Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 I don't sell ebay often, but I have looked at some of the coolest trikes and other three wheeled things - including one that looks like a green machine for adults. I am looking for some wheeled something for Elie alth he LOVEs using a golf cart! Too bad one doesn't have to pedal a golf cart!!! > > > Hi, Everyone.....Liz....I tried and tried and tried to get Gareth to ride a > > two wheel bike. His balance was soooooooooooo off that even a two wheeler > with training wheels scared him. I bought a 2 seated tandem bike that he > and DH rode for a couple of yrs but, then, after his hip surgery we decided > > that it wasn't a good idea since he and DH took a few spills weekly and we > didn't want those 5 pins in his hip to be in vain!!! I bought a used 3 > wheeler and he wouldn't have anything to do with that because it wasn't > what > the other kids were riding. My Mom took it and loved it!!! There's a friend > > of G's that has just DS and he rides his bike around SC..........gets me > in the 'depressed, why Gareth' mood every time I see him. > > Take care, Everyone. > Margaret > **************An Excellent Credit Score is 750. See Yours in Just 2 Easy > Steps! > ( > http://pr.atwola.com/promoclk/100126575x1222585042x1201462767/aol?redir=http://w\ ww.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=62 & bcd=Jun > eExcfooterNO62) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2009 Report Share Posted July 24, 2009 A complete Guide to testing. Testing for Lyme Disease, Borreliosis and multiple-infections can be difficult to understand. We hope that this guide will serve a purpose in narrowing down the lab testing and options available. One thing to keep in mind is that many times the lab testing that our insurance generally pays for is not necessarily the most appropriate or accurate test available. To avoid needless blood draws, wasted time and resources, we recommend getting the appropriate testing done first so that parents can have a clear picture of their child’s infection load prior to starting therapy interventions. The LIA Foundation is a non-profit 501c3 organization who focuses on Lyme disease, Borreliosis, multiple-infections and their connection to Autism Spectrum Disorder. Our goals include research, awareness and education. http://www.lymeinducedautism.com/images/LIATesting_handout_FINAL.pdf Irma > > << " He " took blood and overnighted it to the ONLY LYME DIAGNOSTIC LAB in > the country which is out > on the West coast. We will have them back in 2.5 weeks.>> > > Hi, Everyone.....Liz.....G's PCP had blood work done last Friday for Lyme > disease and he got the results in the mail yesterday.....negative. Are > they trying to find something VERY specific or does he not trust any other > lab? Just curious. > > Take care, Everyone. > Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Hi, Everyone....Liz....sorry to hear about Tori and her scratching. Is it a sinus infection? It amazes me with her speech skills that she is so much like Gareth when it comes to medical issues.......not being able to tell you what is wrong, where it hurts, how much it hurts, etc. They just take it out on themselves. I had Gareth in to the Hershey Epilepsy clinic yesterday. The doc wants to admit him for a week to run continuous EEG's and video him constantly. Sounds like fun. All he does is lay flat in bed most of the day or sit up straight in his chair. I keep telling him to get a book or turn on the TV to exercise his brain!!! I guess they will take him off seizure meds there and monitor him --- trying to figure out which part of the brain is causing the problems. He also acted like he wasn't totally sure that his falling was seizure related. Right now, he's off the Dilantin completely and on 500 mg of Depakote nightly. He is a lot more lucid and was able to answer most of the questions asked by the doctor....once I reworded them for G to understand. He had a thick Indian accent!!! Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 Thanks, M!!! > > > Prayers are coming, Lady, for you and Ms Tori. > > M > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 We will keep you in the forefront of our minds tomorrw and in the weeks to come! On Sun, Aug 30, 2009 at 3:10 PM, Liz DeSantis wrote: > Thanks, M!!! > > > > > > > > > Prayers are coming, Lady, for you and Ms Tori. > > > > M > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 Elie spent YEARS rocking face down on the floor. But we really stressed redirection into his room for " private behavior " . And his pants are loose in the front - same reason - to protect the rest of the world from his lack of discrretion!! > > > > Liz, ] > is 12 and is going through puberty and spends a lot of time rocking > back and forth on the floor. Took me awhile to figure out what he was doing > but I think he is basically rubbing himself on the floor. He also keeps > pushing down on the front of his pants because I think it is driving him > crazy when it keeps popping up, LOL. My 17 year old daughter finds it very > disgusting, of course! She tells me I have to do something about it. At > least I don't see any behavior changes though. > > Terry > > Re: Liz > > LOL! Margaret! If she doesn't stop rubbing her poor boobies, they will > fall off!!! And now we are raking at our crotch..because we are sprouting! > YIPEEE!! > Liz > > On Wed, Sep 16, 2009 at 9:08 PM, <mfroof@... <mfroof%40aol.com>> > wrote: > > > > > > > <<Tori who is 9 1/2 and is going thru the P word as well. This can > > definitely affect their behaviors because their bodies are changing and > > they don't > > understand why. Is your son on any meds?>> > > > > Hi, Everyone.....Liz......had me laughing on this one. Of course girls > > react to puberty!!! I guess I should have worded it better!!! I never > > noticed any behavioral changes, drastic enough, with my two boys that I > > could > > say were puberty related. > > Take care, Everyone. > > Margaret > > > > [Non-text portions of this message have been remov > ed] > > > > > > > > -- > Let me win, but if I cannot win, let me be brave in the attempt. - Special > Olympics Motto-RIP Eunice Kennedy Shriver > > “When we long for life without difficulties, remind us that oaks grow > strong > in contrary winds and diamonds are made under pressure.-Author Unknown > > " Knowing trees, I understand the meaning of patience. Knowing grass, I can > understand persistence. " - Hal Borland > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Terry! I was blessed with 3 girls, but I work with many boys with SN and see that alot-most of the kids I wor with are in HS. Liz > > > > Liz, ] > is 12 and is going through puberty and spends a lot of time rocking > back and forth on the floor. Took me awhile to figure out what he was doing > but I think he is basically rubbing himself on the floor. He also keeps > pushing down on the front of his pants because I think it is driving him > crazy when it keeps popping up, LOL. My 17 year old daughter finds it very > disgusting, of course! She tells me I have to do something about it. At > least I don't see any behavior changes though. > > Terry > > Re: Liz > > LOL! Margaret! If she doesn't stop rubbing her poor boobies, they will > fall off!!! And now we are raking at our crotch..because we are sprouting! > YIPEEE!! > Liz > > On Wed, Sep 16, 2009 at 9:08 PM, <mfroof@... <mfroof%40aol.com>> > wrote: > > > > > > > <<Tori who is 9 1/2 and is going thru the P word as well. This can > > definitely affect their behaviors because their bodies are changing and > > they don't > > understand why. Is your son on any meds?>> > > > > Hi, Everyone.....Liz......had me laughing on this one. Of course girls > > react to puberty!!! I guess I should have worded it better!!! I never > > noticed any behavioral changes, drastic enough, with my two boys that I > > could > > say were puberty related. > > Take care, Everyone. > > Margaret > > > > [Non-text portions of this message have been remov > ed] > > > > > > > > -- > Let me win, but if I cannot win, let me be brave in the attempt. - Special > Olympics Motto-RIP Eunice Kennedy Shriver > > “When we long for life without difficulties, remind us that oaks grow > strong > in contrary winds and diamonds are made under pressure.-Author Unknown > > " Knowing trees, I understand the meaning of patience. Knowing grass, I can > understand persistence. " - Hal Borland > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 I received the one in the 70's and I'm still around to tell about it. Lol. We are going to get one for Ebonie. Her school, just closed for a week as they had major outbreak of it, however, somehow she didn't get it. In a message dated 10/11/2009 6:56:26 P.M. Mountain Daylight Time, christineandhaylee@... writes: i have to say I agree with Gareths mom. Im scheduled to take Haylee in for the h1n1 shot bc I dont want to take a chance. 76 Pediatric deaths is scary!! > Hi, Everyone....Liz....four of Gareth's docs ( PCP, rheumatologist, > pulm, > & immunol) told me to have him get all 3 of the vaccines this fall > because > of his health issues. If you have a sickly kid (like Gareth --- > autoimmune > issues, asthma, frequent pneumonia, heart issues, etc) then they are > at > greater risk of dying. He's already had the reg flu shot and the > pneumo > shot....we're waiting for the H1N1 vaccine. At first, I was hesitant > but the > docs all agree that this vaccine is safer than the one in the '70's > and I > have decided I can't take a chance. > > Take care, Everyone. > Margaret > Mom to Gareth --- 21 y/o > Central Pa > > [Non-text portions of this message have been removed] > > > [Non-text portions of this message have been removed] ------------------------------------ -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ --------------------------------------------Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 i have to say I agree with Gareths mom. Im scheduled to take Haylee in for the h1n1 shot bc I dont want to take a chance. 76 Pediatric deaths is scary!! > Hi, Everyone....Liz....four of Gareth's docs ( PCP, rheumatologist, > pulm, > & immunol) told me to have him get all 3 of the vaccines this fall > because > of his health issues. If you have a sickly kid (like Gareth --- > autoimmune > issues, asthma, frequent pneumonia, heart issues, etc) then they are > at > greater risk of dying. He's already had the reg flu shot and the > pneumo > shot....we're waiting for the H1N1 vaccine. At first, I was hesitant > but the > docs all agree that this vaccine is safer than the one in the '70's > and I > have decided I can't take a chance. > > Take care, Everyone. > Margaret > Mom to Gareth --- 21 y/o > Central Pa > > Quote Link to comment Share on other sites More sharing options...
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