Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi, Mic has a reaction to antibiotics I call the crazies hes never himself when hes taking them, we ask our Ped if instead of oral pills or liquids he can sometimes give him a shot.Works alot better, Mic also had tonsils adnoids and eartubes a couple yrs ago and it stopped the runny noses ear infection and now we are down 2 a couple times a yr and no ear infections.Mic was sick constantly before he had that done.Just some thoughts your not alone. Laurie To: @...: leilani.aguirre@...: Thu, 29 Jan 2009 14:55:03 +0000Subject: Don't know what to do Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani _________________________________________________________________ Windows Live™ Hotmail®…more than just e-mail. http://windowslive.com/howitworks?ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_howitwor\ ks_012009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Leilani, When a stap infection occurs with my son, antibiotics are given but it is highly recommended to also give along some type of Probiotics, no dairy at all. Sounds like the yeast beast is triggering off so much on what you are describing. Over at Whole Foods if possible purchase something like a Milk-Free Chewable Acidophilus, just ask one of the workers to help assist. When Mold is high out here in TX (triggers off sinus infection)or Mountain Cedar (environmental allergies) with the combination of the flu bug going on, this does not help our kids with a weak immune system. He is going to regress as he is unable to function when under the weather. Unable to communicate so this triggers off his behavioral modes. Seems like he is affected this season with all that is going on. See what happens with the probiotics, no dairy and hopefully you're giving him the gluten-free food if any appetite with plenty of fluids. Once he seems well, see about getting him tested for Candida/Yeast Overgrowth so that one of the doc's could treat this, this requires prescribed meds. One way to rule this out is the trial of elimination of certain food items. The test call OAT could be reviewed at http://www.greatplainslaboratory.com/home/eng/home.asp Commonly caused by phenols and/or yeast overgrowth. What helped decrease, was also epsom salt baths before bed, start with 1/4 c epsom salts and work up to 2 c for a bathtub full. Also reduce high phenolic food intake. Make sure no high-blood pressure. http://www.danasview.net/phenol.htm http://www.danasview.net/yeast.htm Artificial (colors/flavors/sweeteners), concentrated apple (sauce or juice) and red grapes, also triggers off the yeast beast. Every child is different though, you have to figure out what works best for your child. Keeping a daily diary helps to figure this out. Well, hope something helps. Irma,20,DS/ASD > > Well guys, > Im having issues with my little guy again, and Im at my wits end. If > you remember, Noah was in the hospital with staph in Nov. Since hes > been out, he had been doing fine, but most recently he has had a really > bad runny nose and congestion. He was given an antibiotic and cough > meds, which he took well, but he got worse. So he was given another > cough med and a stronger antibiotic. Problem is, the stronger the med, > the worse the taste, so we've been having problems getting him to take > them. On top of that, he behavior torwards himself has gotten hard to > watch. He is regressing as far as as im concerned. Its been awhile > since he's been this aggressive and abusive. I am wondering if there is > anything in teh meds thta is affecting him or his diet. I have no idea. > I am worried for his safety and Im afraid that his congestion will turn > into pnemonia. Im at a loss, dont know what to do. any advice would be > greatly appreciated. The school keeps sending him home, and they just > called because they were seeing self abusive behavior as well, and they > too were wondering what was going on. Help. LEilani > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi, Sorry to hear you're having such a rough time. I don't know if this will work or not for your little guy, but we have gone through some similar things in the past with the endless calls from school, non stop congestion & runny nose. For the last *month* or so, we've finally gotten rid of it. We started giving Dylan claritin everynight & it's really helped greatly. Seems kind of like a simple solution, but for Dylan, so far, it's working. Certainly hasn't cured it completely, still have to wipe his nose now and then, but not the constant drainage. We're still having really bad aggression issues and are working with changing some of his other meds around. Good luck - just thought I'd share what has been working for us. Becky mom to Dylan, 13 DS/Autism/Diabetes Subject: Don't know what to do To: Date: Thursday, January 29, 2009, 8:55 AM Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 It is always so hard when our kids are sick! Just wanted to throw my two cents in - my oldest is allergic to red dye. Red dye is in most of the antibiotics. I'm not sure how I found out he was allergic to red dye - it didn't come out in the tests but everytime he had something red he would act the same way he does if he has something he is allergic to. I guess technically I am just supposed to say that he is sensitive to red dyes. There was another study done in the UK on red dyes, somebody posted it here, as to how it causes irritability and aggression. Wonder if they would be willing to give you a dye free antibiotic? I told our pediatrician that Isaac can't handle red dyes and they started giving us antibiotics without red dyes. The one time I forgot it was a disaster and the next day I went back for dye free antibiotics. Good Luck! Lori, Mom to Isaac and Tony, both DS and ASD ---- " leilani.aguirre " wrote: > Well guys, > Im having issues with my little guy again, and Im at my wits end. If > you remember, Noah was in the hospital with staph in Nov. Since hes > been out, he had been doing fine, but most recently he has had a really > bad runny nose and congestion. He was given an antibiotic and cough > meds, which he took well, but he got worse. So he was given another > cough med and a stronger antibiotic. Problem is, the stronger the med, > the worse the taste, so we've been having problems getting him to take > them. On top of that, he behavior torwards himself has gotten hard to > watch. He is regressing as far as as im concerned. Its been awhile > since he's been this aggressive and abusive. I am wondering if there is > anything in teh meds thta is affecting him or his diet. I have no idea. > I am worried for his safety and Im afraid that his congestion will turn > into pnemonia. Im at a loss, dont know what to do. any advice would be > greatly appreciated. The school keeps sending him home, and they just > called because they were seeing self abusive behavior as well, and they > too were wondering what was going on. Help. LEilani > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi Leilani I really feel for you. My daughter's behaviours always change when she is on new medication. Especially antibiotics and steriods. I hope you can figure things out soon. Ali " leilani.aguirre " wrote: Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani --------------------------------- Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Becky, glad you mentioned this on the Claritin as this is what I forgot to mention which also helped . I actually gave Zrytec (make sure without the Casein) which helped here too. Irma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 LEilani, I agree with Laurie that antibiotics make more self injurious. His DAN doc says one of the reason is the shots like penacillian bypass the gut unlike pills and oral antibiotics. She recommened shots for a strep infection that has had. The strep infection before the shots started causing OCD behaviors. doc said the pills and oral antibiotics cause yeast build up therefore causing gut issues and pain along with bowl problems like constipation. Injections bypass the gut.Get Noah on a good probiotic to help gut issues. Cyndi B > > > Hi, Mic has a reaction to antibiotics I call the crazies hes never himself when hes taking them, we ask our Ped if instead of oral pills or liquids he can sometimes give him a shot.Works alot better, Mic also had tonsils adnoids and eartubes a couple yrs ago and it stopped the runny noses ear infection and now we are down 2 a couple times a yr and no ear infections.Mic was sick constantly before he had that done.Just some thoughts your not alone. Laurie > > To: @...: leilani.aguirre@...: Thu, 29 Jan 2009 14:55:03 +0000Subject: Don't know what to do > > > > Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani > > > > > > _________________________________________________________________ > Windows Live™ Hotmail®…more than just e-mail. > http://windowslive.com/howitworks? ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_howitworks_012009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Thank you so much to everyone who responded. this does make sense, because I have realized Noah hasn't had his bm's as usual. It is just so hard because we are not seeing a DAN doctor, there are none in our area, and as far as I know, medicaid wouldnt cover it anyway. I would love to be able to do this for him, but as of right now, we cannot. Im in the corpus christi area, Ms. Irma, I know we have had this discussion before, but are there DAN doctors in your area? If i remember correctly, youre located in the san antonio area. I would not mind the drive if it meant helping my son. Leilani ________________________________ To: Sent: Friday, January 30, 2009 12:29:00 AM Subject: Re: Don't know what to do LEilani, I agree with Laurie that antibiotics make more self injurious. His DAN doc says one of the reason is the shots like penacillian bypass the gut unlike pills and oral antibiotics. She recommened shots for a strep infection that has had. The strep infection before the shots started causing OCD behaviors. doc said the pills and oral antibiotics cause yeast build up therefore causing gut issues and pain along with bowl problems like constipation. Injections bypass the gut.Get Noah on a good probiotic to help gut issues. Cyndi B > > > Hi, Mic has a reaction to antibiotics I call the crazies hes never himself when hes taking them, we ask our Ped if instead of oral pills or liquids he can sometimes give him a shot.Works alot better, Mic also had tonsils adnoids and eartubes a couple yrs ago and it stopped the runny noses ear infection and now we are down 2 a couple times a yr and no ear infections.Mic was sick constantly before he had that done.Just some thoughts your not alone. Laurie > > To: @.. .: leilani.aguirre@ ...: Thu, 29 Jan 2009 14:55:03 +0000Subject: Don't know what to do > > > > Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani > > > > > > ____________ _________ _________ _________ _________ _________ _ > Windows Live™ Hotmail®…more than just e-mail. > http://windowslive. com/howitworks? ocid=TXT_TAGLM_ WL_t2_hm_ justgotbetter_ howitworks_ 012009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Leilani. I would not worry about finding a DAN doc. Maybe you could try to find one that does biomedical/holistic approach to healing. Go to your local GNC and ask if they have a list of Pediatrician that do biomedical. Do you have a Whole Foods Market or a Rainbow Blossom or somewhere that sells food that does not contain antibiotics? These places can be helpful in finding a doc if the pediatrician is not listening to your wants. If course you do not have to have a Doc to try probiotics to counter act the antibiotics. Any place that sells supplements should be able to help with dosing when you tell them age and weight of the child. All of this biomedical DAN approach does not work for everyone it just so happen to work for . You are right medicaid does not pay for biomedical but there are grants you can apply for. In Ky if your insurance is in KY you can get an extra $500 a month to pay for services. We do not get this because my husbands insurance is not based in KY. I wounder if anyone has ever challenged this if the insurance is in a state that also provides $500 for autism. If you take over handling the medicaid waiver you can pay the money where you see fit and not the government. So I you need money to pay for ABA services you should get it. Cyndi B > > > Thank you so much to everyone who responded. this does make sense, because I have realized Noah hasn't had his bm's as usual. It is just so hard because we are not seeing a DAN doctor, there are none in our area, and as far as I know, medicaid wouldnt cover it anyway. I would love to be able to do this for him, but as of right now, we cannot. Im in the corpus christi area, Ms. Irma, I know we have had this discussion before, but are there DAN doctors in your area? If i remember correctly, youre located in the san antonio area. I would not mind the drive if it meant helping my son. Leilani > > > > > ________________________________ > > To: > Sent: Friday, January 30, 2009 12:29:00 AM > Subject: Re: Don't know what to do > > > LEilani, I agree with Laurie that antibiotics make more self > injurious. His DAN doc says one of the reason is the shots like > penacillian bypass the gut unlike pills and oral antibiotics. She > recommened shots for a strep infection that has had. The strep > infection before the shots started causing OCD behaviors. doc > said the pills and oral antibiotics cause yeast build up therefore > causing gut issues and pain along with bowl problems like > constipation. Injections bypass the gut.Get Noah on a good probiotic > to help gut issues. Cyndi B > > > > > > Hi, Mic has a reaction to antibiotics I call the crazies hes never > himself when hes taking them, we ask our Ped if instead of oral pills > or liquids he can sometimes give him a shot.Works alot better, Mic > also had tonsils adnoids and eartubes a couple yrs ago and it stopped > the runny noses ear infection and now we are down 2 a couple times a > yr and no ear infections.Mic was sick constantly before he had that > done.Just some thoughts your not alone. Laurie > > > > To: @ .: leilani.aguirre@ ...: Thu, 29 Jan 2009 14:55:03 > +0000Subject: Don't know what to do > > > > > > > > Well guys, Im having issues with my little guy again, and Im at my > wits end. If you remember, Noah was in the hospital with staph in > Nov. Since hes been out, he had been doing fine, but most recently he > has had a really bad runny nose and congestion. He was given an > antibiotic and cough meds, which he took well, but he got worse. So > he was given another cough med and a stronger antibiotic. Problem is, > the stronger the med, the worse the taste, so we've been having > problems getting him to take them. On top of that, he behavior > torwards himself has gotten hard to watch. He is regressing as far as > as im concerned. Its been awhile since he's been this aggressive and > abusive. I am wondering if there is anything in teh meds thta is > affecting him or his diet. I have no idea. I am worried for his > safety and Im afraid that his congestion will turn into pnemonia. Im > at a loss, dont know what to do. any advice would be greatly > appreciated. The school keeps sending him home, and they just called > because they were seeing self abusive behavior as well, and they too > were wondering what was going on. Help. LEilani > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > Windows Live™ Hotmail®…more than just e-mail. > > http://windowslive. com/howitworks? > ocid=TXT_TAGLM_ WL_t2_hm_ justgotbetter_ howitworks_ 012009 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Leilani, I was actually going to mention on what Cyndi has mentioned on not needing a DAN! physician. Sometimes some can also do more harm than good as I have encountered in the past. There is one who use to be called a DAN! physician here in SA but it is prefer nowadays as she applies the biomedical approach who understands this very much as she too suffer from various health issues and have benefit from such alternative treatments. Let me know if interested on her contact information. Do not know if she accepts health insurance but assuming does not accept Medicaid. If you have Medicaid for your son, maybe trials with the physicians who specialize on ruling out where needed that accept Medicaid, would definitely need a referral/script though, from a primary physician. Such as a GI doctor, testing here are the colonscopy & endoscopy. Here one can rule out if any detection triggering gut issues. This is actually one of the route's I took where I was able to get some of the testing done and paid through Medicaid and my private health insurance. I sure could not afford money up front for such an excellent place as the Thoughtful House out in Austin as I would I liked, so I seek other avenues. I was able to work around the doc's where I was NOT stepping over their toes on what they specialize with and kinda of gave them the power of suggesting whatever perked their ears and even got some referrals when in doubt which was actually nice. Something like reverse psychology which worked for me. Even though you know your son suffers from constipation, you are still ruling out like Celiac, Irritable Bowl Syndrome, biopsy, etc. Normally the GI doc would say give him Miralax and plenty of fiber when all returns normal but it is really some comfort to rule out any serious underlying GI issues. This happen to , all his testing return normal but doc told me that he suffers from food intolerance. So of course told me apply the dietary intervention and dietary supplements. Once the ENT & dentist rules out also anything, this too is a safe zone knowing that there are no underlying issues here too. Then with our luck there is the Hematologist who actually ran whatever test such like in 's case would run the test needed such as IgG, Specimen Data to rule out if any bloodwork on the blood cell count. Here was the beginning on finding our one of the main culprits of being allergic to Dairy. Yes, I am out here in SA. There are also some Chiropractor who specialize with what to look for but most do not accept Medicaid or insurance. Irma > > Thank you so much to everyone who responded. this does make sense, because I have realized Noah hasn't had his bm's as usual. It is just so hard because we are not seeing a DAN doctor, there are none in our area, and as far as I know, medicaid wouldnt cover it anyway. I would love to be able to do this for him, but as of right now, we cannot. Im in the corpus christi area, Ms. Irma, I know we have had this discussion before, but are there DAN doctors in your area? If i remember correctly, youre located in the san antonio area. I would not mind the drive if it meant helping my son. Leilani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Ms Irma, would I need a referral to have the candida yeast overgrowth test to be done, or is this something his pediatrician can do? If I was to ask to be referred to a GI, what test would I be asking for? Leilani ________________________________ To: Sent: Friday, January 30, 2009 7:26:04 PM Subject: Re: Don't know what to do Leilani, I was actually going to mention on what Cyndi has mentioned on not needing a DAN! physician. Sometimes some can also do more harm than good as I have encountered in the past. There is one who use to be called a DAN! physician here in SA but it is prefer nowadays as she applies the biomedical approach who understands this very much as she too suffer from various health issues and have benefit from such alternative treatments. Let me know if interested on her contact information. Do not know if she accepts health insurance but assuming does not accept Medicaid. If you have Medicaid for your son, maybe trials with the physicians who specialize on ruling out where needed that accept Medicaid, would definitely need a referral/script though, from a primary physician. Such as a GI doctor, testing here are the colonscopy & endoscopy. Here one can rule out if any detection triggering gut issues. This is actually one of the route's I took where I was able to get some of the testing done and paid through Medicaid and my private health insurance. I sure could not afford money up front for such an excellent place as the Thoughtful House out in Austin as I would I liked, so I seek other avenues. I was able to work around the doc's where I was NOT stepping over their toes on what they specialize with and kinda of gave them the power of suggesting whatever perked their ears and even got some referrals when in doubt which was actually nice.. Something like reverse psychology which worked for me. Even though you know your son suffers from constipation, you are still ruling out like Celiac, Irritable Bowl Syndrome, biopsy, etc. Normally the GI doc would say give him Miralax and plenty of fiber when all returns normal but it is really some comfort to rule out any serious underlying GI issues. This happen to , all his testing return normal but doc told me that he suffers from food intolerance. So of course told me apply the dietary intervention and dietary supplements. Once the ENT & dentist rules out also anything, this too is a safe zone knowing that there are no underlying issues here too. Then with our luck there is the Hematologist who actually ran whatever test such like in 's case would run the test needed such as IgG, Specimen Data to rule out if any bloodwork on the blood cell count. Here was the beginning on finding our one of the main culprits of being allergic to Dairy. Yes, I am out here in SA. There are also some Chiropractor who specialize with what to look for but most do not accept Medicaid or insurance. Irma > > Thank you so much to everyone who responded. this does make sense, because I have realized Noah hasn't had his bm's as usual. It is just so hard because we are not seeing a DAN doctor, there are none in our area, and as far as I know, medicaid wouldnt cover it anyway. I would love to be able to do this for him, but as of right now, we cannot. Im in the corpus christi area, Ms. Irma, I know we have had this discussion before, but are there DAN doctors in your area? If i remember correctly, youre located in the san antonio area. I would not mind the drive if it meant helping my son. Leilani __.._,_.___ Messages in this topic (11) Reply (via web post) | Start a new topic Messages | Files | Photos | Links | Database | Polls | Calendar -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ -------------------------------------------- MARKETPLACE ________________________________ From kitchen basics to easy recipes - join the Group from Kraft Foods Change settings via the Web (Yahoo! ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe Recent Activity * 2 New Members * 10 New LinksVisit Your Group Drive Traffic Sponsored Search can help increase your site traffic. Everyday Wellness on Yahoo! Groups Find groups that will help you stay fit. Group Charity Hands On Network Volunteering has never been so easy .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 > > Ms Irma, would I need a referral to have the candida yeast overgrowth test to be done, or is this something his pediatrician can do?� If I was to ask to be referred to a GI, what test would I be asking for? Leilani Leilani, Do you know anyone from the Coastal Bend support group? To see if anyone has their kids under the biomedical intervention? Normally if a pediatrician runs a test who are knowledgeable in this department will do this type of testing, no referral is needed but if this needs to be done elsewhere then one is required usually when one is under the medicaid. Should you seek the route of a GI doctor, it would be nice to have a Endoscopy and a colonscopy test, might as well get it all at once. He would have to be sedated though, through whatever the anesthesia physician uses and probably done at a hospital, most of the time. If you are not aware of one known out in Corpus, there are several out here in SA who accepts Medicaid and do not forget Medicaid could help pay for traveling expenses if no luck out there in Corpus. I know 's GI doc accepts Medicaid but do not know if they work with the younger kiddos, mostly young adults/adults. On a Resource list I have posted the site, there are some specialists which many who work or have individuals who have autism or related disorder. Testing for candida can be useful, however, sometimes the information is unreliable and the only way to really " test " for yeast is to try a yeast diet and protocol (anti-yeast supplements, probiotics, cultured foods, or medications)and see if the child responds positively. Medicaid helps pay for the Nystatin which is one of the prescribed medication, when taking this it is best to give first an activated charcoal (internal cleansing, I take the capsule apart and mixe it with pear sauce for ), then the Nystatin. This though was instructed by the doctor he is seen by. Would you like to contact and gather information from a doctor out here in SA? Look under biomedical intervention Dr.Carment O'tero, which is here on the resource guide. http://autismsocietysa.org/doc/June_2008_ASGSA_Resource_Guide.pdf Irma INTERVIEW WITH DR. WILLIAM SHAW ABOUT MICROBIAL METABOLITES IN AUTISM AND OTHER DEVELOPMENTAL DISORDERS http://www.parentsofallergicchildren.org/dr1.htm Testing for Yeast Overgrowth http://www.nutritioninstitute.com/yeastovergrowth.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 Thanks Ms. Irma, I hope im not being a nusiance by asking so many questions, this is all so new and overwhelming. I dont know anybody in the coastal bend support group, but this is something i may need to look into. As far as the endoscopy and colonoscopy, what would the GI be looking for? What would these tests be for? ________________________________ To: @... Sent: Saturday, January 31, 2009 8:34:17 PM Subject: Re: Don't know what to do > > Ms Irma, would I need a referral to have the candida yeast overgrowth test to be done, or is this something his pediatrician can do?� If I was to ask to be referred to a GI, what test would I be asking for? Leilani Leilani, Do you know anyone from the Coastal Bend support group? To see if anyone has their kids under the biomedical intervention? Normally if a pediatrician runs a test who are knowledgeable in this department will do this type of testing, no referral is needed but if this needs to be done elsewhere then one is required usually when one is under the medicaid. Should you seek the route of a GI doctor, it would be nice to have a Endoscopy and a colonscopy test, might as well get it all at once. He would have to be sedated though, through whatever the anesthesia physician uses and probably done at a hospital, most of the time. If you are not aware of one known out in Corpus, there are several out here in SA who accepts Medicaid and do not forget Medicaid could help pay for traveling expenses if no luck out there in Corpus. I know 's GI doc accepts Medicaid but do not know if they work with the younger kiddos, mostly young adults/adults. On a Resource list I have posted the site, there are some specialists which many who work or have individuals who have autism or related disorder. Testing for candida can be useful, however, sometimes the information is unreliable and the only way to really " test " for yeast is to try a yeast diet and protocol (anti-yeast supplements, probiotics, cultured foods, or medications) and see if the child responds positively. Medicaid helps pay for the Nystatin which is one of the prescribed medication, when taking this it is best to give first an activated charcoal (internal cleansing, I take the capsule apart and mixe it with pear sauce for ), then the Nystatin. This though was instructed by the doctor he is seen by. Would you like to contact and gather information from a doctor out here in SA? Look under biomedical intervention Dr.Carment O'tero, which is here on the resource guide. http://autismsociet ysa.org/doc/ June_2008_ ASGSA_Resource_ Guide.pdf Irma INTERVIEW WITH DR. WILLIAM SHAW ABOUT MICROBIAL METABOLITES IN AUTISM AND OTHER DEVELOPMENTAL DISORDERS http://www.parentso fallergicchildre n.org/dr1. htm Testing for Yeast Overgrowth http://www.nutritio ninstitute. com/yeastovergro wth.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 > > Thanks Ms. Irma, I hope im not being a nusiance by asking so many questions, this is all so� new and overwhelming.��I dont know anybody in the coastal bend support group, but this is something i may need to look into.� As far as the endoscopy and colonoscopy, what would the GI be looking for? What would these tests be for? Leilani, Oh no, never. I hear you and can relate as well. Please do not hesitate as I still do the same. The endoscopy will tell you whether your son has upper gi problems such as esophagitis or acid reflux. the colonoscopy will tell you if he has polyps(sp?) or other problems in his colon. Irma,20,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 leilani and noah, sorry i dont remember noah's age. does he take pills? I thing if he is taking liquid meds I would insist on the the pill as it wont have as much of a taste, (some are a tiny bit bitter when chewed or crushed) If he is unable to swallow pills i would just crush it with a bite of something very sugary, or sweet. like jelly or even sugar and a tad of water. some are just fine with abpplesauce or pudding but the sugary substance hides the bitter much better. Our medication times have not even been one ioda of trouble since we tried tablets or capsules, nathan doesnt chew much anyways and he just picks it up and swallows it down. i have to remind him too take a drink, lol, but he is fine with that as he is always thirsty anyways. Another huge thing that helped with nathan nose and he loves it is a suction machine. got hte script from our doc and call our medical supply co and wahlaa, our sinus colds and infection times are cut waaaayyyy down. shawna http://sewshawna.blogspot.com ________________________________ To: Sent: Thursday, January 29, 2009 8:55:03 AM Subject: Don't know what to do Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 A suction machine? I didnt' know we could get those. They used one of those in the hospital once and you dont know how many times I wish I had one. Noah is seven, and docs just started prescribing some pills. I tried just letting him take it but he just throws it, so I crush it. Luckily, both pills we have tried were still flavored because they were chewables, been doing pretty good hiding it in koolaid, but will have to find a new way to hide it because i didnt realize that the dye in koolaid might not be so great, plus im not too sure if it contains high fructose corn syrup. I am so new to this diet, and just when i thought i had it, new info becomes available. thanks for the advice, will definantly look into suction machine. Leilani ________________________________ To: Sent: Sunday, February 1, 2009 5:14:11 PM Subject: Re: Don't know what to do leilani and noah, sorry i dont remember noah's age. does he take pills? I thing if he is taking liquid meds I would insist on the the pill as it wont have as much of a taste, (some are a tiny bit bitter when chewed or crushed) If he is unable to swallow pills i would just crush it with a bite of something very sugary, or sweet. like jelly or even sugar and a tad of water. some are just fine with abpplesauce or pudding but the sugary substance hides the bitter much better. Our medication times have not even been one ioda of trouble since we tried tablets or capsules, nathan doesnt chew much anyways and he just picks it up and swallows it down. i have to remind him too take a drink, lol, but he is fine with that as he is always thirsty anyways. Another huge thing that helped with nathan nose and he loves it is a suction machine. got hte script from our doc and call our medical supply co and wahlaa, our sinus colds and infection times are cut waaaayyyy down. shawna http://sewshawna. blogspot. com ____________ _________ _________ __ From: leilani.aguirre <leilani.aguirre@ yahoo.com> To: @yahoogrou ps.com Sent: Thursday, January 29, 2009 8:55:03 AM Subject: Don't know what to do Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Thanks for all the help, really appreciate it. Leilani ________________________________ To: Sent: Sunday, February 1, 2009 3:03:18 PM Subject: Re: Don't know what to do > > Thanks Ms. Irma, I hope im not being a nusiance by asking so many questions, this is all so� new and overwhelming.��I dont know anybody in the coastal bend support group, but this is something i may need to look into.� As far as the endoscopy and colonoscopy, what would the GI be looking for? What would these tests be for? Leilani, Oh no, never. I hear you and can relate as well. Please do not hesitate as I still do the same. The endoscopy will tell you whether your son has upper gi problems such as esophagitis or acid reflux. the colonoscopy will tell you if he has polyps(sp?) or other problems in his colon.. Irma,20, DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 oh yes, the idea came to me when nathan was sooo sick and i use to be a home health nurse, i had several severe and profound clients who had tracheostomies, so ofcourse had suction machines. I asked the doc about it as nathan all ready been put under a few times to suction and flush his sinuses (they were begining to think he had cystic fibrosis) he had soo much pus and mucous and he didnt blow his nose, it would take several tries just to get him to do a tiny blow. His snius cavities couldnt heal. The docs thought it could be worth a try and worked out very well all around. We use a " DevilBiss " suction machine, its comes with its own carry case, is rechargeable battery, also has a car charger if needed when travel long distances, but battery does last a long time. I wont use techinal terms as dont want to confuse you, just ask for the usual suction tubing that goes with the canister and request a " BBG Nasal Aspirator " product code 93032-S I can give you more info on this if needed. It is what the hospitals use occasionally on infants, as you dont need a suction catheter or yancher, they dont go to nose anyways, lol, and it fits perfectly right to your suction tubing. PLEASE be sure to have your company or a nurse show you how to use it. Its not hard in the least. a http://sewshawna.blogspot.com ________________________________ To: Sent: Monday, February 2, 2009 8:29:38 AM Subject: Re: Don't know what to do A suction machine? I didnt' know we could get those. They used one of those in the hospital once and you dont know how many times I wish I had one. Noah is seven, and docs just started prescribing some pills. I tried just letting him take it but he just throws it, so I crush it. Luckily, both pills we have tried were still flavored because they were chewables, been doing pretty good hiding it in koolaid, but will have to find a new way to hide it because i didnt realize that the dye in koolaid might not be so great, plus im not too sure if it contains high fructose corn syrup. I am so new to this diet, and just when i thought i had it, new info becomes available. thanks for the advice, will definantly look into suction machine. Leilani ____________ _________ _________ __ From: a <sewshawnayahoo (DOT) com> To: @yahoogrou ps.com Sent: Sunday, February 1, 2009 5:14:11 PM Subject: Re: Don't know what to do leilani and noah, sorry i dont remember noah's age. does he take pills? I thing if he is taking liquid meds I would insist on the the pill as it wont have as much of a taste, (some are a tiny bit bitter when chewed or crushed) If he is unable to swallow pills i would just crush it with a bite of something very sugary, or sweet. like jelly or even sugar and a tad of water. some are just fine with abpplesauce or pudding but the sugary substance hides the bitter much better. Our medication times have not even been one ioda of trouble since we tried tablets or capsules, nathan doesnt chew much anyways and he just picks it up and swallows it down. i have to remind him too take a drink, lol, but he is fine with that as he is always thirsty anyways. Another huge thing that helped with nathan nose and he loves it is a suction machine. got hte script from our doc and call our medical supply co and wahlaa, our sinus colds and infection times are cut waaaayyyy down. shawna http://sewshawna. blogspot. com ____________ _________ _________ __ From: leilani.aguirre <leilani.aguirre@ yahoo.com> To: @yahoogrou ps.com Sent: Thursday, January 29, 2009 8:55:03 AM Subject: Don't know what to do Well guys, Im having issues with my little guy again, and Im at my wits end. If you remember, Noah was in the hospital with staph in Nov. Since hes been out, he had been doing fine, but most recently he has had a really bad runny nose and congestion. He was given an antibiotic and cough meds, which he took well, but he got worse. So he was given another cough med and a stronger antibiotic. Problem is, the stronger the med, the worse the taste, so we've been having problems getting him to take them. On top of that, he behavior torwards himself has gotten hard to watch. He is regressing as far as as im concerned. Its been awhile since he's been this aggressive and abusive. I am wondering if there is anything in teh meds thta is affecting him or his diet. I have no idea. I am worried for his safety and Im afraid that his congestion will turn into pnemonia. Im at a loss, dont know what to do. any advice would be greatly appreciated. The school keeps sending him home, and they just called because they were seeing self abusive behavior as well, and they too were wondering what was going on. Help. LEilani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 > > Thanks for all the help, really appreciate it. Leilani Your welcome, ready for some listening? Wonderful information towards when on this journey. Special Diets Webinar Series http://www.nutritionandautism.com/webinars.asp Enjoy! Irma,20,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Been there as well. Have you used pre-teaching as a tool before ever going to a store? In this, you sit down with a, tell her where you are going and YOUR expectations. Keep it simple. a, we are going to the dollar store. You need to walk with me and help push the shopping cart. When we are finished at the dollar store, we will get you a treat .... What ever works for her that is reasonable. Mine is mostly a jr frosty. OR maybe a balloon. But not a toy. Our rule is the treat has to be $1 or less - it is a treat not a reward. > > > Yesterday, a acted out sooo bad at the dollar general store, I had > to let my mom pay for my goods and take a out to the car. She wanted > a baby doll and a DVD, well I couldn't afford it so I told her no. Well she > had a fit. She headbutted the floor, which was ceramic s tile, she > stop,dropped, and flopped, she grabbed her throat, clawed herself and me, > and screamed uncontrollable. She pure hurt me. I don't know what to do > anymore. I need some advise. She is now 12 and weighs close to 70 lbs, I > just cannot pick her up or hold her down anymore. What do you all do(if you > ever have these moments). > > Stella > > > -- Sara -To Life! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Stella, Get a good stroller. I know that involves money but I find Jake is so much easier to control when he is in a stroller or some kind of cart. It keeps his grabbing to a minimum and I can have him strapped in. Since I have control of the stroller, he does not get to see or touch as much stuff and we have less meltdowns. We also put Jake in one cart and the purchases in another when we have extra hands. If not, Jake throws everything out of the shopping cart. Jake does terrible at Walmart. I think that is because of the lights, the noise, and the the many many people who are around. Holly don't know what to do Yesterday, a acted out sooo bad at the dollar general store, I had to let my mom pay for my goods and take a out to the car. She wanted a baby doll and a DVD, well I couldn't afford it so I told her no. Well she had a fit. She headbutted the floor, which was ceramic s tile, she stop,dropped, and flopped, she grabbed her throat, clawed herself and me, and screamed uncontrollable. She pure hurt me. I don't know what to do anymore. I need some advise. She is now 12 and weighs close to 70 lbs, I just cannot pick her up or hold her down anymore. What do you all do(if you ever have these moments). Stella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 No I haven't, but she seems to think that at every store she should get a toy, or movie. I will attempt to do this, but I'm actually scared to take her back to the store by myself. However, I am a single parent so I will have to do it. I'll try your advise next time and see how it goes. I just know I can't go through that again. Stella > > > > > > > Yesterday, a acted out sooo bad at the dollar general store, I had > > to let my mom pay for my goods and take a out to the car. She wanted > > a baby doll and a DVD, well I couldn't afford it so I told her no. Well she > > had a fit. She headbutted the floor, which was ceramic s tile, she > > stop,dropped, and flopped, she grabbed her throat, clawed herself and me, > > and screamed uncontrollable. She pure hurt me. I don't know what to do > > anymore. I need some advise. She is now 12 and weighs close to 70 lbs, I > > just cannot pick her up or hold her down anymore. What do you all do(if you > > ever have these moments). > > > > Stella > > > > > > > > > > -- > Sara -To Life! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 We too are having such a difficult time. Our son, , is 12 and weighs about 85 lbs. He can overpower me and out run me. Three weeks ago I went down 4 concrete steps trying to contain him during a melt down. (He was fine- I had a six inch scrape down one shin.) Some of his episodes of acting out, throwing, crying or giggling last up to 3 hours. His has been on about " every " medication. I really do not know what to do. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 I'm right there with you Debbie. I had to go to the Doctor about my wrist. He said that I had sprain my wrist over and over trying to pull on a. I have to wear a wrist band and apply pressure, along with taking inflammation meds. I just hope this is a phase, and that she will outgrow it. I love her to death, but I fear that she is slowly tearing my body down. Stella Harrelson, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Stella, There is a technique for getting these kids to stand up and it works for . Have you ever seen the belts that they use around the waist of someone in the hospital so they do not fall? I put this therapy belt or gait belt on , next position his knees bent and without shoes on light step on his toes. Next I count 1,2,3, it is time to stand up and he pulls himself up. He gets a reward for following instructions. I hope this helps you. Cyndi B > I'm right there with you Debbie. I had to go to the Doctor about my wrist. He said that I had sprain my wrist over and over trying to pull on a. I have to wear a wrist band and apply pressure, along with taking inflammation meds. I just hope this is a phase, and that she will outgrow it. I love her to death, but I fear that she is slowly tearing my body down. > > Stella Harrelson, > > > > > > Quote Link to comment Share on other sites More sharing options...
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