Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 I looked into ABA therapy, tried it for 6 months when my son was 10 (the year we got his dx of DS/ASD, and found some of the things you mentioned to be a really BIG issue. Did Elie show gains in compliance- yes, but he was beginning to respond anyway. Did he show in crease in cognition? I didn't see that his skills improved any Was it disruptive to the rest of the family - OH HOWDY _ YEAS> and this was the final decider. I couldn't stand the repitition. I have since learned that while my son is a slow learner, he is not stupid. His learning is retarded - as in slow-. But that doesn't mean he needs the constant repition in one sitting. Rather he learns over time. Repition over time. As in at each meal or each day as he dresses. HE doesn't learn faster if we have him dress and undress 20 times in one day. He wasn't potty trained faster when we did the forced drinking and eating salty foods. IT still took time. My opinion. I like the GREENSPAN method much better than ABA. Less distruptive to me and the rest of my family and I believe more respectful of my child as a person. > > > My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her > cognitive level is scattered between a 1 to 2-1/2 year old. She has come up > > to the top of the list (6 months early) for our state-waiver ABA therapy > program. I'm not ready for this! I had even been contemplating not doing it > > at all, because she's been in school since age 3 and is in her routine, > learning (slow but sure), and enjoys school and her peers (she is partially > > included with typical kids and is part of what I consider to be a very good > > special education program). Her special education teacher doesn't think it > is worth doing and even said if I really want some ABA therapy for , > > she would look at the books I've purchased on ABA, sit down with me, and > come up with a program (change her IEP). She said that really, the things > she is doing now though aren't much different (just not as intensive). I > also have a 2-1/2 year old. I don't know how I'd be able to manage with her > > strong-willed ways and wanting to constantly be a part of 's therapy > > at home. I don't want to pull out of school completely, so we'd > only be able to do the therapy part-time (so is even worth not doing the > full-time program?) ABA would be a complete disruption to what we have in > place and what she's used to and I don't think it would be very easy on > this > family if we tried to do school and ABA (we'd have no lives pretty much and > I > have to remember I have another daughter). > > The issue now also is that most service providers don't put kids after age > 8 as a priority. I did find one place who takes any age, but they have a 6 > month wait list just for an evaluation. The county won't let 's > placement go on hold until then. She'd have to go back on the wait list and > > that is only if the service provider is willing to give them a clinical > confirmation letter stating that they would in fact take after age > 8; > however, the county said they may not do that without an evaluation. > > I've always wondered if the intensive ABA home therapy is worth doing (vs. > school) because of her age and her extra dx's (she doesn't have just autism > > and she had seizures from age 10 months to 2 years old - very crucial > development time). But, then do I take into consideration her cognitive age > > (and I think the county forgot that when they told me that " it's said out > in > the field that children your daughter's age may not really benefit from ABA > > anyway). > > Do any of you (or have any of you) had the intensive ABA therapy at home > and your child was older than age 8? Did you see benefits? I just want to > make the right decision, and for some reason this has been very hard for me > > (I've been agonizing over doing it for the last 6 months, but thinking I > still had until December to decide.) > > I appreciate any comments, suggestions, opinions, etc. that you can > provide! > > Heidi > (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) > No two flowers bloom in exactly the same way (but all are beautiful). > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > > steps! > ( > http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://w\ ww.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd > =JulystepsfooterNO115) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Heidi – Wow…I can almost hear the agonizing in your post. What a very difficult decision. I can share with you that our daughter is 6 ½ years old and is at about one year cognitively (per the testing). We started her doing ABA therapy (privately) once per week for two hours and she shows her therapist more than she ever showed at school. As a result, we have decided to send her to school there (which starts in a couple of weeks). I am actually going back to work to be able to pay for it. We’re thrilled for the opportunity as, for us and our school situation, it seems like the most appropriate for her. I wish I could share with you a year from now – looking back. However, if I were in your shoes and looking at it being a home based therapy, I don’t know if I could do it….esp with a 2 ½ year old at home. Do you know of any other Moms in your area who have done the program. Could you talk to them to find out exactly what’s required? Hope this might help a little! Kathy ABA therapy My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her cognitive level is scattered between a 1 to 2-1/2 year old. She has come up to the top of the list (6 months early) for our state-waiver ABA therapy program. I'm not ready for this! I had even been contemplating not doing it at all, because she's been in school since age 3 and is in her routine, learning (slow but sure), and enjoys school and her peers (she is partially included with typical kids and is part of what I consider to be a very good special education program). Her special education teacher doesn't think it is worth doing and even said if I really want some ABA therapy for , she would look at the books I've purchased on ABA, sit down with me, and come up with a program (change her IEP). She said that really, the things she is doing now though aren't much different (just not as intensive). I also have a 2-1/2 year old. I don't know how I'd be able to manage with her strong-willed ways and wanting to constantly be a part of 's therapy at home. I don't want to pull out of school completely, so we'd only be able to do the therapy part-time (so is even worth not doing the full-time program?) ABA would be a complete disruption to what we have in place and what she's used to and I don't think it would be very easy on this family if we tried to do school and ABA (we'd have no lives pretty much and I have to remember I have another daughter). The issue now also is that most service providers don't put kids after age 8 as a priority. I did find one place who takes any age, but they have a 6 month wait list just for an evaluation. The county won't let 's placement go on hold until then. She'd have to go back on the wait list and that is only if the service provider is willing to give them a clinical confirmation letter stating that they would in fact take after age 8; however, the county said they may not do that without an evaluation. I've always wondered if the intensive ABA home therapy is worth doing (vs. school) because of her age and her extra dx's (she doesn't have just autism and she had seizures from age 10 months to 2 years old - very crucial development time). But, then do I take into consideration her cognitive age (and I think the county forgot that when they told me that " it's said out in the field that children your daughter's age may not really benefit from ABA anyway). Do any of you (or have any of you) had the intensive ABA therapy at home and your child was older than age 8? Did you see benefits? I just want to make the right decision, and for some reason this has been very hard for me (I've been agonizing over doing it for the last 6 months, but thinking I still had until December to decide.) I appreciate any comments, suggestions, opinions, etc. that you can provide! Heidi (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) No two flowers bloom in exactly the same way (but all are beautiful). **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. <http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=htt p://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd> com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecredit report.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO115) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Sara - What is the GREENSPAN method? I don't believe I've heard of it before. Kathy Re: ABA therapy I looked into ABA therapy, tried it for 6 months when my son was 10 (the year we got his dx of DS/ASD, and found some of the things you mentioned to be a really BIG issue. Did Elie show gains in compliance- yes, but he was beginning to respond anyway. Did he show in crease in cognition? I didn't see that his skills improved any Was it disruptive to the rest of the family - OH HOWDY _ YEAS> and this was the final decider. I couldn't stand the repitition. I have since learned that while my son is a slow learner, he is not stupid. His learning is retarded - as in slow-. But that doesn't mean he needs the constant repition in one sitting. Rather he learns over time. Repition over time. As in at each meal or each day as he dresses. HE doesn't learn faster if we have him dress and undress 20 times in one day. He wasn't potty trained faster when we did the forced drinking and eating salty foods. IT still took time. My opinion. I like the GREENSPAN method much better than ABA. Less distruptive to me and the rest of my family and I believe more respectful of my child as a person. On Mon, Aug 3, 2009 at 4:02 PM, <hdauer@... <mailto:hdauer%40aol.com> > wrote: > > > My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her > cognitive level is scattered between a 1 to 2-1/2 year old. She has come up > > to the top of the list (6 months early) for our state-waiver ABA therapy > program. I'm not ready for this! I had even been contemplating not doing it > > at all, because she's been in school since age 3 and is in her routine, > learning (slow but sure), and enjoys school and her peers (she is partially > > included with typical kids and is part of what I consider to be a very good > > special education program). Her special education teacher doesn't think it > is worth doing and even said if I really want some ABA therapy for , > > she would look at the books I've purchased on ABA, sit down with me, and > come up with a program (change her IEP). She said that really, the things > she is doing now though aren't much different (just not as intensive). I > also have a 2-1/2 year old. I don't know how I'd be able to manage with her > > strong-willed ways and wanting to constantly be a part of 's therapy > > at home. I don't want to pull out of school completely, so we'd > only be able to do the therapy part-time (so is even worth not doing the > full-time program?) ABA would be a complete disruption to what we have in > place and what she's used to and I don't think it would be very easy on > this > family if we tried to do school and ABA (we'd have no lives pretty much and > I > have to remember I have another daughter). > > The issue now also is that most service providers don't put kids after age > 8 as a priority. I did find one place who takes any age, but they have a 6 > month wait list just for an evaluation. The county won't let 's > placement go on hold until then. She'd have to go back on the wait list and > > that is only if the service provider is willing to give them a clinical > confirmation letter stating that they would in fact take after age > 8; > however, the county said they may not do that without an evaluation. > > I've always wondered if the intensive ABA home therapy is worth doing (vs. > school) because of her age and her extra dx's (she doesn't have just autism > > and she had seizures from age 10 months to 2 years old - very crucial > development time). But, then do I take into consideration her cognitive age > > (and I think the county forgot that when they told me that " it's said out > in > the field that children your daughter's age may not really benefit from ABA > > anyway). > > Do any of you (or have any of you) had the intensive ABA therapy at home > and your child was older than age 8? Did you see benefits? I just want to > make the right decision, and for some reason this has been very hard for me > > (I've been agonizing over doing it for the last 6 months, but thinking I > still had until December to decide.) > > I appreciate any comments, suggestions, opinions, etc. that you can > provide! > > Heidi > (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) > No two flowers bloom in exactly the same way (but all are beautiful). > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > > steps! > ( > http://pr.atwola. <http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=htt p://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd> com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecredit report.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd > =JulystepsfooterNO115) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Heidi, seems like you have already figure out what you have to do as you are following your gut instinct and around your family agenda. Definitely need to make sure that you are ready to tackle this and so far the balance scale keeps leaning towards where it is not fitting in with what you already have on your plate, even if you wanted to take such actions. This is wonderful, with such progress you and the teacher are observing. Question though, is your daughter going to continue with the same teacher in the next year or two? Meaning will the programs being implemented at this time, carry over throughout the future years to come? Are there any main challenging issues that needed to be addressed? I know I would of jump at this if offered for my son as he made tremendous gains at the age of 13 y/o once our community finally offered ABA/VB. Do you know what type of ABA therapy? Lovass or Skinner's? Lovass is the grandfather of ABA but of course as time went on, other strategies have been utilized such as the Verbal Behavior approach with the ABLLS (The Assessment of Basic Language and Learning Skills)to track the skills being worked on which Dr. Partington had created such a curriculum guide, and skills tracking system for children with language delays. I share this to see if this is similar if this is being implemented with what is currently being used at the school. If so, your little one is on the road towards where needed kinda of like a check list addressing the areas to your daughter's needs. Basic Learner Skills Assessment: ation and Reinforcement Effectiveness Visual Performance Receptive Language Imitation Vocal Imitation Requests Labeling Intraverbals Spontaneous Vocalizations Syntax and Grammar Play and Leisure Social Interaction Group instruction Follow Classroom Routines Generalized Responding. Then it adds on towards the Academics Skills Assessment, Self-Help Skills Assessment, Motor Skills Assessment. Sorry, hope I did not throw you off with what I posted. Irma,21,DS/ASD > > My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her > cognitive level is scattered between a 1 to 2-1/2 year old. She has come up > to the top of the list (6 months early) for our state-waiver ABA therapy > program. I'm not ready for this! I had even been contemplating not doing it > at all, because she's been in school since age 3 and is in her routine, > learning (slow but sure), and enjoys school and her peers (she is partially > included with typical kids and is part of what I consider to be a very good > special education program). Her special education teacher doesn't think it > is worth doing and even said if I really want some ABA therapy for , > she would look at the books I've purchased on ABA, sit down with me, and > come up with a program (change her IEP). She said that really, the things > she is doing now though aren't much different (just not as intensive). I > also have a 2-1/2 year old. I don't know how I'd be able to manage with her > strong-willed ways and wanting to constantly be a part of 's therapy > at home. I don't want to pull out of school completely, so we'd > only be able to do the therapy part-time (so is even worth not doing the > full-time program?) ABA would be a complete disruption to what we have in > place and what she's used to and I don't think it would be very easy on this > family if we tried to do school and ABA (we'd have no lives pretty much and I > have to remember I have another daughter). > > The issue now also is that most service providers don't put kids after age > 8 as a priority. I did find one place who takes any age, but they have a 6 > month wait list just for an evaluation. The county won't let 's > placement go on hold until then. She'd have to go back on the wait list and > that is only if the service provider is willing to give them a clinical > confirmation letter stating that they would in fact take after age 8; > however, the county said they may not do that without an evaluation. > > I've always wondered if the intensive ABA home therapy is worth doing (vs. > school) because of her age and her extra dx's (she doesn't have just autism > and she had seizures from age 10 months to 2 years old - very crucial > development time). But, then do I take into consideration her cognitive age > (and I think the county forgot that when they told me that " it's said out in > the field that children your daughter's age may not really benefit from ABA > anyway). > > Do any of you (or have any of you) had the intensive ABA therapy at home > and your child was older than age 8? Did you see benefits? I just want to > make the right decision, and for some reason this has been very hard for me > (I've been agonizing over doing it for the last 6 months, but thinking I > still had until December to decide.) > > I appreciate any comments, suggestions, opinions, etc. that you can > provide! > > Heidi > (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) > No two flowers bloom in exactly the same way (but all are beautiful). > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd > =JulystepsfooterNO115) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Why do you have to choose? one method over another We do floortine(Greenspan ) and ABA have found what I think is best for my son. All methods I have found take lots of time at home . Re: ABA therapy I looked into ABA therapy, tried it for 6 months when my son was 10 (the year we got his dx of DS/ASD, and found some of the things you mentioned to be a really BIG issue. Did Elie show gains in compliance- yes, but he was beginning to respond anyway. Did he show in crease in cognition? I didn't see that his skills improved any Was it disruptive to the rest of the family - OH HOWDY _ YEAS> and this was the final decider. I couldn't stand the repitition. I have since learned that while my son is a slow learner, he is not stupid. His learning is retarded - as in slow-. But that doesn't mean he needs the constant repition in one sitting. Rather he learns over time. Repition over time. As in at each meal or each day as he dresses. HE doesn't learn faster if we have him dress and undress 20 times in one day. He wasn't potty trained faster when we did the forced drinking and eating salty foods. IT still took time. My opinion. I like the GREENSPAN method much better than ABA. Less distruptive to me and the rest of my family and I believe more respectful of my child as a person. On Mon, Aug 3, 2009 at 4:02 PM, <hdauer@... <mailto:hdauer%40aol.com> > wrote: > > > My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her > cognitive level is scattered between a 1 to 2-1/2 year old. She has come up > > to the top of the list (6 months early) for our state-waiver ABA therapy > program. I'm not ready for this! I had even been contemplating not doing it > > at all, because she's been in school since age 3 and is in her routine, > learning (slow but sure), and enjoys school and her peers (she is partially > > included with typical kids and is part of what I consider to be a very good > > special education program). Her special education teacher doesn't think it > is worth doing and even said if I really want some ABA therapy for , > > she would look at the books I've purchased on ABA, sit down with me, and > come up with a program (change her IEP). She said that really, the things > she is doing now though aren't much different (just not as intensive). I > also have a 2-1/2 year old. I don't know how I'd be able to manage with her > > strong-willed ways and wanting to constantly be a part of 's therapy > > at home. I don't want to pull out of school completely, so we'd > only be able to do the therapy part-time (so is even worth not doing the > full-time program?) ABA would be a complete disruption to what we have in > place and what she's used to and I don't think it would be very easy on > this > family if we tried to do school and ABA (we'd have no lives pretty much and > I > have to remember I have another daughter). > > The issue now also is that most service providers don't put kids after age > 8 as a priority. I did find one place who takes any age, but they have a 6 > month wait list just for an evaluation. The county won't let 's > placement go on hold until then. She'd have to go back on the wait list and > > that is only if the service provider is willing to give them a clinical > confirmation letter stating that they would in fact take after age > 8; > however, the county said they may not do that without an evaluation. > > I've always wondered if the intensive ABA home therapy is worth doing (vs. > school) because of her age and her extra dx's (she doesn't have just autism > > and she had seizures from age 10 months to 2 years old - very crucial > development time). But, then do I take into consideration her cognitive age > > (and I think the county forgot that when they told me that " it's said out > in > the field that children your daughter's age may not really benefit from ABA > > anyway). > > Do any of you (or have any of you) had the intensive ABA therapy at home > and your child was older than age 8? Did you see benefits? I just want to > make the right decision, and for some reason this has been very hard for me > > (I've been agonizing over doing it for the last 6 months, but thinking I > still had until December to decide.) > > I appreciate any comments, suggestions, opinions, etc. that you can > provide! > > Heidi > (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) > No two flowers bloom in exactly the same way (but all are beautiful). > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > > steps! > ( > http://pr.atwola. <http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=htt p://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd> com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecredit report.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd > =JulystepsfooterNO115) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 http://www.icdl.com/dirFloortime/overview/index.shtml The Developmental, Individual Difference, Relationship-based (DIR®/Floortime™) Model is a framework that helps clinicians, parents and educators conduct a comprehensive assessment and develop an intervention program tailored to the unique challenges and strengths of children with Autism Spectrum Disorders (ASD) and other developmental challenges. The objectives of the DIR®/Floortime™ Model are to build healthy foundations for social, emotional, and intellectual capacities rather than focusing on skills and isolated behaviors. For a detailed overview, download 2 page flyer. Hopefully others will share their experiences on how it has helped their child. I have never had this offered in our community, only have had to read or observe what a great therapy session it has been implemented with other specialized services. Irma,21,DS/ASD > > Sara - > > What is the GREENSPAN method? I don't believe I've heard of it before. > > > > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 > > Why do you have to choose? one method over another We do floortine(Greenspan ) and ABA > have found what I think is best for my son. All methods I have found take lots of time at home . Would you please share a little how this is implemented for all those not aware of this combination. I am aware but it would be great to read what your child has benefit from such a combo as this. Several cities do not offer this unless one travels where it is pretty utilized and think out of the box and proceed once on this mission. Pretty limited here in our community if one is knowledgeable and able to work with the individuals under the autism spectrum or related disorders, etc. It is always great to read such post on what helps your kiddos. Thanks! Irma,21,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi Heidi, Our son, , started with ABA therapy at a few months shy of his third birthday through our state's early intervention program for a few hours a week. The time was increased very gradually as demonstrated progress (albeit very slowly) and he currently attends an ABA school (The Developmental Learning Center (DLC) in Warren, NJ, which is part of the -Union Jointure Commission- it is a public special ed. school for children on the autistic spectrum comprised of 29 local school districts) since this past January ( will be 6 yrs. old at towards the end of this month). You may want to check out the school's website: www.mujc.org to get an idea of the services that are offered. Perhaps something similar is in your area, or at least it gives you some ideas. Each of our children are unique, so while there is no perfect program, we have found that DLC works for , at least so far. You may also want to check out Dr. Stanley Greenspan's " Floortime " method, which can be used with or without ABA. We learned about Floortime through 's first school and I actually attended an " online " class last year hosted by Dr. Greenspan himself. We have used some of the pinciples at home and have found them to be helpful. You can find tons of info. on Floortime as well online. Good luck with everything, and remember, you can always change things if they are not working out for your daughter's specific learning needs. Best, Mom to , almost 6 yrs. old DS/PDD-NOS To: From: kathyscalvert@... Date: Mon, 3 Aug 2009 18:22:36 -0400 Subject: RE: ABA therapy Heidi – Wow…I can almost hear the agonizing in your post. What a very difficult decision. I can share with you that our daughter is 6 ½ years old and is at about one year cognitively (per the testing). We started her doing ABA therapy (privately) once per week for two hours and she shows her therapist more than she ever showed at school. As a result, we have decided to send her to school there (which starts in a couple of weeks). I am actually going back to work to be able to pay for it. We’re thrilled for the opportunity as, for us and our school situation, it seems like the most appropriate for her. I wish I could share with you a year from now – looking back. However, if I were in your shoes and looking at it being a home based therapy, I don’t know if I could do it….esp with a 2 ½ year old at home. Do you know of any other Moms in your area who have done the program. Could you talk to them to find out exactly what’s required? Hope this might help a little! Kathy ABA therapy My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her cognitive level is scattered between a 1 to 2-1/2 year old. She has come up to the top of the list (6 months early) for our state-waiver ABA therapy program. I'm not ready for this! I had even been contemplating not doing it at all, because she's been in school since age 3 and is in her routine, learning (slow but sure), and enjoys school and her peers (she is partially included with typical kids and is part of what I consider to be a very good special education program). Her special education teacher doesn't think it is worth doing and even said if I really want some ABA therapy for , she would look at the books I've purchased on ABA, sit down with me, and come up with a program (change her IEP). She said that really, the things she is doing now though aren't much different (just not as intensive). I also have a 2-1/2 year old. I don't know how I'd be able to manage with her strong-willed ways and wanting to constantly be a part of 's therapy at home. I don't want to pull out of school completely, so we'd only be able to do the therapy part-time (so is even worth not doing the full-time program?) ABA would be a complete disruption to what we have in place and what she's used to and I don't think it would be very easy on this family if we tried to do school and ABA (we'd have no lives pretty much and I have to remember I have another daughter). The issue now also is that most service providers don't put kids after age 8 as a priority. I did find one place who takes any age, but they have a 6 month wait list just for an evaluation. The county won't let 's placement go on hold until then. She'd have to go back on the wait list and that is only if the service provider is willing to give them a clinical confirmation letter stating that they would in fact take after age 8; however, the county said they may not do that without an evaluation. I've always wondered if the intensive ABA home therapy is worth doing (vs. school) because of her age and her extra dx's (she doesn't have just autism and she had seizures from age 10 months to 2 years old - very crucial development time). But, then do I take into consideration her cognitive age (and I think the county forgot that when they told me that " it's said out in the field that children your daughter's age may not really benefit from ABA anyway). Do any of you (or have any of you) had the intensive ABA therapy at home and your child was older than age 8? Did you see benefits? I just want to make the right decision, and for some reason this has been very hard for me (I've been agonizing over doing it for the last 6 months, but thinking I still had until December to decide.) I appreciate any comments, suggestions, opinions, etc. that you can provide! Heidi (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) No two flowers bloom in exactly the same way (but all are beautiful). **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. <http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=htt p://www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd> com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecredit report.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO115) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 IMHO, the benefit of floortime is that one can actually learn from readingon how to do it, and it seems more intuitive to me. It did help us get Elie to engage with us in a natural manner and not the foced compliance which I objected to in ABA. > > > http://www.icdl.com/dirFloortime/overview/index.shtml > The Developmental, Individual Difference, Relationship-based > (DIR®/Floortime™) Model is a framework that helps clinicians, parents and > educators conduct a comprehensive assessment and develop an intervention > program tailored to the unique challenges and strengths of children with > Autism Spectrum Disorders (ASD) and other developmental challenges. The > objectives of the DIR®/Floortime™ Model are to build healthy foundations > for social, emotional, and intellectual capacities rather than focusing on > skills and isolated behaviors. For a detailed overview, download 2 page > flyer. > > Hopefully others will share their experiences on how it has helped their > child. > > I have never had this offered in our community, only have had to read or > observe what a great therapy session it has been implemented with other > specialized services. > > Irma,21,DS/ASD > > > > > > Sara - > > > > > What is the GREENSPAN method? I don't believe I've heard of it before. > > > > > > > > Kathy > > > > > -- Sara -To Life! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 I personally think that Floortime follows more of the learn by play mentality. We all play with our kids but floortime helps you learn HOW to play in a more productive way. You might think you know, but honestly, after watching a few videos and reading some things, I learned so much....and I was a preschool teacher! I like the getting on the floor, getting into their world, getting them to lead the way. It is amazing to watch and when I was working with Jake when he was younger I actually got my first purposeful answer from him. We were playing with the doll house and we put the chairs around the doll table, and then put the Mommy and Daddy in the chairs, etc. I then said to Jake " what are the Mommy and the Daddy going to do? " And he looked me like Duh! " EAT " he said. Awesome moment! Holly Re: Re: ABA therapy IMHO, the benefit of floortime is that one can actually learn from readingon how to do it, and it seems more intuitive to me. It did help us get Elie to engage with us in a natural manner and not the foced compliance which I objected to in ABA. > > > http://www.icdl.com/dirFloortime/overview/index.shtml > The Developmental, Individual Difference, Relationship-based > (DIR®/Floortime™) Model is a framework that helps clinicians, parents and > educators conduct a comprehensive assessment and develop an intervention > program tailored to the unique challenges and strengths of children with > Autism Spectrum Disorders (ASD) and other developmental challenges. The > objectives of the DIR®/Floortime™ Model are to build healthy foundations > for social, emotional, and intellectual capacities rather than focusing on > skills and isolated behaviors. For a detailed overview, download 2 page > flyer. > > Hopefully others will share their experiences on how it has helped their > child. > > I have never had this offered in our community, only have had to read or > observe what a great therapy session it has been implemented with other > specialized services. > > Irma,21,DS/ASD > > > > > > Sara - > > > > > What is the GREENSPAN method? I don't believe I've heard of it before. > > > > > > > > Kathy > > > > > -- Sara -To Life! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Oh Holly - you hit it on the head!! The interactions are purposeful directed, but so natural. Following the lead of another person until the time comes where the other person follows the lead of the directed person. I remember the first time ELie took a doll and attempted to BURP IT!! Something he had seen me do while he was twirling his doll, but eventually he followed. And then shortly after that, he stopped me from twirling a doll nad showed me how to cradle it! I really found floortime to be HUMAN> > > > I personally think that Floortime follows more of the learn by play > mentality. We all play with our kids but floortime helps you learn HOW to > play in a more productive way. You might think you know, but honestly, after > watching a few videos and reading some things, I learned so much....and I > was a preschool teacher! > > I like the getting on the floor, getting into their world, getting them to > lead the way. It is amazing to watch and when I was working with Jake when > he was younger I actually got my first purposeful answer from him. We were > playing with the doll house and we put the chairs around the doll table, and > then put the Mommy and Daddy in the chairs, etc. I then said to Jake " what > are the Mommy and the Daddy going to do? " And he looked me like Duh! " EAT " > he said. Awesome moment! > Holly > > > Re: Re: ABA therapy > > IMHO, the benefit of floortime is that one can actually learn from > readingon > how to do it, and it seems more intuitive to me. It did help us get Elie to > engage with us in a natural manner and not the foced compliance which I > objected to in ABA. > > On Mon, Aug 3, 2009 at 8:51 PM, mum592001 <itcanfield@...<itcanfield%40gmail.com>> > wrote: > > > > > > > http://www.icdl.com/dirFloortime/overview/index.shtml > > The Developmental, Individual Difference, Relationship-based > > (DIR®/Floortime™) Model is a framework that helps clinicians, parents > and > > educators conduct a comprehensive assessment and develop an intervention > > program tailored to the unique challenges and strengths of children with > > Autism Spectrum Disorders (ASD) and other developmental challenges. The > > objectives of the DIR®/Floortime™ Model are to build healthy > foundations > > for social, emotional, and intellectual capacities rather than focusing > on > > skills and isolated behaviors. For a detailed overview, download 2 page > > flyer. > > > > Hopefully others will share their experiences on how it has helped their > > child. > > > > I have never had this offered in our community, only have had to read or > > observe what a great therapy session it has been implemented with other > > specialized services. > > > > Irma,21,DS/ASD > > > > > > > > > > Sara - > > > > > > > > What is the GREENSPAN method? I don't believe I've heard of it before. > > > > > > > > > > > > Kathy > > > > > > > > > > > -- > Sara -To Life! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 He goes to aba during this summer 3x for 3 hours a week and at home we have certain activities that we follow the aba model like matching,following verbal directions and drawing with out throwing the crayon as well as labeling , most other activities we use the floortime model following his lead and engaging in purposefully interactions? playing games and staring the beginning of pretend play.? he also goes to floortime playgroup 1x aweek and she comes to our house every other week. Re: ABA therapy > > Why do you have to choose? one method over another We do floortine(Greenspan ) and ABA > have found what I think is best for my son. All methods I have found take lots of time at home . Would you please share a little how this is implemented for all those not aware of this combination. I am aware but it would be great to read what your child has benefit from such a combo as this. Several cities do not offer this unless one travels where it is pretty utilized and think out of the box and proceed once on this mission. Pretty limited here in our community if one is knowledgeable and able to work with the individuals under the autism spectrum or related disorders, etc. It is always great to read such post on what helps your kiddos. Thanks! Irma,21,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 --- My little guy who is almost 3 was just diagnosed with Autism and has DS. We are on the wait list here in Michigan for The Play Project. His specialist suggested reading Giggle Time and he thinks that this is a method that isn't so drilling and allowing the children to engage and learn through play with me at home 15 hours a week he said.. 2 hrs aday. In , hdauer@... wrote: > > My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her > cognitive level is scattered between a 1 to 2-1/2 year old. She has come up > to the top of the list (6 months early) for our state-waiver ABA therapy > program. I'm not ready for this! I had even been contemplating not doing it > at all, because she's been in school since age 3 and is in her routine, > learning (slow but sure), and enjoys school and her peers (she is partially > included with typical kids and is part of what I consider to be a very good > special education program). Her special education teacher doesn't think it > is worth doing and even said if I really want some ABA therapy for , > she would look at the books I've purchased on ABA, sit down with me, and > come up with a program (change her IEP). She said that really, the things > she is doing now though aren't much different (just not as intensive). I > also have a 2-1/2 year old. I don't know how I'd be able to manage with her > strong-willed ways and wanting to constantly be a part of 's therapy > at home. I don't want to pull out of school completely, so we'd > only be able to do the therapy part-time (so is even worth not doing the > full-time program?) ABA would be a complete disruption to what we have in > place and what she's used to and I don't think it would be very easy on this > family if we tried to do school and ABA (we'd have no lives pretty much and I > have to remember I have another daughter). > > The issue now also is that most service providers don't put kids after age > 8 as a priority. I did find one place who takes any age, but they have a 6 > month wait list just for an evaluation. The county won't let 's > placement go on hold until then. She'd have to go back on the wait list and > that is only if the service provider is willing to give them a clinical > confirmation letter stating that they would in fact take after age 8; > however, the county said they may not do that without an evaluation. > > I've always wondered if the intensive ABA home therapy is worth doing (vs. > school) because of her age and her extra dx's (she doesn't have just autism > and she had seizures from age 10 months to 2 years old - very crucial > development time). But, then do I take into consideration her cognitive age > (and I think the county forgot that when they told me that " it's said out in > the field that children your daughter's age may not really benefit from ABA > anyway). > > Do any of you (or have any of you) had the intensive ABA therapy at home > and your child was older than age 8? Did you see benefits? I just want to > make the right decision, and for some reason this has been very hard for me > (I've been agonizing over doing it for the last 6 months, but thinking I > still had until December to decide.) > > I appreciate any comments, suggestions, opinions, etc. that you can > provide! > > Heidi > (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) > No two flowers bloom in exactly the same way (but all are beautiful). > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd > =JulystepsfooterNO115) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Not weighing in on the type of therapy, but more on the importance of a good routine. If she's happy and doing well and her peers know her and she can stay with them and her teacher and not have to change and you like where she's at, I'd be tempted to continue with what works. My son (Darwyn age 5) learns a lot from his peers but it took him 6 months to truly get used to them and quit treating them like obstacles. An established routine with peers who care about your child is really of value. Also, I truly NEED him to not be at home for some of the day in order to do well. That is a very valid consideration. Choosing between 2 good things can be difficult, so many what ifs - good luck. ABA therapy My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her cognitive level is scattered between a 1 to 2-1/2 year old. She has come up to the top of the list (6 months early) for our state-waiver ABA therapy program. I'm not ready for this! I had even been contemplating not doing it at all, because she's been in school since age 3 and is in her routine, learning (slow but sure), and enjoys school and her peers (she is partially included with typical kids and is part of what I consider to be a very good special education program). Her special education teacher doesn't think it is worth doing and even said if I really want some ABA therapy for , she would look at the books I've purchased on ABA, sit down with me, and come up with a program (change her IEP). She said that really, the things she is doing now though aren't much different (just not as intensive). I also have a 2-1/2 year old. I don't know how I'd be able to manage with her strong-willed ways and wanting to constantly be a part of 's therapy at home. I don't want to pull out of school completely, so we'd only be able to do the therapy part-time (so is even worth not doing the full-time program?) ABA would be a complete disruption to what we have in place and what she's used to and I don't think it would be very easy on this family if we tried to do school and ABA (we'd have no lives pretty much and I have to remember I have another daughter). The issue now also is that most service providers don't put kids after age 8 as a priority. I did find one place who takes any age, but they have a 6 month wait list just for an evaluation. The county won't let 's placement go on hold until then. She'd have to go back on the wait list and that is only if the service provider is willing to give them a clinical confirmation letter stating that they would in fact take after age 8; however, the county said they may not do that without an evaluation. I've always wondered if the intensive ABA home therapy is worth doing (vs. school) because of her age and her extra dx's (she doesn't have just autism and she had seizures from age 10 months to 2 years old - very crucial development time). But, then do I take into consideration her cognitive age (and I think the county forgot that when they told me that " it's said out in the field that children your daughter's age may not really benefit from ABA anyway). Do any of you (or have any of you) had the intensive ABA therapy at home and your child was older than age 8? Did you see benefits? I just want to make the right decision, and for some reason this has been very hard for me (I've been agonizing over doing it for the last 6 months, but thinking I still had until December to decide.) I appreciate any comments, suggestions, opinions, etc. that you can provide! Heidi (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) No two flowers bloom in exactly the same way (but all are beautiful). **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO115) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 Hi Heidi, Our is 5 1/2 yrs old and tests at a 13 mo cognitive level. We are trying to get an emergency waiver for him which would help greatly w/so many of his needs: therapuetic, medical, dietary...that is, it would free up our funds to be used for dietary instead of for co-pays and hours of therapy not covered by our Ohio Autism scholarship. So, my initial thought when I read your email was " Don't give up the waiver before trying it out! " . However, I don't know what your state requires for use of the waiver moneys. If they absolutely require the intensive ABA home therapy and will not allow flexibility in allowing you to create both a school and home program for your child, then I could see why you are so reluctant to consider it. When we started ABA therapy in-home (because of 's medical & immune system issues), we started w/an agency which did the very intensive Discrete Trial training - which is only one way of utilizing ABA techniques. did NOT respond well to this - became like a little puppet - needing to be physically prompted to do the tasks, as he was not motivated by any rewards. I also didn't like the methodology which does seem like an unnatural way to teach. Though it may work very well for some children, it didn't for ours. Then, (by God's Providence I believe), we lost our behavioral consultant at the first agency & needed to find a new one. We found The Learning Spectrum - an agency started by two special ed teachers w/masters in ABA. they use naturalized ABA techniques...and social groups to teach skills. So, they break down skills into small steps and try to use routines and play to help the child learn. Now, goes part-time to school at The Learning Spectrum and has a part-time home ABA program. It is the best fit for him and gives me the time I need to work part-time and take care of things at home. So long story short - my reaction to your email is:I would inquire if there is flexibility in creating a program using the waiver funds. If there is - it might be a God-send for you. At home, you may even find it helps you and your two little ones - freeing up time for you & the 2 1/2 yr old, etc. If the rules are rigid & you cannot also keep in the school program in which she is thriving - then that's another story altogether. These decisions are so difficult - it took us several months to find the right mix for our son, and I was stressing and praying through the whole process. I hope you have peace knowing that if you trust your instincts as to what's best for your family, you are doing the right thing. - Subject: ABA therapy To: Date: Monday, August 3, 2009, 8:02 PM My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her cognitive level is scattered between a 1 to 2-1/2 year old. She has come up to the top of the list (6 months early) for our state-waiver ABA therapy program. I'm not ready for this! I had even been contemplating not doing it at all, because she's been in school since age 3 and is in her routine, learning (slow but sure), and enjoys school and her peers (she is partially included with typical kids and is part of what I consider to be a very good special education program). Her special education teacher doesn't think it is worth doing and even said if I really want some ABA therapy for , she would look at the books I've purchased on ABA, sit down with me, and come up with a program (change her IEP). She said that really, the things she is doing now though aren't much different (just not as intensive). I also have a 2-1/2 year old. I don't know how I'd be able to manage with her strong-willed ways and wanting to constantly be a part of 's therapy at home. I don't want to pull out of school completely, so we'd only be able to do the therapy part-time (so is even worth not doing the full-time program?) ABA would be a complete disruption to what we have in place and what she's used to and I don't think it would be very easy on this family if we tried to do school and ABA (we'd have no lives pretty much and I have to remember I have another daughter). The issue now also is that most service providers don't put kids after age 8 as a priority. I did find one place who takes any age, but they have a 6 month wait list just for an evaluation. The county won't let 's placement go on hold until then. She'd have to go back on the wait list and that is only if the service provider is willing to give them a clinical confirmation letter stating that they would in fact take after age 8; however, the county said they may not do that without an evaluation. I've always wondered if the intensive ABA home therapy is worth doing (vs. school) because of her age and her extra dx's (she doesn't have just autism and she had seizures from age 10 months to 2 years old - very crucial development time). But, then do I take into consideration her cognitive age (and I think the county forgot that when they told me that " it's said out in the field that children your daughter's age may not really benefit from ABA anyway). Do any of you (or have any of you) had the intensive ABA therapy at home and your child was older than age 8? Did you see benefits? I just want to make the right decision, and for some reason this has been very hard for me (I've been agonizing over doing it for the last 6 months, but thinking I still had until December to decide.) I appreciate any comments, suggestions, opinions, etc. that you can provide! Heidi (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) No two flowers bloom in exactly the same way (but all are beautiful). ************ **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. com/promoclk/ 100126575x122284 6709x1201493018/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO1 15) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 , love your post. Thank you for sharing what you have gone through. Such a Blessing just to know how things pan out for you but especially for your little one. Just awesome! Irma,21,DS/ASD > > > > Subject: ABA therapy > To: > Date: Monday, August 3, 2009, 8:02 PM > > > � > > > > My daughter has DS, autism, epilepsy. She is 7-1/2 years old, but her > cognitive level is scattered between a 1 to 2-1/2 year old. She has come up > to the top of the list (6 months early) for our state-waiver ABA therapy > program. I'm not ready for this! I had even been contemplating not doing it > at all, because she's been in school since age 3 and is in her routine, > learning (slow but sure), and enjoys school and her peers (she is partially > included with typical kids and is part of what I consider to be a very good > special education program). Her special education teacher doesn't think it > is worth doing and even said if I really want some ABA therapy for , > she would look at the books I've purchased on ABA, sit down with me, and > come up with a program (change her IEP). She said that really, the things > she is doing now though aren't much different (just not as intensive). I > also have a 2-1/2 year old. I don't know how I'd be able to manage with her > strong-willed ways and wanting to constantly be a part of 's therapy > at home. I don't want to pull out of school completely, so we'd > only be able to do the therapy part-time (so is even worth not doing the > full-time program?) ABA would be a complete disruption to what we have in > place and what she's used to and I don't think it would be very easy on this > family if we tried to do school and ABA (we'd have no lives pretty much and I > have to remember I have another daughter). > > The issue now also is that most service providers don't put kids after age > 8 as a priority. I did find one place who takes any age, but they have a 6 > month wait list just for an evaluation. The county won't let 's > placement go on hold until then. She'd have to go back on the wait list and > that is only if the service provider is willing to give them a clinical > confirmation letter stating that they would in fact take after age 8; > however, the county said they may not do that without an evaluation. > > I've always wondered if the intensive ABA home therapy is worth doing (vs. > school) because of her age and her extra dx's (she doesn't have just autism > and she had seizures from age 10 months to 2 years old - very crucial > development time). But, then do I take into consideration her cognitive age > (and I think the county forgot that when they told me that " it's said out in > the field that children your daughter's age may not really benefit from ABA > anyway). > > Do any of you (or have any of you) had the intensive ABA therapy at home > and your child was older than age 8? Did you see benefits? I just want to > make the right decision, and for some reason this has been very hard for me > (I've been agonizing over doing it for the last 6 months, but thinking I > still had until December to decide.) > > I appreciate any comments, suggestions, opinions, etc. that you can > provide! > > Heidi > (Mom to 7-1/2 w/ DS, ASD, epilepsy, and Clara 2-1/2) > No two flowers bloom in exactly the same way (but all are beautiful). > ************ **A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola. com/promoclk/ 100126575x122284 6709x1201493018/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072 & hmpgID=115 & bcd > =JulystepsfooterNO1 15) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 Heidi, it sounds from some of the other responses that there might be several ways to " do " ABA therapy. We started doing an ABA program at home, after school, with Gabe when he was 8. He has continued this schedule of 3 hours a day, 6 days a week (Sundays off) since then, and I really have seen improvements from it. However, his therapists have been great at tweaking how they work with him. It's not all discrete trials sitting at a desk ( " Do this " over and over) by any means. They do a lot of play, they do a lot of " work " in settings that Gabe finds most motivating, like with his brothers or on the swing, and they've been a huge aid to him. We've pressed hard on the school (he's in a special day class) to incorporate ABA modalities, tweaked to fit a classroom environment, and to provide him with a 1-to-1 aide to provide some specific ABA teaching techniques. Once we got a behaviorist to oversee the aide and to work with the supervisor of Gabe's home program, I think we started to see the best of both worlds. Now we have some continuity between Gabe's school time and his home time, and this has been really important. The biggest drawback has been the impact on our family---when we have the ABA therapist here, there has to be a responsible adult on the premises, and that ends up being ME. This means that from 3 to 6 pm, every weekday afternoon, the other kids and I have to be at home, and this has really has affected some aspects of our other kids' lives. So this could definitely be a deal-killer for some families. But overall, especially once we got collaboration with the school, I think ABA therapy with flexible therapists has been great for Gabe. Good luck in your decision; I'm sure you'll find something that works best for your entire family J. Joni and kids, incl. Gabe, 10, w/Ds and autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2011 Report Share Posted April 28, 2011 There's all kinds of research supporting ABA for children on the spectrum and cross-over research supporting the same for kids with DS. Can you fight it? Does your state offer ABA to children on the spectrum past 5? Do they offer parent training? (a way around it, have them pay for you to be trained in ABA) In Nassau County NY, they provide ABA almost automatically if you're on the spectrum but can hardly get it at all if you do not have a dx for ASD.  Best Regards, Maggie www.walkonthehappyside.wordpress.com ________________________________ To: Sent: Thu, April 28, 2011 4:23:11 PM Subject: ABA therapy  ph's developmental pediatrician wrote a prescription for ABA therapy, but DDD won't pay for it past the age of 5 and we can't afford to pay for it ourselves. Does anyone know of books, videos, or online instruction on how to do ABA therapy? Dena (mom of ph, 12, DS/ASD and his 7 siblings) Quote Link to comment Share on other sites More sharing options...
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