Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Thank you to all of your for your support and kind words...... I still keep crying..... If I went in public someone would think I am a battered wife.... when I cry my eyes swell and green veins pop out lol......scary sort I am...... Just held her in my arms and cuddled her...my sweet angel.....it's like another damn death to overcome so to speak...she was doing sooooooooooo great in hs and we have plans for her to go to college....argggggggggggg all that damn advocating I did...not to waste though.... maybe helped someone else..... Now I have to take a few days, breathe, readjust, finish moving, and move forward with how to best handle all of this....... My heart aches... I look at her and tears rolll...... would have been easier if they would have said " brain tumor, surgery tomorrow, life goes on " ...... but with this diagnosis, life goes on spiraling downward........ we will go back to duke, see the folks at the memory disorders clinic and the neuropsych team to figure out what the best course of treatment is. for now keep her butt in water aerobics, pt, ot, and speech... work with with muscles at home so her muscles don't get atrophy.....we have another appt july 10 andJuly 13th I believe.... hope my doctor is willing to double a dose of xanax for me lol because it might be what I need before this is all over.......lol maybe I need a memory doctor...... love, hugs, and support to everyone and thank you for being there....... I feel very alone in some ways physically in Virginia, but i know across the miles we are in prayers and loved....... Leah Quote Link to comment Share on other sites More sharing options...
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