Re: Re: Hi everyone. had a question about Ty... He had a MRI and here are the resu

[Guest guest]

Just so you are not frightened unnecessarily: SOME seizure meds (along with

a plethora of other meds) CAN cause (but don't always) cause liver damage.

That is why routine and regular blood work is necessary to see if that is

happening. Then Other meds can be substituted. ''With the advice of your

son's physician - now that you KNOW he is having seizures- can decide which

is safest for him.

Diastat si a form of VALIUM for emergency, long lasting seizuzres. I would

really hate that to be the only option while he is at school UNLESS he has

constant access to a nurse. Does his school ALWAYS have a nurse on staff???

> Amy, one should never omit meds, when seizures are involved.

> It would be nice to proceed with them in the mean time for many

> reasons. Unless you are aware of a biomedical physician in your area.

> In the mean time, once you see Ty at ease then the possibilities of

> other trials such doing some homework like on the Feingold diet.

> It is hard to know when seizures will occur and who will be around to

> always protect him, better safe than sorry along with making sure that

> the doc monitors his blood level. If the meds do not work, then this

> for sure will give you more a push towards other treatments.

>

> http://www.feingold.org/pg-medlist.html

>

> Autism seizures

> http://www.autismuk.com/index12.htm

>

> When you have some time, review this segment.

>

> Teri Arranga 10/21/2008 10:00 am - 11:00 ET Teri Arranga Autism:

> Help, Hope, and Healing From VoiceAmerica Health & Wellness Channel

> Autism One: A Conversation of Hope Guest: Dr. Frye Topics:

> Brain imaging, MEG, and language; seizures; mito dysfunction

> http://www.autismone.org/autismone/radio?archive=6357 [Download]

>

> http://www.autismone.org/radio/?SearchText=seizures & x=17 & y=13

>

> May you find some answers to help Ty.

>

> Irma,20,DS/ASD

>

>

> >

> > Well Ty had an episode where he had a seizure lasting about 6 minutes

> > at school, they said he went limp and was like carring a dead person.

> > So , I took him to one of the closer hospital, and then they sent

> > hime to Children's hospital in St. Louis. They did an EEG and found

> > some abnormalities on it, so then they wanted to do a MRI.. Well we

> > found out that in the left Temporal lobe is where the seizure are

> > coming from. So in away I am happy that they found the problem,

> > because teachers, aides, OT's PT's and the Speech Therapist had all

> > thought and figured they were seizures for a while, but we couldn't

> > get it diagnoised, Infact the theory given to us from the neuroligist

> > was it is behavioral.

> > Ok so here is my questions, we recently changed schools, and at the

> > old school Ty was having his seizures everyday in the lunch room, my

> > conclusion on that was it must be a trigger to the seizures, the

> > sounds, the loudness. etc. But, now that we are at the new school,

> > since Dec. he has only had one seizure. So, meds for seizures cause

> > liver damage. and the type of seizures Ty has our small ones, usually

> > lasting just seconds. I was told that these do not cause damage to

> > the brain, it is the ones that last an hour or longer that will cause

> > damage. So my debate is, no meds and just deal with the small

> > seizures when he has them, *note* we have Diastate for him in case a

> > seizure was to last over 5 minutes that the school as well has the

> > med to give him in case he is there when it happens. Or do the

> > meds,. NOw if he was having them everyday still, no doubt I would do

> > the meds. But I was just wondering if anyone else deals with this,

> > or have any suggestions. Thank you so much!!!! Hugs, AMY

> >

>

>

>

--

Sara - Life is a journey- we choose the path.