DAN doctors

[Guest guest]

JoAnn,

No I haven't heard of DAM before. What's celiac disease?

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[Guest guest]

I forget what DAN stand for, but it's doctors that specifically treat autism, I

think.

Celiac Disease is an allergy to wheat, barley, oats and rye. We think is

celiac instead of autistic. I had him on a gluten free diet for 10 months. The

wheat, oats, barley and rye have gluten in them, and gluten is a protein that I

guess they can't digest. I had to make bread for out of rice flour,

potato starch flour and tapioca flour and add guar gum (because the gluten is

what makes bread hold together when the yeast rises). It's a tough diet to

start, but you get used to it. I've heard of some kids actually being allergic

to all grains, that would include rice and corn. On a gluten free diet, rice

and corn is all can have.

Loriann

Wife to Dewight

Mom to , 10 years, Down Syndrome and ?

, 17 months and Strong Willed

[Guest guest]

I am fairly new and really don't know how to navigate the web site very well. I

know there has been discussion before about this topic on diets and supplements.

Is there a way to access old info? Does anyone have any success to report on

this? 's teachers have unofficially suggested that I read a McCarthy

book. Another professional has told me that the reported successes were

probably misdiagnosed to begin with. Still looking into this -- would

appreciate feedback. Thnks, Rose

[Guest guest]

>

> I am fairly new and really don't know how to navigate the web site very well.

I know there has been discussion before about this topic on diets and

supplements. Is there a way to access old info? Does anyone have any success

to report on this? 's teachers have unofficially suggested that I read a

McCarthy book. Another professional has told me that the reported

successes were probably misdiagnosed to begin with. Still looking into this --

would appreciate feedback. Thnks, Rose

>

Hi Rose,

When reading directly from the listserve, over on the left hand side there are

some links, once you enter go under Alternative Biomedical.

Even though the McCarthy books are good read. I would actually highly

recommend other books to understand some of the underlying causes or know what

areas to look for instead of jumping into this approach. Sometimes when jumping

aboard blindsided could do more harm than good.

Books, sites I recommend or even watch YouTube are under s website.

Nourishing Hope, Nutrition Intervention for Autism Spectrum Disorders, Why Diet

Can Help and a Holistic Approach to Implementation, Guide for Parents &

Practitioners.

http://www.nourishinghope.com/

http://www.autismone.org/

http://www.autismone.org/content/autismone-radio

Another good book is Children with Starving Brains, A Medical Treatment Guide

for Autism Spectrum Disorder, by Jaquelyn McCandless, MD. Will not overwhelm you

too much, there is already enough reviewing for now.

May I ask which state you are at? There may be some families already on this

journey who are in a similar road for when you are ready to go into further.

Irma,21,DS/ASD

Irma

[Guest guest]

Thanks Kathy and Cyndi,

I am very interested in this topic as well. Kathy, would you please share

what biomedical interventions you did? Our son's poop hasn't been solid for

a long time.interested in what you're doing. How old is Kara and what is

her diagnosis?

And Cyndi - what are hyperbaric treatments and what is glutathione?

We just had some tests done for at Great Plains Lab last month and

are in process of consulting with their nutritionist since there are no DAN

doctors out here in France.

Thanks,

Kathy (with Ben, 3 years old, DS-ASD and Genna, 9 months old, Phil - dear

hubby)

_____

From: [mailto: ] On Behalf

Of Kathy Calvert

Sent: Wednesday, September 16, 2009 4:12 AM

To:

Subject: RE: Re: DAN doctors

I will echo what Cyndi shared. We actually see Dr. Kartzinel who

co-authored " Healing and Preventing Autism " with McCarthy (book

released a few months ago). I would recommend that book for an

understanding on biomedical intervention. We have been on this journey for

just a few months but we have already seen a difference in Kara. She has

stopped grinding her teeth, her pupils are no longer dilated, she is more

focused, she is like she's " here " now instead of " in another world " (most of

the time), her skin coloring is even better - oh, and her (sorry - tmi)

poopy is solid now.

Many of these things have been mentioned to me by friends who don't have any

idea what we've even been doing. For us, this was a decision we made after

much prayer.

K.

Re: DAN doctors

Rose, I have been on this journey since April of last year. My son sees a

DAN doc in Lynchberg VA name Dr. Mumper. Although my son is still non

-verbal I have been told that it may take up to 2 years for language to

start. takes lots of supplements, has done 40 hyperbaric treatments,

Methyl B-12 shots, and glutathione in addition to gluten free casein free

diet. All of this has made a difference in how my sons feels, how well he

participates in learning, following simple request that he could never

do,etc. I thank God for biomedical intervention because conventional

medicine was letting my son down. Cyndi B

> >

> > I am fairly new and really don't know how to navigate the web site very

well. I know there has been discussion before about this topic on diets and

supplements. Is there a way to access old info? Does anyone have any success

to report on this? 's teachers have unofficially suggested that I read

a McCarthy book. Another professional has told me that the reported

successes were probably misdiagnosed to begin with. Still looking into this

-- would appreciate feedback. Thnks, Rose

> >

>

[Guest guest]

Cyndi and Kathy,

You've no idea how it warms my heart to hear from moms of dual dx kids on this

list who are going the DAN route. My dtr is 20 and we began with a DAN doc

when she was born actually...I should say the doctor " became " a DAN doc once

there was such a thing as DAN. I'm on somewhat of a mission to seek you guys

out....anyone else here doing biomedical intervention with dual dx? (besides our

blessedly outspoken Irma of course).

I don't know if you have seen the Autism Research Institute's (now autism.com )

parents report on the various treatments and their success rates (rated by

parents)...it lists meds, supplements, therapies etc. and a % of perceived

success rates. I always wanted to get something like this quantified for those

of us with kids with the dual dx. As you know we can't always fit into the DS

box, nor the Autism box; there are biochemical quirks specific to the dual

diagnosis and I would love to see what others are discovering.

http://www.autism.com/treatable/form34qr.htm

I have to clarify that we've always pursued a judicious blend of allopathic and

alternative medicine with as there is no denying her medical conditions

(heart and GI problems and hypothyroidism). It's a tricky balance to maintain.

Sherry

[Guest guest]

(I'm replying to myself)

forgot to ask...Cyndi, kathy, Irma......have your DAN docs treated other kids

with DS besides your own?

Sherry

[Guest guest]

>

> (I'm replying to myself)

> forgot to ask...Cyndi, kathy, Irma......have your DAN docs treated other kids

with DS besides your own?

> Sherry

Hi Sherry,

Why " yes " , have met several on this journey who have benefit tremendously from a

DAN protocol or in other words the Alternative biomedical approach which are

certain treatments, diet, supplements, etc.

As a matter of fact have several other families seeking this approach since the

parents were frustrated of their individuals health deteriorating with several

other approaches and once they have gotten to actually meet and several

of my friends who also have individuals with severe autism, they have lean

towards this approach and are very grateful. Even some of the families who are

still not ready to jump into the biomedical approach are grateful for guiding

them towards which Specialist to be seen by and some have been confirm with

Celiac, so either way many of us with individuals with the dual dx's of DS & AU

are growing, networking & thensome.

Irma,21,DS/ASD

[Guest guest]

I looked again for one in the Raleigh area. I think I will wait to do anything

until I see Dev Ped Neurologist. She may know of one.

>

> Cyndi and Kathy,

> You've no idea how it warms my heart to hear from moms of dual dx kids on this

list who are going the DAN route. My dtr is 20 and we began with a DAN doc

when she was born actually...I should say the doctor " became " a DAN doc once

there was such a thing as DAN. I'm on somewhat of a mission to seek you guys

out....anyone else here doing biomedical intervention with dual dx? (besides our

blessedly outspoken Irma of course).

>

> I don't know if you have seen the Autism Research Institute's (now autism.com

) parents report on the various treatments and their success rates (rated by

parents)...it lists meds, supplements, therapies etc. and a % of perceived

success rates. I always wanted to get something like this quantified for those

of us with kids with the dual dx. As you know we can't always fit into the DS

box, nor the Autism box; there are biochemical quirks specific to the dual

diagnosis and I would love to see what others are discovering.

>

> http://www.autism.com/treatable/form34qr.htm

>

> I have to clarify that we've always pursued a judicious blend of allopathic

and alternative medicine with as there is no denying her medical

conditions (heart and GI problems and hypothyroidism). It's a tricky balance to

maintain.

>

> Sherry

>

>