Re: Supplements, Diet, and HBOT

[Guest guest]

It is a slow process but all worth it when some results are shown,

thanks for sharing. Awesome news!!!

I can totally relate as is once again coming along.

Tomorrow thru Saturday is that time for us to commute out once again

for his treatments.

This is incredible news Cyndi to read 's latest updated results

and prayers that he may continue making the connection and feeling

well. Hope you are also taking care of yourself.

It is a wake up call from being zoned out. Glad is in good hands

with the medical team he is being seen by and mama pursued her mission.

Irma,20,DS/ASD

>

> I am so excited that is started to say and do things he has never

> done before. What may seem small is a giant step for . has

> been locked into his own little world since he turned 3. So at 13 yrs

> old these things are accomplishments. The light are coming on in his

> brain. The 1st thing he did was notice that his toothbrush was actually

> in a toothbrush holder instead of the drawer. I told him to get his

> toothbrush, and toothpast out of the drawer and he looked up and saw

> his toothbrush in the holder.Then he open the drawer and took out the

> toothpast. He was always locked in his world and would have never

> notice that his toothbrush was anywhere but the drawer.He said the

> words car, mine,big big boy and argued with me when I asked him to say

> mine the next day. I said say mine and he said no.Yesterday he went to

> a drawer in the kitchen opened the drawer took out a pack of batteries

> and hand the batteries and his singing scooby doo to my husband. He

> realized scooby needed new batteries to work. He is making great eye

> contact and noticing the world around him. Even the aids at school have

> said that is paying better attention. We have been doing the diet

> since April 16 th and we have had setbacks with staph infections and

> hospitalizations for him. I was afraid we may never see any results. My

> prayers are slowly being answered. Cyndi

>

[Guest guest]

Irma, You hit the nail on the head. My mission is to help be the

best person he can be. He may never have a conversation like you or I

or he might. But at least I know I have helped him improve in the

areas like communication,cognition, etc. On the road was on none

of this would have been possible. He comes up to me and gives me big

hugs and kisses as to say thanks for helping me mom. After I read the

story in the TACA newsletter about the 30 yr old man that started

talking an now has a cell phone well I just had more hope. It is

never to late for the window of opportunity. How is doing

since his surgery? Have you ever used Depakote? Cyndi B

>

> It is a slow process but all worth it when some results are shown,

> thanks for sharing. Awesome news!!!

>

> I can totally relate as is once again coming along.

> Tomorrow thru Saturday is that time for us to commute out once again

> for his treatments.

>

> This is incredible news Cyndi to read 's latest updated results

> and prayers that he may continue making the connection and feeling

> well. Hope you are also taking care of yourself.

> It is a wake up call from being zoned out. Glad is in good

hands

> with the medical team he is being seen by and mama pursued her

mission.

>

> Irma,20,DS/ASD

>

>

>

>

> >

> > I am so excited that is started to say and do things he has

never

> > done before. What may seem small is a giant step for .

has

> > been locked into his own little world since he turned 3. So at 13

yrs

> > old these things are accomplishments. The light are coming on in

his

> > brain. The 1st thing he did was notice that his toothbrush was

actually

> > in a toothbrush holder instead of the drawer. I told him to get

his

> > toothbrush, and toothpast out of the drawer and he looked up and

saw

> > his toothbrush in the holder.Then he open the drawer and took out

the

> > toothpast. He was always locked in his world and would have never

> > notice that his toothbrush was anywhere but the drawer.He said

the

> > words car, mine,big big boy and argued with me when I asked him

to say

> > mine the next day. I said say mine and he said no.Yesterday he

went to

> > a drawer in the kitchen opened the drawer took out a pack of

batteries

> > and hand the batteries and his singing scooby doo to my husband.

He

> > realized scooby needed new batteries to work. He is making great

eye

> > contact and noticing the world around him. Even the aids at

school have

> > said that is paying better attention. We have been doing the

diet

> > since April 16 th and we have had setbacks with staph infections

and

> > hospitalizations for him. I was afraid we may never see any

results. My

> > prayers are slowly being answered. Cyndi

> >

>

[Guest guest]

It is us stepping back and analyzing on why are they reacting when

some severe challenging behavior issues or other issues arise? What is

going on with them? Especially when they are unable to talk.

When applying whatever recommendation which doc's have prescribed and

all trials and errors treatments have been tried.

I use to brag how much during 's latter part of his middle

school and early HS years how he was coming along in the past, but

then BAM!

His underlying medical issues kept deteriorating and none of the docs

he was seen by could figure out what was going on with him especially

whatever lab results all would return normal.

Yet, they were puzzled because his fever was high or low, very

lethargic, skin color was not the same, suffer from chronic

constipation or diarrhea, sleep issues, picky eater, periodic

recurrent infections, the list goes on.

Well, the latest results can rule out Leukemia, one of his local doc

ran some bloodwork to determine to see if needed on running the test

needed on his latest visit this past week, result return great so no

testing needed anymore and hurray on ruling Leukemia out.

I am just surprised how much the treatments is undergoing has

made this dramatic improvements on his health issues.

I remember one of the doc's was seen by told me " Do not be

surprised if he should one day wake up, finally able to look out the

window and begin to feel alive and see begin seeing the world " .

There is Hope towards seeking the action needed when there are other

options to choose from.

has never been under Depakote.

Is the doc recommending this for ?

Irma,20,DS/ASD

>

> Irma, You hit the nail on the head. My mission is to help be the

> best person he can be. He may never have a conversation like you or I

> or he might. But at least I know I have helped him improve in the

> areas like communication,cognition, etc. On the road was on none

> of this would have been possible. He comes up to me and gives me big

> hugs and kisses as to say thanks for helping me mom. After I read the

> story in the TACA newsletter about the 30 yr old man that started

> talking an now has a cell phone well I just had more hope. It is

> never to late for the window of opportunity. How is doing

> since his surgery? Have you ever used Depakote? Cyndi B

[Guest guest]

Yes the Dr. is recommending Depakote with his abilify as a mood

stablizer. The boimedical Dr. that I take him to said it was worth a

try. She said she has not found anything that is natural that will

stablize moods in aggressive kids. Depakote seems scarey to me

because of it's side affects. Cyndi b

>

> It is us stepping back and analyzing on why are they reacting when

> some severe challenging behavior issues or other issues arise? What

is

> going on with them? Especially when they are unable to talk.

> When applying whatever recommendation which doc's have prescribed

and

> all trials and errors treatments have been tried.

> I use to brag how much during 's latter part of his middle

> school and early HS years how he was coming along in the past, but

> then BAM!

> His underlying medical issues kept deteriorating and none of the

docs

> he was seen by could figure out what was going on with him

especially

> whatever lab results all would return normal.

> Yet, they were puzzled because his fever was high or low, very

> lethargic, skin color was not the same, suffer from chronic

> constipation or diarrhea, sleep issues, picky eater, periodic

> recurrent infections, the list goes on.

> Well, the latest results can rule out Leukemia, one of his local doc

> ran some bloodwork to determine to see if needed on running the test

> needed on his latest visit this past week, result return great so no

> testing needed anymore and hurray on ruling Leukemia out.

> I am just surprised how much the treatments is undergoing has

> made this dramatic improvements on his health issues.

> I remember one of the doc's was seen by told me " Do not be

> surprised if he should one day wake up, finally able to look out the

> window and begin to feel alive and see begin seeing the world " .

>

> There is Hope towards seeking the action needed when there are other

> options to choose from.

>

> has never been under Depakote.

> Is the doc recommending this for ?

>

> Irma,20,DS/ASD

>

>

>

> >

> > Irma, You hit the nail on the head. My mission is to help be

the

> > best person he can be. He may never have a conversation like you

or I

> > or he might. But at least I know I have helped him improve in the

> > areas like communication,cognition, etc. On the road was on

none

> > of this would have been possible. He comes up to me and gives me

big

> > hugs and kisses as to say thanks for helping me mom. After I read

the

> > story in the TACA newsletter about the 30 yr old man that started

> > talking an now has a cell phone well I just had more hope. It is

> > never to late for the window of opportunity. How is doing

> > since his surgery? Have you ever used Depakote? Cyndi B

>

[Guest guest]

Are you in communication wtih Dr Phil??? He deserves to know that he has

led to help for another person!!

I am so happy for you.

On Wed, Oct 8, 2008 at 6:54 PM, wrote:

> I am so excited that is started to say and do things he has never

> done before. What may seem small is a giant step for . has

> been locked into his own little world since he turned 3. So at 13 yrs

> old these things are accomplishments. The light are coming on in his

> brain. The 1st thing he did was notice that his toothbrush was actually

> in a toothbrush holder instead of the drawer. I told him to get his

> toothbrush, and toothpast out of the drawer and he looked up and saw

> his toothbrush in the holder.Then he open the drawer and took out the

> toothpast. He was always locked in his world and would have never

> notice that his toothbrush was anywhere but the drawer.He said the

> words car, mine,big big boy and argued with me when I asked him to say

> mine the next day. I said say mine and he said no.Yesterday he went to

> a drawer in the kitchen opened the drawer took out a pack of batteries

> and hand the batteries and his singing scooby doo to my husband. He

> realized scooby needed new batteries to work. He is making great eye

> contact and noticing the world around him. Even the aids at school have

> said that is paying better attention. We have been doing the diet

> since April 16 th and we have had setbacks with staph infections and

> hospitalizations for him. I was afraid we may never see any results. My

> prayers are slowly being answered. Cyndi

>

>

>

--

Sara - Life is a journey- we choose the path.

[Guest guest]

Yes, Sara the Dr. Phil staff is aware and they are following 's

journey. will reappear sometime next year on Dr. Phil to show

his progress. I hope that by the time the show airs will be even

more vocal. We have had set backs that can interfere with his

progress. Like he has had a staph infection 2 times since starting

this journey and every time he has to be hospitalized and takes

antibiotics by mouth it causes set backs. was recently dx with

another staph infection and we continue to work on his immune system

to fight staph infections. I am proud of and I can tell he is

proud of himself. Thanks for asking. Cyndi B

>

> Are you in communication wtih Dr Phil??? He deserves to know that

he has

> led to help for another person!!

>

> I am so happy for you.

>

> On Wed, Oct 8, 2008 at 6:54 PM,

wrote:

>

> > I am so excited that is started to say and do things he

has never

> > done before. What may seem small is a giant step for .

has

> > been locked into his own little world since he turned 3. So at 13

yrs

> > old these things are accomplishments. The light are coming on in

his

> > brain. The 1st thing he did was notice that his toothbrush was

actually

> > in a toothbrush holder instead of the drawer. I told him to get

his

> > toothbrush, and toothpast out of the drawer and he looked up and

saw

> > his toothbrush in the holder.Then he open the drawer and took out

the

> > toothpast. He was always locked in his world and would have never

> > notice that his toothbrush was anywhere but the drawer.He said the

> > words car, mine,big big boy and argued with me when I asked him

to say

> > mine the next day. I said say mine and he said no.Yesterday he

went to

> > a drawer in the kitchen opened the drawer took out a pack of

batteries

> > and hand the batteries and his singing scooby doo to my husband.

He

> > realized scooby needed new batteries to work. He is making great

eye

> > contact and noticing the world around him. Even the aids at

school have

> > said that is paying better attention. We have been doing the

diet

> > since April 16 th and we have had setbacks with staph infections

and

> > hospitalizations for him. I was afraid we may never see any

results. My

> > prayers are slowly being answered. Cyndi

> >

> >

> >

>

>

>

> --

> Sara - Life is a journey- we choose the path.

>

>

>

[Guest guest]

To medicate or not to medicate... that is the question that haunts

parents.

One of my nephew with special needs(Treacher Syndrome)suffers

from seizure, low dose being on Depakote, he has had zero negative

side effects. He has been on this drug for numerous of years, used to

control his seizures.

I had just learn about the usage of Depakote is an anti-seizure

medication which I knew is also used as a mood stabilizer.

I am pretty sure the doctor will be monitoring 's bloodwork should

you seek this route as a trial, right?

I know what works for one may not for another person.

Since is already under the Abilify, would it be worth the trial

in the mean time? Especially while being supervised by this doctor.

Hopefully others with some experience with depakote will chime in and

give you some more answers.

It is a difficult decision for parents to make faced with the

difficulty of controlling behavior that could be dangerous to the

child or others. Some medication may be unavoidable.

However, consider your options carefully and as you look at other

possible interventions too.

is supervised under all the nutritional supplements recommended

which are according to his Genomic Predisposition, genetic test which

is the foundation of his treatments. Along with that the clinic also

will do some biomedical testing to identify his current needs.

What makes this decision difficult is that each child with autism has

a different combination of biomedical causes.

is currently under the Nystatin for his yeast overgrowth as

this was the latest results that sure enough have shown Candida. His

doc had witnessed his aggressive behavior, let's say like Jekyll and

Hyde, very cooperative getting off the vehicle, enters the blding. and

then depending on what type of day he is going to have, then all of a

sudden it is just towards my way of pushing me or wanting to grab me

to leave not out of the bldg. but to one of the rooms. Still, this was

going on and I of course had mentioned that if we could try out the

med route, so they ran more lab test and added on to his nutritional

supplemental recommendation and so far his aggressiveness has

decreased especially now also addressing the yeast overgrowth issue.

Not promoting the supplements from Kirkman but some of the

recommendation for his Behavioral Disorders are similar to what is

posted here on this site. We do not use Kirkmans brand.

Below is the August, 2008 issue of the Kirkman Labs newsletter. This

issue has some very useful information about nutritional supplements

that help with behavior and sleep.

Might have to cut and paste.

http://mail.google.com/mail/?ui=2 & ik=a4ef18f358 & view=pt & q=GABA & search=query & th=1\

1bbd94224477230

I do wish you luck on this decision, sorry not too much help here but

I know you will follow your gut instinct.

Irma,20,DS/ASD

>

> Yes the Dr. is recommending Depakote with his abilify as a mood

> stablizer. The boimedical Dr. that I take him to said it was worth a

> try. She said she has not found anything that is natural that will

> stablize moods in aggressive kids. Depakote seems scarey to me

> because of it's side affects. Cyndi b

[Guest guest]

Cyndi,

It can be a slow progress but then big leaps. When Jake is not feeling well, it

seems like he is sliding back, but after he gets well, again there is a big

leap. I never thought he would say Mom. Now I hear MAAA! MAAA! all the time.

He will continue to say MAAA! until I say what? Then he starts his chatter as

if he is telling me a story. Many times I get key words to know what the story

is about so I can ask questions. It is amazing how smart people realize they

are once the tiniest little light starts to shine.

I hope this next time they show the real YOU on Dr. Phil as well as the real

. should have his own 1 hour show if you ask me! Hey, maybe you and

can do a show together!

Holly

Supplements, Diet, and HBOT

I am so excited that is started to say and do things he has never

done before. What may seem small is a giant step for . has

been locked into his own little world since he turned 3. So at 13 yrs

old these things are accomplishments. The light are coming on in his

brain. The 1st thing he did was notice that his toothbrush was actually

in a toothbrush holder instead of the drawer. I told him to get his

toothbrush, and toothpast out of the drawer and he looked up and saw

his toothbrush in the holder.Then he open the drawer and took out the

toothpast. He was always locked in his world and would have never

notice that his toothbrush was anywhere but the drawer.He said the

words car, mine,big big boy and argued with me when I asked him to say

mine the next day. I said say mine and he said no.Yesterday he went to

a drawer in the kitchen opened the drawer took out a pack of batteries

and hand the batteries and his singing scooby doo to my husband. He

realized scooby needed new batteries to work. He is making great eye

contact and noticing the world around him. Even the aids at school have

said that is paying better attention. We have been doing the diet

since April 16 th and we have had setbacks with staph infections and

hospitalizations for him. I was afraid we may never see any results. My

prayers are slowly being answered. Cyndi

[Guest guest]

Group, thanks for your input about Depakote. took Risperidal and

it worked great for about 2 yrs but despite even increasing the

Risperidal it quit working. I wish there was a biomedical alternative

that was not so scarey. I know all meds have side affects but with

not able to communicate when something is wrong it makes me

leary of trying something with so many side affects. I will more than

likely try the Depakote like someone said so at least I will know if

it works or not but with reservations. Irma or Margaret once said

that after the kids get through puberty and hormones these kids calm

down. I can definately tell that hormones are a big play in 's

behavior. I wish I could fix like they fix puppies because that

seems to deflate the hormones. Just kidding. Thanks again Cyndi B

>

> Cyndi,

> It can be a slow progress but then big leaps. When Jake is not

feeling well, it seems like he is sliding back, but after he gets

well, again there is a big leap. I never thought he would say Mom.

Now I hear MAAA! MAAA! all the time. He will continue to say MAAA!

until I say what? Then he starts his chatter as if he is telling me

a story. Many times I get key words to know what the story is about

so I can ask questions. It is amazing how smart people realize they

are once the tiniest little light starts to shine.

>

> I hope this next time they show the real YOU on Dr. Phil as well as

the real . should have his own 1 hour show if you ask me!

Hey, maybe you and can do a show together!

>

> Holly

>

> Supplements, Diet, and HBOT

>

>

> I am so excited that is started to say and do things he has

never

> done before. What may seem small is a giant step for .

has

> been locked into his own little world since he turned 3. So at 13

yrs

> old these things are accomplishments. The light are coming on in

his

> brain. The 1st thing he did was notice that his toothbrush was

actually

> in a toothbrush holder instead of the drawer. I told him to get

his

> toothbrush, and toothpast out of the drawer and he looked up and

saw

> his toothbrush in the holder.Then he open the drawer and took out

the

> toothpast. He was always locked in his world and would have never

> notice that his toothbrush was anywhere but the drawer.He said

the

> words car, mine,big big boy and argued with me when I asked him

to say

> mine the next day. I said say mine and he said no.Yesterday he

went to

> a drawer in the kitchen opened the drawer took out a pack of

batteries

> and hand the batteries and his singing scooby doo to my husband.

He

> realized scooby needed new batteries to work. He is making great

eye

> contact and noticing the world around him. Even the aids at

school have

> said that is paying better attention. We have been doing the

diet

> since April 16 th and we have had setbacks with staph infections

and

> hospitalizations for him. I was afraid we may never see any

results. My

> prayers are slowly being answered. Cyndi

>

>

>

>

>

>