Ali

[Guest guest]

Hi, Everyone....Ali.....Gareth use to sit and pop his hips in and out while

watching TV. At age 15, he needed hip surgery on the right side because he

had eroded all his hip socket away. I would try to find a way to prevent it

so that you don't have to go through that surgery down the road. He always

complains that his knees/legs hurt after exercising, etc. and wears knee

braces. His knee caps slide back and forth very easily. The looseness is from

the DS but the lack of pain is from the autism. I was told when they found his

hip socket gone that a normal person would have been in a wheel chair unable

to walk.

Take care, Everyone.

Margaret

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[Guest guest]

My main concern is the damage she might be doing and not so much the noise of it

driving me nuts. I'm afraid she's going to wear out her knee cap or cause

arthritis and end up in a wheel chair or need surgery. I think I may call ortho

again and see what they say.

Thanks

Ali

mfroof@... wrote:

Hi, Everyone....Ali.....Gareth use to sit and pop his hips in and out

while

watching TV. At age 15, he needed hip surgery on the right side because he

had eroded all his hip socket away. I would try to find a way to prevent it

so that you don't have to go through that surgery down the road. He always

complains that his knees/legs hurt after exercising, etc. and wears knee

braces. His knee caps slide back and forth very easily. The looseness is from

the DS but the lack of pain is from the autism. I was told when they found his

hip socket gone that a normal person would have been in a wheel chair unable

to walk.

Take care, Everyone.

Margaret

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[Guest guest]

Margaret - you are so sweet to offer to mail that to me. I am in Canada though

so it would take awhile to get her plus cost extra $$$$ but thank you for the

offer. I'll pick up some while I'm out tomorrow. They tried Amy on risperdal

last December and she had seizures while on it. They aren't 100% sure if it was

the risperdal as she also became really ill at the same time but they don't want

to take chances by putting her back on it. Sounds like it would be worth trying

again if she was ever in hospital and could monitored closely when they start

it.

I gave her some tylenol this morning at 10 am and then 12 pm I gave her some

motrin and she seems pretty happy right now. Head banging has decreased (not

stopped completely) so I definitely think something is bugging her. I will see

what happens when the motrin wears off. I am to call her pediatrician tomorrow

to report in on how things are going and she said she could squeeze her in for

an app't if needed. So, I'm keeping my fingers crossed that we figure this one

out before the holidays.

Ali

mfroof@... wrote:

Hi, Everyone....Ali....another thought.....after Gareth was on the

Risperdal

he started to communicate.....thus was able to tell us where/when he hurt.

Many parents have reported that their kids start communicating after starting

Risperdal.....unfortunately, it isn't all kids. I have two bottles of

Nature Made Super B-Complex with Vit C and Folic acid. I bought a 2 pack, opened

one bottle for Gareth, and then, stopped giving it to him. I will gladly mail

them to you or anyone else if you think it will help.

Take care, Everyone.

Margaret

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