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One will really never know on what is triggering off these behaviors, if

non-vocal, this too would also set off some of these behavioral issues as this

is communication.

My son was recommended a certain supplement to help with turning off anger, OCD

which was to help fight the strep (inflammation) in the brain. To help calm him

down and also his teethgrinding.

A wee bit of my notes as this is what I have had heard and told.

Gut integrity is the basis of all health. Toxins in the body will increase the

potential for allergy, and allergies generate inflammation. Inflammation is very

damaging to the body, especially if it is chronic inflammation. Toxins such as

foods, viruses, bacteria, chemicals and heavy metals can all generate

inflammation. An approach is to help reduce an overall toxic burden to alleviate

the inflammation. As one decreases the allergy and inflammation through dietary

control, supplementation, etc. one can begin the process of the recommendation

that a medical physicians on the next steps once this is repair.

Currently since having to take another approach recently my son is now seen by

another medical physician who " has a great interest in the mechanisms of

allergic and immunologic disease, enjoys a world-wide reputation particularly in

respiratory, gastrointestinal, skin and central nervous system disorders caused

by foodstuffs. For all his patients, children or adults, he is dedicated to

comprehensive healing involving appropriate preventive, medical, dietary,

fitness and psychological approaches " .

Thought I share this as this is what helped decrease this aggressive issues in

our house. Could be in pain and this is his way of acting out when one is

undergoing through such excruciating pain.

One of the food items or ingredients was to remove anything with corn, corn

syrup, High-fructose corn syrup, etc. This stirred such aggressiveness but once

removed, finally my son was calm as well.

Irma,21,DS/ASD

>

> My husband and I are at our wits end with our son ph and don't know what

to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> Dena

>

>

>

>

>

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All this time I had been giving my daughter 100% juice thinking it was the best

thing for her and I didn't like the idea of chemicals, additive, preservatives,

etc. Now since the SIB is getting worse and she has gained weight I have

switched to diet juices or diluting regular juices. I am wondering how much

damage I have done. When at home she has juice at the counter all day long and

drinks alot, at least 50ozs or more. At school she only has 2 juice boxes all

day which are like 120 cal each. I don't think it is normal for someone to

constantly drink all day long. I also bought the powder stuff to flavor water.

She doesn't drink anything but juice. Once in awhile if we are out and there is

nothing but water, she will drink it. When she was younger she only drank soy

milk and I would buy it by the case. She won't even drink chocolate milk. I

read something yesterday that said excessive drinking was also considered SIB.

Someone told me that Duke has a DS Clinic. That's a half hour away and I am

wondering if they have experience with autism also. Even though the

psychologist that saw her for 20-30 minutes said no to autism, I feel she does.

Everyone around her feels she does. The journey never ends. Except this time

lately when Emelinne is acting out in public and someone looks, I get angry and

I feel like saying something to them. What's that about?

> >

> > My husband and I are at our wits end with our son ph and don't know what

to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> > Dena

> >

> >

> >

> >

> >

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that is about the age i really started having problems with my son, taylor.  he

is DS/Autistic and was diagnosed with ODD.  he will be 18 11/01, and two years

ago, he became increasingly aggressive.  we were trying different meds and

prozac and adderall sent him through the roof!  has there been a med change or

anything else that changed that upset him?  our kids are so OCD that anything

that upsets taylor's routine usually makes him angry.  

Subject: What should we do?

To:

Date: Friday, August 14, 2009, 2:45 AM

 

My husband and I are at our wits end with our son ph and

don't know what to do.  ph's behavior towards everyone has gotten really

bad.  He's hitting, kicking, biting, yelling, throwing things, using toys and

other things as weapons, and generally being abusive to his brothers, sisters,

dad, me, our cats, and even his speech therapist.  He's always angry and we

don't know why.  Is it puberty?  He'll be 11 next month.  How do we get him to

stop being abusive?

Dena

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HAs anyone checked to see if she has diabetes? or diabetes insipidus? Both

of these cause a great need to drink, but are not the only possibilities.

Traveling 30 minutes to get to DUKE, IMHO, will be worth it, but first

marshall all the evidence you cqan remember and take with you on SIB, OCD,

perseverative behaviors, etc. Do an autism check list. Aks her teachers

what they think and take their reports as well.

Juice is alot of calories. Soy has huge amouonts of estrogen - be wary of

much of that.

if there is nothing but water, will she drink it??

On Fri, Aug 14, 2009 at 6:49 AM, nevergrowingup59 <

nevergrowingup59@...> wrote:

>

>

>

> All this time I had been giving my daughter 100% juice thinking it was the

> best thing for her and I didn't like the idea of chemicals, additive,

> preservatives, etc. Now since the SIB is getting worse and she has gained

> weight I have switched to diet juices or diluting regular juices. I am

> wondering how much damage I have done. When at home she has juice at the

> counter all day long and drinks alot, at least 50ozs or more. At school she

> only has 2 juice boxes all day which are like 120 cal each. I don't think it

> is normal for someone to constantly drink all day long. I also bought the

> powder stuff to flavor water. She doesn't drink anything but juice. Once in

> awhile if we are out and there is nothing but water, she will drink it. When

> she was younger she only drank soy milk and I would buy it by the case. She

> won't even drink chocolate milk. I read something yesterday that said

> excessive drinking was also considered SIB. Someone told me that Duke has a

> DS Clinic. That's a half hour away and I am wondering if they have

> experience with autism also. Even though the psychologist that saw her for

> 20-30 minutes said no to autism, I feel she does. Everyone around her feels

> she does. The journey never ends. Except this time lately when Emelinne is

> acting out in public and someone looks, I get angry and I feel like saying

> something to them. What's that about?

>

>

> > >

> > > My husband and I are at our wits end with our son ph and don't know

> what to do. �ph's behavior towards everyone has gotten really bad.

> �He's hitting, kicking, biting, yelling, throwing things, using toys and

> other things as weapons, and generally being abusive to his brothers,

> sisters, dad, me, our cats, and even his speech therapist. �He's always

> angry and we don't know why. �Is it puberty? �He'll be 11 next

month.

> �How do we get him to stop being abusive?

> > > Dena

> > >

> > >

> > >

> > >

> > >

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Elie's worst year was between 18-19. We had tried a number of SSRI's and

anti depressants and stimulants. Nothing worked enough to justify the

weight gain, mood swings, and at the end the VIOLENCE from Zoloft. So we

took him off everything.

Then we really got aggressive with behavioral means. EVERYTHING was put

on a contingent basis. His life was scheduled and he knew what was going to

happen in advance each day. We calendarred everything and went over it each

nite. Things didn't improve overnite, but over a course of months with the

school following the plan the same as we did at home. I must say, that the

school psychologist was a great help to us.

Everything we wanted him to do was prefaced by " First you need to ..... and

then you may do....... " What ever he did got a reward - even if only 5

minutes of computer time, or his special music or even playing with his

stuffed baby.

Believe me, it was not always easy, but it was so much easier then dealing

with the violent outbursts and unpredictable behavior.

Elie is still dependent on checking his clendar and asking " what's next " ?

BUt he has way fewer meltdowns, no aggression, and he is happier.

On Fri, Aug 14, 2009 at 8:07 AM, michelle conaway wrote:

>

>

> that is about the age i really started having problems with my son, taylor.

> he is DS/Autistic and was diagnosed with ODD. he will be 18 11/01, and two

> years ago, he became increasingly aggressive. we were trying different meds

> and prozac and adderall sent him through the roof! has there been a med

> change or anything else that changed that upset him? our kids are so OCD

> that anything that upsets taylor's routine usually makes him angry.

>

>

>

> From: Dena Motz <dena_6c@... <dena_6c%40yahoo.com>>

> Subject: What should we do?

> To:

> Date: Friday, August 14, 2009, 2:45 AM

>

>

>

> My husband and I are at our wits end with our son ph and don't know

> what to do. ph's behavior towards everyone has gotten really bad. He's

> hitting, kicking, biting, yelling, throwing things, using toys and other

> things as weapons, and generally being abusive to his brothers, sisters,

> dad, me, our cats, and even his speech therapist. He's always angry and we

> don't know why. Is it puberty? He'll be 11 next month. How do we get him

> to stop being abusive?

>

> Dena

>

>

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Irma,

Hi,

I am interested in what supplements helped to turn off the anger.  My son has

extreme self abusive behaviors, and we have been battling this for years with no

avail.  He has gone blind in one eye from it and his last episode was to develop

a hematoma in his ear, which we had to have surgery on.  We have tried

practically everything, but he still hits.

Anyone with suggestions out there we would be grateful.

Thanks

________________________________

To:

Sent: Friday, August 14, 2009 4:11:22 AM

Subject: Re: What should we do?

 

One will really never know on what is triggering off these behaviors, if

non-vocal, this too would also set off some of these behavioral issues as this

is communication.

My son was recommended a certain supplement to help with turning off anger, OCD

which was to help fight the strep (inflammation) in the brain. To help calm him

down and also his teethgrinding.

A wee bit of my notes as this is what I have had heard and told.

Gut integrity is the basis of all health. Toxins in the body will increase the

potential for allergy, and allergies generate inflammation. Inflammation is very

damaging to the body, especially if it is chronic inflammation. Toxins such as

foods, viruses, bacteria, chemicals and heavy metals can all generate

inflammation. An approach is to help reduce an overall toxic burden to alleviate

the inflammation. As one decreases the allergy and inflammation through dietary

control, supplementation, etc. one can begin the process of the recommendation

that a medical physicians on the next steps once this is repair.

Currently since having to take another approach recently my son is now seen by

another medical physician who " has a great interest in the mechanisms of

allergic and immunologic disease, enjoys a world-wide reputation particularly in

respiratory, gastrointestinal, skin and central nervous system disorders caused

by foodstuffs. For all his patients, children or adults, he is dedicated to

comprehensive healing involving appropriate preventive, medical, dietary,

fitness and psychological approaches " .

Thought I share this as this is what helped decrease this aggressive issues in

our house. Could be in pain and this is his way of acting out when one is

undergoing through such excruciating pain.

One of the food items or ingredients was to remove anything with corn, corn

syrup, High-fructose corn syrup, etc. This stirred such aggressiveness but once

removed, finally my son was calm as well.

Irma,21, DS/ASD

>

> My husband and I are at our wits end with our son ph and don't know what

to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> Dena

>

>

>

>

>

Link to comment
Share on other sites

what is the medicine OCD?

Subject: Re: Re: What should we do?

To:

Date: Friday, August 14, 2009, 10:31 AM

 

Irma,

Hi,

I am interested in what supplements helped to turn off the anger.  My son has

extreme self abusive behaviors, and we have been battling this for years with no

avail.  He has gone blind in one eye from it and his last episode was to develop

a hematoma in his ear, which we had to have surgery on.  We have tried

practically everything, but he still hits.

Anyone with suggestions out there we would be grateful.

Thanks

____________ _________ _________ __

From: mum592001 <itcanfieldgmail (DOT) com>

To: @yahoogrou ps.com

Sent: Friday, August 14, 2009 4:11:22 AM

Subject: Re: What should we do?

 

One will really never know on what is triggering off these behaviors, if

non-vocal, this too would also set off some of these behavioral issues as this

is communication.

My son was recommended a certain supplement to help with turning off anger, OCD

which was to help fight the strep (inflammation) in the brain. To help calm him

down and also his teethgrinding.

A wee bit of my notes as this is what I have had heard and told.

Gut integrity is the basis of all health. Toxins in the body will increase the

potential for allergy, and allergies generate inflammation. Inflammation is very

damaging to the body, especially if it is chronic inflammation. Toxins such as

foods, viruses, bacteria, chemicals and heavy metals can all generate

inflammation. An approach is to help reduce an overall toxic burden to alleviate

the inflammation. As one decreases the allergy and inflammation through dietary

control, supplementation, etc. one can begin the process of the recommendation

that a medical physicians on the next steps once this is repair.

Currently since having to take another approach recently my son is now seen by

another medical physician who " has a great interest in the mechanisms of

allergic and immunologic disease, enjoys a world-wide reputation particularly in

respiratory, gastrointestinal, skin and central nervous system disorders caused

by foodstuffs. For all his patients, children or adults, he is dedicated to

comprehensive healing involving appropriate preventive, medical, dietary,

fitness and psychological approaches " .

Thought I share this as this is what helped decrease this aggressive issues in

our house. Could be in pain and this is his way of acting out when one is

undergoing through such excruciating pain.

One of the food items or ingredients was to remove anything with corn, corn

syrup, High-fructose corn syrup, etc. This stirred such aggressiveness but once

removed, finally my son was calm as well.

Irma,21, DS/ASD

>

> My husband and I are at our wits end with our son ph and don't know what

to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> Dena

>

>

>

>

>

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Share on other sites

,

May I ask which state you are at?

Maybe someone on this list or I have connections with could refer your son to be

seen by a medical physician that understands like the DAN! Protocol or close to

addressing like a Immunologist/Allergist or an Internal Medicine physician and

then of course any Chiropractor, Homeopathic, etc.

I would highly suggest have your son tested in regards to rule out if he is

suffering from any underlying medical condition with a doctor that understands

like the DAN (Defeat Autism Now!)protocol.

Were you able to read what Cyndi had posted in regards to the PANDA testing,

highly recommend this as what you had mentioned could probably detect on what

your son is undergoing.

This would be great start to try to pinpoint on what is triggering off this

challenging behavior and once according to his lab results findings and the

recommendation treatments then would also consider someone like a BCBA (Board

Certified Behavior Analysis)who could assist addressing the challenging behavior

which you have mentioned that results in self-injury, or injury to others,

causes damage to the physical environment, interferes with the acquisition of a

new skill and/or socially isolates him.

Behavior is communication who have limited communication skills, challenging

behavior serves to communicate needs and wants.

Disclaimer, not a medical professional and one must really be monitor by a

medical professional who understands this approach.

I could share one of the supplements but not the dosage as remember my son was

monitor by a medical team and also a nutritionist/Homeopathic and it was

individualized to my son's needs.

Google it to inquire information on it.

Inositol has a natural calming effect and may be used in the treatment of

anxiety, depression, and obsessive-compulsive disorder without the side effects

of prescription medications.

It was Inositol+, a nervous system support.

My oldest son was recommended this as well due to his anxiety issues.

http://www.neurogistics.com/Conditions/PanicDisorder.asp

http://www.neurogistics.com/

Bless your heart for all these challenges you and your family have encounter.

Wishing you well towards seeking other avenues to help your son.

Irma,21,DS/ASD

>

> Irma,

> Hi,

> I am interested in what supplements helped to turn off the anger.� My son

has extreme self abusive behaviors, and we have been battling this for years

with no avail.� He has gone blind in one eye from it and his last episode was

to develop a hematoma in his ear, which we had to have surgery on.� We have

tried practically everything, but he still hits.

> Anyone with suggestions out there we would be grateful.

> Thanks

>

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Share on other sites

Irma,

Thank you for your heart warming reply.  We are from Pennsylvania, and I would

do any of the following information you suggested for Nate.  I did not even know

what DAN  was until I joined this group.  My pediatrician, always just shakes

his head, but never gives us any hope.  If you could steer me in a direction of

who I could see first, that would be a help.  Nate is 20, and this has been

going on since he was about 12.  We do have a lot of things going on, but not

anymore than the rest of what I am hearing.  This group has been a God sent for

me.  I wish I would have know about it years ago. 

Thank you

________________________________

To:

Sent: Friday, August 14, 2009 12:29:11 PM

Subject: Re: What should we do?

 

,

May I ask which state you are at?

Maybe someone on this list or I have connections with could refer your son to be

seen by a medical physician that understands like the DAN! Protocol or close to

addressing like a Immunologist/ Allergist or an Internal Medicine physician and

then of course any Chiropractor, Homeopathic, etc.

I would highly suggest have your son tested in regards to rule out if he is

suffering from any underlying medical condition with a doctor that understands

like the DAN (Defeat Autism Now!)protocol.

Were you able to read what Cyndi had posted in regards to the PANDA testing,

highly recommend this as what you had mentioned could probably detect on what

your son is undergoing.

This would be great start to try to pinpoint on what is triggering off this

challenging behavior and once according to his lab results findings and the

recommendation treatments then would also consider someone like a BCBA (Board

Certified Behavior Analysis)who could assist addressing the challenging behavior

which you have mentioned that results in self-injury, or injury to others,

causes damage to the physical environment, interferes with the acquisition of a

new skill and/or socially isolates him.

Behavior is communication who have limited communication skills, challenging

behavior serves to communicate needs and wants.

Disclaimer, not a medical professional and one must really be monitor by a

medical professional who understands this approach.

I could share one of the supplements but not the dosage as remember my son was

monitor by a medical team and also a nutritionist/ Homeopathic and it was

individualized to my son's needs.

Google it to inquire information on it.

Inositol has a natural calming effect and may be used in the treatment of

anxiety, depression, and obsessive-compulsiv e disorder without the side effects

of prescription medications.

It was Inositol+, a nervous system support.

My oldest son was recommended this as well due to his anxiety issues.

http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

http://www.neurogis tics.com/

Bless your heart for all these challenges you and your family have encounter.

Wishing you well towards seeking other avenues to help your son.

Irma,21, DS/ASD

>

> Irma,

> Hi,

> I am interested in what supplements helped to turn off the anger.� My son

has extreme self abusive behaviors, and we have been battling this for years

with no avail.� He has gone blind in one eye from it and his last episode was

to develop a hematoma in his ear, which we had to have surgery on.� We have

tried practically everything, but he still hits.

> Anyone with suggestions out there we would be grateful.

> Thanks

>

Link to comment
Share on other sites

>

>

> Irma,

> Thank you for your heart warming reply. We are from Pennsylvania, and I

> would do any of the following information you suggested for Nate. I did not

> even know what DAN was until I joined this group. My pediatrician, always

> just shakes his head, but never gives us any hope. If you could steer me in

> a direction of who I could see first, that would be a help. Nate is 20, and

> this has been going on since he was about 12. We do have a lot of things

> going on, but not anymore than the rest of what I am hearing. This group

> has been a God sent for me. I wish I would have know about it years ago.

> Thank you

>

>

> ________________________________

> From: mum592001 <itcanfield@... <itcanfield%40gmail.com>>

> To:

> Sent: Friday, August 14, 2009 12:29:11 PM

> Subject: Re: What should we do?

>

>

> ,

>

> May I ask which state you are at?

>

> Maybe someone on this list or I have connections with could refer your son

> to be seen by a medical physician that understands like the DAN! Protocol or

> close to addressing like a Immunologist/ Allergist or an Internal Medicine

> physician and then of course any Chiropractor, Homeopathic, etc.

>

> I would highly suggest have your son tested in regards to rule out if he is

> suffering from any underlying medical condition with a doctor that

> understands like the DAN (Defeat Autism Now!)protocol.

>

> Were you able to read what Cyndi had posted in regards to the PANDA

> testing, highly recommend this as what you had mentioned could probably

> detect on what your son is undergoing.

>

> This would be great start to try to pinpoint on what is triggering off this

> challenging behavior and once according to his lab results findings and the

> recommendation treatments then would also consider someone like a BCBA

> (Board Certified Behavior Analysis)who could assist addressing the

> challenging behavior which you have mentioned that results in self-injury,

> or injury to others, causes damage to the physical environment, interferes

> with the acquisition of a new skill and/or socially isolates him.

> Behavior is communication who have limited communication skills,

> challenging behavior serves to communicate needs and wants.

>

> Disclaimer, not a medical professional and one must really be monitor by a

> medical professional who understands this approach.

>

> I could share one of the supplements but not the dosage as remember my son

> was monitor by a medical team and also a nutritionist/ Homeopathic and it

> was individualized to my son's needs.

>

> Google it to inquire information on it.

> Inositol has a natural calming effect and may be used in the treatment of

> anxiety, depression, and obsessive-compulsiv e disorder without the side

> effects of prescription medications.

> It was Inositol+, a nervous system support.

> My oldest son was recommended this as well due to his anxiety issues.

> http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

> http://www.neurogis tics.com/

>

> Bless your heart for all these challenges you and your family have

> encounter. Wishing you well towards seeking other avenues to help your son.

>

> Irma,21, DS/ASD

>

>

> >

> > Irma,

> > Hi,

> > I am interested in what supplements helped to turn off the anger.� My

> son has extreme self abusive behaviors, and we have been battling this for

> years with no avail.� He has gone blind in one eye from it and his last

> episode was to develop a hematoma in his ear, which we had to have surgery

> on.� We have tried practically everything, but he still hits.

> > Anyone with suggestions out there we would be grateful.

> > Thanks

> >

>

>

Link to comment
Share on other sites

My son has always been very self destructive. After awhile the hitting becomes

second nature. Meds for us do not stopp the self injurious behaviors. You have

to retrain the child not to hit himself with arm braces and sometimes face/head

gear. KKI made arm braces for us and my son cannot get them off. When the

behavior starts you put the braces on and count. Take off the braces but just as

soon as the behavior starts you put them on again.Take away movies, music what

ever your child enjoys most and let him only have it when you catch him being

good and for a shot period of time. Token or reward worked for my son but if you

get lax it does not work.Dr. Bernard Rimland did studies on high amounts of

vitamin B-6 with Magnesium. This has been a big help with my son. We also

switched to the GF/CF diet and it has helped to open his mind up from the

fog.PANDAS TEST (STREP INFECTION)

CAN CAUSE ) OCD BEHAVIORS,TICS, ETC

http://www.adhd.com.au/PANDAS.htm I hope all this helps. good luck. Cyndi B

>

> what is the medicine OCD?

>

>

>

>

> Subject: Re: Re: What should we do?

> To:

> Date: Friday, August 14, 2009, 10:31 AM

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

> Irma,

>

> Hi,

>

> I am interested in what supplements helped to turn off the anger.  My son has

extreme self abusive behaviors, and we have been battling this for years with no

avail.  He has gone blind in one eye from it and his last episode was to develop

a hematoma in his ear, which we had to have surgery on.  We have tried

practically everything, but he still hits.

>

> Anyone with suggestions out there we would be grateful.

>

> Thanks

>

>

>

>

>

> ____________ _________ _________ __

>

> From: mum592001 <itcanfieldgmail (DOT) com>

>

> To: @yahoogrou ps.com

>

> Sent: Friday, August 14, 2009 4:11:22 AM

>

> Subject: Re: What should we do?

>

>

>

>  

>

> One will really never know on what is triggering off these behaviors, if

non-vocal, this too would also set off some of these behavioral issues as this

is communication.

>

>

>

> My son was recommended a certain supplement to help with turning off anger,

OCD which was to help fight the strep (inflammation) in the brain. To help calm

him down and also his teethgrinding.

>

>

>

> A wee bit of my notes as this is what I have had heard and told.

>

>

>

> Gut integrity is the basis of all health. Toxins in the body will increase the

potential for allergy, and allergies generate inflammation. Inflammation is very

damaging to the body, especially if it is chronic inflammation. Toxins such as

foods, viruses, bacteria, chemicals and heavy metals can all generate

inflammation. An approach is to help reduce an overall toxic burden to alleviate

the inflammation. As one decreases the allergy and inflammation through dietary

control, supplementation, etc. one can begin the process of the recommendation

that a medical physicians on the next steps once this is repair.

>

>

>

> Currently since having to take another approach recently my son is now seen by

another medical physician who " has a great interest in the mechanisms of

allergic and immunologic disease, enjoys a world-wide reputation particularly in

respiratory, gastrointestinal, skin and central nervous system disorders caused

by foodstuffs. For all his patients, children or adults, he is dedicated to

comprehensive healing involving appropriate preventive, medical, dietary,

fitness and psychological approaches " .

>

>

>

> Thought I share this as this is what helped decrease this aggressive issues in

our house. Could be in pain and this is his way of acting out when one is

undergoing through such excruciating pain.

>

>

>

> One of the food items or ingredients was to remove anything with corn, corn

syrup, High-fructose corn syrup, etc. This stirred such aggressiveness but once

removed, finally my son was calm as well.

>

>

>

> Irma,21, DS/ASD

>

>

>

>

>

> >

>

> > My husband and I are at our wits end with our son ph and don't know what

to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

>

> > Dena

>

> >

>

> >

>

> >

>

> >

>

> >

Link to comment
Share on other sites

: There are DAN docs in Quakertown. I think Holly has taken Jakey

there... Holly???Liz

>

>

> Irma,

> Thank you for your heart warming reply. We are from Pennsylvania, and I

> would do any of the following information you suggested for Nate. I did not

> even know what DAN was until I joined this group. My pediatrician, always

> just shakes his head, but never gives us any hope. If you could steer me in

> a direction of who I could see first, that would be a help. Nate is 20, and

> this has been going on since he was about 12. We do have a lot of things

> going on, but not anymore than the rest of what I am hearing. This group

> has been a God sent for me. I wish I would have know about it years ago.

> Thank you

>

>

> ________________________________

> From: mum592001 <itcanfield@... <itcanfield%40gmail.com>>

> To:

> Sent: Friday, August 14, 2009 12:29:11 PM

> Subject: Re: What should we do?

>

>

> ,

>

> May I ask which state you are at?

>

> Maybe someone on this list or I have connections with could refer your son

> to be seen by a medical physician that understands like the DAN! Protocol or

> close to addressing like a Immunologist/ Allergist or an Internal Medicine

> physician and then of course any Chiropractor, Homeopathic, etc.

>

> I would highly suggest have your son tested in regards to rule out if he is

> suffering from any underlying medical condition with a doctor that

> understands like the DAN (Defeat Autism Now!)protocol.

>

> Were you able to read what Cyndi had posted in regards to the PANDA

> testing, highly recommend this as what you had mentioned could probably

> detect on what your son is undergoing.

>

> This would be great start to try to pinpoint on what is triggering off this

> challenging behavior and once according to his lab results findings and the

> recommendation treatments then would also consider someone like a BCBA

> (Board Certified Behavior Analysis)who could assist addressing the

> challenging behavior which you have mentioned that results in self-injury,

> or injury to others, causes damage to the physical environment, interferes

> with the acquisition of a new skill and/or socially isolates him.

> Behavior is communication who have limited communication skills,

> challenging behavior serves to communicate needs and wants.

>

> Disclaimer, not a medical professional and one must really be monitor by a

> medical professional who understands this approach.

>

> I could share one of the supplements but not the dosage as remember my son

> was monitor by a medical team and also a nutritionist/ Homeopathic and it

> was individualized to my son's needs.

>

> Google it to inquire information on it.

> Inositol has a natural calming effect and may be used in the treatment of

> anxiety, depression, and obsessive-compulsiv e disorder without the side

> effects of prescription medications.

> It was Inositol+, a nervous system support.

> My oldest son was recommended this as well due to his anxiety issues.

> http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

> http://www.neurogis tics.com/

>

> Bless your heart for all these challenges you and your family have

> encounter. Wishing you well towards seeking other avenues to help your son.

>

> Irma,21, DS/ASD

>

>

> >

> > Irma,

> > Hi,

> > I am interested in what supplements helped to turn off the anger.� My

> son has extreme self abusive behaviors, and we have been battling this for

> years with no avail.� He has gone blind in one eye from it and his last

> episode was to develop a hematoma in his ear, which we had to have surgery

> on.� We have tried practically everything, but he still hits.

> > Anyone with suggestions out there we would be grateful.

> > Thanks

> >

>

>

Link to comment
Share on other sites

my daughter has an ongoing staph infection. she has a rash on her buttocks.

dermatologist gave topical ointment and ped gave a liquid med that i ended up

throwing away because she could taste it in her juice and it was a high dosage.

this has been for years. what effect does this have on her system besides it

being uncomfortable for her? you mentioned strep so isn't that a staph

infection?

> >

> > >

> >

> > > My husband and I are at our wits end with our son ph and don't know

what to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> >

> > > Dena

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

Link to comment
Share on other sites

I found one DAN doctor in the Raleigh area. Integrative Medicine. I guess he

is the one that would check all levels of vitamins, etc. since the

endocrinologist only checked for a few things then? I feel something is going

to be off the chart with Emelinne.

> >

> > >

> >

> > > My husband and I are at our wits end with our son ph and don't know

what to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> >

> > > Dena

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

Link to comment
Share on other sites

Irma,

Where can I find information on the PANDA testing, would that be in the

archives.

Thanks

________________________________

To:

Sent: Friday, August 14, 2009 12:29:11 PM

Subject: Re: What should we do?

 

,

May I ask which state you are at?

Maybe someone on this list or I have connections with could refer your son to be

seen by a medical physician that understands like the DAN! Protocol or close to

addressing like a Immunologist/ Allergist or an Internal Medicine physician and

then of course any Chiropractor, Homeopathic, etc.

I would highly suggest have your son tested in regards to rule out if he is

suffering from any underlying medical condition with a doctor that understands

like the DAN (Defeat Autism Now!)protocol.

Were you able to read what Cyndi had posted in regards to the PANDA testing,

highly recommend this as what you had mentioned could probably detect on what

your son is undergoing.

This would be great start to try to pinpoint on what is triggering off this

challenging behavior and once according to his lab results findings and the

recommendation treatments then would also consider someone like a BCBA (Board

Certified Behavior Analysis)who could assist addressing the challenging behavior

which you have mentioned that results in self-injury, or injury to others,

causes damage to the physical environment, interferes with the acquisition of a

new skill and/or socially isolates him.

Behavior is communication who have limited communication skills, challenging

behavior serves to communicate needs and wants.

Disclaimer, not a medical professional and one must really be monitor by a

medical professional who understands this approach.

I could share one of the supplements but not the dosage as remember my son was

monitor by a medical team and also a nutritionist/ Homeopathic and it was

individualized to my son's needs.

Google it to inquire information on it.

Inositol has a natural calming effect and may be used in the treatment of

anxiety, depression, and obsessive-compulsiv e disorder without the side effects

of prescription medications.

It was Inositol+, a nervous system support.

My oldest son was recommended this as well due to his anxiety issues.

http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

http://www.neurogis tics.com/

Bless your heart for all these challenges you and your family have encounter.

Wishing you well towards seeking other avenues to help your son.

Irma,21, DS/ASD

>

> Irma,

> Hi,

> I am interested in what supplements helped to turn off the anger.� My son

has extreme self abusive behaviors, and we have been battling this for years

with no avail.� He has gone blind in one eye from it and his last episode was

to develop a hematoma in his ear, which we had to have surgery on.� We have

tried practically everything, but he still hits.

> Anyone with suggestions out there we would be grateful.

> Thanks

>

__.._,_.___

Messages in this topic (8) Reply (via web post) | Start a new topic

Messages | Files | Photos | Links | Database | Polls | Calendar

--------------------------------------------------

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kids. Share favorite bookmarks, ideas, and other information by including them.

Don't forget, messages are a permanent record of the archives for our list.

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--------------------------------------------

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Mom Power: Discover the community of moms doing more for their families, for the

world and for each other

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..

Link to comment
Share on other sites

Thanks

________________________________

To:

Sent: Friday, August 14, 2009 11:59:58 PM

Subject: Re: Re: What should we do?

:  There are DAN docs in Quakertown.  I think Holly has taken Jakey

there...  Holly???Liz

>

>

> Irma,

> Thank you for your heart warming reply.  We are from Pennsylvania, and I

> would do any of the following information you suggested for Nate.  I did not

> even know what DAN  was until I joined this group.  My pediatrician, always

> just shakes his head, but never gives us any hope.  If you could steer me in

> a direction of who I could see first, that would be a help.  Nate is 20, and

> this has been going on since he was about 12.  We do have a lot of things

> going on, but not anymore than the rest of what I am hearing.  This group

> has been a God sent for me.  I wish I would have know about it years ago.

> Thank you

>

>

> ________________________________

> From: mum592001 <itcanfield@... <itcanfield%40gmail.com>>

> To:

> Sent: Friday, August 14, 2009 12:29:11 PM

> Subject: Re: What should we do?

>

>

> ,

>

> May I ask which state you are at?

>

> Maybe someone on this list or I have connections with could refer your son

> to be seen by a medical physician that understands like the DAN! Protocol or

> close to addressing like a Immunologist/ Allergist or an Internal Medicine

> physician and then of course any Chiropractor, Homeopathic, etc..

>

> I would highly suggest have your son tested in regards to rule out if he is

> suffering from any underlying medical condition with a doctor that

> understands like the DAN (Defeat Autism Now!)protocol.

>

> Were you able to read what Cyndi had posted in regards to the PANDA

> testing, highly recommend this as what you had mentioned could probably

> detect on what your son is undergoing.

>

> This would be great start to try to pinpoint on what is triggering off this

> challenging behavior and once according to his lab results findings and the

> recommendation treatments then would also consider someone like a BCBA

> (Board Certified Behavior Analysis)who could assist addressing the

> challenging behavior which you have mentioned that results in self-injury,

> or injury to others, causes damage to the physical environment, interferes

> with the acquisition of a new skill and/or socially isolates him.

> Behavior is communication who have limited communication skills,

> challenging behavior serves to communicate needs and wants.

>

> Disclaimer, not a medical professional and one must really be monitor by a

> medical professional who understands this approach.

>

> I could share one of the supplements but not the dosage as remember my son

> was monitor by a medical team and also a nutritionist/ Homeopathic and it

> was individualized to my son's needs.

>

> Google it to inquire information on it.

> Inositol has a natural calming effect and may be used in the treatment of

> anxiety, depression, and obsessive-compulsiv e disorder without the side

> effects of prescription medications.

> It was Inositol+, a nervous system support.

> My oldest son was recommended this as well due to his anxiety issues.

> http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

> http://www.neurogis tics.com/

>

> Bless your heart for all these challenges you and your family have

> encounter. Wishing you well towards seeking other avenues to help your son.

>

> Irma,21, DS/ASD

>

>

> >

> > Irma,

> > Hi,

> > I am interested in what supplements helped to turn off the anger.� My

> son has extreme self abusive behaviors, and we have been battling this for

> years with no avail.� He has gone blind in one eye from it and his last

> episode was to develop a hematoma in his ear, which we had to have surgery

> on.� We have tried practically everything, but he still hits.

> > Anyone with suggestions out there we would be grateful.

> > Thanks

> >

>

>

Link to comment
Share on other sites

, Let me point you in the direction to help you with the staph and strep

infection. They are both caused by bacteria but not the same. Also did the

dermatologist culture what is on her buttucks to make sure it is staph? Rash on

my Daughters bottom would not heal when she was little because it was yeast and

the Dr.'s were treating it as diaper rash or staph. The Dr. told me to use

Lotramine foot cream and her but healed in 2 days. Her little bottom looked

horrible and the meds made it worst. If in fact your daughter has staph make

sure that you bleach everything the tub after a bath the washcloth and towels.

This way you know the bacteria is not living in the tub and so you did not get

the staph infection from using the towels. My sons DAN doctor said to do this.

Also some DAN docs recommend putting a capful of bleach in the bath water to

kill the staph on the skin. I could not do this with my son because he slams

hits feet in the water and splashes water all over the floor and then laughs.

Not funny for me the person getting wet. STaph infections like cellulitis, MRSA,

and even impetiago can be very tricky and hard to get rid of. My son has had

cellulitis a total of 3 times on his head and face. I have pictures of him in

our pictures section look for Burns. Work on building up the immune system

with probiotics and a good supplement like Juice plus. Vitamin A is for skin etc

try giving that to her also. I did 40 HBOT treatments to get the open wounds

healed up on my sons head from the cellulitis staph and spent 4 weeks in VA

doing this. Two months after I was home my son got cellulitis again. I have had

him on a list of supplements for over a year and no recurrent cellulitis.Here is

the other info on staph/strep.What you should know

Two types of common bacteria can make you very ill: staphylococcus and

streptococcus (staph and strep).

Staph and strep live on the skin, especially in warm moist areas like your nose,

mouth and genitals. Generally they do not cause problems. But when the skin is

chafed or broken, staph and strep bacteria can enter the wound and cause a skin

infection. Shaving and sweating can increase the chances of an infection. Many

skin infections are caused by strep bacteria but skin infections with boils or

pimples are often caused by

staph.http://www.staphaseptic.com/news.cfm?id=5FD9CC84-FEC7-83B4-BEBAE67CECD5FE8\

9 Cyndi B

>

> my daughter has an ongoing staph infection. she has a rash on her buttocks.

dermatologist gave topical ointment and ped gave a liquid med that i ended up

throwing away because she could taste it in her juice and it was a high dosage.

this has been for years. what effect does this have on her system besides it

being uncomfortable for her? you mentioned strep so isn't that a staph

infection?

>

>

>

>

> > >

> > > >

> > >

> > > > My husband and I are at our wits end with our son ph and don't know

what to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> > >

> > > > Dena

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > >

Link to comment
Share on other sites

http://www.adhd.com.au/PANDAS.htm Cyndi B

>

> Irma,

> Where can I find information on the PANDA testing, would that be in the

archives.

> Thanks

>

>

>

>

>

> ________________________________

>

> To:

> Sent: Friday, August 14, 2009 12:29:11 PM

> Subject: Re: What should we do?

>

>  

> ,

>

> May I ask which state you are at?

>

> Maybe someone on this list or I have connections with could refer your son to

be seen by a medical physician that understands like the DAN! Protocol or close

to addressing like a Immunologist/ Allergist or an Internal Medicine physician

and then of course any Chiropractor, Homeopathic, etc.

>

> I would highly suggest have your son tested in regards to rule out if he is

suffering from any underlying medical condition with a doctor that understands

like the DAN (Defeat Autism Now!)protocol.

>

> Were you able to read what Cyndi had posted in regards to the PANDA testing,

highly recommend this as what you had mentioned could probably detect on what

your son is undergoing.

>

> This would be great start to try to pinpoint on what is triggering off this

challenging behavior and once according to his lab results findings and the

recommendation treatments then would also consider someone like a BCBA (Board

Certified Behavior Analysis)who could assist addressing the challenging behavior

which you have mentioned that results in self-injury, or injury to others,

causes damage to the physical environment, interferes with the acquisition of a

new skill and/or socially isolates him.

> Behavior is communication who have limited communication skills, challenging

behavior serves to communicate needs and wants.

>

> Disclaimer, not a medical professional and one must really be monitor by a

medical professional who understands this approach.

>

> I could share one of the supplements but not the dosage as remember my son was

monitor by a medical team and also a nutritionist/ Homeopathic and it was

individualized to my son's needs.

>

> Google it to inquire information on it.

> Inositol has a natural calming effect and may be used in the treatment of

anxiety, depression, and obsessive-compulsiv e disorder without the side effects

of prescription medications.

> It was Inositol+, a nervous system support.

> My oldest son was recommended this as well due to his anxiety issues.

> http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

> http://www.neurogis tics.com/

>

> Bless your heart for all these challenges you and your family have encounter.

Wishing you well towards seeking other avenues to help your son.

>

> Irma,21, DS/ASD

>

>

> >

> > Irma,

> > Hi,

> > I am interested in what supplements helped to turn off the anger.� My son

has extreme self abusive behaviors, and we have been battling this for years

with no avail.� He has gone blind in one eye from it and his last episode was

to develop a hematoma in his ear, which we had to have surgery on.� We have

tried practically everything, but he still hits.

> > Anyone with suggestions out there we would be grateful.

> > Thanks

> >

>

>

> __.._,_.___

> Messages in this topic (8) Reply (via web post) | Start a new topic

> Messages | Files | Photos | Links | Database | Polls | Calendar

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos of

our kids. Share favorite bookmarks, ideas, and other information by including

them. Don't forget, messages are a permanent record of the archives for our

list. http://groups.yahoo.com/group/

> --------------------------------------------

> MARKETPLACE

> Mom Power: Discover the community of moms doing more for their families, for

the world and for each other

>

> Change settings via the Web (Yahoo! ID required)

> Change settings via email: Switch delivery to Daily Digest | Switch format to

Traditional

> Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe

> Recent Activity

> *  8

> New MembersVisit Your Group

> Share Photos

> Put your favorite

> photos and

> more online.

> Celebrity kids

> and families

> Surviving in

> the spotlight

> Yahoo! Groups

> Small Business Group

> Own a business?

> Connect with others.

> .

>

>

>

>

>

>

>

Link to comment
Share on other sites

Cyndi,

Thank you.

________________________________

To:

Sent: Sunday, August 16, 2009 12:56:49 AM

Subject: Re: What should we do?

 

http://www.adhd. com.au/PANDAS. htm Cyndi B

>

> Irma,

> Where can I find information on the PANDA testing, would that be in the

archives.

> Thanks

>

>

>

>

>

> ____________ _________ _________ __

> From: mum592001 <itcanfield@ ...>

> To: @yahoogrou ps.com

> Sent: Friday, August 14, 2009 12:29:11 PM

> Subject: Re: What should we do?

>

>  

> ,

>

> May I ask which state you are at?

>

> Maybe someone on this list or I have connections with could refer your son to

be seen by a medical physician that understands like the DAN! Protocol or close

to addressing like a Immunologist/ Allergist or an Internal Medicine physician

and then of course any Chiropractor, Homeopathic, etc.

>

> I would highly suggest have your son tested in regards to rule out if he is

suffering from any underlying medical condition with a doctor that understands

like the DAN (Defeat Autism Now!)protocol.

>

> Were you able to read what Cyndi had posted in regards to the PANDA testing,

highly recommend this as what you had mentioned could probably detect on what

your son is undergoing.

>

> This would be great start to try to pinpoint on what is triggering off this

challenging behavior and once according to his lab results findings and the

recommendation treatments then would also consider someone like a BCBA (Board

Certified Behavior Analysis)who could assist addressing the challenging behavior

which you have mentioned that results in self-injury, or injury to others,

causes damage to the physical environment, interferes with the acquisition of a

new skill and/or socially isolates him.

> Behavior is communication who have limited communication skills, challenging

behavior serves to communicate needs and wants.

>

> Disclaimer, not a medical professional and one must really be monitor by a

medical professional who understands this approach.

>

> I could share one of the supplements but not the dosage as remember my son was

monitor by a medical team and also a nutritionist/ Homeopathic and it was

individualized to my son's needs.

>

> Google it to inquire information on it.

> Inositol has a natural calming effect and may be used in the treatment of

anxiety, depression, and obsessive-compulsiv e disorder without the side effects

of prescription medications.

> It was Inositol+, a nervous system support.

> My oldest son was recommended this as well due to his anxiety issues.

> http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

> http://www.neurogis tics.com/

>

> Bless your heart for all these challenges you and your family have encounter.

Wishing you well towards seeking other avenues to help your son.

>

> Irma,21, DS/ASD

>

>

> >

> > Irma,

> > Hi,

> > I am interested in what supplements helped to turn off the anger.� My son

has extreme self abusive behaviors, and we have been battling this for years

with no avail.� He has gone blind in one eye from it and his last episode was

to develop a hematoma in his ear, which we had to have surgery on.� We have

tried practically everything, but he still hits.

> > Anyone with suggestions out there we would be grateful.

> > Thanks

> >

>

>

> __.._,_.___

> Messages in this topic (8) Reply (via web post) | Start a new topic

> Messages | Files | Photos | Links | Database | Polls | Calendar

> ------------ --------- --------- --------- --------- --

> Checkout our homepage for information, bookmarks, and photos of

our kids. Share favorite bookmarks, ideas, and other information by including

them. Don't forget, messages are a permanent record of the archives for our

list. http://groups. yahoo.com/ group/ds- autism

> ------------ --------- --------- --------- -----

> MARKETPLACE

> Mom Power: Discover the community of moms doing more for their families, for

the world and for each other

>

> Change settings via the Web (Yahoo! ID required)

> Change settings via email: Switch delivery to Daily Digest | Switch format to

Traditional

> Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe

> Recent Activity

> *  8

> New MembersVisit Your Group

> Share Photos

> Put your favorite

> photos and

> more online.

> Celebrity kids

> and families

> Surviving in

> the spotlight

> Yahoo! Groups

> Small Business Group

> Own a business?

> Connect with others.

> .

>

>

>

>

>

>

>

Link to comment
Share on other sites

>

> Irma,

> Where can I find information on the PANDA testing, would that be in the

archives.

> Thanks

>

,

Glad Cyndi responded per your question. Cyndi has had her share of stories with

her son's challenging issues as well before seeking some of the underlying

medical issues triggered symptoms her son was undergoing until she took some

action, really some action in other avenue to where her son is receiving some

treatments, testing needed to getting to know a well known medical physician who

understands and really glad that her son is receiving some comfort of relief.

I am also involved as Chair person for the San National Autism

Association of Central Texas which is a supportive city with Austin's NAA of

Central Texas.

I have heard most of the doctors listed at the autism medical conferences, all

good.

If time allows to glance at some of the powerpoint presentations or hear from

several listed. You could find it here on this link under the Autism One

conference.

Click on Search Autismone/Search all categories and the annual conferences

powerpoint presentation will pop up.

http://www.autismone.org/content/about-us

Right above, you see Radio, this is where you will find the Autism One Radio

where most of the speakers at the conferences are being interviewed which is

just amazing.

http://www.autismone.org/content/autismone-radio

Does this physician apply the PANDA testing on this resource list? Will all

depend on the resource list listed.

Finding a Clinician using the DAN! approach: Questions to Ask

http://www.naa-pa.org/index.php?text=steps

An overview:

http://www.naa-pa.org/index.php?text=overview

When you find some time to review before taking any steps.

A great overview of what you can do can be found here: Action Plan

http://generationrescue.org/action.html

Do not get overwhelmed, take your time to review any information should you seek

this route.

Irma,21,DS/ASD

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Share on other sites

No, actually I never found a Dan doctor in this area. The one I did find

was in land (Dr. Love). She seems to be the one that everyone in my

area sees. We have yet to have the $$ to take Jake. We are wheat/gluten

and dairy free with him. He is still on Risperdal and Focalin. Those

things have helped tremendously. We did take Jake to Dr. Klinek at FAmily

Center for Allergy & Asthma for both allergy tests and an immunology work

up. Dr. K does not really beleive that Autism is caused by the shots (she

did her intership with one of the doctors involved with some of the

research) however, she does not belittle any parent feelings and is okay

with people doing what they feel they need to rule things out. She was very

helpful and easy to talk with.

Holly

Re: What should we do?

>

>

> ,

>

> May I ask which state you are at?

>

> Maybe someone on this list or I have connections with could refer your son

> to be seen by a medical physician that understands like the DAN! Protocol

> or

> close to addressing like a Immunologist/ Allergist or an Internal Medicine

> physician and then of course any Chiropractor, Homeopathic, etc.

>

> I would highly suggest have your son tested in regards to rule out if he

> is

> suffering from any underlying medical condition with a doctor that

> understands like the DAN (Defeat Autism Now!)protocol.

>

> Were you able to read what Cyndi had posted in regards to the PANDA

> testing, highly recommend this as what you had mentioned could probably

> detect on what your son is undergoing.

>

> This would be great start to try to pinpoint on what is triggering off

> this

> challenging behavior and once according to his lab results findings and

> the

> recommendation treatments then would also consider someone like a BCBA

> (Board Certified Behavior Analysis)who could assist addressing the

> challenging behavior which you have mentioned that results in self-injury,

> or injury to others, causes damage to the physical environment, interferes

> with the acquisition of a new skill and/or socially isolates him.

> Behavior is communication who have limited communication skills,

> challenging behavior serves to communicate needs and wants.

>

> Disclaimer, not a medical professional and one must really be monitor by a

> medical professional who understands this approach.

>

> I could share one of the supplements but not the dosage as remember my son

> was monitor by a medical team and also a nutritionist/ Homeopathic and it

> was individualized to my son's needs.

>

> Google it to inquire information on it.

> Inositol has a natural calming effect and may be used in the treatment of

> anxiety, depression, and obsessive-compulsiv e disorder without the side

> effects of prescription medications.

> It was Inositol+, a nervous system support.

> My oldest son was recommended this as well due to his anxiety issues.

> http://www.neurogis tics.com/ Conditions/ PanicDisorder. asp

> http://www.neurogis tics.com/

>

> Bless your heart for all these challenges you and your family have

> encounter. Wishing you well towards seeking other avenues to help your

> son.

>

> Irma,21, DS/ASD

>

>

> >

> > Irma,

> > Hi,

> > I am interested in what supplements helped to turn off the anger.� My

> son has extreme self abusive behaviors, and we have been battling this for

> years with no avail.� He has gone blind in one eye from it and his last

> episode was to develop a hematoma in his ear, which we had to have surgery

> on.� We have tried practically everything, but he still hits.

> > Anyone with suggestions out there we would be grateful.

> > Thanks

> >

>

>

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  • 2 weeks later...

I was told once a long time ago when nathan was a little guy and I was worried

about how thirsty he always was, his ds special doc said its often normal for

someone with ds to by thirsty because they are often mouth breathers losing lots

of their body's fluid when they exhale, making them want to drink more to make

up for that loss. We just use those sport jugs, nathan calls it his " juice jug "

and fill it half full of ice, a crystal light packette, and water==my boys are

really into crytal light juices anymore. but he loves regular juice still too,

but he would also drink anything, even tried to drink a can of polyurethane at

grandmas house, uugh, he was shiny for weeks. We switched to crystal light as

nathan is prediabetic for a hand full of years now, and though he is not

overweight, he tends to run high fasting blood sugars so he is on a counted carb

diet from his nutritionist, and he can drink his crytal light as much as wants

as no carb points, as he isnt really a fan of just plain water, lol. shawna

May all your life's ups and downs be with a needle and thread.

http://sewshawna.blogspot.com

From: nevergrowingup59

Sent: Friday, August 14, 2009 5:49 AM

To:

Subject: Re: What should we do?

All this time I had been giving my daughter 100% juice thinking it was the best

thing for her and I didn't like the idea of chemicals, additive, preservatives,

etc. Now since the SIB is getting worse and she has gained weight I have

switched to diet juices or diluting regular juices. I am wondering how much

damage I have done. When at home she has juice at the counter all day long and

drinks alot, at least 50ozs or more. At school she only has 2 juice boxes all

day which are like 120 cal each. I don't think it is normal for someone to

constantly drink all day long. I also bought the powder stuff to flavor water.

She doesn't drink anything but juice. Once in awhile if we are out and there is

nothing but water, she will drink it. When she was younger she only drank soy

milk and I would buy it by the case. She won't even drink chocolate milk. I read

something yesterday that said excessive drinking was also considered SIB.

Someone told me that Duke has a DS Clinic. That's a half hour away and I am

wondering if they have experience with autism also. Even though the psychologist

that saw her for 20-30 minutes said no to autism, I feel she does. Everyone

around her feels she does. The journey never ends. Except this time lately when

Emelinne is acting out in public and someone looks, I get angry and I feel like

saying something to them. What's that about?

> >

> > My husband and I are at our wits end with our son ph and don't know what

to do. �ph's behavior towards everyone has gotten really bad. �He's

hitting, kicking, biting, yelling, throwing things, using toys and other things

as weapons, and generally being abusive to his brothers, sisters, dad, me, our

cats, and even his speech therapist. �He's always angry and we don't know why.

�Is it puberty? �He'll be 11 next month. �How do we get him to stop being

abusive?

> > Dena

> >

> >

> >

> >

> >

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