introduction

[Guest guest]

>

>

>My intro., my daughter is 10, and was diagnosed with moderate to severe

>autism at the age of 3. Her diagnosis was done by A.I. Dupont Inst. in

>Delaware. Since then, we received a followup diagnosis by KKI, of

>autism.

>We are now using a dan dr. in Randallstown, who is helping us more in

>the last 3 months than both of the major childrens centers put together.

>I would like to know who Hershey is, just so I am able to stay away from

>him. I will assume you both live in land, I live in Havre de Grace,

>between delaware and baltimore.

>I have a question of you mom's out there, when your girls got older, 10

>or so, did you see behavior changes, like wanting to stay in their room,

>or being more defiant, we are seeing this and I am wondering if it is

>the hormones acting out, or something else that may be happening. Allie

>already shows alot of signs of puberty, pubic hair, breast buds that

>have started to fill out, underarm hair, I thought she was too young for

>all of this, but others are telling me no, alot of autistic girls are

>maturing early.

>gotta go,

>cindi

>

Hi Cindi, Jill is 11, will be 12 in October. She started her period in

March. Just prior to her developing, we noticed some tough

behavior-actually it started around age 9 and lasted for almost 2 years! I

really believe it was a combination of teachers who didn't know how to

handle the situation and hormones. She is doing very well now since she

started her period. She takes care of her own personal hygiene, she's

wearing deodorant. Sport bras seemed easier for her instead of the clasps

on a regular bra. She is tall and thin, but, she definitely needs to wear

a bra. I think the age is determined more by genetics than the disorder.

I was 11 when I got my period too. Best,

** Attitude is the real disability **

[Guest guest]

Hi and K! Welcome to the list!

Wen aka Wendr

who is glad a *t* separates the *r* from the *y* on the keyboard so as not

to be mistaken for

[Guest guest]

> Barb

> who will gladly move there if we need more balance > >>

> > Deb, where do you live?

Move west, Barb! We would love to have you. I've been living in the

Great Northwest (Washington State) since 1979, but my heart still

belongs down in Southern CA. where my hubby and I moved from. He

promised me that I would get used to the cold and gray weather, but

that has never happened. I can't say anything negative about how

beautiful it is here, though. Lots of greeenery, both in vegetation

and mold. LOLOLOL

[Guest guest]

In a message dated 1/17/00 12:34:24 PM Eastern Standard Time,

etcarroll@... writes:

<< It's a monthly taebo lunch organized by MT from the " questions for

TBQ " board. and I are going for the first time on Saturday 1/29 at

1:00 in Owings Mill, land. Let me know if you are interested. 's

e-mail address is MT_ @yahoo.net. >>

Take pictures!!!!!!!!

[Guest guest]

Krilly,

There is a parent's group in Dallas/ Ft Worth called FEAT-NT, they are a

group of parents that are very knowledgeable about ABA. Also, they

periodically hold meetings and usually one big conference a year. They can

be a BIG resource for you in many ways.

Their website is http://www.featnt.org/ <http://www.featnt.org/> . (I am

the wemaster) Our next meeting is May 17th, 2003. Look for directions on

the meeting announcement on the website.

ABA is not very popular with most ISDs because it requires one-on-one. When

the ISD's talk about in-home training, USUALLY, they mean one hour a week

they will come to your home and help YOU learn skills to work with and

manage your child to reinforce what they are doing in school. They also

work with the child.

ABA focuses on working with the child intensively, usually one-on-one , in

the beginning , and with other children as the child progresses and needs

help with group social skills.

That doesn't mean you can't ask them to do ABA, with the in-home training

hours....you can ask, different ISD's embrace ABA differently, but in Texas,

most don't provide it without pulling teeth first.

Come to the next FEAT-NT meeting or locate other parents through your

nearest ASA group and that will be a good resource too. You should be able

to find some parents through ASA, also...... at

http://www.autism-society.org/ <http://www.autism-society.org/> look for

the Dallas chapter.

Hope this helps.

J. P. Reirdon

Webmaster

http://www.autismtreatment.info/ <http://www.autismtreatment.info/>

You CAN treat Autism!! Get treatment tips for children with Autism, PDD and

Aperger's Syndrome from parents who have successfully helped their children.

introduction

I am new to thid group and would just like to introduce myself. My

name is Krlly and I am 24 yrs old. My son was dx with mild autism

Dec 16th 2002 at The Child Study Center in Ft. Worth. He just turned

three in January. He is nonverbal but is a very loving child. Since

he turned three he is going to the public schools special preschool

program in Waxahachie, Texas where we live. We also do a gluten,

casein and soy free diet and we are doing vitamin and other

supplements. I can't say either way if any of these will fully help

but i like to give him a shot at any and every treatment. recently

we started participating in the study trial for secretin at the texas

center for autism research in san antonio. the reason i jo9ined this

group is i have no idea what i should ask for or expect my son to

receive through the school system or any other branch like dept. of

human services or mhmr. we are having another iep meeting tomorrow

so he can go year round in school and they have told me because of

his diagnosis he also qualifies for in home training and therapy. is

that different from aba? i would really love to get him set up to

recive aba but i have no idea how to do this. (please forgive my

ignorance) we have texas chips(amerigroup) as his insurance and im

not sure if they help pay for anything. where should i start. who

do i talk to - to find out where to get services. we live in ellis

county just south of dallas and no one out here seems to have any

groups. i know there has to be more of us around me but i havent

found anyone. help!!!!!!!

[Guest guest]

Howdy all and ,

KD recieves ST and OT about twice a month each, and the ECI lady comes

usually twice a month. Last time I saw our ST I told her I wanted more sessions

for

him. With us being 90 mi from the biggest decent sized town, it's harder for

them. She told me if all else fails they could get the schools involved. I

don't exactly know who I would discuss it with at the ISD. Shoot when I was

pregnant with him I worried about who would tell me when it was time to enroll

him LOL. I'm not the brightest light on the tree... but none the less... KD

needs as much help as he can possibly get and I want it for him. I joined this

loop, in hope that someone in this area could serve as my mentor, as I learn

the " ropes " of who to talk to and about what. I appreciate all the emails and

welcome them with open arms.

Sincerely,

Valrie

[Guest guest]

,

I would suggest that you push ECI for more services. Your

description of your son sounds very much like my youngest son, .

He climbs everything in site and has a high pain threshold as well.

is non-verbal @ 35 months and is graduating from ECI this

month.

Have your ECI rep set up evals for your son for speech and OT

services, if he has not had them already. He should qualify for OT

based on sensory integration needs and speech as he is non-verbal.

Based on my experience, he should receive at least one session per

week with each of these therapists and one session a week from

a 'developmental specialist', sort of a catch-all phrase for a

generalist.

I would also start to research what the programs are that your local

ISD provides. Also, start to research what some of the therapies are

that will provide your son with the most benefit and be prepared to

ask the ISD to provide these services to your son.

I will be happy to let you know what worked for us.

Best of Luck!

-

[Guest guest]

Hello all, My name is Dori Barton & we live in Kansas City, Missouri. We have 5 children but our 12 y/o daughter is the only one who has AS. Hers is immunization related. I would like to talk to other parents & share stories about these wonderful children who are as special as God could possibly make them. I would like to share stories & am willing to help others in things I have experienced & learned the hard way during our journey to where we are now. Thanks for the group

[Guest guest]

I can relate to this ..

I to had a lot of damage before finding out...

The thing I have come to realize is I am NOT an expert and all the information can get over whelming at times...

But I do what my doctors tell me and ask questions when I can...

Sometimes I get where good god I can't take any more so I just try to get through the best I can....

I tell my wife I have to deal with this MY way cause I have to live with it...

And at times just getting through the day is all I can deal with...

I am on the transplant list and almost had a live not to long ago, but it wasn't meant to be...

I wish you and your husband all the luck there is,

And anytime I can help just yell

<smile>

Sometimes my mind is clear enough to talk other times all I can say is I'm sorry if it doesn't come out clear......

Don't let all the information over whelm you, just take in what you can for now

-- Introduction

Hi, My name is Donna and my husband has Hepc with cirrrhosis. We have a 14 yr. old and a 2yr. old and really need Dad to get well. I met Johanna and she thought we could use the support of this group. Joe tryed Pegintron but failed to respond. We are planning to try again with daily Infergen shots and Riba in January. The treatment made him very sick and depressed last time and I wish we could afford to wait for some of the better drugs but Joe already had considerable damage before we knew he had hep c. We are definately struggling around here and I have been letting the problems eat me up. I know I have to stop it and find some new ways to cope. My husband is not very involved with finding a solution. He is coping by trying not to think about it and I am thinking too much about it. I look forward to listening and sharing.Blessings,Donna

[Guest guest]

MAC/MAI is essentially "bird tuberculosis". The typical transmission route is from water. Birds crap in the water and the pathogen is not filtered out in the city water supply. MAC/MAI is found in the water supply in most cities in warmer climates, such as Los Angeles.

Although MAC/MAI can be treated with Biaxin (clarithromycin), Zithromax (azithromycin) and other antbiotics, it is just as easy to get re-infected unless the person in question sees an improvement in their T cell count, perhaps to above 350 but there is no absolute number.

Installing a reverse-osmosis water filtration system with filters capable of removing the mycobaterium is a smart investment for less than $300.

>> Hello, my name is Kelli...My fiance is living w/ Aids. He was diagnosed w/ the virus back in April of 2006 - at the time I was 3 months along w/ our child. I, at this point, am still negative and the same is w/ our baby girl. However, he was also diagnosed w/ a condition called MAC, something that confuses me. Thats where alot of my questions stem. If anyone has any information about the condition that they feel would be helpful please pass it along. Any information would be greatly appreciated.> Thank you for your help in advance. ~Kelli~> > > ---------------------------------> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.>