid all >toxins, which depress your immune system, which you need in order to fight >off the parasites. Also avoid pets, which will cause reinfection of >ascaris. > >I have well-controlled juvenile myoclonic epilepsy, which yields tonic >clonics and myoclonic twitches, and psychomotor seizures. However, I don't >like being on medication (Depakote and now Felbatol), especially with the >effects it has on my mental functioning, most notably short-term memory. >So >in the near future, I am planning on lightening my work load and >concentrating on doing the parasite killing and cleansing program and then >slowly going off my meds. We'll see what happens. If I'm seizure free, >then >I'd like to take an EEG so I can prove to my neurologist the results. (Did >you all see the post from the woman who cured her son of epilepsy this way? >It was about two weeks ago.) > >Let me warn you advance that you will not get supported in this endeavor by >your neurologist, so I wouldn't recommend bringing it up to him, because >he'll just try to talk you out of it. > >aa ><< poohbear.vcf >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 I agree with you Becky....although my husband has only been " epileptic " for a couple of months.......(going to see the doc wed to find out more on what could be causing this) I agree that without the meds my hubby is on......he could have a grand mal seizure anytime, anywhere, that is very scary. The Dilantin is security for us....knowing that we don't have to be on guard with his life 100% of the time. I love my husband way too much to see him suffer that way.....his life is very important to him and me.....to quit taking his meds......and replace them with herbs? Isn't that asking for something bad to happen? Maybe I am not open-minded enough.....although I think I am....that's just not something I would consider doing. Thanks for your insight Becky!!! Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 1999 Report Share Posted June 25, 1999 rebecca baldwin wrote: > Is there a medical test to determine if there are parasites in the brain? I have heard of some, but none that I know about in detail that I can report with confidence. > BTW, what are Hulda s' medical credentials? She has her B.A., Magna Cum Laude, M.A., with High Honors--both in biology, a Ph.D. in physiology, and an N.D. (naturopathic doctor). > > There is NO way around the anti-convulsive medications. I cook with olive > oil, and I still have to take my meds. I was referring to ozonated olive oil--not just olive oil. One has to buy a special ozonator to do this. > If someone cured someone else of epilepsy, then in all probability they > didn't have epilepsy in the first place-where adnormal brain waves are > recorded on an EEG. He very much did have epilepsy, and the change was shown on the EEG (abnormal to normal). The story I was referencing seems to be one you didn't read (probably because you weren't on the list yet). I am going to paste it to the end of my message. (Perhaps you want to call this woman to verify the results. Pretty brave of her to put her phone number on the internet, I think.) > And what about the role pets play in relieving stress?.. Wouldn't that be > throwing the baby out with the bath water to say . " Eliminate pets! " ? It's all on a relative scale. Certainly stress affects all aspects of health, but some things play a bigger role, e.g., parasites, in contributing factors. Becky, it's clear that you are too steeped in the allopathic medical model to consider natural alternatives, but this is a list originated by a natural healer in Norway, who advocates Hulda 's methods, so please bear that in mind. aa Success Stories Using The Method Dear Bonnie, May 11, 1997 Our son Trace (Tr- " ace " ) had his first grand mal seizure on his third birthday, February 11, 1996 (one year and three months ago). The seizure lasted approximately 3 to 5 minutes and he was unconscious for one and a half hours afterward. He was taken to emergency and a Pediatric Neurologist was contacted. Since it was Sunday the Neurologist didn't come in, instead he listened to Trace's history over the phone and advised that he be started on Dilantin. This was the start of our nightmare. Staph Infection At Birth: Trace's history includes a rough first year of life. He had contracted a staph infection in his eyes in the hospital where he was born. It quickly spread to his ears, and at one week he had double ear infections. From that time on he suffered chronic ear infections and was constantly on stronger and stronger antibiotics. At nine months, after nine double ear infections, he had tubes placed in both ears. One month later he was finally off antibiotics (for a short time). He continued to have sinus problems and was very susceptible to any illness going around, including strep throat. During his first year he had multiple high fevers (over 104°), but had never had a convulsion. A Dog Bite (A Minor Puncture Wound) and Convulsions: At 13 months Trace suffered a minor dog bite (single puncture wound) to his left cheek. Fourteen hours after being bitten the left side of his face swelled dramatically and his fever went over 105° despite medication. When I picked him up to take him to emergency he began convulsing. The convulsing lasted 10 to 15 seconds and occurred twice in a few minutes. He was in the hospital for three days and on IV antibiotics to resolve the infection. He did not have any additional convulsions. At that time the doctors did a series of blood tests to evaluate his immune system since they felt he should not have reacted so severely to a minor puncture wound. Nothing was found. From that day forward whenever Trace had a high fever (over 103°) he would occasionally have brief one second convulsions. When we told his Pediatrician about this she said: " Febrile seizures are very common and nothing to worry about. " When Trace was about two and a half his convulsions started occurring even with 100° temperatures. We were again told that this was " nothing to worry about. " A Bump On The Head Leads To More Serious Seizures: A month before his third birthday, January 1, 1996, Trace fell off of an 8 " stool and hit his head on the bathroom floor. He went completely limp and was unresponsive, then suddenly his body jerked and he returned to consciousness. We had called 911, but by the time the paramedics arrived he appeared dazed, but normal. The paramedics were preparing to leave when Trace suddenly convulsed again. The paramedic sitting with him on the couch saw it and insisted he be taken to the hospital. At the hospital he had a computed tomographic (CT) scan which was negative for swelling and they released him to follow-up with his Pediatrician the next day. This time his Pediatrician decided it might be wise to do an electroencephalography (EEG) sometime in the future - but there was no rush. Four weeks later Trace came down with a fever of 105°+ for no apparent reason, and he had over 10 convulsions in a 24 hour period. At the emergency room the doctors took Trace's blood for testing and scheduled the EEG for the next day. The fever resolved in two more days. We were still waiting for the EEG report when Trace was sent home (his blood work showed nothing). Grand Mal Seizures: On February 11, 1996 Trace showed no sign of being sick, but when I was dressing him for Church I thought he jerked. I wasn't sure, and he seemed fine, so we went to Church and thought nothing of it. Two hours later, again for no apparent reason, he had a grand mal seizure. From that time on his longest period without a seizure was two weeks. At first the doctors were optimistic because up to this time he had developed normally and was a very intelligent child. These were good indications. However, we found out that the convulsions or jerk that he had been having since he was 13 months old were not normal febrile seizures. They were myoclonic jerks which are not common. Despite increased medications the myoclonic seizures became a daily occurrence as well as almost daily grand mal seizures. In addition, we now had to deal with the side effects of his medications. Over the next six months the doctors went from optimistic to confused to sorry. Trace went from our normal three year old son to a child who could barely walk, talk or feed himself, let alone play or enjoy life. Five Different Types of Seizures/Over 100 Each Day: Trace had five different types of seizures: Tonic-clonic (grand mal), myoclonic, atomic or drop seizures, absence (petit mal) and atypical absence. At his worst he had over 100 seizures a day. The specialists at UCSF Epileptology Center didn't have anything to offer and they felt our doctors were proceeding just as they would. Some medications would help for a few days or at best a week, and then he'd get worse than before. We spent weeks on end in the Pediatric ICU since he was frequently in status epilepticus. They did multiple EEGs including one with a 24 hour closed circuit TV. They did multiple MRIs, spinal taps, and blood tests. Nothing produced answers. The Ketogenic Diet Proves Devastating: Finally we turned to the Ketogenic Diet, a very radical high fat diet used with children with uncontrollable seizures. We though this was God's answer to our prayers. We were going to give it our best shot. Our son almost died from it. He was unable to eat or drink the high fat liquids and foods which are necessary for the diet to work. He would vomit everything right back up and finally refused to eat altogether. The doctors and the dietitian felt that eventually he would get hungry enough that he would eat anything. He dropped from a very thin 30 pounds to 24 ½ pounds and became so weak he could hardly sit up - and the seizures never let up. Prayers and God's Helpers: We prayed everyday for answers and we had people all over the west coast praying and searching for answers. Many people were sending us information about alternative treatments, diets, supplements, etc. When we would get something that sounded feasible or made sense we would ask the doctors about it. One friend of ours, Paris, was very persistent in sending us any information she could find. " Pay attention! Here's the answer that you've been asking for! " It was Paris who told us about Dr. 's book The Cure For All Cancers and the possibility that seizures might be related to parasites. (She had used the liver cleanse recipe in the book for some health problems she had had and it had been very effective.) Because of Trace's dog bite the information about parasites immediately touched something inside of us. At this time Trace was in the hospital due to status epilepticus and we asked the doctors if his condition could be caused by or related to parasites and we mentioned, again, about the dog bite. They said there was no chance: " Something would have shown on the MRIs or the blood tests, etc. " We didn't think much more about it until two weeks later when sent us a copy of a chapter out of another of Dr. 's books. The book was The Cure For All Diseases ( had found it in her health food store). I did not like the title and was very skeptical when I began reading. The first sentence made me even more skeptical: " Seizures are always caused by Ascaris. " My first thought was: " No way! " But, after reading the whole chapter, I couldn't shake the feeling that this made a lot of common sense. It connected so directly with different experiences we had had with Trace that I felt like God was slapping me in the face and saying: " Pay attention! Here's the answer that you've been asking for! " For instance, when Trace had been seizure free for a week and seemed to be doing well, why did he go into status epilepticus out of the blue . . . two hours after he had eaten Chinese food? He always ate his favorite Chinese food: chicken chow mein and sweet and sour pork (MSG, red dye, canned pineapple and pork). Also, he didn't get soda at home, but when we went out to a Chinese restaurant he would always have soda (Xylene, toluene). Trace Diagnosed with Lennox-Gestaut: One week after reading Dr. 's information our doctors informed us that they believed what we had feared most was true . . . Trace had Lennox-Gestaut, a relatively rare, incurable and progressive form of epilepsy. The prognosis was that he would be severely retarded in three to five years. He was already non-functional due to 100+ seizures per day and the side effects of the four different drugs he was taking. The doctors said he would most likely die in his teens to early twenties of one continuous seizure. All the doctors had to offer were some experimental and/or out-of-the-country drugs which might slow the process and to attempt the Ketogenic Diet again by putting a tube into his stomach. We couldn't accept this. An Avenue of Hope Leads To Success: I tracked down Dr. and called her clinic in Tijuana, Mexico. I was able to talk directly to Dr. . I told her my son's condition, his diagnosis and prognosis. She said: " Bring him down immediately. " I asked her: " Do you think you can help him? " She said: " I think I can cure him, bring him down. " Faced with doctors who didn't think they could do anything for Trace and one who said she could cure him, we felt it was pretty obvious what we should do. Nevertheless, we were scared. Especially about taking a sick child into Mexico - we had heard that Tijuana was not the most honest or the cleanest place in the world. We got lots of different opinions about what we were about to do from friends, family and especially Trace's doctors. The people who had seen Trace at his worst understood why we had to pursue this avenue of hope. Even Trace's Neurologist supported us. He didn't believe it would work but he said he would probably do the same if it were his child. The first day we went to the clinic we were relieved by its appearance and location. Trace had a blood test and a technician took a saliva sample for Syncrometer testing (Trace refused to be probed so all Syncrometer testing was done using his saliva). We talked with many patients already being treated - mainly for cancer. The stories were amazing - all of Dr. 's patients were dramatically better or even cured. The second day we saw Dr. . She reviewed and compared the Syncrometer and blood tests. She told us what was wrong with Trace and what needed to be done to correct it. She wrote out a whole list of things we needed to do. She tested my husband and me for Ascaris and we were both positive. (Before we left for Mexico, on Dr. 's instructions by phone, we had given away our dog and steam cleaned our carpets.) We left her office completely overwhelmed. The scariest thing was that she told us Trace would have to come off of all of his medication (because it was contaminated with benzene and was killing his liver). We returned home with a Zapper and all the supplements that Dr. told us to get. Two days later we saw our Neurologist. He reviewed Dr. 's tests and recommendations. Her blood test checked out against his and, in his opinion, nothing Dr. recommended seemed dangerous - except stopping the medications. But, since they didn't seem to be doing much good anyway, he gave us a conservative schedule for tapering Trace off all of his medications. We started Trace zapping (7 minutes on and 20 minutes off, three consecutive times, repeated once a day) and taking ½ teaspoon of Black Walnut Tincture Extra Strength in ½ a glass of water twice a week. (This regime is to be continued for two years.) During the first week Trace's seizures got worse, especially when we began reducing his medication. The first dramatic improvement we noted was when we began giving Trace taurine three times a day. This seemed to reduce the drop seizures and myoclonic jerks. Over the next two weeks Trace went from 100+ seizures per day to seizure-free!! His nighttime and early morning seizures were the last to go. Herbal Modifications: Even though cloves and wormwood capsules were not appropriate for Trace both my husband and I were instructed to take them. My husband does not take the Black Walnut Tincture because it contains alcohol, but I take it, and we are both zapping. Syncrometer Investigation Proves Successful: When attending the Syncrometer class I had one of Trace's stuffed animals tested. It tested positive for toluene, a solvent highly toxic to the brain. Trace slept with stuffed animals all over his bed. The day I returned home from the Syncrometer class we removed all stuffed animals from his room - and that was his first night seizure-free! Temporary Setbacks: Trace went 25 days seizure-free and during that time we were able to eliminate two medications. Then, on the 23rd day, before we could stop him, he hugged a dog. He put his face right in the dog's fur and gave him a big hug. We zapped him that night and the next night, but he woke up the following morning with a grand mal seizure. We asked ourselves: " Why didn't the Zapper stop the parasites from returning to the brain? " We speculated that since Trace had a chronic runny nose that possibly the parasites were shielded in his fluid-filled sinuses. Dr. reports that it takes as little as two days for Ascaris eggs to hatch and the microscopic larva to travel back to the seizure center of the brain. Trace had one other relapse 15 days following the first. It occurred two days after a visit to his Pediatric Neurologist. At the Neurologist's office, while waiting in the waiting room, he played on the floor with other children who have seizures - and they were all handling the same toys. This second relapse resulted in the most violent grand mal seizure he ever had. However, with multiple zapping and administering Black Walnut Tincture Extra Strength, he was back to normal by 2 pm (after waking up with the seizure that morning). Both relapses occurred less than two days after Trace was exposed to likely parasite egg-carriers and we believe the parasite eggs hatched and reached his brain in less than two days because of his fluid-filled sinuses being directly in front of his brain. Trace has now been seizure-free and medication-free for ten months. He has no apparent deficits or delays. His chronic runny nose resolved three days after his last dose of anti-seizure medication. During the past 10 months Trace got sick one time and we discovered it was because our Zapper was broken. His fever went to 104°, but he didn't have a single twitch, let alone a seizure. We have learned to give Trace a dose of Black Walnut Tincture Extra Strength after exposure to animals or situations which are high risk for parasites, and then we continue from there with his twice per week dosage. " Trace, The Miracle Child " One month ago Trace had an EEG because his Neurologist wanted to see what it would show. His EEG was completely normal!!! According to our doctors no child diagnosed with Lennox-Gestaut has ever been seizure-free, medication-free, or had normal development and a normal EEG before. The doctors call Trace " The Miracle Child. " We know God blessed us with a miracle and Dr. was His tool. Through hearing about our experience many other people have produced dramatic changes in their health by pursuing Dr. 's methods. Among the people following Dr. 's methods, after hearing about Trace, are two other patients of our Neurologist. One was given our number by the Neurologist himself. We dearly thank Dr. for all she has done. Neways, A Company With Carcinogen Free/Solvent-Free Personal Care Products: Our life has recently become a little easier, in regard to following Dr. 's instructions for a solvent-free life. We were introduced to a company named Neways that claims to make carcinogen-free and solvent-free health and personal care products. I was, of course, very skeptical of this since many products claiming to be natural or pure had failed testing with my Syncrometer. A friend gave me samples of Neways' shampoos, body washes, toothpaste and multipurpose cleaners. I tested them with my Syncrometer and they tested clean. Not completely confident with my own results, I sent six of their products to be tested by Carmen Myers at the Self Health Resource Center. Five out of the six tested completely clean. The sixth Carmen felt might have a trace amount of tetrazine (a yellow food coloring). Tetrazine is not associated with any specific health problem but Dr. advises against it because it is difficult for the kidneys to eliminate. Carmen's tests were not conclusive for tetrazine, but I contacted the company anyway to ask about it. They assured me that no dyes are used in processing their products. I am inclined to trust them because of the purity of their other products. I have been thrilled to find such pure products. Dr. has been invited to the Neways' plant to test all their products. Hopefully she will do this soon. The five completely pure products are: 1. Maximol Solutions - a colloidal mineral solution with vitamins, amino acids and enzymes. 2. Silken Mild Family Shampoo 3. Purge - a parasite cleanse formula 4. Radiance - a tooth paste that also whitens 5. Eliminator - a mouthwash and multipurpose antibacterial, antimold, antifungal cleaner The Product with a slight possibility of Tetrazine but otherwise pure: 1. Revenol - a super antioxidant containing pycnogenol from pine bark and grapeseed extract Questions? Do you have questions? Please call and I'll be happy to answer any questions you might have. Call: (209) 745-9638. God Bless. 893 Black Canyon Court Galt, CA 95632 (209) 745-9638 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 1999 Report Share Posted June 26, 1999 If I ever started fooling around with herbs stopped taking my meds I'd going into status it would kill me. I use to be a volunteer at the epilepsy foundation and I've read up on Epilepsy in my 35 years of having it. I dont believe in health food stores be able to cure me. I talked with my primary care doc once about taking certain vitamin it hadn't been approved by the FDA and I don't know how it would react to meds. People all over the world have brain surgery all the time. I don't beleive Epilepsy can be cured . My hubby had brain surgery in 1972 his seizueres stopped. My seizures where caused by doctor who delivered me he delivered me forceps the presure on my brain is what did it to me. I'll do what I think is right to try get my seizures stopped. I have Absence,Phychomotor,and Complex partial seizures. If someone else's seizures are controlled thats great. Belinda --- rebecca baldwin <calicomist@...> wrote: > From: rebecca baldwin <calicomist@...> > > The treatment for parasites in the brain sounds > interesting, but I'm a > medical person. I'm biased-I'm on my way to medical > school and Dad was a > hospital administrator. > If my neurolgist tries to talk me out of > anything, I'll listen to him. > S/he's spent many years studying the functions of > the human body and the > effect chemical therapy (medicine) has on diseases > and disorders. > Is there a medical test to determine if there are > parasites in the brain? > I've lived with a seizure disorder too long not > to take it seriously > (twenty plus years). Fooling around with herbs may > cost me my life, since > any absence of anti-convulsant medication allows me > to have seizures, and > too many in a row can cause an epileptic emergency, > and death. And I only > have one life. > Herbs used in conjunction with regular trips to a > neurologist and > anti-convulsant meds are okay; but expecting to live > without anti-convulsant > meds are not an option for me. After I started > taking the meds, I gave birth > to a daughter, earned a college degree, (I'm a > teacher), and got my driver's > license back. I refuse to voluntarily give up my > quality of life that the > anti-convulsive meds and medical science has given > me. > BTW, what are Hulda s' medical credentials? > There is NO way around the anti-convulsive > medications. I cook with olive > oil, and I still have to take my meds. > If someone cured someone else of epilepsy, then > in all probability they > didn't have epilepsy in the first place-where > adnormal brain waves are > recorded on an EEG. > And what about the role pets play in relieving > stress? Stress affects hte > immune system. And stress is a trigger for seizures. > Wouldn't that be > throwing the baby out with the bath water to say . > " Eliminate pets! " ? > > Becky > > > > > >From: " A.A. Milne " <poohbear@...> > >Reply- onelist > > >Belinda Brown wrote: > > > > > I go see a neuro July 1st and I'm going to > discuss about having > >something > > > done for my Epilepsy . > > > Where going to discuss the VAgal nerve > stimulator and I'll discuss if > >brain > > > surgery would be another for me. > > > >Yikes! Why don't you try Hulda 's methods > first? Get The Cure for > >All > >Diseases (available in most health food stores) and > check out Self Health's > >web site for updates on info (which does change as > she discovers more). > >The > >lowdown is that epilepsy, as well as asthma (of > which I have both) is > >caused > >by a stubborn parasite called ascaris. It is hard > to kill, but it can be > >done, with the parasite program and a supplementary > program using coenzyme > >Q10, cysteine, and ozonated olive oil. You must > also work to avoid all > >toxins, which depress your immune system, which you > need in order to fight > >off the parasites. Also avoid pets, which will > cause reinfection of > >ascaris. > > > >I have well-controlled juvenile myoclonic epilepsy, > which yields tonic > >clonics and myoclonic twitches, and psychomotor > seizures. However, I don't > >like being on medication (Depakote and now > Felbatol), especially with the > >effects it has on my mental functioning, most > notably short-term memory. > >So > >in the near future, I am planning on lightening my > work load and > >concentrating on doing the parasite killing and > cleansing program and then > >slowly going off my meds. We'll see what happens. > If I'm seizure free, > >then > >I'd like to take an EEG so I can prove to my > neurologist the results. (Did > >you all see the post from the woman who cured her > son of epilepsy this way? > >It was about two weeks ago.) > > > >Let me warn you advance that you will not get > supported in this endeavor by > >your neurologist, so I wouldn't recommend bringing > it up to him, because > >he'll just try to talk you out of it. > > > >aa > ><< poohbear.vcf >> > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 1999 Report Share Posted June 28, 1999 's account just sounds like a sales pitch to me. Becky >From: " A.A. Milne " <poohbear@...> >Reply- onelist > onelist >Subject: Re: [ ] Welcome >Date: Fri, 25 Jun 1999 14:15:56 -0700 > >rebecca baldwin wrote: > > > Is there a medical test to determine if there are parasites in the >brain? > >I have heard of some, but none that I know about in detail that I can >report >with confidence. > > > BTW, what are Hulda s' medical credentials? > >She has her B.A., Magna Cum Laude, M.A., with High Honors--both in biology, >a >Ph.D. in physiology, and an N.D. (naturopathic doctor). > > > > > There is NO way around the anti-convulsive medications. I cook with >olive > > oil, and I still have to take my meds. > >I was referring to ozonated olive oil--not just olive oil. One has to buy >a >special ozonator to do this. > > > If someone cured someone else of epilepsy, then in all probability >they > > didn't have epilepsy in the first place-where adnormal brain waves are > > recorded on an EEG. > >He very much did have epilepsy, and the change was shown on the EEG >(abnormal to >normal). The story I was referencing seems to be one you didn't read >(probably >because you weren't on the list yet). I am going to paste it to the end of >my >message. (Perhaps you want to call this woman to verify the results. >Pretty >brave of her to put her phone number on the internet, I think.) > > > And what about the role pets play in relieving stress?.. Wouldn't that >be > > throwing the baby out with the bath water to say . " Eliminate pets! " ? > >It's all on a relative scale. Certainly stress affects all aspects of >health, >but some things play a bigger role, e.g., parasites, in contributing >factors. > >Becky, it's clear that you are too steeped in the allopathic medical model >to >consider natural alternatives, but this is a list originated by a natural >healer >in Norway, who advocates Hulda 's methods, so please bear that in >mind. > >aa > > >Success Stories >Using The Method > >Dear Bonnie, May 11, 1997 > >Our son Trace (Tr- " ace " ) had his first grand mal seizure on his third >birthday, >February 11, 1996 (one year and three months ago). The seizure lasted >approximately 3 to 5 minutes and he was unconscious for one and a half >hours >afterward. He was taken to emergency and a Pediatric Neurologist was >contacted. >Since it was Sunday the Neurologist didn't come in, instead >he listened to Trace's history over the phone and advised that he be >started on >Dilantin. This was the start of our nightmare. > >Staph Infection At Birth: > >Trace's history includes a rough first year of life. He had contracted a >staph >infection in his eyes in the hospital where he was born. It quickly spread >to >his ears, and at one week he had double ear infections. From that time on >he >suffered chronic ear infections and was constantly on stronger >and stronger antibiotics. At nine months, after nine double ear infections, >he >had tubes placed in both ears. One month later he was finally off >antibiotics >(for a short time). He continued to have sinus problems and was very >susceptible >to any illness going around, including strep throat. >During his first year he had multiple high fevers (over 104°), but had >never had >a convulsion. > >A Dog Bite (A Minor Puncture Wound) and Convulsions: > >At 13 months Trace suffered a minor dog bite (single puncture wound) to his >left >cheek. Fourteen hours after being bitten the left side of his face swelled >dramatically and his fever went over 105° despite medication. When I picked >him >up to take him to emergency he began convulsing. The >convulsing lasted 10 to 15 seconds and occurred twice in a few minutes. He >was >in the hospital for three days and on IV antibiotics to resolve the >infection. >He did not have any additional convulsions. At that time the doctors did a >series of blood tests to evaluate his immune system since they felt he >should >not have reacted so severely to a minor puncture wound. Nothing was found. > >From that day forward whenever Trace had a high fever (over 103°) he would >occasionally have brief one second convulsions. When we told his >Pediatrician >about this she said: " Febrile seizures are very common and nothing to worry >about. " > >When Trace was about two and a half his convulsions started occurring even >with >100° temperatures. We were again told that this was " nothing to worry >about. " > >A Bump On The Head Leads To More Serious Seizures: > >A month before his third birthday, January 1, 1996, Trace fell off of an 8 " >stool and hit his head on the bathroom floor. He went completely limp and >was >unresponsive, then suddenly his body jerked and he returned to >consciousness. We >had called 911, but by the time the paramedics arrived he appeared dazed, >but >normal. The paramedics were preparing to leave when >Trace suddenly convulsed again. The paramedic sitting with him on the couch >saw >it and insisted he be taken to the hospital. At the hospital he had a >computed >tomographic (CT) scan which was negative for swelling and they released him >to >follow-up with his Pediatrician the next day. > >This time his Pediatrician decided it might be wise to do an >electroencephalography (EEG) sometime in the future - but there was no >rush. > >Four weeks later Trace came down with a fever of 105°+ for no apparent >reason, >and he had over 10 convulsions in a 24 hour period. At the emergency room >the >doctors took Trace's blood for testing and scheduled the EEG for the next >day. >The fever resolved in two more days. We were still waiting for the EEG >report >when Trace was sent home (his blood work showed >nothing). > >Grand Mal Seizures: > >On February 11, 1996 Trace showed no sign of being sick, but when I was >dressing >him for Church I thought he jerked. I wasn't sure, and he seemed fine, so >we >went to Church and thought nothing of it. Two hours later, again for no >apparent >reason, he had a grand mal seizure. > >From that time on his longest period without a seizure was two weeks. At >first >the doctors were optimistic because up to this time he had developed >normally >and was a very intelligent child. These were good indications. However, we >found out that the convulsions or jerk that he had been having since he was >13 >months old were not normal febrile seizures. They were myoclonic jerks >which are >not common. > >Despite increased medications the myoclonic seizures became a daily >occurrence >as well as almost daily grand mal seizures. In addition, we now had to deal >with >the side effects of his medications. > >Over the next six months the doctors went from optimistic to confused to >sorry. >Trace went from our normal three year old son to a child who could barely >walk, >talk or feed himself, let alone play or enjoy life. > >Five Different Types of Seizures/Over 100 Each Day: > >Trace had five different types of seizures: Tonic-clonic (grand mal), >myoclonic, >atomic or drop seizures, absence (petit mal) and atypical absence. At his >worst >he had over 100 seizures a day. The specialists at UCSF Epileptology Center >didn't have anything to offer and they felt our >doctors were proceeding just as they would. > >Some medications would help for a few days or at best a week, and then he'd >get >worse than before. We spent weeks on end in the Pediatric ICU since he was >frequently in status epilepticus. They did multiple EEGs including one with >a 24 >hour closed circuit TV. They did multiple MRIs, spinal taps, and blood >tests. >Nothing produced answers. > >The Ketogenic Diet Proves Devastating: > >Finally we turned to the Ketogenic Diet, a very radical high fat diet used >with >children with uncontrollable seizures. We though this was God's answer to >our >prayers. We were going to give it our best shot. Our son almost died from >it. He >was unable to eat or drink the high fat liquids and foods which are >necessary >for the diet to work. He would vomit everything right back up >and finally refused to eat altogether. The doctors and the dietitian felt >that >eventually he would get hungry enough that he would eat anything. He >dropped >from a very thin 30 pounds to 24 ½ pounds and became so weak he could >hardly sit >up - and the seizures never let up. > >Prayers and God's Helpers: > >We prayed everyday for answers and we had people all over the west coast >praying >and searching for answers. > >Many people were sending us information about alternative treatments, >diets, >supplements, etc. When we would get something that sounded feasible or made >sense we would ask the doctors about it. One friend of ours, Paris, >was >very persistent in sending us any information she could find. > > " Pay attention! Here's the answer that you've been asking for! " > >It was Paris who told us about Dr. 's book The Cure For All >Cancers >and the possibility that seizures might be related to parasites. (She had >used >the liver cleanse recipe in the book for some health problems she had had >and it >had been very effective.) > >Because of Trace's dog bite the information about parasites immediately >touched >something inside of us. At this time Trace was in the hospital due to >status >epilepticus and we asked the doctors if his condition could be caused by or >related to parasites and we mentioned, again, about the dog >bite. They said there was no chance: " Something would have shown on the >MRIs or >the blood tests, etc. " We didn't think much more about it until two weeks >later >when sent us a copy of a chapter out of another of Dr. 's books. >The >book was The Cure For All Diseases ( had found it in her health food >store). I did not like the title and was very skeptical when I began >reading. >The first sentence made me even more skeptical: " Seizures are always caused >by >Ascaris. " My first thought was: " No way! " But, after reading the whole >chapter, >I couldn't shake the feeling that this made a lot of common sense. It >connected >so directly with different experiences we had had with Trace that I felt >like >God was slapping me in the face and saying: " Pay attention! Here's the >answer >that you've been asking for! " For instance, when Trace had been seizure >free for >a week and seemed to be doing well, why did he go into status epilepticus >out of >the blue . . . two hours after he had eaten Chinese food? He always ate his >favorite Chinese food: chicken chow mein and sweet and sour pork (MSG, red >dye, >canned pineapple and pork). Also, he didn't get soda at home, but when we >went >out to a Chinese restaurant he would always have soda (Xylene, toluene). > >Trace Diagnosed with Lennox-Gestaut: > >One week after reading Dr. 's information our doctors informed us that >they >believed what we had feared most was true . . . Trace had Lennox-Gestaut, a >relatively rare, incurable and progressive form of epilepsy. The prognosis >was >that he would be severely retarded in three to >five years. He was already non-functional due to 100+ seizures per day and >the >side effects of the four different drugs he was taking. The doctors said he >would most likely die in his teens to early twenties of one continuous >seizure. > >All the doctors had to offer were some experimental and/or >out-of-the-country >drugs which might slow the process and to attempt the Ketogenic Diet again >by >putting a tube into his stomach. We couldn't accept this. > >An Avenue of Hope Leads To Success: > >I tracked down Dr. and called her clinic in Tijuana, Mexico. I was >able to >talk directly to Dr. . I told her my son's condition, his diagnosis >and >prognosis. She said: " Bring him down immediately. " I asked her: " Do you >think >you can help him? " She said: " I think I can cure him, >bring him down. " Faced with doctors who didn't think they could do anything >for >Trace and one who said she could cure him, we felt it was pretty obvious >what we >should do. > >Nevertheless, we were scared. Especially about taking a sick child into >Mexico - >we had heard that Tijuana was not the most honest or the cleanest place in >the >world. We got lots of different opinions about what we were about to do >from >friends, family and especially Trace's doctors. > >The people who had seen Trace at his worst understood why we had to pursue >this >avenue of hope. Even Trace's Neurologist supported us. He didn't believe it >would work but he said he would probably do the same if it were his child. > >The first day we went to the clinic we were relieved by its appearance and >location. Trace had a blood test and a technician took a saliva sample for >Syncrometer testing (Trace refused to be probed so all Syncrometer testing >was >done using his saliva). We talked with many patients already being treated >- >mainly for cancer. The stories were amazing - all of Dr. 's >patients were dramatically better or even cured. > >The second day we saw Dr. . She reviewed and compared the Syncrometer >and >blood tests. She told us what was wrong with Trace and what needed to be >done to >correct it. She wrote out a whole list of things we needed to do. She >tested my >husband and me for Ascaris and we were both positive. (Before we left for >Mexico, on Dr. 's instructions by phone, we had >given away our dog and steam cleaned our carpets.) > >We left her office completely overwhelmed. The scariest thing was that she >told >us Trace would have to come off of all of his medication (because it was >contaminated with benzene and was killing his liver). We returned home >with a >Zapper and all the supplements that Dr. told >us to get. Two days later we saw our Neurologist. He reviewed Dr. 's >tests >and recommendations. Her blood test checked out against his and, in his >opinion, >nothing Dr. recommended seemed dangerous - except stopping the >medications. But, since they didn't seem to be doing much good anyway, he >gave >us a conservative schedule for tapering Trace off all of >his medications. > >We started Trace zapping (7 minutes on and 20 minutes off, three >consecutive >times, repeated once a day) and taking ½ teaspoon of Black Walnut Tincture >Extra >Strength in ½ a glass of water twice a week. (This regime is to be >continued for >two years.) During the first week Trace's >seizures got worse, especially when we began reducing his medication. The >first >dramatic improvement we noted was when we began giving Trace taurine three >times >a day. This seemed to reduce the drop seizures and myoclonic jerks. Over >the >next two weeks Trace went from 100+ seizures per day to seizure-free!! His >nighttime and early morning seizures were the last to go. > >Herbal Modifications: > >Even though cloves and wormwood capsules were not appropriate for Trace >both my >husband and I were instructed to take them. My husband does not take the >Black >Walnut Tincture because it contains alcohol, but I take it, and we are both >zapping. > >Syncrometer Investigation Proves Successful: > >When attending the Syncrometer class I had one of Trace's stuffed animals >tested. It tested positive for toluene, a solvent highly toxic to the >brain. >Trace slept with stuffed animals all over his bed. The day I returned home >from >the Syncrometer class we removed all stuffed animals >from his room - and that was his first night seizure-free! > >Temporary Setbacks: > >Trace went 25 days seizure-free and during that time we were able to >eliminate >two medications. Then, on the 23rd day, before we could stop him, he hugged >a >dog. He put his face right in the dog's fur and gave him a big hug. We >zapped >him that night and the next night, but he woke up the following morning >with a >grand mal seizure. We asked ourselves: " Why didn't the Zapper stop the >parasites >from returning to the brain? " We speculated that since Trace had a chronic >runny >nose that possibly the parasites were shielded in his fluid-filled sinuses. >Dr. > reports that it takes as little as two days for Ascaris eggs to hatch >and >the microscopic larva to travel back to the seizure center of the brain. > >Trace had one other relapse 15 days following the first. It occurred two >days >after a visit to his Pediatric Neurologist. At the Neurologist's office, >while >waiting in the waiting room, he played on the floor with other children who >have >seizures - and they were all handling the same toys. This second relapse >resulted in the most violent grand mal seizure he ever had. However, with >multiple zapping and administering Black Walnut Tincture Extra Strength, he >was >back to normal by 2 pm (after waking up with the seizure that morning). > >Both relapses occurred less than two days after Trace was exposed to likely >parasite egg-carriers and we believe the parasite eggs hatched and reached >his >brain in less than two days because of his fluid-filled sinuses being >directly >in front of his brain. > >Trace has now been seizure-free and medication-free for ten months. He has >no >apparent deficits or delays. His chronic runny nose resolved three days >after >his last dose of anti-seizure medication. > >During the past 10 months Trace got sick one time and we discovered it was >because our Zapper was broken. His fever went to 104°, but he didn't have a >single twitch, let alone a seizure. > >We have learned to give Trace a dose of Black Walnut Tincture Extra >Strength >after exposure to animals or situations which are high risk for parasites, >and >then we continue from there with his twice per week dosage. > > " Trace, The Miracle Child " > >One month ago Trace had an EEG because his Neurologist wanted to see what >it >would show. His EEG was completely normal!!! > >According to our doctors no child diagnosed with Lennox-Gestaut has ever >been >seizure-free, medication-free, or had normal development and a normal EEG >before. The doctors call Trace " The Miracle Child. " We know God blessed us >with >a miracle and Dr. was His tool. > >Through hearing about our experience many other people have produced >dramatic >changes in their health by pursuing Dr. 's methods. Among the people >following Dr. 's methods, after hearing about Trace, are two other >patients >of our Neurologist. One was given our number by the Neurologist himself. We >dearly thank Dr. for all she has done. > >Neways, A Company With Carcinogen Free/Solvent-Free Personal Care Products: > >Our life has recently become a little easier, in regard to following Dr. >'s >instructions for a solvent-free life. We were introduced to a company named >Neways that claims to make carcinogen-free and solvent-free health and >personal >care products. I was, of course, very skeptical of this since many products >claiming to be natural or pure had failed testing with >my Syncrometer. A friend gave me samples of Neways' shampoos, body washes, >toothpaste and multipurpose cleaners. I tested them with my Syncrometer and >they >tested clean. Not completely confident with my own results, I sent six of >their >products to be tested by Carmen Myers at the Self Health Resource Center. >Five >out of the six tested completely clean. The sixth Carmen felt >might have a trace amount of tetrazine (a yellow food coloring). Tetrazine >is >not associated with any specific health problem but Dr. advises >against it >because it is difficult for the kidneys to eliminate. Carmen's tests were >not >conclusive for tetrazine, but I contacted the company anyway >to ask about it. They assured me that no dyes are used in processing their >products. I am inclined to trust them because of the purity of their other >products. I have been thrilled to find such pure products. Dr. has >been >invited to the Neways' plant to test all their products. Hopefully she >will do this soon. > >The five completely pure products are: > >1. Maximol Solutions - a colloidal mineral solution with vitamins, amino >acids >and enzymes. > >2. Silken Mild Family Shampoo > >3. Purge - a parasite cleanse formula > >4. Radiance - a tooth paste that also whitens > >5. Eliminator - a mouthwash and multipurpose antibacterial, antimold, >antifungal >cleaner > >The Product with a slight possibility of Tetrazine but otherwise pure: > >1. Revenol - a super antioxidant containing pycnogenol from pine bark and >grapeseed extract > >Questions? > >Do you have questions? Please call and I'll be happy to answer any >questions you might have. Call: (209) 745-9638. > >God Bless. > > >893 Black Canyon Court >Galt, CA 95632 > >(209) 745-9638 > > > ><< poohbear.vcf >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Hi Leona Welcome to the group, you will find Liverserve members to be both friendly and helpful.. I live in Melbourne, have children older than yourself, and have been diagnosed with AIH for eighteen months now; thankfully I have responded well to the medication., Prednisone and Imuran, are the two main drugs for the treatment of Autioimmune Hepatitis, and most people seem to remain on a maintenance dose for the rest of their lives which helps control their liver disease. Leona you seem to have had bad luck regarding your health, I do hope you start getting better real soon. I haven't heard of anyone with AIH who has suffered with diarrhea as a side effect, but there is no one marker for this disease; that is why it's difficult for doctors to diagnose. My Gastroenterologist who specilizes in Hepatitis told me that autoimmune diseases often come in multiples and sent me to a Rheumatologist, it might be a good idea for you to get a referral and see a Rheumatologist. You will be checked for other autoimmune diseases. There is a young lady who lives in Adelaide who has AIH I met her last year she seems to be doing very well coping with her disease. If you wish I will ask her to e-mail you. Take care an if I can help you in any way please feel free to send an e-mail, good luck with your treatment. Have a good day AIH. _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1999 Report Share Posted November 17, 1999 Hi SueB Glad your back on line. But sorry to hear of your problems. The new doctor doesn't really have the right to take you off medication that your regular doctor has prescribed. Don't accept what he has to say, demand that he give you a script until your regular doctor returns. Some doctors cant seem to comprehend what pain can do to a human being until they have experienced the suffering themselves. Take care and try to stay positive. AIH Melbourne ===== Quote Link to comment Share on other sites More sharing options...
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