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Hi everyone,

I want to let everyone know that I am reading all the messages, laughing,

crying and celebrating with ya'll at every turn. I dont' get a chance to

post as much as I would like, but I am with you all the way.

Donna-have fun on your girls weekend. I sure could use one of those

, I'm so excited to hear of JJ's success. You know with other online

" friendships " , these may sound like hollow " socially acceptable " things

to do and say, but I know that on this loop, everyone is really

concerned, and really happy with each story.

So glad to hear of all the successes, I just cant' keep them straight. We

really do need to have a " conference " of our own, so that faces can be

put with all the names.

S

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  • 1 month later...

In a message dated 1/13/01 10:50:28 PM Eastern Standard Time, paul.3@...

writes:

<< The other very simple hierarchy of movement that an OT told us to do is

this:

First, vertical movement, such as jumping on a mini tramp or bouncing on a

therapy ball.

Next, front-to-back-to front, such as on a regular swing. This is very

organizing for kids whose systems are disorganized....

Then, side-to-side, such as in a rope or hammock swing or on a tire swing.

Last, circular, such as a carousel provides or a circular tire or suspended

swing. Figure 8's or random patterns are not as organizing for him. (I

know that some OT's will use a figure 8 pattern, but they know how to

observe kid's pupils and coloring to keep track of any physiological

changes.)

>>

Wow, never heard of this before Beth. Can't wait for your next post!!!

Gail

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  • 8 years later...
Guest guest

Hi Leah,

Sad to hear that Ashton has had no improvement. Still praying and keeping you

both in my thoughts.

Charlyne

Subject: this and that

To:

Date: Monday, June 8, 2009, 11:23 PM

Hannah Montana is starting her new tour.... tickets are on sale if your belong

to mileyworld.com her fanclub. The general public can buy tickets next

week.......so for all of you HANNAH MONTANA LOVERS aka MS. Ashton herself.....

...... there ya go...thought I would share....... .

Cameron flies in on the 21st to charlotte. Ashton will be inpatient from june

24-29th at duke. we (all of the nonmedical people in her life who provide direct

care) feel she has had a mini stroke or something isn't working in her brain.

her right side isn't working. Her motor skills suck....... the tremors are

awfulllllllllllllll llllllllllllllll llllllll .....she cries and hurts.......

the doc put her on a lose dose of morphine to help with the pain...... it breaks

my heart to see the once bubbly happy drive me insane ashton become the slow to

move, lethargic noncommunicate ashton.... hopefully the neurologist and his

team can figure it out...

the living room is in boxes....... there is a path to the tv/dvd player and a

path to the bathroom.... ..

one thing I have gained from all of this is cherish the moments you have, use

humor to see you through the tough times and hold your babies close to your

heart. Thank god for your dear friends and take it one day or xanax at a

time.......lollol

leah

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  • 2 months later...

UPDATE 1. Cameron is staying Texas with his father..... I am the horrible mother

who doesn't make 250,000 a year only loves her son....

 

UPDATE 2. Ashton went to Duke on Tuesday... declining... disease advancing

progressively.... keep us in your prayers

 

UPDATE 3.. I lost the most weight in the challenge at the Y... I think I am up

to 38 pds now give or take...... went to my doctor to day for stress and

stuff...he hardly recognized me..... sighhhh still am crazy ......

 

please keep us in your prayers.

 

leah and ashton

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So sorry Leah. True that at as a young teen, $250,000 plus the good life

can trump anything else. Hard to see life as a whole when one is still in

the slef is most important stage. Time will change. His eyes will open.

Glad you are losing weight if that is what you want.

So very sorry about the struggles with Ashton. Keep strong.

>

>

> UPDATE 1. Cameron is staying Texas with his father..... I am the horrible

> mother who doesn't make 250,000 a year only loves her son....

>

> UPDATE 2. Ashton went to Duke on Tuesday... declining... disease advancing

> progressively.... keep us in your prayers

>

> UPDATE 3.. I lost the most weight in the challenge at the Y... I think I am

> up to 38 pds now give or take...... went to my doctor to day for stress and

> stuff...he hardly recognized me..... sighhhh still am crazy ......

>

> please keep us in your prayers.

>

> leah and ashton

>

>

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