Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 <<I was dx'ed with Scleroderma 13 years ago. I have the CREST or limited version>> Hi, Everyone......Barb.....OMGosh......I had never heard of Sclero till Gareth was dx'd with sine Scleroderma/UCTD 2 yrs ago!!! His started with the esophageal dismotility, restrictive lung issues, loss of vocal cords, positive blood work for sclero and major fatigue. They final started him on Plaquenil after 9 months and he got better. It is such a rare disease and I think they were totally caught off guard by Gareth having it......he didn't fit the common profile of middle aged, woman. He's been doing fine except for this major bout of pneumonia. Now, his Rheumie e-mailed me and is saying that all his blood work for sclero (done last week in the hospital) came back negative (he's in remission) and that the pleural fluid wasn't caused by the sclero. Now I understand your ' ihavesd' and 'hrdskn' !!! Gareth has never had any skin issues. He's got some Raynauld's now.....mild case . E-mail me privately if you want to talk some time. Have you joined any sclero support groups on line? There is one that I joined....ScleroForums.....and, they were a true blessing when Gareth was first dx'd because I had no clue what he was feeling.....he didn't/couldn't talk. Take care, Everyone. Margaret **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
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