Re: New from Arkansas

[Guest guest]

Hello Jax and thank you for all the information. It's amazing the

amount of misinformation there is out there. I'll take the

information to heart espcially about diet. I believe Brad is

hypoglycemic and I have been since I was a kid so I'm very careful

about food.

I don't remember what Brad's labs were and he has not had a liver

biopsy yet. The last liver funtion test turned out ok. He is not on

any medication to treat Hep C.

We were told that he will not be able to be treated for the Hep cause

he suffers from extreme depression. I have read there are some new

meds out there that might be ok even if you have depression.

I'm keeping my fingers crossed.

I'm sooo glad you are in remission. It gives me hope!

Thank you again,

Cyn

>

> Hi Cyn

> First off let me say welcome! This is a great group and you will

find that you are just starting NOW to meet some of the greatest ppl

on the face of this earth!

> About the fatigue, YES, that IS part of hep c,, IF I dont take

provigil in the morning, I will sleep around the clock and never feel

like I have gotten enough rest.. so yes,,

> NO< NO< NO<< low protein is NOT good for your liver UNLESS your

liver is decompensated.. The liver NEEDS good protein to do its job..

that is NOT a high protein diet, but adequate,, you need about 1

ounce of protein for every Kilo of weight you are.. One should ONLY

reduce the protein when your liver is decompensated and that can only

be figured out with lots of labs and a biopsy of liver tissue.. IN

fact when you are on treatment, you NEED to have a protein based diet

for the meds to work,, that does not mean all steak, bacon, etc,, it

means low fat chicken, fish, some red meats,, cheeses, good protein

shakes etc,, and lots of fresh vegies and fruits,, cut back on the

starches,, white breads, white rice, white pasta, white sugars

etc,Many people with HepC end up becoming diabetic too, so reducing

the kinds of foods that break down into simple sugars quickly is a

good thing for BOTH hep c and diabetes!,

> When I found out I had hep,, I had had it for almost 23 years and

I had a lot of damage,, but I did treat and it has been in remission

now 3 years!! I finished my tx in Feb 03 and Im still undetectible,

so treatment does work for some people.. I was genotype 1 which is

most common in the USA but is the hardest to treat... Has Brad had a

biopsy to see what if any damage he has? What genotype is he? How

are his labs? (alt/ast,protime,albumin, biliruben?) We suggest every

one with this disease get copies of ALL labs, all biopsies,

everything and keep it in a file at home..

> If he is really really tired, it may be from not getting enough

protein,, or it might be that his disease IS progressing,, its hard

to say.. tell us more...

> Welcome hon, I hope you will come by often and let us know how

you are doing and ask as many questions as you can!

> hugs

> jax

>

[Guest guest]

Hey Cyn, Hi ya Neighbor. My name is Janet and I live in Oklahoma. Small world huh. Welcome to our group. Love Janet"M.E. Katz" wrote: Hello Jax and thank you for all the information. It's amazing the amount of misinformation there is out there. I'll take the information to heart espcially about diet. I believe Brad is hypoglycemic and I have been since I was a kid so I'm very careful about food.I don't remember what Brad's labs were and he has not had a liver biopsy yet. The last liver funtion test turned out ok. He is not on any medication to treat Hep C. We were told that he will not be able to be

treated for the Hep cause he suffers from extreme depression. I have read there are some new meds out there that might be ok even if you have depression.I'm keeping my fingers crossed.I'm sooo glad you are in remission. It gives me hope!Thank you again,Cyn>> Hi Cyn> First off let me say welcome! This is a great group and you will find that you are just starting NOW to meet some of the greatest ppl on the face of this earth!> About the fatigue, YES, that IS part of hep c,, IF I dont take provigil in the morning, I will sleep around the clock and never feel like I have gotten enough rest.. so yes,, > NO< NO< NO<< low protein is NOT good for your liver UNLESS your liver is decompensated.. The liver NEEDS good protein to do its job.. that is NOT a high protein diet, but adequate,, you need about 1 ounce of protein for every Kilo of

weight you are.. One should ONLY reduce the protein when your liver is decompensated and that can only be figured out with lots of labs and a biopsy of liver tissue.. IN fact when you are on treatment, you NEED to have a protein based diet for the meds to work,, that does not mean all steak, bacon, etc,, it means low fat chicken, fish, some red meats,, cheeses, good protein shakes etc,, and lots of fresh vegies and fruits,, cut back on the starches,, white breads, white rice, white pasta, white sugars etc,Many people with HepC end up becoming diabetic too, so reducing the kinds of foods that break down into simple sugars quickly is a good thing for BOTH hep c and diabetes!, > When I found out I had hep,, I had had it for almost 23 years and I had a lot of damage,, but I did treat and it has been in remission now 3 years!! I finished my tx in Feb 03 and Im still undetectible, so treatment does work for some

people.. I was genotype 1 which is most common in the USA but is the hardest to treat... Has Brad had a biopsy to see what if any damage he has? What genotype is he? How are his labs? (alt/ast,protime,albumin, biliruben?) We suggest every one with this disease get copies of ALL labs, all biopsies, everything and keep it in a file at home..> If he is really really tired, it may be from not getting enough protein,, or it might be that his disease IS progressing,, its hard to say.. tell us more... > Welcome hon, I hope you will come by often and let us know how you are doing and ask as many questions as you can!> hugs> jax> There are souls in this world which have the gift of finding joy everywhere and of leaving it behind them when they go." -Frederick Faber